My son had an LP done in Sept. He walked into the hospital fine and ever since then has been in extreme pain and has limited mobility. They can't find anything medically wrong with him.
View 3 RepliesI had a LP done in march ever since i've had constant stabbing pain where i had it done pain in lower back(sciatica) in hip leg and foot. i cannot sleep walk far nor lift due to it it hurt to sit stand do anything basically i ve varis pain relief non of ir work its still there tried stretching little exercise just makes it worse then i can't walk.
View 16 RepliesAt the end of January I suffered a severe coital headache. For the two weeks after the coital headache I was experiencing a nasty numbing headache and eventually ended up in the hospital. I had a CT done which came back showing no bleed on the brain. I had 2 LP's as they screwed the first one up! I was also not told to lay flat for 24 hours or drink caffeine, terrible! The LP results were clear, a few days later I had a terrible post LP headache, it's now late march and I STILL have the headaches! At the end of February I saw a specialist who performed a CT angiogram to check again for an aneurysm, which was clear! I was told to wait for a couple of weeks to see if the headaches would clear up. Well, they haven't! Pain is worse after my head has been leaning forward and get back pain at the base of my spine! I get a saw achey pain behind my eyes as well occasionally.
Many thanks!
I am a 41 year old girl with Chiari Malformation and Back Pain and I have Postural orthostatic tachycardia syndrome (not really related to my question issue here). For quite awhile I have had back pain (upper/cervical) and lower. I tried to tell the doctors but they always told me it was nothing. Then it got severe one day. I don't know how to explain it but it felt like something happened in my lower back area. The pain was in my back and leg (left side) and it was not in my butt at all. Some days the pain in my leg felt like a stake was being driven in it. Otherwise most of the time it was just plain pain (don't know how to explain it - it was 2 types of pain). Well I finally called my doctor and I had an appt and he got me a couple of MRI's and said that I had a herniated disc and that a chunk broke off of it (he gave me copies of my reports as well)and the chunk was lying elsewhere. Well to make a long story short, he sent me to an Ortho Neuro who ended up doing a surgery...he was like you can do PT (which would mean I still had to live with it), Live with it or surgery. I didn't want to live with it. Well, it took awhile but after so many months/weeks I ended up having PT after the surgery.
Well during PT my pain went from being bad to worse! I cried during PT and after my sessions. I had a couple of weeks here and there I had it put off because of my neuro appts out of state, but it was not long periods of time. Anyway, my PT told me I needed to stop my PT sessions and contact my doctor because they could tell that I was having a ton of pain and I was not getting better - only worse. I did let my ortho know and waiting on my appt I let them know that on some days the pain would spread (it was kind of like radiating) to my right side. Apparently they assumed I meant it was on the right side. During my appt after my MRI, he kept saying the right side - that my results showed nothing about the right side and he left it go at that. I kept trying to say it was on the left but spread to the right (radiated on some days). He did not listen to me. I let him know that my leg was weak and I kept falling. Still didn't listen. My appt was directly after my MRI so he read it and didn't have the radiologist results. I was so devastated as I had no idea what was going on. I decided to obtain my results and after I did I had an appt coincidently with my regular doctor and I told him about my appt and showed him my results. He seemed concerned and told me that I needed to contact the ortho and ask them to explain my results and go over them with me. He said I had a right to have them explained to me. He didn't because he was not the one who ordered them and it is not his area anyway.
I did again and they said that the results got misfiled/lost in a folder somewhere. They called me back a week later and set an appt up. I explained to them again that it was my left and it had just radiated to my right. It has always been my left said. I explained I was falling and my leg is now like a noodle and it is scaring me. I am so afraid I will not be able to walk one day. I am afraid to go anywhere by myself due to the risk of falling, as I have fallen stepping out of the car and just walking about a few feet or so. My leg just gives out on me. The pain is excruciating as well. Well I went to my appt and they cancelled it on me and I am scheduled this week. As usual I am sure they will say there is nothing on there (as they have before - every doctor is different it seems telling me what could be). Well, one thing my regular doctor was concerned about was other than my disc is herniated again, is that it has something on there he does not know what it is supposed to be is that it says: enhancement noted in the left erector spinae musculature. That is the concern. Anyone ever see this before or know what it could be?
The last thing is that again my disc is herniated and compressing the sciatic nerve. The rest is not concerning as it is normal they said: Enhancement in the surgical bed as well as along the left side of the thecal sac and encasing left S1 and S2 Nerve Roots. Although it has been 9 or 10 months since my surgery on my lumbar area, they said that is normal to have.
I am really worried about the pain and the falling - the fact that my leg is like a noodle and only getting worse. I am so off balance and more. I have a ton of symptoms but they say the other stuff is neurological and related to my P.O.T.S. I have been more nauseated and throwing up more than ever (although it is not causing me to lose weight, because I don't walk as much because of the problem with walking and the pain from exercise (as found out in PT). I assume the nausea and vomiting is from the extreme pain. I am so tired of being ignored by the doctors. I don't think my regular doctor would tell me I need to go back to the ortho if he didn't think something was wrong too. I feel like crap and I just want to feel better. I may never get better from the P.O.T.S. or the Chiari/Cervical pain, but there is hope that someone can fix my back problems. My walking is important to me because I love to take walks with my family and I love walking in the snow, etc. I want to be able to do more things. I can't go see the specialist (for my neuro stuff) until I get this taken care of, as they are out of state.
I was diagnosed in October 2006, after been admitted to Hospital with suspected Meningitis. They did a Lumbar Puncture, and the CSF pressure was very high, I was shipped out to a Hospital in Sheffield - Away from Uni, and even further away from family.
It was confirmed I had BIH.
Ever since, I've had to have Lumbar Punctures every 6-8 weeks, with the CSF always way too high. I was put on Diamox too, which didn't do anything at all. I'm now on Topiramate (Topamax), which also doesn't work for me.
I thought it was just people around me deliberately not understanding how painful and disabling it is, but after reading your experiences, it seems not many people understand.
Woke up this morning in pain (like most days), with dodgy vision and loss of coordination, so time for another LP!
I've been ill for over 12 months, with chronic pain, numbness, paralysis, loss of mobility, fatigue, bladder, bowel problems, Total collapse falling to floor, shaking, tremors, head nodding, slurring, drooling, speech problems sleep problems
Had ct, Mri, evoked potentials, numerous blood tests, all clear , now it appears according to neurologist that this is all down to vit d deficiency? It's 12 have got 40000 iu to take once a week and been told to go to gp as he no longer needs to see me ?
Couple days ago I stepped out of bed and almost hit the floor as the excruciating pain shot through my calves. I have not exercised or done anything extreme. I have tried stretching and over-the-counter pain meds ..
View 1 Repliesfor nerve pain in lower back/hip and leg. MRI in a few days. Known herniated lumbar discs, nerve pain new for past 6 weeks.
I cannot take morphine or derivatives due to it making me feel like I can't breathe so the anti epilepsy drugs are next try.
Dr gave me 300mg capsules but having taken one today I have asked to be given 100mg capsules and I will increase very very slowly. The side effects with one 300mg capsule was spectacular and I could not cope with this again let alone increasing the dose but can only hope that starting very low and only increasing very slowly I can tolerate
My question is, is it possible that just one 300mg tablet taken for the first time give pain relief as I am sure it did with me. Now its wearing off the pain is worse. My Dr said that it takes up to 2 weeks for pain relief.
Nine months ago I hurt my back with an improper lift. Unlike several other back sprains, this one won't go away. Low back pain, and bilateral sciatica. Mostly dull pain, but shooting pain down legs when I bend backwards, or step into a hole that jars my back. Doctors have to play by the insurance company rules, so they treat with meds, then Phys Therapy, then guessing, and before you know it you have been hurting for 9 months. So I had an MRI that revealed a herniated disc with central canal stenosis and 2 other bulging discs.
How does one choose the method of treatment, or the type of medical pro. If you go to a surgeon, he wants to cut, to a chiro, he wants to crack and twist, you get the point. I'm being stoic about the pain, because I am concerned about side effects and drug dependency, but it's time to get this fixed and get on with my life. I would like to think that the body is equipped to heal itself. But, maybe not.
I have sever back pain and haven't been able to work since August. I am unable to stand, sit or walk for long periods of time. It hurts to sneeze, cough, bend or pick anything up. The pain is constant, stabbing at times and it feels like I have a rock in my spine. They have done facet and epidural injections. I take an anti-inflammatory, muscle relaxer and Norco (3 times a day). They tried to put me on Neurontin but it made me too sick. I have had every test done imaginable and basically what I have is degenerative disk disease with mild broad-base bulge. Bilateral facet arthropathy and ligamentum flavum hypertrophy. Indentation of the thecal sac in L4-L5. L5-S1 bilateral arthropathy. L3-L4 bilateral ligamentum flavum hypertrophy and a left nerve sleeve cyst (synovial cyst).
My surgeon wants to do a foraminotomy because I have radiculopathy on L4-L5 and then do a spinal cord stimulator for the pain. He isn't worried about the cyst...said it isn't the reason for my sever back pain. From what I have been reading, all of my symptoms sound like its the cyst causing at least some of the pain. Am I wrong to second guess his opinion? I just don't want to have these surgeries done and then later down the road turn around and have to have the cyst removed.
Can someone tell me from their experience what the usual differences are between pain feeling when you have lumbar disc issues & pain feeling when you have lumbar facet pain?
Are there any significant markers at all? I have looked on web in detail and i just keep finding contrasting information.
Have lumbar problems but no one seems to be able to work out if pain is from disc issues or facets.
Extreme pain while passing urine, how do cure
View 1 RepliesMy mother has done surgery for a total hip replacement 1 year ago and is still in extreme pain.
I personally think she has two problems. First with her wound/scar and second with the hip itself.
The first because her scar/surroundings of the wound is still extremely painful and sensitive. Even looking at it already hurts and this makes it almost impossible even wear clothes. This problem I suspect must be related to nerves maybe encapsulated by the scar tissue or something. I am not sure.
The second problem must be her hip or the prothese or something related. She has extreme pains which start in the morning. While still lying in bed, she is almost without pain but then getting up and even walking to the bathroom is enough to invoke the pain again. Then during the day active or inactive the pain worsens till a point where she can´t do anything anymore. Sit, walk, stand it all hurts. Riding a bike is still best for her and walking small distances also but sitting is terrible. So why if in inactive state in the morning is she ok and when she starts moving the pain incurs? This must be because of the hip or prothese which must invoke the pain. Either the replacement is too big, wrongly placed, causing whatever. Right? I am not sure but still after 1 year no one, even a second opinion was able to shed some light on her state. No one is able to find a cause of the pain nor for the wound nor for the hip.
Starting about a year ago, sometimes when I wake up in the morning my leg is bent and it causes extreme pain at the top of my knee to straighten it. It generally takes several minutes for me to straighten it out. But once I get it straight I can bend it again and straighten it again with no pain or stiffness. I sleep on my stomach so I always thought it was blood loss in my knee from sleeping at an odd angle. But i have injured my knee before (strained) and arthritis does run in the family. It only happens with the one knee. Is this something I should see a doctor about?
View 1 RepliesI'm 29 years and I am really hoping to get some help or at least some idea of what is going on with me because I have been to a few doctors done a few tests and I still haven't found any solution.For a few years now, anytime I ejaculate I experience extreme pain in the shaft of my penis. It is very uncomfortable and very painful, especially when I have another another erection after i ejaculate. I've done a few tests and it is not an std/sti thankfully.I really hope someone can shed some light on what is happening to me, what I have to do.
View 3 RepliesI've been suffering with pains in my hips, causing problems with walking and standing. On a bad day the stairs are difficult to climb. This has been going on for about a year now. In the last 6 months or so I have developed a sciatic like pain, only happening when standing up and walking to far. The last few days it's been getting worse and I now have pins and needles in my legs and feet. Sometimes both legs but mostly my left. The sciatic pain is only ever in the left side of my buttock. When I try to stand, I am simply unable to put any weight onto my left leg for a while. I'm 31 years old and a mother to 4 plus work. The doctors keep brushing me off because of my age but I'm sure what I am experiencing isn't right.
View 34 RepliesI'm 22 and had a cyst rupture two weeks ago which hemorrhaged and left me in the hospital for 4 days due to blood loss and infection. The week before the rupture I fainted randomly and felt fine afterward. When I went to the ER after my BP fell to 75/44 and my h/r was at about 130 for days. Now, two weeks later, I'm tired from the blood loss but my main complaint is extreme chest pain on my right side (where the cyst was). I had chest and shoulder pain which was excruciating and worse than the abdomen but the shoulder pain has subsided while the chest pain hasn't gotten better. The stabbing pain makes me scared and then the pain gets worse. Has anyone experienced this?
Also has anyone experienced fainting and feeling fine afterwards as a symptom of a cyst that hasn't ruptured yet? It came out of nowhere it was probably only 30 seconds from when I started feeling off to when I actually passed out.
Can you please tell me what, "both ovaries are heterogeneous in attenuation" means? Also, Could you please explain these findings and if there is cause to be concerned? "The right ovary measures 4.4 x 4.2 x 4.4 cm and there is a 4.1 x 3.7 x 4 cm complex cyst which may be hemorrhagic as well as free fluid in the cul de sac on both right and left side."
View 1 RepliesThree months post stapled hemorrhoidectomy. Still experiencing terrible pain throughout rectum and butt cheeks. Feels like someone crushed glass, poured alcohol on it, then smeared it inside me. Symptoms indicate prolapse as well, but surgeon has examined multiple times and says that is not the problem. No hemorrhoids present and surgery has healed normally. He does not know what to do though. I did have similar pain for many years before the surgery, but more like sand paper was rubbing against my skin and rectum and only half as painful. Anyone else with this experience?
View 1 Replies3 days ago an object fell on top of my foot and my foot became hugely swollen and I was in so much pain that I had to go to the hospital. They took an x-ray and told me it wasn't fractured, but the blood vessels in my foot had broken and I am bleeding internally in my foot (I'm also taking warfin for another medical issue). The dr. gave me painkiller and said nothing could be done except to wait for it to heal on its own. For the past 3 days I have been on complete bed rest and have elevated my foot and place ice on it every 2 hours. I am in extreme pain and my foot is still badly swollen and now I noticed 3 medium sized bumps on top of my foot. I am also taking blood thinner due to another medical issue, so my blood is thinner than normal, so it would take longer to heal. I can't even touch my foot as it is that painful and I haven't put any pressure on it. My family dr. told me that it could take 4-5 weeks to heal. Has anyone else gone through this??? Is there anything else I can do?
View 1 RepliesI am a 28 year old male living in the UK with my parents. I weigh 70kg and am 186 cm tall. I have been suffering with Cholinergic Urticaria for 9 months. Previous to developing this condition, I had no health issues whatsoever. I have been a competitive middle distance runner for the past 7 years, training every day. I have been heavily active all my life.
This condition materialised in the space of approximately 2 weeks. In that time I became entirely incapacitated in my ability to run.
As a result I visited my GP. A blood test revealed a slightly underactive Thyroid. This became the focus for my Doctor and my skin condition was ignored. Avoiding the immediate prescription of hormone replacement therapy, a repeat blood test was scheduled 2 months later to assess any change in the function of my Thyroid. Sure enough, and without any intervention, my TSH had come down significantly. Although not yet back in the 'normal range', I am schedule to have yet another blood test next month.
My doctor failed to acknowledge any relationship between an underactive Thyroid and Urticaria, and whenever the question was asked he became evasive.
My Urticaria worsened, it's affects no longer confined to when I ran but also when I walk, take a warm shower, lift something, feel stressed, anxious, if I'm in a warm building, when I sleep, when I'm in a car, if I trip. Almost everything I do is now affected, rendering whatever I am trying to do physically impossible. My outbreaks are not just itchy, they are excruciatingly painful. I often feel light headed and nauseous during an outbreak and have nearly passed out on occasion. I have to withdraw myself from whatever situation I may be in, in order to cool my body.
I worked for 6 years as an Account Executive, but last year decided to try something new. I have since lost my job as a Postman, having fallen short of the attendance standards required during probation. I started in January, and was fit work due to cooler weather conditions. In May, whilst on delivery, I was unable to continue. I was unable to work and after 15 days of sick I was dismissed.
Because of the warm summer weather I am extremely unlikely to find alternative work. The thought of sitting in an interview wearing a suit in this temperature causes me to itch. Driving my car is often not possible, nor safe, and I cannot wear anything more than running shorts and a loose fitting t-shirt. My aforementioned symptoms of Urticaria are simply not conducive with job searching/working. Despite having been in full time work since graduating, I cannot apply for Disability Benefit because I have too much money accrued in savings, most of which I had intended to use as a deposit on a house. I cannot apply for Job Seekers Allowance because I am unfit for work.
I was prescribed some Cetirizine, it did nothing. I was prescribed Cetrizine in conjunction with Montelukast, it did nothing. I was referred to the Dermatology unit at my local hospital. I provided a physical demonstration of my Urticaria and was prescribed Fexofenadine, it did nothing. I have since been placed on Fexofenadine 180 mg, twice a day, and Propranolol 40mg, twice a day. Despite saying he has never seen such a severe case of Urticaria, the specialist doesn't want to see me again saying he has very little more to offer in the form of treatment options. 4 weeks on and despite feeling ill most of the time, these tablets are doing nothing.
I have scheduled an appointment in September with a separate Dermatologist in order to get a third opinion.
I am depressed. My life has stopped. I am now, as I am everyday, sat on my bed. Confined to living a solemn and sedentary existence. I feel lazy. I feel worthless. I cannot socialize for fear of suffering an outbreak in public. My fear is only further compounded by the thought of suffering an outbreak and being unable to affect it. The pain is shocking. I cannot imagine the toll this has already had on my health both mentally and physically; the physical pain of an outbreak seems an entirely unnatural and extreme stressor for my body to have to deal with on a daily basis. As is my transition from running 75+ miles per week, to doing nothing at all, alongside my rapidly deteriorating mindset.
It's formally documented that this debilitating condition has a greater impact on ones quality of life than that of skin cancer, yet because it's not life threatening in itself it seems no one wants to know. Why is so little known about a disease with such devastating consequences?