Lichen Planus :: Vulvar - Affected My Breasts And Small Patches On My Torso
Sep 16, 2015
I have just been diagnosed with LP vulvar, it has also affected my breasts and small patches on my torso. I've had it for a long time and just didn't know what it was, with flare ups that come and go- everywhere but the vulva, which has been rather constant and suddenly got worse about a month ago. Been in agony with the vulvar part for the past week because taking antibiotics for an ear infection meant severe thrush also got thrown into the mix.
The doctor said it was unusual for someone of my age to suffer from lichen planus (I'm 26), so I have to go to a dermatologist for their review. I'm also an IBS sufferer, I noticed on a lot of other posts that many people that mentioned LP/LS also have IBS.
I've been given Trimovate but, so far, the only thing that stops the itching long enough for me to get to sleep is Vagisil, which I'm worried will cause problems long-term even though it brings temporary relief.
I'm dreading going back to work tomorrow and don't know when/whether I'll get my sex life back with my amazing boyfriend. Feeling really rubbish
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I have been struggling to have sex with my husband for almost a year now. I have excruciating pain every time we try.
He is a great person and understanding but there is no hiding the fact that it is a struggle for him (and me) that we are not able to have sex. The pain is incredible and as much as I try to grin and bare it, it is impossible to achieve penetration.
I was diagnosed with LS just a week ago after a biopsy and have been given dermovate to use once a night for 4 weeks. Had anyone used this and seen an improvement with vaginal pain? How long did the medication take to work?
Has anyone had severe sexual pain and overcome it after medication?
I'm desperate, I'm 26 and can't spend the rest of my life not having sex. What if I would like children later?
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My 1st laser treatment was unsuccessful so i went to see an oral surgeon who specializes in laser ablation on soft oral tissues This time the procedure was much more invasive and treated like an actual surgery. The doctor removed the top 3 layers of epithelial tissue off the side of my tongue where the OLP was I he went much deeper than my 1st doc). I had the procedure friday and am still in considerable pain and discomfort. I am unable to speak and chew so i have been pretty much drinking my meals through a straw. Thankfully i have a supportive girlfriend who has been cooking and pureeing all the food for me I went to the doc today for a post-op exam and he said it was healing properly. I have been taking vitamin C, D, zinc, glutamine and lysine for immune support and to help heal the tissue. Right now my tongue looks like a mess but i am hoping it heals up and the OLP is a thing of the past. Unfortunately i had to cancel my weekend travel plans and missed my good friends wedding in the process, so i've been a bit stressed and sad.
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the first oral surgeon i went to recommended it and i am now thinking this may be a good idea. I believe its similar to a scraping where it stimulates new cell generation and heals the damaged tissue.
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I Am only the merry go round of LP. Off prednisone 5 days and it comes back in my mouth hands and vulva. I was trying and still am trying a shot of wheatgrass every am, probiotic yogurts and super 8 probiotic capsules. Have been doing this for three weeks and symptoms got worse so doctor has put me on steroids again...20mg as opposed to 40 mg the last time..I have been a naughty girl and am not taking them as I am trying to lose the stone in weight I put on during my last course.
I have read so many posts and now think if there id a connection between candida and Lp. I am thinking of going gluten free.....does this work?
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I was diagnosed with this 18 months ago. I was referred to hospital for biopsy which was traumatic. The doctor held my tongue and stuck needle straight in. The pain was so severe I passed out. My gp commented that he thought my treatment was brutal and unacceptable.
I was then referred to a different local hospital (we live between the 2) and was treated with kindness. I had further biopsy which was painful but bearable. Unfortunately this doctor now wants to refer me on as steroids are not sufficiently effective in controlling my OPL.
I have an appointment this week at Bristol Dental Hospital and am terrified of yet another biopsy. I am also frightened of being experimented on by students (not in general but in this instance).
has anyone any experience of this hospital?
I don't know anyone else with this disorder and feel quite isolated
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has anyone had or have burning mouth syndrome before having the Oral lichen planus?
i had the BMS about 6-7 years before getting OLP.
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I want to start a thread that concentrates on anything that helps - or anything tried that doesn't help.
I've been prescribed Dapsone, Allegra and Advantan - no improvement after 14 days
I've read that Ultraviolet B was completely successful for 70% of patients after 10.9 weeks and I can email that study to anyone interested. Ultra Violet B is provided by the sun but one person on this forum reported getting worse after spending time in the sun.
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I have been going through a second flare up and dermovate is not working. Now been given protopic as not responding to steroid creams. I need advise on the itching which is literally driving me mad and the lack of sleep is interfering with my work now any advise on creams, diets etc!
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I now have a date for a vulval biopsy as the specialist thinks it may be LS. There is a white patch there - which amazed me because two GPs told me that there were no white patches.
Anyway I need to have this biopsy done mid July - my GP told me that if it does show LS then in all likelihood they would want to remove the white patch (vulval surgery scares me to bits!). He said the steroid creams are not much good and they prefer to take the bit away in the hope that it will remove the risk of cancer developing. I am left wondering a) how painful is that op, has anyone had it done? It will be under a local anaesthetic I think. and b) would LS come back and I need to have it all done again?
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I think I have Oral Lichen Planus but I can't get a doctor to confirm it. I have had mouth sores in my cheek area since 2009 and now my gums are very red and inflamed and have been told that I have white lines on my inside cheek area. When I go to a dentist to have my teeth cleaned, I am always turned away because they don't like the looks of my mouth sores. In 2013 I had doctor swab my mouth and send for testing and also did blood work but was told nothing showed up. I think she was looking for bacterial infection. In the mean time, I continue with a very sore mouth.
I have a hard time eating anything because the sores are next to my bottom back teeth so eating irritates the sores a lot at night I sometimes bite the area with sores due to swelling so they pretty much never heal.
I recently went to a new dentist and she too wouldn't work on my teeth but she gave me details as to her concerns and told me to get checked for an Auto Immune disorder. I have since been to a doctor and had blood taken to check for that and then they sent me to ENT. He mentioned Oral Lichen Planus which was the first time I have heard of it. He wants to do a biopsy and then he mentioned a steroid rinse.
I also researched OLP and I have all the symptoms listed so I just don't understand how going to doctors since 2010 about the mouth sores, no one can figure it out? Am I finally heading in the right directions for diagnosis? I scares me that it has been left un treated for 5 years when I read that sometimes those with OPL can lead to mouth cancer.
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I have got lichen planus on arms very bad, legs, vulva, oral and now starting on my chest. I have used cetraben, dermovate, dermal, doublebase cream, hydrocortisone, calamine lotion, aqueous cream..my GP been excellent.
Also Tramalgin, betnovate for below and am now tearing my hair out with sleepless nights with itching.
I go to work like a zombie and it's so embarrassing having to scratch, they say the monkeys here as a joke.
This has gone on for 6months nearly...am waiting to see the dermatologist. I had a vulvar flare 4 years ago and was ok up until early this year.
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My son was diagnosed with OLP when he was 8..... But his mouth ulcers started when he was 3! He's 10 now. He has good weeks and he has Horrible weeks. No one has been able to help us relieve his pain. We do have some meds prescribed but none are miracle drugs (I know that doesn't exist. . I just wish it did). The medicine prescribed to him is Methotrexate 2.5 mg tablet - 6 at a time once a week. Also he's to take folic acid with this med. He's not started this yet because he must have blood work done routinely since there is a chance this med will effect his liver .... And he's terrified of needles. He uses Chloraseptic mouth spray very often for the pain. He misses school very often. He sometimes has "mystery fevers" and feels just awful inside. He gets bad headaches. I read on one thread that someone mentioned an OTC med for thrush and an enzyme for candida. I think I might try that for him. Does anyone have any other suggestions for me? My sweet boy is in pain and has been for so long and I'm worried that his childhood is being negatively impacted by all these mouth ulcers.
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2 weeks been there someone help don't know what they are !?
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I have some gel to apply 30 mins before the procedure but you are supposed to cover the area (once the gel has been applied) with a plastic dressing. I don't have such a thing and it will move around anyway .... Would be great to hear from anyone who has any tips! I thought of putting cling film around a normal dressing and holding it there with my pants on?
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I was diagnosed with vulvar vestibulitis, a condition where the nerves in my vulval area are hypersensitive and cause swelling and itching upon the slightest disturbance (i.e. tight clothing, vibration from car rides, etc.). This was about 8 months ago, and my OBGYN prescribed me amitriptyline (25 mg)/ night and lexapro (10 mg)/day to calm these nerves over time. Can I have a drink or 2 with this condition? I really want to but am afraid that it will make my vestibulitis worse. Anyone else out there with vestibulitis who is facing or has faced this problem?
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Has anyone here had a vulva biopsy ?
If so, how was the healing process? and did it leave a scar?
I got one last week, its a hole, Gyn didnt put stitches since stitches make you itchy ( and thats the main reason why i got the biopsy done due to Itching)
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I am postmenopausal, 56 years old and had a hysterectomy at 42. In the past 12 months I have had all sorts of problems with Vulvar skin, burning, tightness you name it and I am terribly uncomfortable. I often feel like something is stuck. I have been to a Gym and don't have any sign of prolapse etc. but do have signs of "old Lichen Sclerosus" but I don't have typical white patches, itch but he absorption of labia minora. I am using some Ovestin now but perhaps not enough?
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I'm 15 and right now I'm cry my eyes out. For about a year, I've had a hardish, moveable, painless lump under my left labia majora. I am not sexually active and suffer with anxiety so I'm freaking out in case I have vulvar cancer. I have no symptoms, nothing is out of the usual, I'm just really scared. Also there seems to be some kind of painful lymph node on the top of my inner thigh, near my vagina, which swells up when I'm sick, it's quite painful but goes down and only seems to come when I have an infection.
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Basically for the last 2 or 3 years I have skipped most of my periods...I think I maybe have about 4 a year?
I just felt so low and scared of being alone with bfs, that i felt 'I'm due on my period. They will want sex. If i can't give it to them, the will break up with me'.
So I would keep skipping the pill...often though I would forget to take it and come on, sometimes lightly, sometimes heavily, and to force it stop early would eat about 5 or 6 pills in one go...just to force it to stop. I'm not sure how many times a month this would happen, but I mainly used the pill just to stop having a period, the day I would start one.
I know I have probably ruined my body, and my hormones to say the least are all over the place...i was super hormonal and cry-ey and jealous and just an emotional wreck.
But now I'm worried it might have affected my fertility somehow? & Maybe make it harder for me to conceive in the future. (Which is my biggest fear)
I keep getting random pains in my right ovary kind of area.
I will go to my Dr at some point, but I just wondered if anyone knew of anything.
I am also looking to come off the pill and maybe lay off of anything estrogen related/cut down on eggs too. I think my body needs to cut out estrogen all together for a while. Also, I don't trust myself not to be tempted again, if i'm feeling low about myself. I know it works, so I might do it. I am thinking of going on the implant or coil or something instead, but not sure if I should come off all hormonal based contraceptives, or just change to something else?
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I am 16 years old girl. I attend medical school and I really need one answer fast. Can you tell me which chromosome is affected by cystic fibrosis? I have a test tomorrow and I can't seem to remember this fact. Please help me out; it will be a lifesaver. Thank you in advance.
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