Idiopathic Intracranial Hypertension :: After Sinusitis?
Dec 29, 2014
About 3 months ago I had a sinus infection and never recovered after I had terrible like pressure building up in the left side of my head which would happen more at night or basically when I would lie down i also when my ears touch the pillow I hear my pulse and on the right ear only when I press against the pillow a clicking noise I would later develop sensitivity to bright lights sounds and smells.
I made 3 trips to a and e with the pressure building in my head on the last occasion it affected the left side of my body they just sent me away
I payed private for a neurologist did MRI on brain came back fine he diagnosed me with severe migraines and put me on propanol these have calmed the symptoms but I am worried as I am still left with a dull pulsating on the left side and have a bit of blurred vision suffer a lot with fatigue and when I try to exercise it kind makes my head
worse and I have noticed pain in my neck and shoulder on the left side had my eyes tested but said they were fine .
The thing is I am left with is like a dull pulsating on the left side with still sensitivity to light no energy I am not sure if this is chronic migraines just wondered of anyone had any ideas to what it could be I have been better since taking the medication but it worrying that it's kind of still there I also have irritable bladder and ibs and have been referred to a chronic fatigue clinic but I don't think that is the cause of my fatigue
View 10 Replies
Advertisement
have had intracranial hypertension for 7 years i am coping well at the moment with the diamox tablets 25omg 3 times a day and i go into hospital every 6 months for lumbar punctures.i did go away 3 years ago but returned a year later worse but controllable.there is light at the end of the tunnel and i do get a lot of other symtoms but i just try and deal with it even though sometimes its hard i am 43 now.
View 1 Replies
My 12 year old daughter had had headaches for some time and her endocrinologist advised her to have an eye test. I say 'endocrinologist' as she was born without a thyroid gland (extremely rare) and she's been taking thyroxine since she was 10 days old. She's also monitored for her hypothyroidism. Anyway, between her doctor's appt and her eye test, she got her first period. So we blamed her headaches on her development. The ophthalmologist said that my daughter needed to increase her lenses. So again, we put her headaches down to this. By time, her headaches moved down to her neck and 4 months later, at another routine eye test, I mentioned this and the ophthalmologist decided to look behind her eyes. He was horrified to see extreme swelling of both optic nerves and a swollen brain. She was admitted into hospital and had a CT Scan done. Luckily there were no tumours but a lumbar puncture showed that her CSF pressure was 50 (it should be 15-18). She was immediately started on diamox 250mg (acetazolamide). After a few days this dose doubled. Today she has just had her 6th lumbar puncture and as the pills don't seem to be working - her CSF pressure is on the rise again, her medication has been increased again. She's taking 2g per day (750mg-500mg-750mg) daily, which i think is too much for a child. On the 23rd July she's having her 7th lumbar puncture and also seeing a neurosurgeon, because inserting a shunt seems to be the only solution. Lets hope and pray all will be ok.
View 1 Replies
For over a year I have been suffering with idiopathic intracranial hypertension which ended up with me needing a stent inserted earlier this year. I have been left with horrendous headaches which has now been diagnosed as chronic daily migraines. My consultant has now suggested the following plan; reduce caffeine to zero (only drink 3 cups of tea a day anyway), no cheese chocolate or red wine (don't eat or drink these anyway). Propranolol beta blocker as preventative. Sumatriptan, Aspirin and Domperidone as acute attacks rescue plan. He also put me on waiting list for nerve block injections.
View 2 Replies
I was diagnosed 3 years ago and recently spent a week in hospital due to a headache not moving my eyesight went with it this time for the first time ever and I was driving with my 7 year old in the car it really scared me yet I had a lumbar puncture pressure was only 24 but my speech has been effected my eyes keep blurring this headache has been here for 10 days now and still no budge when I was in hospital they said both my optic nerves were swollen and I seen my neurologist today and he says it's just a migraine. The first 4 attempts at lumbar puncture they did in the wrong place so was unsuccessful and have left me in agony can anyone suggest what I can do I am not overly obese but all's my specialist says is lose weight they will stop
View 3 Replies
I was diagnosed in October 2006, after been admitted to Hospital with suspected Meningitis. They did a Lumbar Puncture, and the CSF pressure was very high, I was shipped out to a Hospital in Sheffield - Away from Uni, and even further away from family.
It was confirmed I had BIH.
Ever since, I've had to have Lumbar Punctures every 6-8 weeks, with the CSF always way too high. I was put on Diamox too, which didn't do anything at all. I'm now on Topiramate (Topamax), which also doesn't work for me.
I thought it was just people around me deliberately not understanding how painful and disabling it is, but after reading your experiences, it seems not many people understand.
Woke up this morning in pain (like most days), with dodgy vision and loss of coordination, so time for another LP!
View 1 Replies
I am a fit, healthy 28 year old guy who has spontaneously developed severe high blood pressure, temporal pressure headaches, dizzy spells and blocked ears. The symptoms vary, with acute periods lasting a couple hours and occurring on a weekly basis. Generally an acute period is characterized by severe headaches, needing to lie down, blocked ears and extreme lethargy.
I have had CT’s and MRI’s of the brain and cervical spine, PET scans, ECHO’s, a multitude of blood tests and various other tests with no abnormalities.
I gym 4 times a week, eat healthy and work as a hairdresser, so my lifestyle is pretty healthy overall.
This condition is starting to limit my lifestyle and with two years of no answers I am putting it out there for someone to recognize or provide advice about what could potentially be going on!
View 3 Replies
My only sister has just being diagnosed with BIH which tells me surely its genetic.
View 1 Replies
So to make this as short as possible. About two and a half years ago I had a really bad low blood sugar episode. I'm not a diabetic, I wouldn't say diabetes runs in my family considering only a few have it. I had a really bad diet years ago, few energy drinks a day, cigarettes, and junk food out the ying yang. Now the day it started I hadn't eaten much so it could of happened to anyone. Felt all the symptoms, and thankfully I work at a hospital so when they checked them it was a 47. Ate some food and felt better. That day after all those years of bad food I cold turkey quit all the bad foods and energy drinks. Didn't stop smoking though. I was very active, I mean skateboarding for about 10-12 hours a day. Very thin, about 125 pounds from the age of 15-21. Well since that night it happened I became a very panicked person. I started binge eating because I always felt the symptoms of it, although sometimes I couldn't tell the difference between anxiety and low blood sugar. So I would check my sugars, sometimes they would be fine, other times they would be below 70. When I panic they get worse. Well now I eat the same thing everyday, eggs, spinach, tomatoes, cheese, chicken, protein packs, low calorie gatorades. No sweets what so ever, and I've basically become agoraphobic because of my sugars all the time. I always feel dizzy, weak, shaky, faint. But like I said sometimes I can't tell the difference. These winter months seem to get worse, now lately I can't even tell when they're getting low. Earlier today they were 67 and I couldn't even feel it. I used to though. My anxiety has gotten a lot better but not fixed. I'm afraid it'll drop in my sleep and I won't wake up it's horrifying. No meds ever, no surgeries, nothing prior to this. Always healthy as could be.
View 2 Replies
I've got idiopathic dilated cardiomyopathy. I have Afib with this and keep getting extreme tachycardia which means I have to go to hospital to get it controlled. I have asthma too. I'm in Europe and have good doctors - I was in hospital Saturday night into Sunday - I called my doctor as my heart was beating so fast and irregularly, and it was having long intervals of no beats - I have a stethoscope and could hear nothing at the apex and I've been taught how to auscultate, and I was very very breathless. She was very worried and sent me to hospital. After being stabilised, I saw a a cardiologist who did loads of tests and said my heart was very much more dilated than before. On discharge I've been given 02 to breathe if I feel breathless.
View 1 Replies
2 days in a row, i've woken up in the morning with my whole right side of my face is achey. It aches when i open my jaw, around my right eye, and had a sore nippy hot feeling in my throat all day, a couple days before , b waking up with a sore face, i've been getting lightheaded spells as well, could this be something to do with it as well?
View 1 Replies
Side of face is tender and swollen. So I thought sinusitis maybe? But there is a firm large lump under my nose on my lip, that goes up into my nostril and around the side of nose. I do have a GP appointment later. Just wondered if lumps were a symptom? Or maybe it's a cyst or something??
View 1 Replies
I really need somebody to put my mind at ease at this point. I am a 20 years old guy in Montreal and a couple of weeks ago I went through a really bad cold/flu. I couldn't go to work one day because of how bad I felt. The symptoms I had were mild fevers, extreme fatigue, congested nose of white mucus and the other usual symptoms of a cold. I noticed that cold was more aggressive than the usual colds I've had before. I also noticed my nose was extremely congested, I kept blowing my nose frequently and had lots of white mucus coming out of it. Once the cold began to go away I began experiencing a lot of pressure in my head (sinuses areas and kind of in the back of my head), confusion kind of feelings with dizziness, brain fog and still a congested nose but dry (white mucus always). Together with all of this I have been experiencing anxiety spells because of the frustration of not knowing exactly what to do about it.
It has been a little over a week since all of this started and I believe this could be a sinus infection. I just got a decongestant with saline solution and got some tree tea oil to inhale with boiling water once a day. I have been feeling better very slowly throughout the week but I am TERRIFIED this could be something not related with a sinus infection. I have been googling my symptoms like crazy and found stories from people experiencing this stuff for years and that scares the sh* out of me. The brain fog has been very frustrating because it has been affecting my concentration and short term memory. That kind of comes and goes but it is very frustrating since I don't have any memories of experiencing this before.
As far as I know, I haven't had any allergies my whole life and I don't think that is the root of the problem because as I said earlier, I had a really bad cold before this. I know colds can cause sinus infections afterwards.
I don't have access to doctors for now because I am an international student about to graduate next month. I don't have a health card or insurance to cover me with medication or doctors. I am hoping the decongestant and the tea tree oil might cure me so I am waiting a week to see how I feel but the anxiety about this has been killing me because I don't really know what's going on.
View 1 Replies
I have for a couple of months now suffered with severe sinus pain above and around left eye and LH side of my nose, paracetomol do not seem to bring any relief.
My nose is not blocked I can breath Ok it is obviously further up in my sinus.
As I am on blood pressure tablets my chemist tells me they cannot give me Sudafed or similar and has no other suggestions.
Can anyone here give me some advice on relieving this constant pain.
View 4 Replies
I have been diagnosed 5 months ago with Labrynthitis.. Not sure if it's actually what's going on because it was a pretty quick check up at ER. Extremely lightheaded, unbalanced and foggy headed is the major symptoms. Have noticed it gets a lot worse when I'm out in the cold for a period of time. Been going on for about 5 months now.. Back in September I had a really bad sinus cold. After those symptoms passed, a few days later I got an extreme wave of lightheadedness dizziness and was surprised I was still standing when I realized what was going on. Somehow I finished my shift at 11am then went to ER. Could barely even walk in there.. The only time it went away was when they gave me amox-clav pills and about 7 days in I felt 100 percent and the last few days of medication zero lightheadedness. After done with those everything came back a couple days later and never left. Was the amox clav pills just coincidence or maybe that tells me something? They said I had Labyrinthitis and sinusitis but it seems that the symptoms of vestibular neuritis relate a lot more.
View 7 Replies
I saw someone using Citric Acid of Lime Juice to clear Sinus fluid. Can it cause any harm to the Sinus tissues or bones or any other internal parts ? Will it work for people with Chronic Sinusitis with any long term side effects ?
View 2 Replies
Shether nasal sprays are effective in combating Sinusitis.
View 1 Replies
On April 28th, I finally went to see an ENT. He suspected that I may have chronic sinusitis. Ordered a CT scan to be sure. The following day I felt so weak and sick, I had to go to the hospital. They performed a blood test, urine test and CT scan of my sinuses. The doctor said he saw fluid in my ear, infected dental caries and I have sinusitis. I was prescribed five different medications (augmentin, flonase, prednisone, loratadine and zofran). I finished the antibiotics on Sunday, yet I still feel really bad. The facial pain and weakness is not going away. I'm at a loss at what to do. I can't see a dentist in such a weakened state. I don't think I could tolerate anything being done to my teeth until I get my strength back.
Infected sinuses, teeth and ears! What a nightmare! Does anyone out there have problems like this? Don't know what to do. So tired of feeling so very sick.
View 58 Replies
The left side of my face has been swollen EVERY single day for almost 2 years now. I went to an ENT specialist who diagnosed me with allergic rhinitis and a bit deviated septum. I did a skin prick test but results were negative. I also did a CT scan. It showed i have a turbinate hypertrophy (left) and slightly deviated septum (no mention about sinusitis). I have difficulty to breath from the left side on my nose especially during night, during day is quite ok. I have no other symptoms (besides the swelling). Could it be chronic sinusitis?
View 1 Replies
Does anyone else experience lymph node pains with their sinus problems? The weird and scary pain I have just experienced is pain under my sternum and under my armpit lymph nodes. Thick and I mean thick clear mucus in my left nostril only. Had an MRI on my neck. And head. Only problem it said was my left cheek was filled with mucus. I had a tooth extracted after a botched root canal treatment. In December 2015 My cheek swelled up real bad and I had to Go to the E.R. To have my gum lanced to rid me of the poison. That was 3 and a 1/2 months ago. My symptoms (mucus) have been getting worse. I called my doctor(gp) and he gave me 500 mg. amoxicillin. Relieved me of my symptoms and chest pain for one day. This a.m. The pain is back. But it comes and goes! I need some help with this please. The headaches and neck pains suck. I'm not living right now I'm just existing.
View 1 Replies
I know this sounds weird but my chronic sinusitis has me completely bedridden and has been for almost 2 years now and I haven't been able to work etc. anyway, my last CT scan showed massive inflammation and infection on the left side of my head primarily in the maxillary sinus.
It seems since I've been using the Neti bottle every day that I've gotten so much worse and consequentially my fatigue and weakness has been absolutely debilitating. My question is, has anybody ever heard of the Neti bottle or Neti pot making their sinus infection worse?? Thanks for reading.
View 23 Replies
