Hypothyroidism At 14 - Levothyroxine Forever
Jun 21, 2015
I was diagnosed with hypothyroidism when I was 14, and since then i have been taking Levothyroxine to help with it. I am wondering, will I need to take levothyroxine forever? Or is there a fix for thyroid problems? I don't see my weight going down at all, or my thyroid level. My doctor has been increasing the dosage of my levothyroxine, and has three times now. I recently got Levothyroxine in 0.137mg dosage, and it smells terrible. My old ones were 0.125mg. Is this a very small change, and will it even do anything?
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I've made an appt with a naturopath next week as I'm having an increase in bad symptoms since starting levothyroxine 4mths ago and cannot stand it any longer.
I'm expecting to be told to go gluten free. However there's corn/maize starch (contains gluten) in the meds so I'm wondering about those of you who are gluten free - what type of meds are you on?
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During a routine blood test in August I was diagnosed with underactive thyroid. I wasn't feeling ill so was quite surprised when I read the symptoms. I've been on Levothyroxine for 3 months now and I feel terrible. I'm so drained and exhausted, angry and frustrated, bloated, fat, stomach pains and unhappy, I keep going back to the doctor but she just pops me more pills and I don't feel she is very understanding or sympathetic. I didn't feel this bad before I started the medication so I'm going to stop it. I was placed on 50mg and two weeks later my blood tests were normal and have been since so for such a small dose does it really matter? I'm so low, sometimes it's all too much I want to have a paddy and a tantrum and smash the place up and if anyone gets in my way then they'll get it too.
The doctor wants me to try CBT self help courses to understand what troubles me. When I'm not having some kind of flip out I know what troubles me - things are a struggle and I hate being ill and I want to be better.
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After many years struggling with ongoing Hypothyroid symptoms, despite continuous treatment with Levothyroxine (125 mg daily) I came up the plethora of information, mainly from the USA challenging the efficacy of the current tendency of GPs to test only T4 and TSH Levels and to prescribe only Synthetic Thyroid Medications (like Levothyroxine) despite evidence that people so treated continued to suffer from many Hypothyroid symptoms. I asked my own Doctor- apparently, tests for T£ levels are "very expensive" and so won't be offered on the NHS, and even if I had private blood tests done, he wouldn't be able to prescribe additional T3 (Cytomel) or Natural Thyroid Extract for my condition. So, I'm left with a choice- self medicate, buying these products from possibly "dodgy" online sources, or continue to take my Levothyroxine and suffer from ongoing symptoms in silence. Not a great choice, is it? I'd be interested to hear about fellow sufferers experiences and advice, please, on what I should do.
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Diagnosed hypothyroid >10 years. I have struggled all of this time to feel 'normal'. Drs have continually increased Levothyroxine to attempt to normalise TSH. Six months ago they prescribed 300mcg. The pharmacist queried this! I take it regularly, without food etc. I am still symptomatic and free T4 & T3 still low. Anyone else on this dose without effect?
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So my latest blood work revealed that I need a dose change and that I'm insulin resistant. I am now taking 200mg of levothyroxine for hypothyroidism and 40mg of atorvastatin for cholesterol and fatty liver. I also take fish oil, multivitamin, D3, allegra, and baby aspirin. My medical provider is focusing on my thyroid before tackling everything else. I should also mention that my mother has non alcoholic cirrhosis of the liver, diabetes, dementia, diverticulitis, and myopathy. I'm considering taking coQ10. I'm just wondering what is the safest otc pain medicine for me to use(ibuprofen, goodies), and is there anything else I should know?
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Hello I am 30 years old and a smoker for about 14 years my results came back for my ct spine scan and an incidental finding of a 9mm cyst in my upper lung should I be concerned that this maybe cancer? Will they remove the cyst if at all anyways thanks for any information I appreciate it.
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I have been diagnosed with Hashimoto. Everywhere I read it is controlled with Armour or some kind of thyroid medicine. I have tried Armour and Synthroid and Levothyroxine and have had no change in my leves. One is suppose to be a 4 and mine is a 7 and one is suppose to be less than 9 and mine is greater than 900.
What happens when it us uncontrollable with Medicine?
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I was diagnosed only yesterday and took my first pill today. I have been quite worried to hear about people's experiences levo, but more importantly I'm worried about the antibody attacks!
I don't have many symptoms except feeling the cold - that's the main one.
But my results were really bad: TSH 79.9, T4 6.8, AntTO 4777.7
My question is, while the thyroxine will regulate my hormone, what do people do about the anti-body attack? I'm getting a coeliac test done, although have previously come out negative.
What do people think? I've read about functional medicine practice is to heal the gut and cut out grains, which I will certainly try. Just wondered because no one seems to be questioning this and it's the antibodies causing the destruction!!
Do antibody levels decrease on Levo? What do you do about this? Anyone else gluten free?
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Not sure what vitamins I should be taking as doc diagnosed me and prescribed me and off I went , ive no idea what my TSH level is either, just that i have underactive thyroid, I'm taking Levothyroxine lowest dose? I'm feeling cold and tired most of the time too.
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I've been on 300 mcg Levothyroxine for several years. Was still hypo until I was given Adderall 40 mg day. Except for PTSD was fine. Old Doc retired and new Doc is freaked because my TSH is almost undetectable, T3 and T4 high side of normal. She lowered it to 250mcg and I'm in a tailspin in less than a month. Crying, shaking, cramps in my feet, leg tremors, etc. ANXIETY out of control.
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I have had Tietze's/costochondritis for 6 years now and it has affected my life drastically. Not sure if it began with a bacterial infection (like one doctor said) or a slight ribcage injury. My symptoms or more like 'gasping for air' and just about passing out because i can't breathe as well as a feeling of 'swelling in the ribcage area'. The pain is around mid-section and wraps around so very difficult to sleep on side. It has affected my quality of life because i have become reclusive and don't do anything that involves a crowd because i don't want to get bumped or elbowed in the ribs. The last time someone hugged me (which was three years ago) i had to go to ER and get a steroid shot and dose pack because ribcage area was so inflamed. I am a thin person so that may have something to do with it--not sure because i saw where someone said that doctor told them they would get better if they lost weight?? When i go to a doctor (and i have been to many from rheumatologist to neurologist) they do not have answers for me as to why this will not go away. I have been told everything from vitamin deficiency to chronic inflammatory problem to 'they don't know what it is or what to do for me'. I am very frustrated at this time because I get roadblocks everywhere i go for help. Any suggestions?
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I used to have PSA readings as high as 6.0 until my doctor prescribed Avodart 0.5 mg capsules daily. Since starting the Avodart regiment (3 years ago) my PSA readings have dramatically fallen to the range of 3.2 to 3.8 which obviously I am very pleased with. However, looking forward, (I'm 72), I'm wondering what to expect. If I stay on Avodart forever I assume that my readings will continue to be in the good range. But, is there a long term negative scenario for taking that much Avodart that I should be aware of ?
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my TSH level is 6.3, does that mean have to take medication forever? this is the first time it came this high.
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I have had a terrible month. Seems like I have done nothing but cry. I usually have more anxiety than I do depression and most of the time I can somewhat shake it off but not this time I don't know what's different. I was having symptoms of my period but so far no show. My question is do any of you have times when you feel you have been bloated forever and does your weight fluctuate?
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I was looking at my past medical records and I't appears that I have had elevated BP for the past 5 years and now it is approx. 170/100. I have taken good care of myself all my life (never smoked, never drank, not overweight, never even had a cup of coffee) and feel awful about going on meds. My wife says its time. Are BP meds a forever thing?
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I've had mild acne for a few years now but it never used to bother me as using dermalogica would clear up outbreaks. Since I started taking Levothyroxine and Carbimazole my spots just don't seem to go away. They're just small red bumps with no pus and it's driving me crazy.
It's killing my confidence. I have a noticeable goitre and now these constant spots on my face. Has anyone else had this problem with thyroid medication?
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I have just been diagnosed with Hypothyroidism & Diabetes have been prescribed with Levothyroxine 50mcg also Simvastatin 40 mg for Cholesterol
has anybody had experience with these 2 drugs as the doctor has not explained much at all ?
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how do I control hypothyroidism when I can't tolerate the meds?
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Anyone stopped taking this drug, I feel like I am being poisoned, I feel yuk constantly, I was fine before I started to take this drug, I had a blood test to do with menopause and it came back I had under active thyroid, I had no symptoms of uat at all! I would love to go back to how I originally felt, but I'm desperate to know if anyone has stopped taking this, I was on 150mg.
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I think I have come to the conclusion that my pills levothyroxine is causing me to break out everywhere like my shoulders and face here is why I think it was them I was sick for three weeks stopped taking my pills and guess what everywhere I cleared up
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