Does anyone have any experience with this topic? I was told I have stage III kidney disease due to lithium use. Is there a likelihood that it can be stopped in this stage because it was caused by a medication, or will it follow the same course of progression as other causes?
View 1 RepliesIs it me or is this stuff a waste of time?
I've had obout 20 lithotripsy's in 15 years of having continuous stones. They've never gotten my kidney completely empty of stones ever. I've had lithos, ureterscopy, PCNL. On meds but they can't seem to stop them from growing. I avoid alot of the things that cause stones or limit them. Got to have the 1 cup of coffee in the morning
On the day before litho, your suppose to eat light ( nothing that leaves residue in bowl) but they say you can have white bread or boiled chicken. (Why bother?) I usually only eat jello, gatorade, and just broth. Plus tons of water. The instructions say to drink the magnesium of citrate after dinner. Well to me dinner is after 6/7. But I thought this time I would take earlier since last time didn't start to move the bowels until i was in the hospital. Plus this stuff is awful- taste bad- even refrigeration like they suggest doesn't really help. Twice in past I threw it up.
So I took at 5 pm thinking it would work earlier. Nope. Nothing. Just stomach cramping and it finally started around 5 am after me getting up every hour during night. Still was working again while in hospital.
There has to be something better (tasting) and work faster. Plus less side effects. Or they should change instructions & say take a noon. Next litho (in 2-3 months) I'm taking a 1/2 day off day before and taking at noon. Maybe then can get a little sleep the night before procedure.
Sorry- felt like ranting as frustrated as its been two full days since litho and nothing passing yet. Plus I have a bad back (2 surgeries) which makes it hard to do the exercises where you drink 2 cups water, wait 30 minutes, then elevate kidney @ 45 degrees and stay like that for 30 minutes to try and get the pieces to move.
I was just wondering if anyone has protein in their urine with Chronic Kidney Disease and what did your doctor do about it if anything. I am trying to keep my GFR stable. The last time it went up a bit but am worried about the protein causing more damage quicker.
View 5 RepliesIs it possible to have CKD or kidney failure without protein in urine?
Last week my masseuse found a knot in my back that she suspects could be inflammation in my kidney. I've had some weird symptoms popping up over the last month like foot/ankle swelling, profound fatigue, leg cramps and blurry vision. This last week though I began developing SEVERE flank pain (like 9 on a 10 scale), back pain (started out lower, now entire back), horrible nausea, horrible headaches, shooting pains down my legs, metallic taste in mouth, dizziness and loss of appetite. Not to sound melodramatic but I feel like I'm dying. The pain is constant but the intensity seems to be moving in 24 hour cycles. Today I feel awful but I was able to shower/get dressed. Yesterday I couldn't even get out of bed. I slept for 16 hours. It's been going in that pattern for the last week and a half.
My doc did a urine culture last week, got results today and there was no protein in my urine, but I had 3+ ketones and a large amount of leukocytes. Blood work from a month ago just came in and my kidney numbers were off a month ago: BUN (32), Creatinine (1.8), eGFR (33). Between the symptoms and the blood test I'm thinking it sounds like renal failure, but could it be CKD without protein in the urine?
How can I improve my Stage 3 kidney disease, having a G.F.R. of 34?
View 6 RepliesMy creatinine just found that 1.66 what's problem how long can I live
View 14 RepliesMy Gfr is now 31. I take Metformin with insulin for diabetes type 2. I have terrible diarrhoea with metformin so want to change it also is it true that one shouldn't take it with a GFR of 30
View 1 Replies52 male. Lithium toxicity three years ago, six months later creatinine was 1.5. Nephrologist wasn't concerned because of my body mass. Last week my creatinine tested at 1.66. Nephrologist appointment in two months. I'm scared, terrified of dialysis.
View 4 RepliesDuring my annual physical in June my Egfr reading was 55 and my Creatinine reading was 1.34. The test was repeated in October and the same readings were found. Is this anything to be concerned with? My GP has referred me to a kidney specialist but my appt is a few weeks down the road.
View 6 RepliesI have been having some strange symptoms that my doctor can not figure out what is wrong with me. I have hives and extreme all over my body muscle pain when moving. When I'm sitting still I'm fine. When I walk or move my large muscles they ache as though they have been maxed out and strained.
I have had all kind of tests done including checking for auto-immune problems but everything turns out normal. However they told me "normal" on all my bloodwork, my test results show that my Bun/Creatinine ratio should be 6-20 and it is 20.9. The doctor did not seem concerned about this. But I get online and the ********** website says "A normal BUN:creatinine ratio is 15:1, according to "Renal Pathophysiology." When the ratio approaches 20:1, it suggests a problem with blood flow to the kidney; this may be caused by conditions such as heart failure or shock"
Okay. Should this concern me especially after having hives for the past week and extreme and progressively worse muscle pain for the past week?
My doctor sent my test results. He highlighted Creatinine 1.13mg/dL HI. My GET is 58 no/min/1.73 m2
View 1 RepliesI have uric acid kidney stones and recently I had Ureteroscopy to remove one. Actually when they got in there they couldn't find it in the ureter as the CT scan had shown so we don't know what happened to it.
I'm disappointed that I had the stone as I had been on a low purine diet which includes very little meat (6oz a day).
After this bout, I tripled my efforts, stopped all sugar intake unless it was natural in foods, no added salt and meat 6oz or less 2 times a week only.
Several weeks followed since the Ureteroscopy and the extreme diet change and my eyesight changed where I could not see out of my contacts or glasses. In fact, my eyesight changed 3 steps for the better and had to get new eyeglasses and contacts.
I'm also now taking twice a day Urocit-K (potassium citrate).
I wanted to know a baseline for my sugar and potassium so they did bloodwork and sugar was 145 which doesn't sound right, it should be lower and in the 65-100 range. My eye doctor said my vision shift was consistent with lower blood sugar.
My AST was 64, should be 13-40 and my ALT was 70 which should be 7-52.
For one thing I'm wondering if having the blood tests about 4 weeks after the Ureteroscopy may have skewed the results of the blood test but also what caused the drastic eye change, it was quite an extreme diet change for sure and the eyesight has stabilized and I continue to stay on the diet. I've also lost about 25 pounds in the last few months on the low purine diet. I also drink lots of water, no soft drinks, only unsweat tea on occasion.
The last CT scan before starting the Urocit-K still showed kidney stones in my kidneys which I had been on the low purine diet and I have more than before I was on the diet which doesn't make sense.
All these changes doesn't add up. Why more kidney stones? Am I starving for no reason as I can't eat hardly anything on this extreme low purine diet? What's up with the vision change and elevated blood levels?
I have never had any issues with my kidneys other than a few kidney stones,,and pretty frequent uti's..like bladder infections. I went to my primary care provider in mid December and she did bloodwork. It was done 12/18. My eGFR is 23!! And my creatinine is 2.26. I have an appointment with a nephrologist on Tuesday and I'm just worried. My only symptom is that I wake up slightly nauseous almost daily. Anyone she'd any light on this?
View 2 RepliesI just had my metabolic panel and here are my numbers:
Just wanted to check on if i am at a 1.6 creatinine level; is my kidney gone?
Creatinine - 1.6 (high)
Total Bilirubin - 1.3 (high)
Potassium - 3.5 (low)
Glom Filt Rate, EST - 51.4 (low)
History:
From 2008 to 2013 ( I was suffering from hypertension and was on blood pressure medication - my numbers between 2008 to 2013)
Old Weight -- 193 lbs
Old Blood pressure -- 145/90
Workout -- none
I had some blood work done last week any my Creatinine was 1.15 and my GFR was 57. I know these aren't alarming numbers necessarily, but 6 months ago my Cr was .72 and my GFR was 100 so it's a huge change. Everything else (BUN, BUN/CR ratio) were normal. Doctor was unconcerned and wanted to check in 3 months. Anybody have any thoughts on this? I do take lots of supplements but have taken them for years with normal kidney function. Also have taken a lot of Benadryl lately. I'm stumped at this big change. Also I am not diabetic and do not have high blood pressure.
View 1 RepliesFor the last five months I have been experiencing blood and protein in my urine. After a very thorough assessment from a urologist everything came back normal. I was referred to see a nephrologist to see if the blood is coming from my kidneys. my kidney panel came back normal except for lower than normal creatinine levels???? but my urinalysis came back all wrong. It's showing 3+ for blood, 100 mg for protein, 1+ bilirubin, urine color is brown, ph of 5.5.
The dr also order a ANA test to check for lupus, but it came back negative. I'm completely lost, can a person have kidney disease w/normal kidney function?or lupus nephritis w/negative ANA test?
I am 25 I was diagnosed with stage 5 ckd at 14. We found this issue doing blood work for my Crohn's disease. So needless to say between the two I have a hard time keeping my nutrients up. Every time I get blood work I am anemic. I told my nephrologist that I was taking vitamins with iron to try to get it up and he said it is pretty much pointless because people with ckd do not absorb it orally like normal people. So my question is what do you do to try to keep your iron up? It has been such a struggle being so young and never having energy to do anything.
View 4 RepliesI'm a 37 year old female, 2 years ago at the Birth of daughter I developed severe preeclampsia, and went onto develop pregnancy related heart failure - post Partum cardiomyopathy. I nearly didn't live, but I'm lucky to have recovered full heart function and my heart is now considered normal.
I've known since having the preeclampsia of protein in Urine causing a foamy appearance, I still have this now, and had been testing my own urine with dipsticks over the last 2 years ranging from plus 1 to plus 4 throughout the day. Virtually all morning samples negative.
Last year I was tested at my GP office and an ACR which came back at 98mg. At the Time my GP said re test in 3 months and suggested it still might be my body settling down from the heart failure etc, I continued to test myself and never want back to the doctors because basically I wanted to forgot about illness and live life without worry bringing my daughter up. Now another year later my urine was getting even more foamy, I decided to go back to my GP, I've had the following tests and have been referred to a nephrologist which isn't until the end of September:
eGFR: over 90
ACR: 198 mg
Protein in blood: Normal
ANA: normal ( i have had previously positive ANA two years ago)
FBC: all normal
ESR: Normal
Liver function test: Normal (I also had trace Bilirubin in my urine)
Glucose: Normal
Kidney & bladder ultrasound: Normal
24 hr urine: 0.3grams (300mg)
I know I have been spilling the protein since the preeclampsia, sometimes I have tested my urine all day and it has been Plus 4 for each one, so I'm guessing tallying this up must be well over 2000 mg a day, when I did my 24 hr there was only one urination that showed a plus 3 on dipstick that day which correlates to the 300mg reported over 24hrs
I have low blood pressure naturally 100/60, I'm off all heart medications, I healed quickly and came off them after 6 months of heart failure. I'm not diabetic, it doesn't appear I have any autoimmune disease such as lupus, all my bloods are normal, so is my kidney function, yet I'm still passing quite high amounts of protein.
I know only a nephrologist can help determine what's going on, but my appointment is not until the end of September, I do a lot of googling (too much information i know can make things worse!) and know that protein can continue to make the kidneys worse, I'm concerned there is an underlying condition, and even if its primary how quickly can this progress with high levels of protein? Could I get acute kidney failure? My mother has stage 3 CKD for years and passing no protein, however she is on ACE inhibitors. My GP said I will probably go on these, I was on these for my cardiomyopathy and preeclampsia and once my blood pressure returned to normal I had to come off them as I was very dizzy and light headed. So although they may help kidneys, I'm concerned I won't be able to tolerate them.
Also what could be causing this? primary glomerulonephritis? Could the preeclampsia heart failure have caused permanent damage and hopefully now my heart failure is better no more damage will develop?
I have no other Symptoms at all, all this came about because I noticed my urine was still foamy.
My biggest concern is that although my kidney function is still normal, is it possible it could decline rapidly because of the protein?
I am looking for more information on the urine protein/creatinine ratio. I have suspected IgAn and recently my protein/creatinine ratio came back at 2.0. My Dr did not explain why that was a concern or how concerning it is, only that I am to repeat the test in 3 months.
What is the normal range? What is considered really bad vs just concerning?
I'm a 37 year old man who was diagnosed with HSP in 2007. My symptom was the rash which appeared all over my legs and buttocks. The rash went away but left me with stage 3/4 kidney disease. I feel very scared this will lead to total kidney failure. My recent results doesn't look good with my creatine being 216. This has ruled my life and I'm so upset this could happen to me. The doctors don't know anything. All they have done is put me on 10mg of Ramipril and basically hope for the best. I'm getting married in July to my beautiful fiancé who I love so much but I seem to focus more on this disease and what might happen to me in the near future than her. I'm going to try an alternative way to help my condition. Systematic ideology (excuse the spelling) This focuses on strict diet control, with taking 100 percentage herbal ingredients. The therapy focuses on targeting muscle groups and emotional part of the body. Has anyone else tried this? Would love to hear from anyone in the same boat as me and is there anyone out there that has been in the same situation and continued in stage 3 for a very long time.
View 3 RepliesI have high blood pressure and I have renal panel test done every 4-5 months. This is my 4 time and my results came back with increased creatinine 1.68 ( maximum range 1.4) and my gfr was 48. Bun was within range.
Last time when I performed the test 4 months backs the creatinine value was 0.96.
My doctor switched me from tribenzor to axor as my bp reading were normal around 110/70. I test my bp at home weekly and they never cross 120/80.
Can I get my creatinine and egfr values improved or am I professing fast on ckd.