Hypothyroidism :: Levothyroxine Hair Loss Is Normal?
Jun 21, 2014
Hello I am 30 years old and a smoker for about 14 years my results came back for my ct spine scan and an incidental finding of a 9mm cyst in my upper lung should I be concerned that this maybe cancer? Will they remove the cyst if at all anyways thanks for any information I appreciate it.
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Hi everyone! I am totally new to this group and excited to get input from everyone! I'll try and give you a quick synopsis of the past year and a half for me when I gave birth to my first child....
Initially I felt fine, until about 4 months after I gave birth. I had initially lost all the baby weight and then I started gaining again, had major brain fog, dry skin, cold, crazy water retention and bloated face, unmotivated, etc. all the usual symptoms. In February I was diagnosed with Hashimotos by my regular doctor and here are my levothyroxine dosages and blood results since...
Feb 2015 Tsh 269. T4. <0.11. T3. <20. (No meds yet...initial blood work)
Apr 2015. Tsh 156. T4. 0.45. T3. 42. (25 mcg)
May 2015. Tsh 6.69. T4. 1.83. T3. 96. (75 mcg)
Sept 2015. Tsh 2.89. T4. 1.59. (100 mcg)
Oct 2015. Tsh 8.61. (75 mcg)
Nov 2015. Tsh 1.21. (100 mcg)
Feb 2016. Tsh 2.36. (100 mcg)
So my original Doctor began my levothyroxine regimen at 25 mcg for 6 weeks. I immediately felt much better even though my numbers were still going crazy. He upped my dosage twice then sent me to an endocrinologist. Both agreed that my numbers were so bad it could not be postpartum hypothyroidism and I had probably had this for a long time undiagnosed and the pregnancy made it officially just turn off. In October we lowered the dosage to double check this theory and I felt terrible and my numbers changed right away so my endo put my meds right back up.
Now, hair loss was actually never one of my initial symptoms and I am convinced that it began when i started my medication, but both doctors insist that it's my body getting used to the meds and my levels getting better and better. My endo thought perhaps it's was especially bad because I was also experiencing postpartum hair loss. But at this point it is now a full year since I have been diagnosed and on medication. Coupled with the hair loss I also started getting serious joint pain, but again my endo said I was adjusting and this was a common symptom of hypothyroidism.
So basically, I am wondering how after a year of medication I would still be experiencing symptoms with levels that are now perfectly fine? Unless it was related to the medication??....I feel very guilty bringing it up all the time to my doctor because I know I should be glad that the huge issues of brain fog, concentration and mood are generally good (I still say I am not exactly myself yet). I feel silly bringing up something cosmetic but it is so depressing to look in the mirror. I hate doing my hair, washing it, sometimes just running my fingers through my hair I get five more. Even though now I can say it's less, it's definitely still happening and I don't see any new growth. But, on the flip side, hair loss is associated with adjusting to armour and I am terrified to lose any more.
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My hair has been falling out for 4 years and I also have scalp pain. It feels like someone has been pulling my hair.
Out on the occipital area. The pain comes and goes. I have had a biopsy by a dermatologist, which was inconclusive.
I had an MRI, that was normal. Does anyone know who I should see or what to do? All labs normal!
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I was diagnosed with hypothyroidism when I was 14, and since then i have been taking Levothyroxine to help with it. I am wondering, will I need to take levothyroxine forever? Or is there a fix for thyroid problems? I don't see my weight going down at all, or my thyroid level. My doctor has been increasing the dosage of my levothyroxine, and has three times now. I recently got Levothyroxine in 0.137mg dosage, and it smells terrible. My old ones were 0.125mg. Is this a very small change, and will it even do anything?
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I've made an appt with a naturopath next week as I'm having an increase in bad symptoms since starting levothyroxine 4mths ago and cannot stand it any longer.
I'm expecting to be told to go gluten free. However there's corn/maize starch (contains gluten) in the meds so I'm wondering about those of you who are gluten free - what type of meds are you on?
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During a routine blood test in August I was diagnosed with underactive thyroid. I wasn't feeling ill so was quite surprised when I read the symptoms. I've been on Levothyroxine for 3 months now and I feel terrible. I'm so drained and exhausted, angry and frustrated, bloated, fat, stomach pains and unhappy, I keep going back to the doctor but she just pops me more pills and I don't feel she is very understanding or sympathetic. I didn't feel this bad before I started the medication so I'm going to stop it. I was placed on 50mg and two weeks later my blood tests were normal and have been since so for such a small dose does it really matter? I'm so low, sometimes it's all too much I want to have a paddy and a tantrum and smash the place up and if anyone gets in my way then they'll get it too.
The doctor wants me to try CBT self help courses to understand what troubles me. When I'm not having some kind of flip out I know what troubles me - things are a struggle and I hate being ill and I want to be better.
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After many years struggling with ongoing Hypothyroid symptoms, despite continuous treatment with Levothyroxine (125 mg daily) I came up the plethora of information, mainly from the USA challenging the efficacy of the current tendency of GPs to test only T4 and TSH Levels and to prescribe only Synthetic Thyroid Medications (like Levothyroxine) despite evidence that people so treated continued to suffer from many Hypothyroid symptoms. I asked my own Doctor- apparently, tests for T£ levels are "very expensive" and so won't be offered on the NHS, and even if I had private blood tests done, he wouldn't be able to prescribe additional T3 (Cytomel) or Natural Thyroid Extract for my condition. So, I'm left with a choice- self medicate, buying these products from possibly "dodgy" online sources, or continue to take my Levothyroxine and suffer from ongoing symptoms in silence. Not a great choice, is it? I'd be interested to hear about fellow sufferers experiences and advice, please, on what I should do.
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Diagnosed hypothyroid >10 years. I have struggled all of this time to feel 'normal'. Drs have continually increased Levothyroxine to attempt to normalise TSH. Six months ago they prescribed 300mcg. The pharmacist queried this! I take it regularly, without food etc. I am still symptomatic and free T4 & T3 still low. Anyone else on this dose without effect?
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So my latest blood work revealed that I need a dose change and that I'm insulin resistant. I am now taking 200mg of levothyroxine for hypothyroidism and 40mg of atorvastatin for cholesterol and fatty liver. I also take fish oil, multivitamin, D3, allegra, and baby aspirin. My medical provider is focusing on my thyroid before tackling everything else. I should also mention that my mother has non alcoholic cirrhosis of the liver, diabetes, dementia, diverticulitis, and myopathy. I'm considering taking coQ10. I'm just wondering what is the safest otc pain medicine for me to use(ibuprofen, goodies), and is there anything else I should know?
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I have been diagnosed with Hashimoto. Everywhere I read it is controlled with Armour or some kind of thyroid medicine. I have tried Armour and Synthroid and Levothyroxine and have had no change in my leves. One is suppose to be a 4 and mine is a 7 and one is suppose to be less than 9 and mine is greater than 900.
What happens when it us uncontrollable with Medicine?
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I was diagnosed only yesterday and took my first pill today. I have been quite worried to hear about people's experiences levo, but more importantly I'm worried about the antibody attacks!
I don't have many symptoms except feeling the cold - that's the main one.
But my results were really bad: TSH 79.9, T4 6.8, AntTO 4777.7
My question is, while the thyroxine will regulate my hormone, what do people do about the anti-body attack? I'm getting a coeliac test done, although have previously come out negative.
What do people think? I've read about functional medicine practice is to heal the gut and cut out grains, which I will certainly try. Just wondered because no one seems to be questioning this and it's the antibodies causing the destruction!!
Do antibody levels decrease on Levo? What do you do about this? Anyone else gluten free?
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Not sure what vitamins I should be taking as doc diagnosed me and prescribed me and off I went , ive no idea what my TSH level is either, just that i have underactive thyroid, I'm taking Levothyroxine lowest dose? I'm feeling cold and tired most of the time too.
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I've been on 300 mcg Levothyroxine for several years. Was still hypo until I was given Adderall 40 mg day. Except for PTSD was fine. Old Doc retired and new Doc is freaked because my TSH is almost undetectable, T3 and T4 high side of normal. She lowered it to 250mcg and I'm in a tailspin in less than a month. Crying, shaking, cramps in my feet, leg tremors, etc. ANXIETY out of control.
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I began seeing bald patches on my head: one rather large one and 2 smaller ones. I also am losing a ton of hair each day. I have been diagnosed with a ferritin level of 8 and an iron level of 28. I am taking 325 mg of iron 3 times a day along with other vitamins. Approximately how long before I see an improvement in hair fallout and regrowth. I am also seeing a dermatologist for corticosteriod injections to help with regrowth in the completely bald spots. I am strongly considering shaving my whole head?
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I am a 25 year old female and I was diagnosed with Hashimoto's Disease probably around 2012 or so. I take 75MCG every morning and I do blood tests about once or twice a year to make sure my levels are stable. What I need help with are symptoms. My boyfriend has been very supportive, he was the reason I went to get the initial blood test because he said my symptoms reminded him of Graves Disease and it worried him. Well, I went to the doctor and got the tests done and he told me I had Hashimotos. Since then, my boyfriend has told me that he hasn't seen any improvement in my symptoms, in fact he thinks they've gotten worse. I have looked at a lot of different lists of symptoms that people with Hashimoto's Disease can experience and I experience a lot of them. I'll list the ones I experience the most and a little bit of a description to each so maybe someone can help me with what I need to do to feel better because honestly it makes me miserable.
-Hair Loss - Every time I brush or wash my hair there is always tons of hair in the brush or tub. It's everywhere all the time, I shed like the cats.
- Depression - I don't know if it is actually depression, but a lot of the time I feel like I'm just not good enough to be around anyone. I'll find myself crying at ridiculous moments with absolutely no reason for it. I also find myself thinking that people I know (and can acknowledge even when I'm feeling this way) love and care for me, and yet I still think they don't care about me and will abandon me at the drop of the hat, which breaks me down mentally.
- Stress - This is probably one of my worst symptoms. I am always stressed out about something, even ridiculous things that shouldn't be stressing me out. One of the biggest things I stress about is what I mentioned with the depression. I feel like my friends and loved ones are going to abandon me at any minute, which scares me and results in me lashing out at them in ways that if I can't control it soon enough may result in them actually leaving, which terrifies me and just puts me into a never ending loop of stress and depression.
- Anger - I can't seem to rationalize other people's behaviors. Completely normal behaviors that don't normally bother me result in me lashing out and screaming at people and saying things that I don't mean to say.
- Memory Loss - This is a really bad symptom. I forget things very quickly. If I don't actively keep it in my mind, I won't remember it. A perfect example, when I was still in college I was walking through town with some people and when we were going back to the dorms I made a comment about a truck I saw. I used to see it all the time and hadn't seen it in a while so I made the comment. The people I was with looked at me really confused and just flatly stated "You said the exact same thing when we walked by it on the way out" and I honestly don't remember seeing it at any point that day. In fact I didn't remember seeing it for around 5 months, and yet they claimed that I made the exact same comment I just had, earlier that day. It really messes with my head when people tell me that I did or said something and I can't remember doing it to save my life.
- Weight - Before I started taking synthroid I weighed 110 lbs, after I started taking it I gained like 30 lbs and I can't lose it. I'm stuck between 135 and 140 (I'm about 5'6" tall)
- Headaches - I get headaches on a daily basis. Sometimes they're really bad but generally they're just a slight discomfort in my frontal lobe area.
- Sleep - It takes me forever to fall asleep and even when I do I can't stay asleep and then I feel exhausted all day when I wake up, as if I never slept at all.
Another thing I've noticed and that is that sometimes I feel like I can't swallow properly, I always feel like I have to yawn to get a lung full of oxygen, and my nails curl downward along the curve of the tip of my fingers on like 3/5 fingers.
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I suffer from the problem of hair loss before marriage at the age of 19, where he was my hair loss, which is a dense tuft and continues to now (24 years old) so my hair has become very small and too short
Use Pantene Shampoo
To know what to make .....
I want advice and guidance and your directions even know the main reason
What are the required medical tests ....
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For the past year, I've been losing my eyebrows in patches. Patches will grow back, but then fall out weeks/moths later. I'm a 38-year-old female, healthy and fit. Recent blood work all normal. Thyroids normal. I'm not losing hair anywhere else, and my skin has no redness or dryness. It is just my eyebrows that keep falling out. The only thing I could think of was my birth control--I was on the Mirena IUD. But I removed it and ceased all birth control several months ago and the problem persists. All doctors I've visited have been stumped, thus my online question.
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I have been having low free T4 (9 pmol/L), but normal although on the lower end TSH (1.69 mIU/L).
My doctor has put me on 75mg/day synthroid, because his diagnostic is hypothyroidism. However, I understand that hypothyroidism is normally associated with low T4, but high TSH.
Based on what I have read, it seems that a low T4 associated with a normal TSH may be linked to issues with the pituitary gland (and not the thyroid) or issues with binding agents.
Is hypothyroidism and the use of synthroid indicated in my case?
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what is causing my t4 and testosterone to be low but tsh to be normal?
i am a 19 year old male and I have had these symptoms for 3/4 years that have slowly gotten worse and have been tested for nearly everything but nothing has come back positive.
i have asked my doctor if my free t4 was low but as always will not agree that it is as it is in their "normal range". i shall be going back to the doctors this week and will request to be tried on some thyroid pills to see if it improved my symptoms? i also read that this could be a pituitary tumor, is this correct?
my symptoms are
Fatigue
Muscle pain
sore lower back
stiff neck
sinus problems/ phlegm in throat/ blocked nose
dry throat and mouth
red nose/ rosacea
cold hands and feet
anxiety
depression
Low testosterone at 13 nmol
mood swings
excess urination
excessive thirst
prickly/itchy/burning legs and feet when stood still for a few minutes.
clay coloured stool / diarrhea
TSH 1.6
Free t3 5.3
free t4 10.9 -----------?
i also had my cortisol tested which was 472 nmol
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I have had 3 TFTs in the last year. My TSH levels are normal but my free T4 levels have been dropping with each test.....apparently this is normal. I am 59 and female and recently I my energy and enthusiasm have taken a nose dive and even my job.
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For sometime I have had panic attacks and frequent infections of chest and ears and viruses.Last April things moved on quickly and I was covered in painful itchy blisters, neuropathic pain, vertigo and feeling shut down. I was covered in bruises. Ambulanceman reported an ischaemic looking ECG and took me to A and E.
The only findings wee raised TSH with normal free t4 and normal Thyroid peroxidase abody. Also raised basophil and eosinophil. They said hypothyroid but my GP says no as no autoantibodies?
I am still suffering-eyebrows gone, no energy, dry wrinkled skin and 3 more courses of antibiotics for chest and throat infections. Any ideas, anyone? Also sight got really bad and joints ache ++
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