Idiopathic Intracranial Hypertension :: Acute High Blood Pressure, Blocked Ears, Head Pressure
Mar 14, 2016
I am a fit, healthy 28 year old guy who has spontaneously developed severe high blood pressure, temporal pressure headaches, dizzy spells and blocked ears. The symptoms vary, with acute periods lasting a couple hours and occurring on a weekly basis. Generally an acute period is characterized by severe headaches, needing to lie down, blocked ears and extreme lethargy.
I have had CT’s and MRI’s of the brain and cervical spine, PET scans, ECHO’s, a multitude of blood tests and various other tests with no abnormalities.
I gym 4 times a week, eat healthy and work as a hairdresser, so my lifestyle is pretty healthy overall.
This condition is starting to limit my lifestyle and with two years of no answers I am putting it out there for someone to recognize or provide advice about what could potentially be going on!
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I was diagnosed in October 2006, after been admitted to Hospital with suspected Meningitis. They did a Lumbar Puncture, and the CSF pressure was very high, I was shipped out to a Hospital in Sheffield - Away from Uni, and even further away from family.
It was confirmed I had BIH.
Ever since, I've had to have Lumbar Punctures every 6-8 weeks, with the CSF always way too high. I was put on Diamox too, which didn't do anything at all. I'm now on Topiramate (Topamax), which also doesn't work for me.
I thought it was just people around me deliberately not understanding how painful and disabling it is, but after reading your experiences, it seems not many people understand.
Woke up this morning in pain (like most days), with dodgy vision and loss of coordination, so time for another LP!
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Is 145/100 too high? And could be the reason for the headache as i am having a headache since two days; and my blood pressure is around 145/100 every time i monitor it.
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i am not overweight. Drink a healthy smoothie and whole grain cereal almost every morning yet my BP is still high. (100/170). I was told it may be because of elevated insulin levels caused by the fruit drinks and whole grains (as well as the potato, rice, pasta and breads) that I eat. These are things that easily break down into sugars and cause the issue. (Basically a carb issue). Am I supposed to go on one of those caveman diets? Has anyone tried lowering their carb intake to lower their BP?
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I have got BP problem at very young age 27 ,my bp is high always it some time 180/110,160/100 and sometime 143/77 , I have gone through blood test urine test all my test are normal,my bp was detected 2 years back when my weight was 110 kg but i decided to loose my weight instead of going for medication after 1 and the half year my weight is 92 but still my bp is high ,doc have told me to go for medication ,now I m starting with medication but I am feeling depressed how come my bp is detected at such young age need ur help guys ,is der no any other way den taking medicine .
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I have sporadic periods of hypertension where my bp will spike well over 160/110. They can last for days, or just an hour, but it is causing me a lot of problems because they can occur at anytime. When the bp spikes happen at night, I wake up shaking. I cannot take beta blockers because they make my bp go even higher. I am taking clonidine when I have these spikes. I am unable to take any other blood pressure medicine because at times my blood pressure is normal and bp meds will make it go too low. I have been tested for a pheochromocytoma, sometimes the tests are positive and sometimes they are negative. I also am hypokalemic and take quite a bit of potassium daily.
In addition I have extreme fatigue, shaking from time to time, muscle pain/weakness. I usually am hot when others in the same room are fine, and have episodes of sweating and facial flushing. I run a fever from time to time, have a rash from time to time and tinnitus. I also have sleep apnea and sleep with a CPAP every night.
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Recently i have been diagnosed with hypertension. My BP varies in range of 130-140 and 80-90. I am not on medicine yet to lower BP. Trying to control by physical activities and diet plan.
I have been on Zyrtec D (syrup) daily dosage of 2.5-5 ml for past 6 years.
Can prolonged use of this medicine cause hypertension?
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My partner just used a home blood pressure monitor and got a very high reading. Concerned, he is going to see a doctor this week. He's overweight and his weight has fluctuated for years, although he is losing weight now and seems to have a diet and exercise regime that are working.
The thing is I have no idea how long he has had high blood pressure. Is it likely it could have already caused damage that is irreversible? He's only 24, but he is going into a very stressful profession and I'm worried about his long term health.
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have had intracranial hypertension for 7 years i am coping well at the moment with the diamox tablets 25omg 3 times a day and i go into hospital every 6 months for lumbar punctures.i did go away 3 years ago but returned a year later worse but controllable.there is light at the end of the tunnel and i do get a lot of other symtoms but i just try and deal with it even though sometimes its hard i am 43 now.
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My 12 year old daughter had had headaches for some time and her endocrinologist advised her to have an eye test. I say 'endocrinologist' as she was born without a thyroid gland (extremely rare) and she's been taking thyroxine since she was 10 days old. She's also monitored for her hypothyroidism. Anyway, between her doctor's appt and her eye test, she got her first period. So we blamed her headaches on her development. The ophthalmologist said that my daughter needed to increase her lenses. So again, we put her headaches down to this. By time, her headaches moved down to her neck and 4 months later, at another routine eye test, I mentioned this and the ophthalmologist decided to look behind her eyes. He was horrified to see extreme swelling of both optic nerves and a swollen brain. She was admitted into hospital and had a CT Scan done. Luckily there were no tumours but a lumbar puncture showed that her CSF pressure was 50 (it should be 15-18). She was immediately started on diamox 250mg (acetazolamide). After a few days this dose doubled. Today she has just had her 6th lumbar puncture and as the pills don't seem to be working - her CSF pressure is on the rise again, her medication has been increased again. She's taking 2g per day (750mg-500mg-750mg) daily, which i think is too much for a child. On the 23rd July she's having her 7th lumbar puncture and also seeing a neurosurgeon, because inserting a shunt seems to be the only solution. Lets hope and pray all will be ok.
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About 3 months ago I had a sinus infection and never recovered after I had terrible like pressure building up in the left side of my head which would happen more at night or basically when I would lie down i also when my ears touch the pillow I hear my pulse and on the right ear only when I press against the pillow a clicking noise I would later develop sensitivity to bright lights sounds and smells.
I made 3 trips to a and e with the pressure building in my head on the last occasion it affected the left side of my body they just sent me away
I payed private for a neurologist did MRI on brain came back fine he diagnosed me with severe migraines and put me on propanol these have calmed the symptoms but I am worried as I am still left with a dull pulsating on the left side and have a bit of blurred vision suffer a lot with fatigue and when I try to exercise it kind makes my head
worse and I have noticed pain in my neck and shoulder on the left side had my eyes tested but said they were fine .
The thing is I am left with is like a dull pulsating on the left side with still sensitivity to light no energy I am not sure if this is chronic migraines just wondered of anyone had any ideas to what it could be I have been better since taking the medication but it worrying that it's kind of still there I also have irritable bladder and ibs and have been referred to a chronic fatigue clinic but I don't think that is the cause of my fatigue
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For over a year I have been suffering with idiopathic intracranial hypertension which ended up with me needing a stent inserted earlier this year. I have been left with horrendous headaches which has now been diagnosed as chronic daily migraines. My consultant has now suggested the following plan; reduce caffeine to zero (only drink 3 cups of tea a day anyway), no cheese chocolate or red wine (don't eat or drink these anyway). Propranolol beta blocker as preventative. Sumatriptan, Aspirin and Domperidone as acute attacks rescue plan. He also put me on waiting list for nerve block injections.
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I was diagnosed 3 years ago and recently spent a week in hospital due to a headache not moving my eyesight went with it this time for the first time ever and I was driving with my 7 year old in the car it really scared me yet I had a lumbar puncture pressure was only 24 but my speech has been effected my eyes keep blurring this headache has been here for 10 days now and still no budge when I was in hospital they said both my optic nerves were swollen and I seen my neurologist today and he says it's just a migraine. The first 4 attempts at lumbar puncture they did in the wrong place so was unsuccessful and have left me in agony can anyone suggest what I can do I am not overly obese but all's my specialist says is lose weight they will stop
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I am a fit, healthy 28 year old guy who has spontaneously developed severe high blood pressure, temporal pressure headaches, dizzy spells and blocked ears. The symptoms vary, with acute periods lasting a couple hours and occurring on a weekly basis. Generally an acute period is characterized by severe headaches, needing to lie down, blocked ears and extreme lethargy.
I have had CT’s and MRI’s of the brain and cervical spine, PET scans, ECHO’s, a multitude of blood tests and various other tests with no abnormalities.
I gym 4 times a week, eat healthy and work as a hairdresser, so my lifestyle is pretty healthy overall.
This condition is starting to limit my lifestyle and with two years of no answers I am putting it out there for someone to recognize or provide advice about what could potentially be going on!
View 7 Replies
Two years ago I was diagnosed with pulmonary hypertension. My pressure was at 38. I lived in pure worry for 6 months and went back again and it was 32. I still live in fear and my doctors acted like it was not a huge deal but want to see my every 6 months. They did an echo and EKG. I don't go back again until March but for the last week my right lung feels like its being squeezed and then I can't get any air. I'm so scared but I also have bad anxiety and panic. I just feel like k can't get any air in my right lung. When I lay down it somewhat goes away. I'm 31 and somewhat overweight. I have a lot of stress because my mom just passed away. I also have two kids and am scared I'm gonna die all the time. Just wondering if anyone else has this or is it my anxiety. I read online about how bad pulmonary hypertension and am in constant worry
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I gave blood mid January 2014 after registering some high blood pressure readings ( systolic up around 155) and reading saga study results suggesting benefit. I had previously tried reducing this through more exercise, and eating more healthily. Initially after giving blood the systolic remained elevated at 160. However it later reduced to 135. Three months later my BP is around 88/138 - so still a little on the high side, but still much reduced from the elevated levels previously.
Also taking CoQ10, but not eating a very good diet.
Anyway - just for those who are interested giving blood (especially for men who drink too much), can help.
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I am on 20 mg lisinopril and 12.3 diuretic. I have to start flying a lot, I am terrified because my pressure is never stable and spikes like crazy even under slightly stressful circumstances.
I read that flying increases blood pressure and puts some at a risk for clots and pulmonary embolism. What should I do?
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I am a 32 year old male and currently my BP is 225/180. And that is on Adalat XL, HCT, Carvedilol and Fosinopril.
Other than hypertension I am a healthy non smoker, likes a glass of vino every now and again, tried weed once when I was 16 and no other drug use ever. I am an avid mountain biker, always hiking outdoors with my dogs. I am 6'1 265lbs, I do crossfit and power lift (although I have gained 10 lbs since taking a break for a minor shoulder/bicep strain)
Doctors have given me meds for depression and anxiety and ruled those out. Have had MRI, CT, MIBG, ECG's, EEG,s ultrasounds looking for pheochromocytoma.
My last heart trace showed abnormal T-waves showing my heart is starting to see stress, and this does worry me.
One sign of my high blood pressure is suboccipital pain, while always there it does increase in relation to my BP. While doing physio for my shoulder my therapist indicated there is some artery impingement in my neck. Having read that the carotid artery do to constriction can cause impingement on the vagus nerve, is it possible that the suboccipital pain isn't a result of hypertension but a causing factor?
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I'm 25 and have been diagnosed with high bp (155/100) 4 months before ,my weight was 72 kg that time with height 5'8'' . I had regular twitching in my right eyes afterwards . Doctor first told me to change my lifestyle and i started exercising in evenings for at least 40 minutes .Started eating oats everyday and reduced my weight to 62 kg in 2 months . I got my tests done (ECG,URINE TEST,Cholesterol test ) but all came clear except little increase in URIC ACID. NOW my BP is 135/90.MY Doctor says i need to take medicines for lifetime as i cannot reduce my bp further. PLEASE HELP ME,i'm really worried to have hbp at this age.Should I go for the medicines or not or keep exercising and managing a good diet.
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I was looking at my past medical records and I't appears that I have had elevated BP for the past 5 years and now it is approx. 170/100. I have taken good care of myself all my life (never smoked, never drank, not overweight, never even had a cup of coffee) and feel awful about going on meds. My wife says its time. Are BP meds a forever thing?
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I'm 37, my hight 1.80 and I weight 79 kg. My average blood pressure is 138/90. My GP prescribed me Ramipril 1.25mg.
I reduced my salt intake, stopped drinking caffeine, stopped drinking alcohol and started going to the gym regularly. I completely changed my life style.
What I would like to know is: If my blood pressure comes back to normal after the treatment, can I stop taking blood pressure medicine or I have to take it for the rest of my life?
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