I'm puzzled. I've been using my steroid for about a week and a half. In the last day or two my clitoris is getting sensitive and sore to the touch. Is it from steroid or Aloe Vera gel? Any thoughts?
View 31 RepliesI suffer from VLS and OLP.
After washing morning and night I use pure aloe vera gel on my vulva which may sting a little but really soothes. After half hour I use aqueous cream to moisturise.
When I have sore burning tongue or mouth ulcers I use pure aloe vera gel in my mouth. It really heals.
What about the emotional aspect associated with this disease. I find I suffer from lowered feelings as I feel unable to cope with the physical pain and daily maintenance. I have great difficulty accepting that my own body is attacking itself and I have no control over it.
I have great difficulty trying to sleep and am obsessed with the condition as the raw pain never eases and I know it will never get better. My dermatologist suggested anti-depressants but I disagree as my lowered feelings are caused by the presence of the disease and there is no cure for this. I read "the power of now" which helps me to live in the moment.
I would call on the women/men who have had this condition for numerous years to post and give those newly diagnosed some hope that there will be life after tomorrow.
I was talking to a lady today who has advised she is a distributor and she said it works on inflammation and helps improve skin diseases.
View 23 RepliesI have been diagnosed with LS in February this year, although looking back now with more information at hand, I have been suffering from this for nearly five years, but had always been misdiagnosed. I cannot begin to mention all the vaginal creams and tablets that I have been prescribed.. all to no avail until the biopsies were done. I am now using Dermovate and was using it only when needed, until I watched Dr Goldstein's webinar a few days ago. I picked the link up from this forum. Since then I use it everyday, after soaking for 15 minutes in warm water and then rubbing in the ointment for 90 seconds. In May of this year I was also diagnosed with Lichen Planus. I follow the same procedure with the LP but I do not seem to have as much success here. Patches still coming out all over especially in groin, thighs right down to knees, underarms, under the girl, arms etc. Is there anyone who is using something other that Dermovate for LP and with what success rate? I see on this forum that numerous mention is made of coconut oil, witch hazel and aloe vera gel. I have managed to get hold of coconut oil and 97% aloe vera gel. Is the 97% good enough? In what form does the witch hazel come... is it an essential oil? I have looked around but have not found manuka honey yet. Does anyone in RSA know where I can find this? Then lastly, how do I use the above.. do I mix them all together and put on (how many times a day?) and what is it for? Does it help the itch, scarring, LS itself??? Quite new to this so not sure how to use these.
View 14 RepliesStill using dermovate steroid cream twice a day, soreness is getting worst, haven't been able to wear underwear for a week!. Feeling so depressed, feel so alone .
Can anyone give me advice?
I have questions about the clitoris being buried. My first LS breakout was about 7 months ago. Have had a couple less severe ones since. I've gotten tremendous relief and healing with the hydrogen peroxide/saline spray, and Caprylic MCT oil (derived from coconut oil) Didn't even know what the heck it was until I found this forum. Have not been to doctor but will make an appt. Noticing as I examine myself that area that my clitoris may be "disappearing" behind folds. I've been reading on this forum and wonder: does the steroid cream reverse the fusion a bit? Enough to free it again?
I had a friend who had a procedure to "free" her clitoris -- not an LS sufferer, but her architecture was such that it was covered up & couldn't climax with her husband all their married years. She finally did some research and found a doctor who specializes in this, and he said "you're 100% covered up". With a minor procedure, she is now normal down there and able to be satisfied with her partner.
I was just wondering if the steroid cream or perhaps this procedure could restore my clitoral area as well. It's been such a short time and my sex life was very satisfying just months ago! I'm 53, btw.
Was diagnosed a few weeks back and steroid cream helped loads but tonight I have what can only be described as a tightness to my clit ( sorry tmi) almost like it's being pulled back ...
View 6 RepliesI have NO symptoms and I do know how lucky I am not to suffer the way most people do. My inner lips just turned white and despite diagnosis and being given Dermovate they completely disappeared in around 2 years. And now my clitoris is going too. No itching, no fusion or adhesion. It is horrific to have nothing I can do simply watch helplessly as it goes. Has anyone else experienced anything like me? I feel quite the freak and so alone.
View 140 RepliesIs anybody aware of any drawbacks to using Aloe Vera. Gel on their shingles rash? I am in the midst of a bad attack of shingles and the itch and burning has been driving me mad! A friend brought me some Aloe Vera Gel to try instead of the calamine cream prescribed and already it feels slightly less
painful. Would like to continue to use it if no drawbacks to it.
I have recently started working in a salon and we sell the Aloe Vera range including a gel which is supposedly good for colitis? Has anyone tried it and seen improvement? I am on mesalamine oral tablets and mesalazine enemas - only been diagnosed a few weeks.
View 1 RepliesHi, I have read that really dry skin actually helps acne get worse. I used this cream to exfoliate and the next day my face was real dry, so i applied aloe vera gel to my face to stop my skin from being so dry. Does aloe vera gel help the skin on your face from being so dry and does that in result help acne from breaking out?
View 3 RepliesMy friend show me a website with lots of aloe products,and ask me to buy with her but i wonder if aloe vera is really healthy?
View 4 RepliesHas anyone heard of Aloe Vera helping diverticular problems?
I saw a very convincing article on the computer about its benefits for all gastric and diverticular etc
anyone using aloe vera for gums ? I have a strange swollen feeling in my gums after a tooth extraction ( 4 weeks since the extraction ), dental x ray is ok, sinus ct scan is ok, everybody is telling me I'm a slow healer. I'm tired of listening to that !
View 3 RepliesSo I have read a lot of research saying aloe vera is good for reflux. I bought some at GNC last night. Does anyone have any luck taking that and how do you take it, morning or at night? Also, what exactly does it do to help the reflux? Any suggestions or doses would be helpful. Like how many ounces do you take.
View 6 RepliesWhich is better for my reflux the liquid aloe vera or the pill. Does anyone take this to help their acid reflux. I also take omeprazole (10mg) once a day but also saw in the book Dropping Acid that aloe vera was good. I just don't know what form to use.
View 10 RepliesI am wondering whether anyone has tried these for GERD, I have been recommended them for diverticular but upon reading up about them, they may help my GERD as well.
View 13 RepliesSome months ago I started taking an Aloe vera gel with glucosamine for my joints, after a week I began to feel different, not in my joints that came later but in my whole well being, I feel more awake and alert throughout the day and general feeling. As i've read more on Aloe I have learned so much about this amazing plant and also how important it is as in many things to get the best, Have you found Aloe to help you ? and did you buy the best?
View 2 RepliesI am 23 and was diagnosed with proctitis a month ago through a colonoscopy. I was prescribed 60 days worth of pentasa suppositories, and am halfway through my one a day dose. I don't seem to be making any improvement. Although my bleeding is somewhat better, I am definitely having more trouble with stomach cramps and needing to go more frequently. The pain arrives and is excruciating in seconds. If I can manage to let it pass, sometimes I need to go urgently again in a few minutes or I can be ok for a few hours.
Anyway the reason for my post is because I would like to know if anyone else has been prescribed the pentasa suppositories and how you found them? Should I persevere with them?
I also visited my local Holland & Barrett health store today and they advised me to buy an Aloe Vera gel/juice and to take 1 tbl spoon of this 3 times a day.. Does anyone have any advice or experience to share on this type of aloe Vera product?
after discussing the values of Magnesium Supplement with my friend at Golf club I was told Pine Nut Oil is very helpful also Amp aloe Vera from USA.
View 6 RepliesI was diagnosed last year with PMR and at moment have managed to get down to 7mg of pred, but I also have to take two calcium tablets daily and 1 x alendronic(?) acid tablet on a sunday, the one where you have to sit up straight for an hour, I experience usually about Tuesday a bad tummy but the dr says that is probably the alendronic acid
I have been in so much pain when walking that my doctor advised for me to go for an MRI scan, which is showing wear and tear on my spine and problems with my sciatic nerve, which is probably causing the pain when walking - I can only walk for approx. 5 mins(sometimes not even that) and the pain is so bad I find it hard to lift my feet one in front of the other and I get breathless - surely at 56 I should be fitter than that. I also find that going upstairs can cause the burning sensation in my leg and I have to sit down for a few moments until it eases As for housework well....................... I really enjoy cleaning my house ( probably because it is such a change from when I am at work sitting at my desk all day) but I find after about 10 - 15 mins I have to sit for a few moments and then carry on if I can it is so frustrating. My doctor after the results of the scan has now put me on Co Codamol and I have to take 2 x 15mg tablets four times a day. I only started them yesterday and cant say there has been any difference yet in my pain.
I have also got the "hamster" face from taking the pred and have put on a lot weight around my stomach area, my doctor has now told me I have to go on a very low carb diet. He advises porridge in the morning and then for the rest of the day just either salad, fish, lean chicken and veg. I am to have no extra milk(he says I will get enough calcium from the tablets) and no bread, potatoes, pasta(don't like it anyway!) or rice.
I have my breakfast at 5.00am every morning so by 9.00am I am starving and then it just gets worse throughout the day - although oddly enough this morning I had porridge instead of my usual two slices of toast and so far I am not terribly hungry.
A friend of mine says she drinks between 60ml and 120ml of aloe vera juice every day and she feels great - she hasn't got PMR or any illness for that matter but she says the juice helps with her weight loss and is entirely natural so shouldn't do me any harm. She also says it helps with inflammation.
Has anyone else experienced this juice that has had PMR and was there any benefits to it?