LPHS - Loin Pain Hematuria Syndrome - Blood In The Urine With Horrible Pain
Mar 2, 2011
I am French. I’m 28, it’s being 2 years and a half that I have blood in the urine with horrible pain.
I had 3 ureteroscopies who have given nothing and now the professor who follows me told me I have the loin pain hematuria syndrome, and there was nothing to do. The only thing I can do is to wait till it’s going better. He refuses to make a biopsy and told me to take aspirin.
I wanted to know if you know doctors who offer other drugs. I've heard of self transplantation and kidney innervation;
I've been in different hospitals and doctors tell me that the pain is bearable and advised me to consult a shrink. I do not think my pain is psychic. I wanted to know if U.S. medical research is more advanced than the French one.
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I have had visible blood in my urine, and some stinging pain while passing. I went to the Doctor who said it's probably an infection, gave me some antibiotics and it should go in a few days.
Well, I took the antibiotics and the bleeding went within 24 hours and the pain when urinating was virtually gone a couple of days later.
However, the results of the urine test stated there was no infection so I have been told I will have to have further tests, cystoscopy and ct scan on my kidneys etc.
My first worry is that it is cancer, I'm a 44 year old male, and a close friend (who is 55) has bladder cancer so as you can imagine I am in pieces at the moment, not knowing what to expect.
Doctor was quite abrupt on the phone, simply saying it would be unusual in a man of my age and that it could be a kidney stone (I have no symptoms, perhaps a ache in my back, but not sure if that is now psychosomatic) or a burst blood vessel in my bladder.
Any just looking for some reassurance, and to take my mind of the worst outcomes which is all I can currently think about.
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I'm a 18 year old guy with no previous illnesses of any kind, don't drink/smoke, etc. Except not exercising and sleep irregularly, I'm pretty okay with lifestyle.
I had the symptoms of a UTI one day (first time in my life) with symptoms of blood in urine and lower abdomen pain. My doctor diagnosed it as prostatitis and gave me antibiotics for a month.
I never had the symptoms again since the first day of antibiotics, but now that I'm 3 weeks in, I'm feeling new symptoms like hesitation to go urinate, want to go urinate more often, etc.... Maybe it's my mind playing with me, but I FEEL like my bladders feel a little weird. Like, it feels... full? There's no pain at all, except perhaps minor irritation in my testes.
So now I'm really wondering if I should go see the doctor again, mostly in fear of potential kidney damages (urea poisoning a possibility?) I don't have insurance, but won't hesitate to stomach the bill myself if need be. Since I don't want to end up in the ER, or die...
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I have ongoing discomfort in my groin, lower abdominal pain, nausea and blood in urine. Any suggestions what this could be?
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I was put on doxazosin after a period of great stress (xmas), and although it's lowered my BP, I've had horrible side effects.
I've had the racing heart, swollen ankles, breast pain, chest pain (muscular), sore throat, sore jaw, headaches, anxiety, etc.
I was on 4mg for one day and my right leg gave out from under me, so I went down to 1mg.
Since then, I haven't had that the leg caving thing (thank God!), but I feel very unwell.
I feel heady, like I have a very bad cold. My nose hurts, my throat hurts, my teeth hurt, my ears hurt, and the roof of my mouth hurts.
The anxiety the drug induces is magnified because of the side effects, and the side effects increase the anxiety. The anxiety raises my blood pressure, and the cycle goes on, ad infinitum.
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For the last five months I have been experiencing blood and protein in my urine. After a very thorough assessment from a urologist everything came back normal. I was referred to see a nephrologist to see if the blood is coming from my kidneys. my kidney panel came back normal except for lower than normal creatinine levels???? but my urinalysis came back all wrong. It's showing 3+ for blood, 100 mg for protein, 1+ bilirubin, urine color is brown, ph of 5.5.
The dr also order a ANA test to check for lupus, but it came back negative. I'm completely lost, can a person have kidney disease w/normal kidney function?or lupus nephritis w/negative ANA test?
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Test show that I have a enlarged kidney, I have protien in my urine, severe back pain to the right side, strong smelly urine, blood pressure very high now on 10mg blood pressure tablets, Doctors have done tests on my kidneys and say the test shows the kidneys are functioning normally so I have not to go back to hospital for six months.
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I am a 17 year old female.
For about four months now I have been experiencing problems with fully emptying my bladder and had trouble with leakage, even wetting myself completely once.
I went to my GP who tested my urine with a dipstick and found traces of blood. My GP also sent off a urine sample to the lab but this has come back negative for blood which confused me.
I have been referred to a urologist and have been booked for a kidney and bladder ultrasound in a couple of weeks.
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I've been avoiding going to the Dr's for a while now, as I'm very scared.
Every few months, I have a day or so where I urinate blood. Also some blood clots. No real pain.
Then it will seemingly disappears for a few months, and will then return for a day or so.
I'm assuming it's something terrible.
Other symptoms seem to be frequent/weak urination.
Sometimes a mild/dull pain in one of my testicles.
Has anyone experienced this? WHy would it be every few months like this?
I plan to call my GP tomorrow as it happened again a minute ago for the first time in a few months and i'm plucking up the courage.
I'm petrified of the cystoscopy. (pain and embarrassment)
I had my urine tested for an unrelated issue a while ago, and it was apparently 'clean' (even though this was only a day after i'd been urinating what looked like almost pure blood)
How can this be?
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Please guide me with available informations for Hematuria having dysmorphic red cells ,pain,left side face numbness.
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I have been experiencing horrible head pain for the past 6 months. I've been to a neurologist and had multiple tests (MRI's/CT scans) performed and everything has come back normal. The only thing that has come up has been "lordosis" in my neck and "slight changes in C5 and C6" in my neck. My headaches started back in May when I was moving out of my apartment and seemed to have strained myself. I have been going to a PT and that has not helped. Additionally, I have had 2 nerve blocks, trigger point injections, and dry needling, none of which have helped. I am scheduled to get botox injections in my neck and lower head to hopefully help. Additionally, I am going to a neck/spine specialist. Both happening next week. Can anyone relate to the pain that I have been having? My pain seems to start in my neck and travel all over my head, on one side of head to the other, behind eyes, behind ears, etc. It feels like a stinging, uncomfortable pain. Someone please help, give suggestions, relate to me!! Feeling desperate and feeling like my head will never get better.
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On a doctor's visit back in December, it was discovered that i had microscopic blood in my urine. This went on for a few months, and increased with every doctor's check up. A urologist did an ultrasound of the kidney/bladder back in February, and all was normal. He also did cystoscopy which was normal too. He also did a test which shows my bladder holds sufficient amount of urine. The problem is, we never really figured out what the cause was, and recently i have had a new symptom (mucus tissue looking things in my urine). I am considering going back to a different urologist, but has anyone experienced something similar, or know what tissue looking bits in urine is?
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Im 29 year old female, i've always thought my painful bladder and urination was from chronic bladder infections for years until my doctor recently sent me to a specialist and sent off for urine culture and came back negative. .have all the symptoms of a bladder infection. Have large amount of blood (4+) ..Urologist sent my for a ct ivp to look for stones or look for something abnormal with ureters or kidney, nothing ..everything came back normal..now the urologist ordered a test to look at the bladder with scope through my urethra and also take a biopsy of bladder wall to look for cancer cells..owww. Any answers on what this can be I have all the symptoms of bladder cancer but im young and no family history of bladder cancer im a non smoker /alcohol drinker.
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I have already read a lot of good information about fatty liver and other people's symptoms. I am not sure what is going on with me but thought I would see if anyone can relate or help. I was actively working out my abs doing core exercises for a couple of weeks and noticed maybe (trying to remember) a day later, horrible pain on my right side under my rib cage. I was also diagnosed with a fatty liver about a year or so ago. When I was first diagnosed, I had a mild pain (more annoying than painful) and thus underwent an ultrasound. My triglycerides are pretty high and HDL and LDL are a little off but not too bad. Everything else seems pretty good. I haven't really changed my diet since I was diagnosed and do have my starbucks fraps almost daily, but did start a strict exercise with cardio and walking almost everyday.
Getting back to the pain, it started about 5 days ago and yesterday I thought it was going away. It is still there today. I don't know if I strained it, it is my gallbladder, or my fatty liver. I am so afraid of doctors and don't want to go. The pain is more intense when I move my torso to the left and to the right.
Can anyone help or give your opinions as to what could be going on or if they have the same symptoms.
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took a 2nd dose of oxycodone 3 hrs ago and my pain is only gotten worse i'm crying and shaking - called my doc at 630am -1 hour ago before i was crying and shaking he told me to take 2 aleve and the 2 oxy every 4... is this normal or should i call back?
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I came across this syndrome when searching the Internet about extreme pain I have when I take the first bite EVERY time I eat and sometimes drink. That this could be a symptom of this syndrome but I don't know. I do have some of the other symptoms, i.e. neuropathy, blurry vision, muscle pain, fatigue but these can also be associated with Type 1 Diabetes which I have. Also, came across parotid/salivary glands are affected which also can cause the jaw to ear pain I'm having. Has anyone heard that the Coxsackie virus can have anything to do with it? How do you know for sure if it is Sjogren's and what type of doctor do you see about it - a primary?
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I just started reading about this and it really sounds like I may have this but I'm not sure. I have headaches sometimes that are awful and seem to start from my neck and back of my head. I see a chiropractor once a month and my x rays showed problems in c5 and c6 in my neck. I also have notalgia paresthetica which itches me too death sometimes in my right back shoulder. We figure it's caused from the c5 and c6 in my neck. I never sleep all through the night, always tossing and turning. And I feel fatigued ALL the time no matter how much rest I get. I had a blood test and my vitamin D is low. I can find "knots" on my back, usually I can find about 5 or 6 of them, even on my sides. I work a very physical and mentally stressful job and this causes me a lot of pain. When I am working usually mid day I will get a horrible sharp pain somewhere in my back and it just stops me. It's like someone taking a hot knife and stabbing me with it. It's hard for me to straighten myself up. My pain is in my mid and upper back, rarely ever in my lower back. I do get dizzy sometimes also and feel off balanced.
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I had this stool with bright red blood yesterday and today. I couldn't tell how much blood there is but the water became bright red with 50% visibility (I looked at the stool ). I don't feel any pain and I feel nothing at all on my body. The day before I had the stool with blood, I drank four cups of green tea. I know tea is acidic but I am not sure if this is the cause of it. My urine is fine and without blood.
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I had unprotected sex before 5 days ago and now I'm having a pain after passing urine near vagina, Am I pregnant?
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Today morning I waked up after sleeping about 9 hours (without going to the bathroom and after drinking a lot before the sleep). After going to the bathroom I felt pretty acute pain in my lower abdominal. It became milder during the day, still preserving though and appearing sometimes with more strength while changing position (sitting, or standing) and also reminding about itself sometimes after urinating (but not always). It kind of feels like muscle pain and earlier could be felt also while touching the muscles close to the penis. Now it is way milder, but didn't go. Can this be a result of muscle stretch or something like this?
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I was wondering if anyone else has this problem. If I stand for a long time or sit in a chair without head support, I end up with a horrible headache. But if I can lie down or sit in a chair with head support so that I'm not having to carry the weight of my head, I don't get headaches. Anyone else?
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