I have been going through a second flare up and dermovate is not working. Now been given protopic as not responding to steroid creams. I need advise on the itching which is literally driving me mad and the lack of sleep is interfering with my work now any advise on creams, diets etc!
View 19 RepliesI have been struggling to have sex with my husband for almost a year now. I have excruciating pain every time we try.
He is a great person and understanding but there is no hiding the fact that it is a struggle for him (and me) that we are not able to have sex. The pain is incredible and as much as I try to grin and bare it, it is impossible to achieve penetration.
I was diagnosed with LS just a week ago after a biopsy and have been given dermovate to use once a night for 4 weeks. Had anyone used this and seen an improvement with vaginal pain? How long did the medication take to work?
Has anyone had severe sexual pain and overcome it after medication?
I'm desperate, I'm 26 and can't spend the rest of my life not having sex. What if I would like children later?
My 1st laser treatment was unsuccessful so i went to see an oral surgeon who specializes in laser ablation on soft oral tissues This time the procedure was much more invasive and treated like an actual surgery. The doctor removed the top 3 layers of epithelial tissue off the side of my tongue where the OLP was I he went much deeper than my 1st doc). I had the procedure friday and am still in considerable pain and discomfort. I am unable to speak and chew so i have been pretty much drinking my meals through a straw. Thankfully i have a supportive girlfriend who has been cooking and pureeing all the food for me I went to the doc today for a post-op exam and he said it was healing properly. I have been taking vitamin C, D, zinc, glutamine and lysine for immune support and to help heal the tissue. Right now my tongue looks like a mess but i am hoping it heals up and the OLP is a thing of the past. Unfortunately i had to cancel my weekend travel plans and missed my good friends wedding in the process, so i've been a bit stressed and sad.
View 3 Repliesthe first oral surgeon i went to recommended it and i am now thinking this may be a good idea. I believe its similar to a scraping where it stimulates new cell generation and heals the damaged tissue.
View 7 RepliesI Am only the merry go round of LP. Off prednisone 5 days and it comes back in my mouth hands and vulva. I was trying and still am trying a shot of wheatgrass every am, probiotic yogurts and super 8 probiotic capsules. Have been doing this for three weeks and symptoms got worse so doctor has put me on steroids again...20mg as opposed to 40 mg the last time..I have been a naughty girl and am not taking them as I am trying to lose the stone in weight I put on during my last course.
I have read so many posts and now think if there id a connection between candida and Lp. I am thinking of going gluten free.....does this work?
I was diagnosed with this 18 months ago. I was referred to hospital for biopsy which was traumatic. The doctor held my tongue and stuck needle straight in. The pain was so severe I passed out. My gp commented that he thought my treatment was brutal and unacceptable.
I was then referred to a different local hospital (we live between the 2) and was treated with kindness. I had further biopsy which was painful but bearable. Unfortunately this doctor now wants to refer me on as steroids are not sufficiently effective in controlling my OPL.
I have an appointment this week at Bristol Dental Hospital and am terrified of yet another biopsy. I am also frightened of being experimented on by students (not in general but in this instance).
has anyone any experience of this hospital?
I don't know anyone else with this disorder and feel quite isolated
has anyone had or have burning mouth syndrome before having the Oral lichen planus?
i had the BMS about 6-7 years before getting OLP.
I want to start a thread that concentrates on anything that helps - or anything tried that doesn't help.
I've been prescribed Dapsone, Allegra and Advantan - no improvement after 14 days
I've read that Ultraviolet B was completely successful for 70% of patients after 10.9 weeks and I can email that study to anyone interested. Ultra Violet B is provided by the sun but one person on this forum reported getting worse after spending time in the sun.
I have just been diagnosed with LP vulvar, it has also affected my breasts and small patches on my torso. I've had it for a long time and just didn't know what it was, with flare ups that come and go- everywhere but the vulva, which has been rather constant and suddenly got worse about a month ago. Been in agony with the vulvar part for the past week because taking antibiotics for an ear infection meant severe thrush also got thrown into the mix.
The doctor said it was unusual for someone of my age to suffer from lichen planus (I'm 26), so I have to go to a dermatologist for their review. I'm also an IBS sufferer, I noticed on a lot of other posts that many people that mentioned LP/LS also have IBS.
I've been given Trimovate but, so far, the only thing that stops the itching long enough for me to get to sleep is Vagisil, which I'm worried will cause problems long-term even though it brings temporary relief.
I'm dreading going back to work tomorrow and don't know when/whether I'll get my sex life back with my amazing boyfriend. Feeling really rubbish
I think I have Oral Lichen Planus but I can't get a doctor to confirm it. I have had mouth sores in my cheek area since 2009 and now my gums are very red and inflamed and have been told that I have white lines on my inside cheek area. When I go to a dentist to have my teeth cleaned, I am always turned away because they don't like the looks of my mouth sores. In 2013 I had doctor swab my mouth and send for testing and also did blood work but was told nothing showed up. I think she was looking for bacterial infection. In the mean time, I continue with a very sore mouth.
I have a hard time eating anything because the sores are next to my bottom back teeth so eating irritates the sores a lot at night I sometimes bite the area with sores due to swelling so they pretty much never heal.
I recently went to a new dentist and she too wouldn't work on my teeth but she gave me details as to her concerns and told me to get checked for an Auto Immune disorder. I have since been to a doctor and had blood taken to check for that and then they sent me to ENT. He mentioned Oral Lichen Planus which was the first time I have heard of it. He wants to do a biopsy and then he mentioned a steroid rinse.
I also researched OLP and I have all the symptoms listed so I just don't understand how going to doctors since 2010 about the mouth sores, no one can figure it out? Am I finally heading in the right directions for diagnosis? I scares me that it has been left un treated for 5 years when I read that sometimes those with OPL can lead to mouth cancer.
I have got lichen planus on arms very bad, legs, vulva, oral and now starting on my chest. I have used cetraben, dermovate, dermal, doublebase cream, hydrocortisone, calamine lotion, aqueous cream..my GP been excellent.
Also Tramalgin, betnovate for below and am now tearing my hair out with sleepless nights with itching.
I go to work like a zombie and it's so embarrassing having to scratch, they say the monkeys here as a joke.
This has gone on for 6months nearly...am waiting to see the dermatologist. I had a vulvar flare 4 years ago and was ok up until early this year.
My son was diagnosed with OLP when he was 8..... But his mouth ulcers started when he was 3! He's 10 now. He has good weeks and he has Horrible weeks. No one has been able to help us relieve his pain. We do have some meds prescribed but none are miracle drugs (I know that doesn't exist. . I just wish it did). The medicine prescribed to him is Methotrexate 2.5 mg tablet - 6 at a time once a week. Also he's to take folic acid with this med. He's not started this yet because he must have blood work done routinely since there is a chance this med will effect his liver .... And he's terrified of needles. He uses Chloraseptic mouth spray very often for the pain. He misses school very often. He sometimes has "mystery fevers" and feels just awful inside. He gets bad headaches. I read on one thread that someone mentioned an OTC med for thrush and an enzyme for candida. I think I might try that for him. Does anyone have any other suggestions for me? My sweet boy is in pain and has been for so long and I'm worried that his childhood is being negatively impacted by all these mouth ulcers.
View 33 RepliesI've been dealing with a chronic itch on my genitals (im a female) it all started with a yeast infection though the yeast went away but the itch didn't i've went with vulvar specialist and they find nothing.I recently met with a dermatologist and said it was something with my nerves down there so she prescribed me Doxepin i guess it helps with the itching but i want a cure ! i cant tell i it works yet but have any of you took it for itching? if so what was the outcome?
View 5 RepliesSeriously, it hurts so bad I can't even touch it. No redness, no discharge, no odor, no itching, no pain urinating, just dryness and burning. Similar to a rash or rug burn.
I've treated it for yeast infections, but it still keeps burning off and on. Maybe it's sensitive skin? I use natural and PH-balanced soaps because I can't stand using only water down there.
Please help! It REALLY makes it difficult to enjoy my sex life.
i'm 22 years old just get married , never had sex before in my life !! i just lost my vegina 6 months ago with my husband . it was complicated hymen resistance , some doctors asked me to use operation to loose my vegina, but my husband insisted to do it by his own !
my point here is : any time i have sex during this 6 months i get hurt in the entrance of my vegina , and when he is trying to exit too ! after the sex i feel the fire on the exit (vulva) that takes an hour or two sometimes! as a concussion NO ITCHING at all ,only burning in the entrance of my vegina ( vulva )
i visited a doctor he said that we need to have sex many times as we can ! but its still hurt
Does anyone else have a problem with itching. For the past 2 years especially at night I just itch and itch. I do not use any soaps. I am not dehydrated. I am 52 but not menopausal yet. This problem is driving me mad as there is nothing to see
View 7 RepliesI just had sex for the first time with my boyfriend and my vagina has been really !! Itchy and sore manly itchy the hole thing the hole and my clittores . We had sex more than once and only used a condom once .. Plz help ?? I need to know what this is ? It is not red I have no discharge?
View 1 RepliesTwo days ago I scratched my vulva and Labia area because it was itchy in the night and when I woke up it was reddish irritated. Now it looks like it healed, but it stings when I wash with hot water and when I pee.
View 1 RepliesI've struggled with intense vulva itching since i was 18 and now am 25 and it seems to be getting more intense and more frequent. The appearance of my vulva has changed. The labia minora looks stretched and purplish brown. The outer lips have shrunken somewhat. I am experiencing yellowish discharge and burning after peeing. Pee seems to aggravate the itching even more. I have been treated for uti s and for yeast infections with no luck. I have tried changing to cotton underwear, avoiding soaps, and try to stay dry though it is had since I always seem to have discharge coming out. Having sex definitely aggravates the itching as well. It feels liI'm I'm allergic to everything and it's very frustrating not to have any doctors give answers. They don't know what my vulva used to look like so they don't believe it's a serious issue but it's too intense to ignore. Please advise me on what it could be and what I might do. It's been too long to ignore and it feels like it's getting worse.
View 1 RepliesI have terrible sores on my vargina it first started as an infection n was itching bt nw it has turned into very painful sore and even difficult 2close my legs.
View 1 RepliesI have a burning and itch. It gets a bit worse when I pee.. It's around the vagina only.. It's been 3-4 days since I finished my period. I'm not discharging anything and i don't know of any smells..
Please help! I don't know if it's a yeast infection.. I've never had this kind of burning an itch there before...