i had my last period at the beginning of the year and although I'm happy to see the back of them I have since had numerous flare ups and the itching has been ridiculous, it has me demented through the night. Has anyone else had the same experience.
View 8 RepliesI know this sounds weird but my chronic sinusitis has me completely bedridden and has been for almost 2 years now and I haven't been able to work etc. anyway, my last CT scan showed massive inflammation and infection on the left side of my head primarily in the maxillary sinus.
It seems since I've been using the Neti bottle every day that I've gotten so much worse and consequentially my fatigue and weakness has been absolutely debilitating. My question is, has anybody ever heard of the Neti bottle or Neti pot making their sinus infection worse?? Thanks for reading.
I have been diagnosed for about 3 years now , but in truth i think iv had this for much much longer , i have had every arthritis test done about 3 times and been in hospital for a long period , which come up with fibromyalgia , i have 5 girls , my youngest are twins of 11, i lost my lovely dad 18 months ago through cancer , he was a hard working lovely man who everyone loved and he was only with us 6 week after being diagnosed with stomach cancer , i felt like my whole world was going to crumble , i was left looking after my mum who is disabled, my husband and 3 of my dependant girls , things have gotten really bad since dad died , it just seems to have divided the whole family , i have been trying my best to keep thing afloat and now my 2 eldest daughters have fell out with me (over care of my mother) (they are down as her carer and driver of her car) yet they were not doing the jobs was left on her own by them and my mother fell badly and i found her on the floor of her sheltered flat and she had been there from day before she is now in hospital (6 week)i am left to all the visits cleaning her clothes and she is very demanding gets quite aggressive at times , but i just don't think i can do much anymore ,my pain is excruciating,and i just want to stay in bed all the time , thing is , is she is about to get out of hospital soon , and i find myself worrying more and more about having to try and look after her when she's home , i just know i can't do it no more , i don't think i have ever felt pain like this in my life it is all over my leg muscles like cow bites ,my neck has got so painful and stiff , now my arms and elbows are starting to go the same , i just want to block the whole world out and stay in bed , my husband and children are understanding and do what they can ,but i know i cannot continue with looking after my mother the 2 eldest daughters have just stopped going in to see her or doing anything for her , i am at my wits end don't want it to come across like i don't care for my mum , but i just can't do it no more , it seems to bring out the worse in my condition, i dont cook much no more i have to try and run my own home my mother's and my business has nearly come to its end because i have nothing left in me , any advice would be grately appreciated thank you for listening x
View 17 RepliesMy grandfather is taking one and he is becoming way worse and just lays in bed all day and doesn't eat anything at all. And looks like he''s going to die soon. Only reason why I'm asking this question here too is because he has Alzheimer's too.
View 1 RepliesThe other day (Sunday) I did something stupid and had a few beers (about 2 pints). Yesterday and today I noticed my symptoms have gotten a bit worse. Does alcohol make anemia symptoms worse?
View 1 RepliesI have been off work since the end of May and Cervical Spondylosis was diagnosed by the Occupational Health doctor via the Local Authority for whom I work. This discomfort and pain started and deteriorated whilst working on the computer at work. The OH doctor says it is age related and will not attribute this problem to the fact that I spend most of my working life in front of a computer. I have had physio and acupuncture and they say it is to do with posture. This treatment has not resolved the problem and I have now been referred to the Orthopedic Service. I am fighting this with the help of Unison. Has anyone out there had a similar experience.
View 16 RepliesI'm so used to having a couple of cups of coffee a day but since i started withdrawing it seems to make my symptoms worse...especially the buzzing in my brain. Has anyone else found this? Any tips?
View 24 RepliesMy GP gave me cerazette, and after taking it for a while I broke out in acne so stopped. But the pain then got miles worse. Last night I had an ultrasound which showed my left ovary has moved to the back of my uterus, causing me awful pain.
I am wondering now was it the Cerazette that caused this, or was it going to happen anyway and should I have persevered with the pill.
I have read so much conflicting information so I wondered if anyone knows?
Also, I have been told by 2 doctors that laparoscopy makes the problem worse, but one told me it doesn't. I am so confused.
Lastly, has anyone tried the estrogen metabolism tablet DIM Plus? I read the reviews and it sounds good but I am so nervous to try any other tablets.
It may seem a silly question but I would like to get fitter - take up running - in my fifties and just wondered does exercise help with DD or make it worse? Anyone out there exercises avidly? I feel so depressed since my diagnosis - like my life is over! I suppose this is a bit dramatic but anyone got advise on exercise?
I had a colonoscopy with sedation (midazolam and fentanyl) in Chorley Hospital a few days ago and I still feel as if I had a PTSD. I read the information sheet and expected to be relaxed after sedation, with maybe some discomfort. When I was injected with the drugs (midazolam and fentanyl), I suddenly felt very anxious. I tried to seek reassurance, but the physician was talking to somebody else, busy preparing for gastroscopy. I think it could have helped if somebody asked me how I was at that point. I also had some trouble speaking – I think I was able to speak, but I could not hear myself so it made me feel very strange. Later on I read that difficulty speaking is a side-effect of midazolam. I felt quite intense pain during colonoscopy and the kind student nurse was talking me through it. I recovered well, I think, but I remember the whole procedure (so the amnesia that the leaflet talks about obviously doesn’t happen in every case). Next day I was very irritable and anxious and sick later on.
My main grievance is about lack of information beforehand concerning pain and the nasty side effects of the sedation. The leaflet mentions that you might feel ‘discomfort’. Of course you will feel discomfort – you will have a camera up your bum, what are supposed to feel? There is no ‘may’ about it. However, there is a difference between ‘discomfort’ and ‘pain’ and these words should not be used interchangeably. The leaflet and what you are told by the medical staff makes you believe that you will be drowsy and relaxed while medication works, and then back to normal after. I got quite a shock when I had the anxiety attack after the drug was injected and realized how vulnerable and helpless I was. I was also very unpleasantly surprised at how awful I felt the next day. Had I known this could happen I would have opted for entonox. Unless something changes dramatically in the way they perform colonoscopies, there is no way I’m having another one any time soon.
I would not like to discourage those for whom colonoscopy could be beneficial from having it. However traumatic it is, it is preferable to dying from cancer. However, I think that medical staff are not well trained in empathy (only student nurses seem to have it) and you have to be very assertive with them in order to receive honest information. If you are unlucky enough not to experience post-colonoscopy amnesia, the feeling of being at the mercy of medical people who are inflicting pain on you can be disturbing. It might be preferable to experience the pain whilst being alert and able to speak, and thus having some degree of control.
When i drink..sometimes urethra burns..irritation vulva etc..anyone else?
View 4 RepliesI've never ever had heartburn, or throat irritations (that weren't from a cold) in my life, and suddenly in January I started getting a lump in my throat feeling, that felt better as I ate, but came back when I was done. I was also noticing a dull chest pain on my left, but i figured it could had been from working out. It wasn't a big deal at the time, and I saw my GP about it. She couldn't really help me, other than refer me to an ENT.
A day after I saw the GP, I ate some instant ramen and got my first episode of heartburn/acid reflux. I went back to the GP shortly after, letting her know about the heartburn and she put me on 150mg of Zantac. Over the next few weeks, it didn't help much (neither did the constant Tums), and I had several more episodes of heartburn/reflux. It was always the same, I'd have the episode, the next few days I'd feel sore in my esophagus, and I'd almost get to the point of feeling better, then I'd eat/do something that would make me flare up again. It snowballed to last weekend, when I woke up on Sunday, drank some water, and just had the most acrid backwash. I panicked and went to the ER, where they put me on 20mg of Prilosec.
First few days were terrible nausea, migraine, chest pain and tense/twitchy muscles. Those went away, but now I always have the acrid backwash at night (I did get a wedge to keep my upper body slanted up), lots of throat gurgling/burps when I eat, and little-moderate acrid/stingy taste afterwards. It also feels as if my throat tenses on and off, and sometimes "clicks" when I dry swallow.
I'm having some other weird little side effects too, but I'm bothered that this reflux seems so constant now. I've already worked on cleaning up my diet, quit coffee, don't smoke, no fatty/greasy/sugary foods in the past week since starting Prilosec. Both parents have acid reflux, and my mother has GERD (a side effect of migraine meds). I'm not sure if this is made worse by Prilosec, or if I just suddenly have severe acid reflux no matter what I eat, and this is life now.
I'm seeing a gastroenterologist next week, but I'm afraid she's just going to up my dose and send me off. I want to get off all medication, and deal with this by diet change. I guess I'm asking if anyone has gone through something similar. In retrospect, I wonder if all the bad foods I was eating over the holidays set things off. In retrospect I was having a lot of "solid burps" through december, but no irritation till January.
My son had a colonoscopy and told may have Colitis..he was prescribed a month's supply of Salofalk enemas and took first one last night...but today he has had to poop about 7 times with some blood ...the frequency of the pooping is now more than it was before using the Salofalk and I'm wondering has anyone else experienced this...he is only 18 and afraid to leave the house..It is not diarrhea but it's just he needs to go so often...I am afraid he will loose a lot of weight...If this is normal using this product I can relax...can someone please reassure me
View 9 RepliesI'm now one week into my first taper from 15 down to 14 preds, for the last 3 days I felt really well, in fact began to think my diagnosis was wrong.
Silly me, woke up a 3 am feeling sore, by 6 am I was at 7 out of 10 on my own pain scale, so depressed but now certain I do have a problem.
Just wondering if cold could spark a flare? before the diagnosis I suffered aches and pains when the weather changed, this week I've enjoyed pottering in the greenhouse with the lovely sunny weather making it a joy to be outside, yesterday back to really cold weather and I got very chilled. Is there a relationship with temperature and PMR?
I was diagnosed at age 9 and had surgeries at ages 9,11, and 15. I quit running because i would get to about a mile and it would catch with pain. I love running though and am trying to lose weight so i am curious if running would worsen my condition?
View 2 RepliesWhen I received my diagnosis a month or so ago, I spent a lot of time reading this forum and learned an overwhelming amount of information. One post that stood out was someone who had managed to somewhat reverse their fusion with a baking soda spray treatment. I can't find that post, or remember what thread it was posted on, and I'm hoping someone can point me in the right direction. If there is anyone else who has managed to reverse their fusion.
View 4 Repliesjust been reading some of your comments and diet was mentioned, I try to have a healthy diet , don't eat a lot of spicy foods, I always buy fresh veg and only eat fruit like bananas that don't have much acid in. I must admit to having a sweet tooth and do like sweets and I have noticed more flare ups if I have lots of sugary foods. Try to keep my sweetie intake to a minimum which is hard because I think if you suffer from LS you need the occasional treat to cheer you up.. Maybe my fairly bland diet is helping to keep the LS stable
View 3 RepliesMy Mother suffers from Lichen Planus, which I know is not exactly the same as Lichen Sclerosus. She has recently found urinating really painful. She has today found a convenient way to make things a bit easier. She fills a sports drinks bottle with warm water, and squirts this against herself when she urinates. It is soothing and also cleanses the area each time. hope this may help some people?
View 3 RepliesI was diagnosed last year. I also had an early menopause as a teenager so we are looking into IVF to have a baby. I am struggling to find info on how LS affects pregnancy and birth if we are successful? Also thinking that the steroid cream can't be good for pregnancy?
View 1 RepliesI have questions about the clitoris being buried. My first LS breakout was about 7 months ago. Have had a couple less severe ones since. I've gotten tremendous relief and healing with the hydrogen peroxide/saline spray, and Caprylic MCT oil (derived from coconut oil) Didn't even know what the heck it was until I found this forum. Have not been to doctor but will make an appt. Noticing as I examine myself that area that my clitoris may be "disappearing" behind folds. I've been reading on this forum and wonder: does the steroid cream reverse the fusion a bit? Enough to free it again?
I had a friend who had a procedure to "free" her clitoris -- not an LS sufferer, but her architecture was such that it was covered up & couldn't climax with her husband all their married years. She finally did some research and found a doctor who specializes in this, and he said "you're 100% covered up". With a minor procedure, she is now normal down there and able to be satisfied with her partner.
I was just wondering if the steroid cream or perhaps this procedure could restore my clitoral area as well. It's been such a short time and my sex life was very satisfying just months ago! I'm 53, btw.
I'm going to have a biopsy done in few weeks time. I was advised by the dermatologist to get some metope (sp?) gel and apply it 1/2 hour before the procedure. However, I look at the instructions and you have to put an air tight covering over the area once you've applied the gel - something like cling film I think. But how will that work on my fanjo?
View 5 Replies