Can someone please help, my anti-TPO antibodies (range 0-34) have gone from 33.5 in March to 141 in August despite being told to go gluten-free and did so consistently for 3 months? My endocrinologist said going gluten-free would definitely sort the antibodies out. I am on 50mcg T4.
View 7 RepliesDoes anyone know any more about gluten and thyroid function? Read somewhere that going gluten free will improve health. Any thoughts?
View 1 RepliesNot to go into too much detail, but I was diagnosed with Hashimoto's last Dec (2012). I have seen MANY docs that have no idea what they are talking about. I have finally found a good Endocrinologist who understands hypo-thyroid....but she just wants to treat with synthetic T4 meds. I have also found a Great Holistic doc, that happens to also be a certified nutritionist as well....who understands for every action, there is a reaction. I use both of these docs to collaborate on my health and lab results...to decide how I WANT to treat my self so I can get back to optimum health.
Ready anything you can get your hands on...I repeat! Read anything you can get your hands on! Turn off the TV....and start researching your own health. It's worth it.
I am finding that docs just "treat" the already diseased body, rather than looking for the underlying cause of the disease. Your body is more than capable of taking care of itself if you have the right balance of vitamin/nutrients/minerals. It's when these levels get deficient...that's when you open the door for disease. Once that starts, your health will spiral out of control.
Find out what your deficient in and you can fix your health issues!
So, keep reading and learning. Hashi's patients....look for gluten free, fluoride free...look up iodine and it's effect on your thyroid health. (Dr. Brownstein-Iodine Loading test) Try to get back to the basics....rather than eating frozen foods and processed foods. Check into organic food (Dirty Dozen and the Clean 15). Do a Saliva test to check your adrenal hormones, check your Neurotransmitter levels too (Pharmasan Labs-run it thru your insurance). Read, "Stop the Thyroid Madness" to understand treating thyroid disease with natural desiccated thyroid, rather than just synthetic T4 medication.
There are people out there that understand how to read these results. All of the "goofy" people that tell you not to eat this, take this supplement, etc...may not be as crazy as you think. Look for a holistic, natural doc. Some are better than others...try a couple and see who you are comfortable with.
My 12 yr old son is experiencing no BM after 4 days of switching him to this GFDF diet ... Before he was IBS .... Not sure what to do
View 7 RepliesI hear these go hand in hand and wondered if anyone who is following a gluten free diet has actually gotten better thyroid results without the meds?
View 10 RepliesI am also coping with hypothyroidism and I've been searching for the best possible ways to get my health (and life) back. The doctor I have been working with has made the suggestion to go on a gluten free diet. She didn't go into great detail about it, but mentioned that she'd like for me to nix the gluten. I have also read numerous times on the internet about how gluten is a thyroid destroyer. I have tried countless times to go GF, but boy is it hard. I tested negative for gluten and dairy allergies but my doc (a naturopath) was still adamant that I give up the gluten. I feel like such a failure because I only manage to stay gluten free for about 2 weeks at a time until I cave and have something like a slice of pizza or some pasta or bread. There are gluten free alternatives to these items but sometimes they are hard to obtain or are a pain to cook. I have a very healthy diet for the most part but I've found that removing gluten entirely isn't easy. I've also lost weight while going gluten free, which I did NOT want to do. I'm actually already a little bit underweight.
Does anyone have any tips for me? Has anyone out there successfully gone gluten free long-term, and did it affect your condition in a positive way? I feel like a failure because I keep trying to give it up but it never works out in the long run. I always slip up.
I've made an appt with a naturopath next week as I'm having an increase in bad symptoms since starting levothyroxine 4mths ago and cannot stand it any longer.
I'm expecting to be told to go gluten free. However there's corn/maize starch (contains gluten) in the meds so I'm wondering about those of you who are gluten free - what type of meds are you on?
This morning at my rheumatologist's office we made the decision to not do any further fibro meds. I can't stand the side effects and eventually quit taking them all anyway. She went more in depth with me about helping myself with healthy diet and exercise and recommended low gluten.
I was doing research on how to limit gluten in my diet and started reading about celiac disease. Like a lot of other health issues, the s/s are very close to fibro. I'm not sure if I've ever been tested and am waiting on my family doc to call me back to tell me.
My question is, have you tried gluten free? Did it help any symptoms? Were you diagnosed with celiac or just experimented on your own?
This is a pretty big difference in diet and a big commitment. I also kind of feel that gluten free has become a bit commercialized and a bit of a fad thing. I would just like more information before jumping into something I don't understand.
I have seen some videos that support a gluten free diet and an end to Hashimoto's.
Has anyone tried going completely gluten free and had an improvement in their symptoms or even and reduction or end to their meds?
Is there anyone out there that eats gluten free and any evidence to say that it will help with Graves or Hyperthyroidism?
Just exploring my diet as I'm on 30mg of Carbimazole daily and have put on weight. I normally have low fat, high protein, low carb, veggies, fruit and lots of water, but still putting on weight.
Weight gain is this because I'm going back to being hypothyroid or the Carbimazole? Back at the doctors next week for a blood test.
Just wondered whether to try gluten free, although at the most I only eat 2 slices of bread a week and my diet is quite healthy apart from the occasional glass of wine.
2 weeks ago I tried starting a strict gluten free diet following possibilities of coeliac disease or sensitivity to gluten. I expected my bowels to improve following a 6-8 week diary I had been keeping i regulated my intake of food and drink to give myself a 'reference' to begin with.
So I was generally ok, slightly bloated prior to gluten free. 3 days into gluten free I felt awful. Stomach pains, diarrhea really smelly gas, felt weak, headaches etc. Struggled to concentrate at work. My intake of fruit and veg increased and this period of feeling crap lasted 3 days. I was bad. I felt awful. Anyway things improved slightly and the diarrhea calmed but the stomach noises, pains etx were still present.
I'm just confused? If I drink beer, eat pizza, eat pasta...etc usually it irritates me. This week (after being gluten free for 2 weeks and feeling bad) I've sacked the gluten free diet, had bread, pizza etc...but just watched my sugar intake (as this is a sensitivity for me) and I'm having relatively normal bowel movements, no headache, no morning rushes...slightly constipated.
Not sure where to go from here? I seem to be going in this cycle where I will be ok for about a month, then have a proper bad spell usually 2 days of diarrhea, aches, headaches, brain fog etc...then back to normal. I've kept a diary of everything I've been eating and can't link anything to my causes. The 1 thing I thought would help...staying off gluten...actually seems to make things worse?
Why am i so gassy? I would also like to know if being gluten free can help my knee problems?
View 1 RepliesDoes anyone here follow a gluten free diet for their IBS ?
As far as I know I do not have Coeliac disease but wondered if it has helped anyone and if so how long it took to work.
I have been on a gluten free diet for about 4 weeks now. I had originally went on this diet because I am having the same symptoms and someone that may have a gluten sensitivity bad headaches, feeling very fatigued, joint pain, depression, numbness and foggy brain I was to a point where I couldn't get the word out of my mouth that I was trying to say and that's the point where I really started to research some things. I went to a neurologist and had an M.R.I. done all came back negative the Dr. said there is nothing wrong with me. Quite frankly I can't believe this so I started doing my own research since I wasn't going to get help from that Dr. I do plan on getting a second opinion done here soon, But none the less frustrating. So I found that pretty much all the symptoms that describe a gluten sensitive individual is everything I felt as well, so I thought I might as well give this a shot. I started this diet 2 weeks in I noticed that the numbness went away for the most part the pain still lingered the foggy brain hasn't shown its ugly face still fatigued and still had the headaches. So now 4 weeks in the numbness and the pain has been coming back more frequently and the headaches are still around foggy brain is still gone for now. But as the numbness and pain intensify and start showing up more often now it kind of makes me think am I really having to do this diet, and for the record I am not one of those people that cheat diets nor thinks its okay to cheat a diet especially with this kind of health dependency. I have been very strict with this hence why the frustration with it seeming like its not helping so high. I have done my research on the hidden gluten what to look for etc I actually try to buy only certified gluten free foods that say on the packages. I mean if all I have to do is change my diet to a gluten free one and it changes my life for the better because of this i'm all on board not just half way. Some places I read 6 weeks others say 6 months before you start to add wheat back into your diet to see if it affects you in a negative way, of course only if you feel like its not working for you. I definitely don't want to do this to soon because any chance that this is helping me I would hate to ruin that. At first I thought it was helping me, But not so sure anymore.
View 1 RepliesI have suffered from IBS for over 10 years, my main symptoms are abdominal pain, stomach cramps, spasms, burning sensation in sides. My GP keeps insisting on me adhering to a gluten free diet to manage my symptoms. I have done this in the past but felt very little benefit from it. Has anyone else tried a gluten-free diet and felt that improved their symptoms?
View 3 RepliesFor those that have tried the gluten free diet, how long before you saw results, if any?
View 8 RepliesIm reading a book at the moment on how to recover the immune system. It mentions cases where people with RA that have removed gluten and dairy from their diet for 6 months had no indication of RA in their system after 6 -12 months. Sounds too good to be true. Has anyone tried it? I'm going to give it a go, nothing to lose.
View 16 RepliesI have an 8 year old who was diagnosed with Coeliac disease last May and has been following a gluten-free diet ever since. Her symptoms previously were pins and needles in hands and feet, mouth ulcers, calcium marks on teeth, bloating, aching joints and bones, and small pink spots on the face. She is also quite small for her age. Her symptoms have cleared up, However now and then she gets sick if we have problems with cross-contamination.
My problem is that she is still experiencing a degree of joint and bone pain. About 2 weeks ago was the last time she got sick because of cross contamination, but last night she couldn't sleep because of the pain. Is this normal - does anyone else experience this?
Basically I am 25 years old and as i've grown up I've noticed more and more that I was getting stomach cramps and bloating more and more often. It is very sporadic and I couldn't really say exactly what was causing it but I just thought it was normal. This was until the last 12 months when I started to think a bit more about it. I do a lot of exercise and play a lot of football. I was finding that I would get some form of cramp during a football game. Usually quite mild but sometimes worse. I also like to run and when training for a half marathon found that after a certain distance I would get pains. Almost every time after about 30-40 minutes running. It would normally be worse when running in the evenings. I started thinking about it and tried taking several things out of my diet. I am 95% certain I have a lactose intolerance as since cutting that out around 6 months ago I have seen an improvement. But I would still get pains.
This all resulted in me going Gluten Free and I finally experienced what it feels like to have a normal stomach. I was relaxed and could do whatever I wanted without any fear. So I decided for my own health I should get tested for celiacs disease and after 7 weeks of eating gluten again had the blood tests. Today I had the results and they have come back negative. I feel so deflated and just angry. What do I do now? I just feel like going back to Gluten Free and living like that self diagnosed. The weird thing I find with my disorder is it seems to be worse when i'm up and about. If me and my fiancee have gone out around town and have lunch it is often worse when walking around afterwards. I don't always get blinding pains either. It is often just severe constipation or stomach cramps just making me feel uncomfortable.
Really disheartening now and just want to know but can't carry on for much longer and really don't want to keep eating Gluten when I know I feel good when I don't. Any advise?
I have recently "not quite" been diagnosed yet with Lupus however I have certain signs not yet enough for an official diagnosis. High ANA is one, pericardial effusion (mild), no inflammation or symptoms yet. Would have never known I had a problem until the Dr. told me I did!! I used to have severe stomach problems for years, cramps, diarrhea after eating a meal. For hours I would suffer. But for the past 4 or so years it has stopped completely and I am wondering if that is when my immune system started to go overactive due to a possible gluten allergy and now turning into an auto immune disease as a result. I am starting a gluten free diet, today is only day 3, i want to suppress and relax my immune system by not giving it so much work to do!! Unconfuse it and calm it down by eating gluten free and healthier. So nutrients can get absorbed better? Add probiotics, making sure to get Vitamin K...D, B12 etc. (I know K is a big one for Lupus) Does anyone have any views on this or have tried diets like this?
View 8 RepliesHas anyone tried the new range of gluten free food Udi's?
I saw them in Tesco the other day on 3 for 2 and tried the bagels, muffins and crisps. They all taste just like the real thing! I've really missed bagels since I was diagnosed at 18 so it was great to eat them again.