Metal Stent To Treat Sphincter Of Oddi Dysfunction?
Mar 3, 2016
I was wondering if anyone has had a metal stent placement to treat SOD level one at all. I have posted here in the past as I have gone through 5 ERCP since my gallbladder removal summer of 2013. 3 of the 5 had a single plastic stent placement which all worked until the stent either passed on its own, or was removed by my GI doc. The other 2 times I had multiple stents placed intended to stretch the duct open in hopes of staying that way when these were removed. Obviously it didn't stay open as I relapse into the same set of symptoms that I hope to alleviate......stinging pain where the GB was, bloated all the time, the feeling of a softball lodged into the R abdomen, and pain in the back and R shoulder blade. GI doc (who is well respected here at the Univ. of MN) says that the only options left for me are a botox injection, or metal stent. Any opinions out there? Status quo being stent-less right now is not how I want to live the rest of my life. I am 52 and feel way too young to concede this whole thing.
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I had botox injection into my ampulla yesterday for the treatment of SOD 3. I am in so much pain today. please does anyone have similar symptoms. if pains could kill I would be dead by now.
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I had my gallbladder out about 9 years ago now, and have found every time I have opiates like codeine Etc it brings on a SOD attack. Has anyone else experienced this? So I have to avoid anything with opiates in it. Which is awful as I can't have any pain relief during labour and I am due in sept, I'm just wondering if anyone here knows of any of pain relief one can have if they can't have opiates?
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My wife has been diagnosed with SOD and has been offered botox injections for it. Has anyone had experience of this or got an information on it.
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I was struggling with Sphincter of Oddi Dysfunction but feeling it was not worth the risk of pancreatitis to go ahead with the endoscopic sphincterotomy and would like to share my success using self-administered acupuncture.
My SOD had two pain styles. My daily pain is very successfully managed (99% pain free days) using 30 mg amitriptyline each night and 10mg Buscopan 3xdaily. Before drugs my daily pain was so bad that I was hardly eating - not a long term strategy.
I also get (used to get) episodic severe night time pain attacks. The upper gastric / chest area pain is extreme (as you'll know if you have SOD) and I used to take 20mg oxycodone. Each morning after an attack I woke with migraine, vomiting and general weakness, needed a day in bed. These night time attacks became worse and more frequent until I started acupuncture.
A GP friend taught me to do acupuncture to myself, the most useful points are GB34 and LR3. I do electroacupuncture weekly as a preventative measure, since March 2012. My night time attacks are now infrequent, very mild indeed, and I can stop them by using manual needling in GB34 only. I don't even have to get out of bed, go straight back to sleep and can get up and go to work as usual in the morning.
This has transformed my experience of this horrible condition.
Happy to discuss further with fellow sufferers or medics. Planning to present a paper at an acupuncture conference soon
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I had my gallbladder removed laparascopically 2.5 years ago. Have had some issues with diarrhea but nothing else. About 3 weeks ago I was diagnosed by my PCP based on my symptoms with gastritis due to Nsaid overuse. Have been on a PPI and Carafate. Not improving at all, in fact getting worse. My ALT liver enzyme was slightly high but otherwise the rest of the blood work was normal.
Went back to see my PCP today and she brought up the subject, based on my symptoms, of possible Sphincter of Oddi malfunction. My symptoms are RUQ pain that comes and goes, yellow stool, stomach bloating and nagging upper back pain between shoulder blades. I have an ultrasound on Friday. After reading about SOD (shudder) I think this might be just the beginning of the saga if I do indeed have it.
Do any of you dear readers have any experience or knowledge in this area?
It is a good thing I am retired because I have been basically sacked out on the couch. I think it would be impossible to work with the degree of discomfort I am having.
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I Have been hospitalized the last two weeks for severe pain caused by SOD. It is mind boggling to me that people in the medical profession can be so ignorant and expect for pain to be textbook. I was reaching out to see if anyone had any good ideas on treatment options. With that being said I have had a sphincterotomy performed several years ago and now I am starting to have more pain and nausea (obvious by my hospital admissions). The only analgesic that is able to help the pain at all is Dilaudid, can't be morphine as this causes more spasms. I had an MRCP tonight, will talk to doctor in the AM and find out results. Please let me know what's worked/not worked for you and any treatments/tests that you have had done.
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Does anyone out here have any experience with using progesterone to help regulate the function of the Sphincter of Oddi?
My history: I am a healthy and active 132lb, 42 year old female, but I have been having pain in my upper right shoulder, neck and collarbone for three years now that has really curtailed my life and work. I have tried massage, acupuncture, physical therapy, drugs, strength training, chiro, all with no results. Recently a chiro noticed that my gallbladder area was tender and mentioned that gallbladder problems can refer pain up to the right shoulder area through the phrenic nerve. When I started tracking my pain and food I did notice a connection with pain in my shoulder and my right lower ribs as well (which I had been hiding with lots of ibuprofen). An ultrasound, blood work, and HIDA came back normal (at least that's how the doc reads it), but I'm still having pains when I eat oily foods. So now I am thinking I might have problems with the sphincter and with bile backing up creating pressure on the phrenic nerve. Another symptom is that I am now also having pains on my left side which could be the pancreas being impacted, which shares the common duct and sphincter.
So my question stems from the fact that I had a hysterectomy several years back and have only been on estrogen replacement. I've recently found out that progesterone is important for relaxing the Sphincter of Oddi muscles as well as gallbladder function (as well as many other things). When my nutritionist suggested a few months back to use Progonol, a progesterone cream, it did have a positive effect on the pain within two weeks, but it also caused acid reflux (it also loosens the valve between the esophagus and the stomach), so I had to stop taking it and now we are trying to figure out the best way to introduce it back into my body.
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If u also have horrible Random pains from sphincter of oddi please just give mineral water a try.. Any brand is fine just make sure it's mineral not seltzer water .. Perrier or any other brand ..
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I should preface this with the fact that I've had my braces on for close to half a year and I just started having this problem a few days ago. My braces create an meme sting metallic taste in my mouth. It has been nonstop since around three days ago. I made an appointment today to see my orthodontist and I was told that no bands were loose (most of the bad taste, as much as I can tell, comes from the metal brackets that are banded around my teeth) and nothing was found.
I got some mints but the relief is only temporary to the metal taste.
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I'm 33. Happened during wrestling. What kind of break is this? How long before I can start walking? How long before the screws / metal removed?
Aren't those screws sticking out the other side of the bone? Is that not a problem?
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Having this tightness like a metal band round my upper abdomen (just under the ribs) with a feeling of "something" stuffed behind my breastbone, also breathless at times, and whole stomach can be hugely distended and hard, tightness and pain in the back sometimes too, some burping
H Pylori negative
has anyone had anything similar?
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About a year ago, I had a kidney stone, and stent put in. I thought the stent would help me pass the stone. The Dr. said that wouldn't happen, removed the stent 6 weeks later, saying he thinks I still have it. To my knowledge I have not passed a stone, people say if I did I would feel it. I am now having pain, like a kidney infection, am a little worried it could be this stone. The Dr. said it would make me really sick if I don't pass it. It does hurt on the left, where the stone was located, but not like before. I don't have insurance and can't afford another ultrasound. has anyone passed a stone with stent in place? I think I passed it when I had the stent and just have an infection.
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I was diagnosed very late with this condition. An acute GP noticed the murmur and was not convinced that all was normal. Test after test later it was confirmed. Months later i had a stent fitted which is 4cm x 2cm, I was not warned about the amount of bruising or the pain in the legs, 4 months later i am still having pain in the groin and the che chest. The cardiologist does not know why I have this pain that travels from my chest to my back and left arm. MY left leg feels heavy and numb down to the foot which is freezing cold at times again. I have started feeling tired and fed up with the whole ordeal. Yes i know i needed this procedure but through choice i would never have had it - my active happy go lucky lifestyle now revolves around this. When i get ill My poor GP has to send me into the hospital as they are not well versed with this condition. Can anyone tell me when will I feel well and strong again. Do you get back to normal? The hospital and the doctors have been wonderful but they just do not have the answers. They think it could be damage due to the surgery but not life threatening so at least that is something to be cheerful about. I would love to hear from other people that have undergone similar treatment.
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This post is simply me sharing my story so other people may not make the same mistake as I did. I am a 27 y/o male. I first noticed hemorrhoid issues when I was 20, just an occasional flare up for a week or 2 out of the year, no big deal. Each year it continued to flare up more and more. Until for the past year or so every time I would have a bowel movement there would be bleeding sometimes just a couple drops in the water sometimes blood sprayed all over. Still I did not seek treatment besides trying not to strain. Then an unrelated health issue sent me to my Doc, in the course of this he did all the blood tests known to man I think. My consistent bleeding for over a year had made me anemic with a hemoglobin of only 8.3, two weeks later hemoglobin of 8.0 and an extremely low testosterone level as well which was caused by the chronic anemia. The hematologist had me immediately scheduled for an appointment with a surgeon. Endoscopy, Colonoscopy, and a Banding. The banding at first didn't seem to bad, luckily I was knocked out for the colonoscopy so I wasn't awake for the banding. However, the next week was constant pain, and the first two days were nearly unbearable. I've never had a problem with hemorrhoids that seem to remain outside the body until after this procedure not sure if the banding or colonoscopy could have worsened that condition. However 2 weeks after the banding I still have hemorrhoids and the symptoms were worse than ever: pain, itching, burning. Well I had already decided unless the bleeding was extreme again I WOULD NOT go back for another dr visit. I tried sitz bath (which for me over the years have always seemed to provide quick relief BUT then cause worse inflammation in a few hours). I tried ACV on cotton balls, painful and after a week didn't notice any improvement. During this entire time I had also converted to a high fiber diet. After the ACV I continued high fiber diet, using a stacker to put my feet on when I'm having a bowel movement, and using tucks witch hazel in the morning and before bed. With those I finally am symptom free. However, I am going to keep doing these thing forever because it seems to me that hemorrhoids, once they get out of control, will never go away completely. You just have to treat them and manage them and you will remain symptom free but if you go back to the same old habits. They will come back same as before. I am still on an iron supplement and taking testosterone shots as well.
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I had my first kidney stone in February of this year. I had lithotripsy twice on my right side and also a stent. The stent was removed after three days. I have had a constant stabbing pain where the stent once was. I have seen many different doctors and been to the ER several times. Each CT scan has come back negative for more stones and doctors cannot find a reason I am still in pain. Anyone have the same problem?
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My Dad had a Stent placed after a heart attack one week ago. He has been having jaw pain all day. Should we be worried?
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I was diagnosed with kidney stones and parathyroid disease in March 2010 whilst being in hospital as a result of high calcium levels (3.7 mmol/L) and significant pains in the back. A stent was inserted in order to help the kidneys and I went through a number of tests (Mibi scan, ultrasound, DEXA among others) for identifying the gland(s) that were overproducing the hormone for calcium (201 serum PHT). While I was told that the stent should not remain longer than two months and that I should have the stones removed as soon as possible, I have not been scheduled yet for the removal (ureteroscope). During the last month, the stent has become very uncomfortable, I cannot walk for more than 10 minutes and I feel very tired. I went to the A&E but I was offered only muscle relaxants and painkillers and I have not seen any improvement as a result of these. Simultaneously, I am waiting for the arrangement of the removal of the parathyroid gland.
Is there anyone with similar experience? Is it normal to have that long the stent and have these symptoms? And is there anyone that has gone through a removal of parathyroid glands? Any information would be most helpful.
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Dec 29 emergency room found 2 stones 7 & 8 in size. Put in stint, went to urologist 2 weeks later and 2 weeks after that had Lithotripsy, turned 2 stones into 5 that were at the bottom of my kidney. 3 weeks later had Ureteroscopy urologist said this would get rid of stones. Went in today to have stint removed. Blah, still have several stones. I am beside myself and quickly loosing confidence in my urologist. He told me to stand on my head numerous times a day in hopes that the kidney stones will float to the top and out (I am 60 by the way). Standing on my head is going to be a feat. Said come by in 2 weeks and we will explore options to remove the stones again...
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66 year old husband who has always been fit and healthy developed unstable angina and within three days was fitted with a stent. This was at the end of January. Not been feeling too great since a few days after and now the doc has said he is suffering from anaemia and will have to go for a colonoscopy.
hubby cant understand this as he was never anaemic before.
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What are the best supplements to treat hemorrhoids? I have a few suggestions I am willing to compare.
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