Lupus :: Severe Joint Pain And Weakness, Muscle Weakness, Bone Pain
Jun 29, 2015
for the past week I had severe joint pain and weakness, muscle weakness, bone pain in extremities ( had a blood test for lupus and RA[ no family history of either] Starting to get a bit better as long as I rest. recently sexually active with one person, now I just noticed feeling swollen like I was getting a UTI ( hurt when I urinate), but noticed it hurt in my vagina not urethra, checked and there are 4 small red bumps in my right labia minora and 1 in my left labia minora-odorless, feels inflamed and hurts now. Is this related to possible lupus or separate problem? I feel exhausted and run down.
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I was diagnosed about 4 months ago with Hashimoto's. I'm on 75 mcg of Unithroid. I've started having extreme joint pain and my hands are always swollen. Some days it's a chore to walk up the stairs at work. The only time I feel really good is in the evening about 7pm. Any suggestions on what this could be? Who do I see for my joints to rule out other autoimmune disorders?
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About 10 days ago, I began to feel little prickly feelings, like a light needle poke, in random places on my body. I was a little concerned but figured it would go away. After a day or 2, I began experiencing a little muscle cramp in my left and right legs but my cholesterol and blood had just been checked so I called my doctor's office to find out if it might be a blood clot. They told me there were no blockages (they had just done a routine cholesterol test on me about a week before). Another day went by then my muscles began to get sore and my joints were popping sometimes. My muscles in my legs, arms (mildly), around my ribs (sometimes) and my under arms (sometimes) felt sore. I used a heated massaging pillow to make them feel better but was perplexed as to why I was having these aches. Sometimes I felt an arthritic ache also like the pain might have been in my bones. I was also having mild dull headaches. Then came a day when I felt extremely fatigued and so after a couple of days I went to the doctor. She said she was thinking I might have anemia so she had me go to the hospital and get a CBC test, a CPK test and to have my thyroid tested (I have hypothyroidism which I take medication for). The day I had my blood work done (yesterday) I felt very fatigued and was asleep by 9:00 pm, which is very unusual for me. I didn't feel muscle pain just weakness sort of. Today I feel a little muscle pain but not much, but I do feel a little weak. Also I had been having panic attacks a few times during all of this. I called the doctor's office today and the nursing staff told me the results of the blood tests from yesterday morning were all normal. I had thought it could be anemia which at least then I would have a diagnosis and could be treated but now I am even more scared because I don't know. What could this be?
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I have always had the same symptoms with my right sided sciatica being buttock and calf pain worse on sitting but for the last few months intermittently and permanently for the last couple of weeks I have also been getting knee pain in both knees and leg / thigh muscle weakness worse on walking.
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My condition, hypophosphatemia and oncogenic osteomalacia started about 3 years ago, however, was not diagnosed until six months ago. It started very gradually with body stiffness that over time worsened to bone and muscle pain and weakness. Was examined by all kinds of specialists who really didn't know why I had so much pain just walking, sitting and getting in and out of bed. My Rheumatologist had been very puzzled by some of my blood test results concerning alkaline phosphates being 3 times as high as they should be. Vitamin D testing showed I was severely deficient. Subsequent examination, blood tests and bone biopsy by an Endocrinologist indicated oncogenic osteomalacia and hypophosphatemia being caused by a tumour somewhere in my body. The tumour gives off something that causes my Vitamin D and phosphates to become deficient in turn causing the bone pain and muscle weakness. Subsequent CT scans and PET scan have not located the tumour. Am taking medications that are helping somewhat. Want to communicate with someone who has this condition or recovered from it. Have questions about medications, rehabilitation and generally knowing about their experience.
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I was told it might be posterior tibialis muscle weakness or plantar fasciitis. does anyone know about the difference of these two?
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I had surgery on June 14, 2011 to remove a bone spur on my left clavicle and to remove arthritis near (but not in) my shoulder joint. It was the worse experience of my life. I was in constant agonizing pain for 2.5 months. Just for the record, I've had two ulnar nerve surgeries on my left AND right elbows and never even needed pain medication. This shoulder surgery apparently did not relieve any of my pain. I still have a dull aching pain through out the day starting in my neck (left side) to my shoulder, and down my bicep to my elbow. I still can not sleep at night, and through out the day while working my shoulder/arm/ neck is killing me. I continue to take an Naproxin and continue to rotate heat and ice. I did physical therapy for the first two months after surgery. My concern is that had arthroscopic surgery, and there was NO rotator damage so why is my shoulder still in pain? My shoulder pops when I do try to rotate it.. and often when I simply reach outward for something..I'm in excruciating pain. I'm a baker, so I am constantly lifting a 34-50lb metal mixing bowl and have to reach many times through out the day. There really is no way to not do my job duties and still retain my job. Any ideas why I'm still having this problem?
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Although I try to be as active as possible my muscles are making life for me difficult, as for years they have been wasting, causing pain and tiredness. All other symptoms point to Fibromyalgia, which I believe doesn't cause muscle wasting.....also have Osteoarthritis. My muscle problems started in my mid. 30s.....am now 63 and is much worse. Recent blood tests show normal muscles values....but something must be wrong as my energy level is very low. Has anyone been /going through the same??
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for a few days candesartan was helpful then the side effects set in. especially dizziness and arm muscle pain and elbow joint anyone else have this problem
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I've been having muscle weakness and burning in my arms and legs and back for about 8 months now and am so afraid that I have als or ms. I was wondering how long does it take for als and ms to manifest ? This is causing me great stress and depression.
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The last 2 months I've had tightness in my left buttock while on Prednisone. For the first while I could walk if off but for the last month it is constantly there but only when I walk, and sometimes shifts to the left leg's inner thigh, the result being I find I'm sort of limping. Has anyone had something like this? It could be a disc in the lower back pressing on a nerve affecting the muscles in the buttock and thigh, or maybe it's just muscle weakness resulting from the Prednisone. I'm in a quandary how to tackle it, see a physio, chiro, massage therapist. I've found that since I've had PMR 2 years ago anyone working with their hands on me greatly aggravates things so I'm unsure where to turn.
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I am a 29 year old female and I was diagnosed with Hashimoto's Thyroiditis at the start of the year. I have been having problems with my right eyelid in that over the course of the day it progressively becomes droopy and the only thing that relieves it is when I close it. When it becomes droopy it makes my eye feel like there's something in it and I end up rubbing it. It's only when I look in the mirror that it's droopy.
In January my endocrinologist ran an autoimmune profile (but not for every single antibody) and rheumatoid factor and these are the results of it:
Rheumatoid Factor - 9IU/mL (<20 negative)
HEP2 - Positive
Type - Speckled
Anti-DSDNA - 7IU/mL (<30 negative)
(Positive antinuclear antibodies but no significant disease association found)
ENA screen - Negative
Autoimmune profile
Antinuclear Abs - Positive
Anti-Smooth muscle Abs - Negative
Anti-Parietal Abs - Negative
Anti-Mitochondrial Abs - Negative
Anti-LKM Abs - Negative
Anti-Thyroid Peroxidase Abs (Anti-TPO) - 141 kIU/L (<34 negative)
I am posting here because I have a suspicion that I have Myasthenia Gravis. Not only have I got the problem with my eyelid but I tried to follow some physical tests for muscle weakness such as holding my arms out straight in front of me and deep knee bends.The results of these home tests I did:
Holding out arms stretched in front for 60 seconds - pain in both arms when it came up to the 60 seconds and left arm dropped slightly
10 deep knee bends - did all 10 knee bends but the last 3 made my legs feel weak and shaky
5 sit-ups (sitting from lying down) - could only manage 4 sit-ups
I have an appointment with my GP on Friday and since this has now appeared I'd like to mention my concerns to them.
My main concerns are :
Wouldn't my endocrinologist have tested me for Myasthenia Gravis if it's an autoimmune condition? If so what antibodies would she have tested and would any of the ones I had tested have shown I have Myasthenia Gravis?
Who do I need to request to see to get a confirmed diagnosis?
If it is indeed Myasthenia Gravis would it be because my current autoimmune condition made it worse? I have read that this is possible and I became very hypothyroid yesterday as I had very bad Reynaud's flares when out and about.
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Help! In 2001 I had a thyroidectomy. Immediately, my blood pressure, (which had always been remarkably low), shot through the ceiling and I've been on BP meds ever since. But I digress...
I was always super active. I skied, ran, kite boarded, hiked, biked... all a healthy and important part of my life. I even had booked a trip to climb Kilimanjaro for my 60th birthday in 2010 when I came down with Swine Flu, followed by a couple bouts of pneumonia. When I recovered, I tried to go back to skiing about three months later and found that I had lost muscle strength! I couldn't make turns (and that's a bad thing...) I got weaker and weaker. My doc had no clue. We checked heart, lungs. I was at low end of thyroid and adrenal levels, but "not a problem", I'm told. I'm not a drama person at all, but I really began to believe I was dying because I was getting weaker and felt like my energy was draining away.
At wit's end, I went (for the first time) to a brilliant naturopath who drastically improved my already good died and put my on Chinese meds. It took about three months, but I eventually stopped getting weaker and became stable. That was HUGE! Since, however, I've remained pretty stable and we keep trying other things but nothing has put me even close to where I was.
The best guess is that its related to thyroid or adrenal function. I dunno...
I can now make between 6-10 stairs before I have to stop for a few seconds to regroup. I can swim very short distances but never alone because when I run out of energy, its GONE and I have absolutely nothing left. This has drastically impacted my life and I want to be strong again!
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I was diagnosed as hyperthyroid about five months ago. I am so much better now however the tremor in my hands and the muscle weakness in my arms and thighs doesn't seem to have subsided (or even lessened) at all like the rest of the symptoms. I am really worried that these are going to be permanent problems. Has anyone else had tremors and muscle weakness from this condition, and did it eventually go away or should I be preparing for this to be a lifetime issue? If yours did go away, how long did it take and did you need to take any particular supplements or do any particular exercises to help?
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I've been worried sick about my health condition these days I can't function well in school. My arms and legs have been feeling weak and have been getting short but sharp cramps. They would also feel numb sometimes along with a tingling feeling. I also seldom feel some muscle twitching which are not painful.
This happened a day after a very mild workout. Since then I haven't exercised due to the weakness of both my arms and legs.
The results I've been getting from the internet had made it difficult for me to sleep and go out. I am terrified this could be ALS. Is there any chance, even a slight one, that this could not be something serious? I am almost convinced that this is ALS but I still have a small dash of hope that it isn't.
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I'm feeling alone and not sure who to turn to ask and feeling like no one quite understands. My main concern is that sometimes when I get muscle weakness and feel tired, I start craving to eat and I can't stop myself even if I have already eaten well. Yesterday evening was the perfect example, Having eaten a full meal with vegetables, rice, noodles and chicken, I then followed it with a bowl of fruit with yoghurt. Very healthy, should have been enough. I then had a bowl of cereal with milk, handful after handful of cereal from the cupboard and other food I could lay my hands on. I managed to stop myself when the feeling of wanting to eat spoonfuls of sugar and golden syrup and sweets and chocolate out of the cupboard. I think felt overwhelming tiredness and ended up lying down unable to move all evening eventually falling asleep.
Today I am so shattered, I feel weak, tearful and tired and I have just been eating and eating all morning. I can't cope.
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I have been advised to take Lipitor but experienced muscle soreness and weakness. My doctor then reduced dosage, but it still had the same effect. He then recommended I take a low dosage two times a week as long as I could tolerate it. Will such a low dosage have any positive effect on reducing bad cholesterol?
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I jogged for the first time in years yesterday evening. I jogged less than a mile, and felt fine after. I went to bed, slept through the night, then this morning as I got out of bed, my knee popped and my leg collapsed downward causing me to fall to my knees. Since then, my knee is swollen, weak and when I try to bear weight I get a sharp sting and then the leg collapses. Any thoughts? 35 male with history or torn meniscus x3 --the sep surgeries but they were all more than 10 years ago.
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I've been on nortriptyline for daily headache prevention for over 20 years. Has done an excellent job in headache prevention and just helping me feel normal. Just in the last year as I'm at the door of menopause, I've been experiencing pain and tightness in my hips, perineum, and sit-bones. Also a lot of stiffness and weakness in surrounding muscles. I attributed it to my sit-down job, but I now have a standing desk and am still experiencing a lot of pain. Wondering if nortriptyline is the cause of it, and am thinking of weaning of it. Has anyone else experienced this kind of pain as side affects of nortriptyline.
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I was wondering if anyone has experienced muscle weakness (that never goes away) with thyroid medications? I have had this with Levoxyl (12.5 mcg.) and with Armour Thyroid (15mg.) as well as all other thyroid medications (even at the lowest dose). Perhaps I don't really need thyroid meds at this point (my TSH was 5.8 when off of thyroid meds). I saw somewhere that weakness (especially in the arms and thighs) is an indicator of too much thyroid hormone.
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3 years ago i developed muscle weakness in my legs that meant i could not take a normal step or raise my leg off the bed,after about 2 weeks this started affecting my arms as well meaning i could not lift my arms above my head, the weakness is periodic and last for anything from 5 mins to 6 days. it varies in strength, when its at its worst i cannot walk at all. the longest i have been symptom free is 5 months. there is no pain involved at all. i have seen various neurologists and had MRIs and EMGs, my reflexes remain intact, i have also seen a psychiatrist who said i need to see a neurologist.
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