Kidney Stones - Six Months Lithotripsy - Still Passing Particles?
Jun 7, 2014
I had a lithotripsy done in January 2014. I passed a lot of stone particles within a month. Six months later I am still have flank and side pain. I had KUB xray which showed nothing, last month I had an IVP done which again showed nothing. I am still passing tiny particles. Dr. does not think it is my kidney, thinks it is back pain. I disagree with him. Does anyone have any suggestions on passing the particles faster or same issues as I am having?
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Is it me or is this stuff a waste of time?
I've had obout 20 lithotripsy's in 15 years of having continuous stones. They've never gotten my kidney completely empty of stones ever. I've had lithos, ureterscopy, PCNL. On meds but they can't seem to stop them from growing. I avoid alot of the things that cause stones or limit them. Got to have the 1 cup of coffee in the morning
On the day before litho, your suppose to eat light ( nothing that leaves residue in bowl) but they say you can have white bread or boiled chicken. (Why bother?) I usually only eat jello, gatorade, and just broth. Plus tons of water. The instructions say to drink the magnesium of citrate after dinner. Well to me dinner is after 6/7. But I thought this time I would take earlier since last time didn't start to move the bowels until i was in the hospital. Plus this stuff is awful- taste bad- even refrigeration like they suggest doesn't really help. Twice in past I threw it up.
So I took at 5 pm thinking it would work earlier. Nope. Nothing. Just stomach cramping and it finally started around 5 am after me getting up every hour during night. Still was working again while in hospital.
There has to be something better (tasting) and work faster. Plus less side effects. Or they should change instructions & say take a noon. Next litho (in 2-3 months) I'm taking a 1/2 day off day before and taking at noon. Maybe then can get a little sleep the night before procedure.
Sorry- felt like ranting as frustrated as its been two full days since litho and nothing passing yet. Plus I have a bad back (2 surgeries) which makes it hard to do the exercises where you drink 2 cups water, wait 30 minutes, then elevate kidney @ 45 degrees and stay like that for 30 minutes to try and get the pieces to move.
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Dec 29 emergency room found 2 stones 7 & 8 in size. Put in stint, went to urologist 2 weeks later and 2 weeks after that had Lithotripsy, turned 2 stones into 5 that were at the bottom of my kidney. 3 weeks later had Ureteroscopy urologist said this would get rid of stones. Went in today to have stint removed. Blah, still have several stones. I am beside myself and quickly loosing confidence in my urologist. He told me to stand on my head numerous times a day in hopes that the kidney stones will float to the top and out (I am 60 by the way). Standing on my head is going to be a feat. Said come by in 2 weeks and we will explore options to remove the stones again...
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I have 2 stones in my left kidney, a 7mm in the lower pole and a 4mm in my mid pole. The pain I experience is pain under my ribs and lower back pain. I have an appointment in September, the soonest I can get to evaluate my options, possible lithotripsy. Anyone else with a similar situation?
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I passed a kidney stone in August 2014 believed to be my first, although a few incidents in the past make me think I've passed stones before (I thought I was having a lot of UTIs but all tests came back clear, this was over a period of around 5 years and happened maybe 6-7 times). The stone in August was quite a strange experience, there wasn't much pain (it came and went) but I had the overwhelming feeling that I needed to pee constantly, it was unbearable and lasted all night so I couldn't sleep. The whole episode lasted around 12 hours (which I believe is pretty quick for a stone...God knows how I would have coped with that for any longer!). I had an x-ray followed by a CT scan a few weeks later and was diagnosed with multiple average-sized stones in my left kidney and one large (8mm) stone in my right kidney.
The whole thing is quite puzzling for me as I'm a 24 year old female, I'm vegetarian, and I religiously drink 2 litres of water a day and have done for the last 7 years or so. My diet is not salty and I don't consume a huge amount of oxalate rich foods. The only reason that doctors can come up with for my condition is that my father is prone to kidney stones.
I'm waiting for EWSL on the 8mm stone, which I'm pretty scared about as I'm worried I'll have the constantly needing to pee feeling afterwards while the fragments pass, but the other stones in the left kidney are just being left there. I feel like a ticking time bomb really because I don't know when these stones will pass, and even when they do, more are likely to form.
I suppose I'm just looking for some advice on how to cope with this situation, what I can expect, and how common the symptom of constantly feeling like you need to go is? Does this usually last long, or does it signify the stone being almost passed? Also, does anyone have any experience of EWSL and what should I expect from that?
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I passed a 4mm stone approximately 2 weeks ago and for the past couple of days I have had pressure in that kidney. It took me about 10 weeks to pass the stone and the last four weeks was without any pain. I am having the stone tested by my GP. I decided not to follow-up with the urologist who I was referred to because he was the worst doctor I have ever been to and would prefer to find someone else if further treatment is needed. I am hoping to wait until the test results come in so I can go and talk to my GP about what my next steps should be.
I know the pressure is not another kidney stone - ct, ultrasound, and x-ray all only showed one the exact size of the one I passed. What could this pressure be and why did it develop 1.5 weeks after I passed the stone? The pressure even comes and goes so it isn't constant. Everything else is normal - urine output etc. It is more of annoyance than anything else. Should I be concerned?
My body is revolting at the moment so just wondering if this is just a coincidence - I have a cold and it is that time of the month. I also have massive uterine fibroids that are pressing on that side. One radiologist said in their report they thought that was the reason I originally formed the stone. The urologist I saw said it had nothing to do with it, but two of the three gynecologist I have seen felt that it was a concern. So I don't know who to believe. Normally I would trust the urologist but he was only focused on surgery and he was constantly blowing off my concerns instead of trying to help me understand. I know surgeons love to do surgery but I am a patient who loves to avoid surgery so our personalities clashed when he wanted to do surgery just to check and see if I had a stone.
Anyone have any experience with pressure after passing a kidney stone? If so what caused it and what was done for it?
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Bit of background; I'm 26 years old, male, live a relatively healthy, active lifestyle apart from not drinking enough water (paying for that now).
About 5 months ago I kept experiencing a dull ache in my groin area, it usually subsided within about 30 minutes so I thought nothing of it. Anyway, one night I got up to go to the toilet and the pain in my groin suddenly hit me like a brick to the face. I was doubled over and can honestly say I have never ever experienced such severe pain in my life. First thought was that my appendix had burst. My girlfriend called an ambulance and I ended up in A&E. The doctor came in and immediately said 'kidney stones', I shuddered. They gave me some pain killers (suppositories unfortunately as the pain was making me vomit). They took my blood and sent the results up to the lab. About 45 minutes later a nurse came in and asked me to do a urine sample. I was still in quite a bit of pain and hadn't drunk anything since the previous night but I complied. Well, all that came out was essentially pure blood, it looked very 'bitty' and I thought something was seriously wrong (apologies for delving into detail so much, I just think it helps to know everything). The nurse came in and said that didn't look too good so she sent it off for testing. They hooked me up ready to take an IV drip just in case I had to stay in.
When the doctor returned he told me that I didn't have kidney stones but had a mild kidney infection. They sent me on my way with a pack of codeine and some antibiotics. I took a week off work and just rested. By the end of the week I was back to normal.
Two weeks ago I was on holiday in Florida doing the usual touristy thing, Disney, Universal etc. Due to my hatred of bland water I hadn't been drinking that much and given the 40+ degree heat we were experiencing, that probably wasn't the best idea. At the end of week one I was lounging in the jacuzzi at the hotel, when the ache in my groin reappeared, it took me by surprise as I hadn't had any pain since being in hospital. I took some painkillers and thought nothing of it. Later on while out to dinner I went to the toilet and noticed some blood in my urine (I'm a bit of a worrier so immediately I was on red alert). I got my girlfriend and told her we needed to go to see a Doc the next day. After seeing the Doctor and paying $140 for the privilege (no NHS out there and they don't accept health insurance so you have to foot the bill initially), the doctor gave me some antibiotics and told me that my urine sample showed no signs of bacteria which would indicate and infection - she believed it to be kidney stones but a CT scan would cost me £400 so I declined.
I didn't believe her, I had faith in the NHS and thought she was just trying to get more money out of me. I took the tablets and kept up with some pain killers and started to drink a lot of water. Things seemed to go fine.
Two days after arriving back in the UK the blood in my urine came back and I felt aching in my groin and my abdomen and had lower back pain. I went to see my Doctor and he again said kidney stones. I explained about having a kidney infection and going to A&E and the pain etc and he said that it sounded to him like I actually passed a stone while I was in A&E. He said it's no excuse but it's not uncommon to be misdiagnosed. He booked me in for an ultra sound with the hospital but said it could be a few weeks. GREAT!!
I went home and started drinking water like a madman. I'd previously gone from drinking roughly 1 litre of liquid a day to suddenly drinking 2.5/3 litres of water. I was determined to flush these stones out (if indeed that was what I had). I reduced my sodium intake, I reduced my dairy intake and started eating a bit better and just drinking as much as I could. I began researching all about kidney stones and what fellow sufferers have gone through and found out that you should produce 2/3 litres of urine a day to prevent stones - before the last three weeks I'd have never produced anywhere near that. I was drinking so much water that I started getting heartburn. I'd occasionally see a tinge of blood in my urine but it was becoming less and less. On Monday morning I was reading something on a thread about a herbel remedy for kidney stones. Normally I've never given much credence to herbal homeopathic remedies but since there is very little you can do with kidney stones but flush them out, I figured it'd be worth a go. It's called Berberis Vulgaris and you take it three times a day, you let the little pill rest under your tongue until it dissolves. It's made from plant extract and helps to break down kidney stones. The lady I spoke to on the phone from the homeopathic website said that it's good for you kidneys anyway and that it works with some people and not with others. There are zero side effects and I thought, why not?! I ordered some and began taking them the next day when they arrived.
Now this seems like one hell of a coincidence but on Wednesday afternoon at work I went toilet. Immediately afterwards I felt a sharp shooting/burning sensation in my penis and an urge to urinate again. I quickly remembered reading that this pain usually means you're about to pass a stone. I grabbed a bottle of water and sunk it and waited for my bladder to fill. About 15 minutes later I went to the toilet and out popped a 3mm stone. I was elated. Later that same day another stone popped out, about 2mm. Just now, another one popped out, about 1mm.
My personal belief is that these herbal tablets helped break down this stone into little passable grains instead of one big stone. I felt zero pain at all and all my previous symptoms seem to have vanished.
I would strongly recommend these to anybody - worst case scenario, it doesn't work. You don't lose anything if that happens. I honestly believe that taking these little pills coupled with increasing my water intake helped break the stones down so I could pass them.
I'm now on a mission to never have stones again. Fingers crossed.
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I have been battling kidney stones for years. I have passed 2 that were 6 cm on my own. I have several right now that are only 2 to 3 cm. I have been drinking tons of water with lemon juice and vinegar. At this time I have no pain. My bladder seems to be emptying ok now but the last time I went my urine was clear but there was a lot of clear mucus with what looked like very small strings of something dark. Is this dried blood possibly? Has anyone else used the lemon juice with vinegar to dissolve stones? I'm trying my best to avoid another trip to the hospital but with all the stones I've passed in the past, I've never passed any mucus with black matter in it.
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I am a 19 yo male and I've been suffering from burning bladder feeling and frequent urge to urinate, I drink a lot of water daily because on December 21 15' I passed my first kidney stone, however the urgency and burning has not gone away. I've been on multiple antibiotics to treat (suspected) prostatitis however to no avail. There is no blood, nor have I ever had blood in urine, it doesn't hurt to masturbate however sometimes after masturbation (masturbation) I feel like I have to use the bathroom followed by burning. I'm scared that this feeling will not go away, will it go away in time? To heal? I've had tests done, ultrasounds show perfect retention and passing of fluids.
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Thursday morning I spent the night in the ER with a kidney stone in the left kidney -- when they did a CT Scan - they came and told me that they made an "incidental finding" in the right kidney that is a problem -- they have discovered that I have a "Staghorn" kidney stone that has attached itself and almost completely filled the right kidney. He said that I will not pass it and now my GP has made me an appt. with a Nurse Practitioner at the urologist's office for Tuesday morning to discuss my options. What are my options going to be?
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A while ago I had kidney stones, I was sent for a scan after, upon returning to my GP for the results of my test, he told me there were calcium deposits in my kidney that could mean I have another on the way, I've been trying to keep well hydrated and doing all I can to prevent a recurrence, because they're damn right evil, I've got away with it for quite a while now, last night I was woke up with the same pain I had when I had kidney stones, I sat on the toilet and waited for the pain so subside, it seems to have gone again for now, I was just wondering if I'm supposed to avoid eating foods rich in calcium, I'm also lactose intolerant and with all this I'm starting to wonder if I'm going to en up deficient in calcium.
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I know this is probably a place for guys but I cannot find anywhere else to post this ...here it is Last Monday me and my boyfriend went to the ER and they diagnosed him with having kidney stones... he got a cat scan and all that and they said the stone was almost in his bladder... they put him on loratab and flomax i think.... Well Tuesday or Wednesday we did "our" thing and everything was fine well here these past 2 or 3 days if he attempts to get his self off or if I try he cannot cum at all we have tried everything too make him cum and it will not work...
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I have a kidney stone and I seen on a site where it said sex helped so I tried but when I got off nothing came out everything feels normal but nothing came out ...
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Is it possible to have kidney stone pain while the stones are still in the kidney? I have about seven stones in my right kidney and five in my left... I've had lower back pain for almost a month straight and nothing makes the pain go away. I'm trying to get my urologist to call me back, but that is next to impossible if I'm not in the emergency room doubled over in pain. Any suggestions/comments are welcome here
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Had anyone had kidney stones? This is my 3rd child I'm 12+1 weeks. I'm healthy.but in the last 2 weeks I have had 4 kidney stones(on top of being really sick with"morning sickness"). Not kidding it IS worse than having a baby. MY ob said they don't effect the baby at all and pregnant women are more prone to getting them.
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I have had kidney stones for about 20 years and have had a number of treatments. My right kidney now works at 21% due to scarring and infections. My left is fine, working at 98% with one stone. I do not suffer many symptoms but do get an infection 1-2 times a year (I am experiencing my normal infection pain at the moment). My consultant has discussed removing my right kidney, obviously I have my concerns - will my other kidney be strong enough as I am susceptible to stones etc.
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I'm a 29 year old female 36 weeks pregnant. Back in January I had a large amount of blood in my urine and some flank pain ( nothing like what most describe with stones) happened again two weeks later so my OB requested a urology work up. I had a full ultrasound which showed mild fluid in my right kidney which is normal in pregnancy. Then sent me off to a urologist for a cystoscopy and two cytologies to look for bladder tumors and Cancer cells. All which were negative. Fast forward to April and again some flank pain with blood in my urine. Urologist wants a CT scan but can't due to pregnancy. So it became a waiting game. May comes along and im having blood every few days with a little more Intense pain lower along my hip and into my pelvis. No back or 'flank' pain per say but now I am urinating large clots and tissue and blood. Went to the hospital they pumped me full of fluids did an ultrasound and saw absolutely nothing and said probably a kidney stone we'll look closer after you have the baby.... Does any of this sound like a kidney stone? They feel it would be a small one since it can't be seen on ultrasound and I am not in excruciating pain. But I'm having a hard time wrapping my head around a 'small' stone causing so much trouble, blood and clots and taking MONTHS to pass... Any thoughts?
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As a frequent maker of kidney stones (20+yrs) I have for the last 4 years have been operated on approximately every 6 months for stone removal the last 3 times I have been fitted with jj stents which cause me absolutely agony ,I am unable to work with these stents inside me and have now lost my job .am I unusual in having this agony ?the specialists all seem to think I should be able to cope. How long do people put up with the agony before going to a&e?
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Is it possible to have 2 different types of kidney stones? I had a cat scan and it showed only a stone in the kidney. Is it possible I could have more and they didn't show up?
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I have had hyperparathyroid surgery. Had 3 of 4 removed. I also have had 3 lithotripsy (sorry about spelling) surgeries. About 2 weeks ago I had kidney scope surgery and blasted 30 stones on each side. Uro said he had never seen so many in one person. I have high oxalates, and slightly elevated sodium. My PTH is 77-106 off and on and my calcium levels are both normal. Uro and Endo are perplexed. I am wondering if it is because I have a malabsorption and a bad digestive system. They just don't know. I am watching my diet and trying to learn how to eat, but I have many food issues so hard to keep a perfect diet. I am scared to death the stones are going to come back. Doing lab and x-ray in 3 months. I want to find a specialist who can tell me why this is happening. I live in Ks but am willing to travel to find a doc who can tell me what is going on. I have also had gallstones. I am just a stone maker. Hate it. I also drink around 3 liters of water a day.
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I have been passing kidney stones recently. I have had them for a decade or more but only recently started to pass them. I have an appointment next week with my urologist. I also follow up with a psychiatrist whom I have an appointment with next week but overall I am stable. However, every time a kidney stone starts to pass I encounter extreme psychosis and depression. Once they pass and are eliminated this settles.
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