Lichen Sclerosus :: Does Clobetasol Cream Work?


Sep 26, 2015

Since being diagnosed with Lichen Sclerosus last February,  through trial and error, I have discovered, sometimes painfully, what works for me with regard to using Clobetasol cream.

When I initially had the typical white LS plaques, which were on the inside of my Labia Minora,  I used Clobetasol and it worked quickly, and effectively, and I think it took around a week for them to clear up, using it twice a day, and fortunately they have never returned. Also when I have had pain, and soreness on my clitoris, I will use it twice a day for around four days, and I have found it to work really well for clearing this problem  up quickly.     

However, Clobetasol did not work for me when I had a sore area (a lesion) about half an inch away from my Vjay.   I applied the cream carefully, and the next day I had a seriously nasty red rash running everywhere, and up the crack of my butt!! and so I stopped using Clob in that particular area after that, and the next time I got a tiny sore in a similar area I bathed in salt water and used baby cream, Desitin I think it was initially, and I think I used vaseline before bed, but  only for the first couple of days, after that I switched to bathing and then using hardly any talcum powder on a powder puff to make sure that there was no moisture down there whatsoever, and this worked really well.  I have found sore areas need cream initially, but then  they need to be kept dry, and after a few days my sore area cleared up!  So for me, using Clob on my Vjay works, but for on the surrounding skin not so much.

With regard to maintenance, I don't use the cream.   My Vjay looks normal, no white patches, cuts etc and so I don't see the point of applying cream to areas that show no visible sign or symptoms of Lichen Sclerosus.  I do believe in the routine of spraying after using the bathroom, drying and lubricating, this I think stops fusing from occurring and so it is an important routine to have, of which I always stick to rigidly!..so this is what works for me.

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I am a little confused because the doctor that I had seen (I am in the process of finding a new doctor) had briefly told me to put on Dermol 500 lotion, Cetraben Lotion, and then Clobetasol- in that order? Is this correct? Also, she did not mention how long I should wait in between each application. If anyone could provide me with some advice on that- it would be very helpful! 

A few days ago I posted about feeling worries about applying clobetasol cream on what I have left of my labia. Since the skin is thinned out, should I still apply the ointment on this area. I have been applying clob on the skin that has fused over my clitoris. I had sent the doctor I had seen a few days ago about where I should EXACTLY be applying the clob and her response was 'on the affected areas' (that was extremely helpful)...

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I want to ask for an estrogen cream. So my question to you all is what do you use on your vulva and do you have it compounded in something. If so what is it compounded with.

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I'm listening to Dr. Andrew Goldstein's lecture on LS. He a preeminent expert. He's describing that LS skin is not thin but extra thick, because it's all scar tissue and hardly any skin cells. The white blood cells that cause inflammation are way down deep at the bottom of this thick tissue. So, he makes two major points I would like to have been told, say, A YEAR AGO!

1. Soak it in warm water for twenty minutes first (bath night! I thought baths were bad, haven't had a single bath in a year) to soften the tissue

2. Rub, rub, rub, the cream/ointment in for about 90 seconds. That's a lot of rubbing!

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Can anyone give me advice?

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Also Tramalgin, betnovate for below and am now tearing my hair out with sleepless nights with itching.

I go to work like a zombie and it's so embarrassing having to scratch, they say the monkeys here as a joke.

This has gone on for 6months nearly...am waiting to see the dermatologist. I had a vulvar flare 4 years ago and was ok up until early this year.

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I tried Olive Oil but it wasn't that great. The Doctor prescribed Sylk vaginal moisturizer and that can either be Okay or not. 

Has anyone else got other 'comforters' for LS? Mine gets sore and stingy as opposed to itchy.

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When I received my diagnosis a month or so ago, I spent a lot of time reading this forum and learned an overwhelming amount of information. One post that stood out was someone who had managed to somewhat reverse their fusion with a baking soda spray treatment. I can't find that post, or remember what thread it was posted on, and I'm hoping someone can point me in the right direction. If there is anyone else who has managed to reverse their fusion.

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My Mother suffers from Lichen Planus, which I know is not exactly the same as Lichen Sclerosus. She has recently found urinating really painful. She has today found a convenient way to make things a bit easier. She fills a sports drinks bottle with warm water, and squirts this against herself when she urinates. It is soothing and also cleanses the area each time. hope this may help some people?

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I had a friend who had a procedure to "free" her clitoris -- not an LS sufferer, but her architecture was such that it was covered up & couldn't climax with her husband all their married years. She finally did some research and found a doctor who specializes in this, and he said "you're 100% covered up". With a minor procedure, she is now normal down there and able to be satisfied with her partner.

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over this last week my left labia minor has disappeared 😟 Completely and I have struggled to keep the itch at bay. Although the white patches have diminished. in the last week I had to use the Betnovate but after a day the itch/pain was so bad and not subsiding, that I used the dermovate, this I think was the only thing that helped with the itch eventually. But as I struggle to use these creams I have to be very careful as they induce warts. 

Hence the doctor has suggested I undertake the CO2 laser and PRP combination next week.

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When I was diagnosed last month I had fusing toward the back of my labia minora to my labia majora. When looking today the fusing is getting worse and I almost have no labia minora. I am very upset tonight. Will it ever unfuse or is it gone forever? Freaking out!!!!

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