Hypothyroidism :: Ongoing Symptoms Despite Levothyroxine
Mar 20, 2016
After many years struggling with ongoing Hypothyroid symptoms, despite continuous treatment with Levothyroxine (125 mg daily) I came up the plethora of information, mainly from the USA challenging the efficacy of the current tendency of GPs to test only T4 and TSH Levels and to prescribe only Synthetic Thyroid Medications (like Levothyroxine) despite evidence that people so treated continued to suffer from many Hypothyroid symptoms. I asked my own Doctor- apparently, tests for T£ levels are "very expensive" and so won't be offered on the NHS, and even if I had private blood tests done, he wouldn't be able to prescribe additional T3 (Cytomel) or Natural Thyroid Extract for my condition. So, I'm left with a choice- self medicate, buying these products from possibly "dodgy" online sources, or continue to take my Levothyroxine and suffer from ongoing symptoms in silence. Not a great choice, is it? I'd be interested to hear about fellow sufferers experiences and advice, please, on what I should do.
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I was diagnosed with hypothyroidism when I was 14, and since then i have been taking Levothyroxine to help with it. I am wondering, will I need to take levothyroxine forever? Or is there a fix for thyroid problems? I don't see my weight going down at all, or my thyroid level. My doctor has been increasing the dosage of my levothyroxine, and has three times now. I recently got Levothyroxine in 0.137mg dosage, and it smells terrible. My old ones were 0.125mg. Is this a very small change, and will it even do anything?
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I've made an appt with a naturopath next week as I'm having an increase in bad symptoms since starting levothyroxine 4mths ago and cannot stand it any longer.
I'm expecting to be told to go gluten free. However there's corn/maize starch (contains gluten) in the meds so I'm wondering about those of you who are gluten free - what type of meds are you on?
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During a routine blood test in August I was diagnosed with underactive thyroid. I wasn't feeling ill so was quite surprised when I read the symptoms. I've been on Levothyroxine for 3 months now and I feel terrible. I'm so drained and exhausted, angry and frustrated, bloated, fat, stomach pains and unhappy, I keep going back to the doctor but she just pops me more pills and I don't feel she is very understanding or sympathetic. I didn't feel this bad before I started the medication so I'm going to stop it. I was placed on 50mg and two weeks later my blood tests were normal and have been since so for such a small dose does it really matter? I'm so low, sometimes it's all too much I want to have a paddy and a tantrum and smash the place up and if anyone gets in my way then they'll get it too.
The doctor wants me to try CBT self help courses to understand what troubles me. When I'm not having some kind of flip out I know what troubles me - things are a struggle and I hate being ill and I want to be better.
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Diagnosed hypothyroid >10 years. I have struggled all of this time to feel 'normal'. Drs have continually increased Levothyroxine to attempt to normalise TSH. Six months ago they prescribed 300mcg. The pharmacist queried this! I take it regularly, without food etc. I am still symptomatic and free T4 & T3 still low. Anyone else on this dose without effect?
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So my latest blood work revealed that I need a dose change and that I'm insulin resistant. I am now taking 200mg of levothyroxine for hypothyroidism and 40mg of atorvastatin for cholesterol and fatty liver. I also take fish oil, multivitamin, D3, allegra, and baby aspirin. My medical provider is focusing on my thyroid before tackling everything else. I should also mention that my mother has non alcoholic cirrhosis of the liver, diabetes, dementia, diverticulitis, and myopathy. I'm considering taking coQ10. I'm just wondering what is the safest otc pain medicine for me to use(ibuprofen, goodies), and is there anything else I should know?
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Hello I am 30 years old and a smoker for about 14 years my results came back for my ct spine scan and an incidental finding of a 9mm cyst in my upper lung should I be concerned that this maybe cancer? Will they remove the cyst if at all anyways thanks for any information I appreciate it.
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I have been diagnosed with Hashimoto. Everywhere I read it is controlled with Armour or some kind of thyroid medicine. I have tried Armour and Synthroid and Levothyroxine and have had no change in my leves. One is suppose to be a 4 and mine is a 7 and one is suppose to be less than 9 and mine is greater than 900.
What happens when it us uncontrollable with Medicine?
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I was diagnosed only yesterday and took my first pill today. I have been quite worried to hear about people's experiences levo, but more importantly I'm worried about the antibody attacks!
I don't have many symptoms except feeling the cold - that's the main one.
But my results were really bad: TSH 79.9, T4 6.8, AntTO 4777.7
My question is, while the thyroxine will regulate my hormone, what do people do about the anti-body attack? I'm getting a coeliac test done, although have previously come out negative.
What do people think? I've read about functional medicine practice is to heal the gut and cut out grains, which I will certainly try. Just wondered because no one seems to be questioning this and it's the antibodies causing the destruction!!
Do antibody levels decrease on Levo? What do you do about this? Anyone else gluten free?
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Not sure what vitamins I should be taking as doc diagnosed me and prescribed me and off I went , ive no idea what my TSH level is either, just that i have underactive thyroid, I'm taking Levothyroxine lowest dose? I'm feeling cold and tired most of the time too.
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I've been on 300 mcg Levothyroxine for several years. Was still hypo until I was given Adderall 40 mg day. Except for PTSD was fine. Old Doc retired and new Doc is freaked because my TSH is almost undetectable, T3 and T4 high side of normal. She lowered it to 250mcg and I'm in a tailspin in less than a month. Crying, shaking, cramps in my feet, leg tremors, etc. ANXIETY out of control.
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I have been taking Levothyroxine for about 8 months now and since then I seem to be suffering from increasing allergies. I already suffered with Hay Fever during the months of May and June but suddenly I started being allergic to my rabbits. I knew I was allergic to their hay but not the rabbits themselves. The doctor gave me an inhaler for when I needed to use it if I inhaled some of the rabbit fur as I found I was struggling to breath. I then started to be very sneezy at night and in the mornings sometimes sneezing up to about 15 times which is quite wearing. Then my skin started to start feeling really itchy all the time. I went to the doctor and he said that it should not be down to the levothyroxine and prescribed me some antihistamines to take to see if that settled the allergies. I am now getting a heat rash which seems to appear when I exert some energy. I am not talking about a great deal of energy though just a brisk walk or so and the rash starts on my chest and raises up past my ears. Today the rash was even on my legs and my fingers swelled so much that I had to quickly remove my jewellery. Has anyone else experienced this?
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For nearly a year now, I have battled with ongoing vaginal infections. I started running into these problems a couple weeks after I first became sexually active (which was a little over a year ago). My boyfriend and I are monogamous, and he is the only person I have slept with. However, I keep getting infections, and it doesn't matter whether or not we use a condom. I have gone to the gynecologist countless times, and for the longest period all my cultures proved negative for STD's and infections. Only twice has it turned up positive for a yeast infection. To get into the nit and gritty of things, I have had a thick, yellow discharge with a foul smelling odor (almost like vinegar) and both internal and external (itchy) irritation. It also hurts to have sex, almost like a stinging pain (sorry about all the gross details).
I have done everything to try to ease my symptoms. I have taken many antibiotics throughout the past year to treat my symptoms and nothing has helped, and even if something does help, my symptoms return fairly quickly. My partner and I have been abstaining from sex for over a month now, but medications still will not do the trick. I have switched out my soaps to all natural ones, with no fragrances. I haven't worn synthetic underwear or thongs for a month. I have also been taking probiotics for about two months. Lastly, I have attempted the "candida diet" with little success, because my low blood sugar levels led me to feel extremely faint, and I quickly needed to stop the diet.
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This is my first time ever posting(or for that matter even addressing) to board about my disease. I am embarrassed to admit that for the past 10 years i have been battling a ongoing Percocet addiction. I do not know how to go about seeking help or treatment for my addiction so i've decided to join the community as a prelude to some sort of help. I really look forward to some sort of support even if just words of encouragement. Again this is my first time ever even admitting to my problem, so please bare with but do bot hesitate to offer some advice if possible. Thank you very much for taking time out if your day to read this.
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After my mistake (HIV scare) I have all these symptoms heart wall pain, chest wall pain, radiating pain to the whole body, and headache, and cough and sputum. X-ray 6 times in 6 months and doctors can not see what is wrong with me. Do I have a virus going inside my body? A viral infection?
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I've had mild acne for a few years now but it never used to bother me as using dermalogica would clear up outbreaks. Since I started taking Levothyroxine and Carbimazole my spots just don't seem to go away. They're just small red bumps with no pus and it's driving me crazy.
It's killing my confidence. I have a noticeable goitre and now these constant spots on my face. Has anyone else had this problem with thyroid medication?
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I have just been diagnosed with Hypothyroidism & Diabetes have been prescribed with Levothyroxine 50mcg also Simvastatin 40 mg for Cholesterol
has anybody had experience with these 2 drugs as the doctor has not explained much at all ?
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how do I control hypothyroidism when I can't tolerate the meds?
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Anyone stopped taking this drug, I feel like I am being poisoned, I feel yuk constantly, I was fine before I started to take this drug, I had a blood test to do with menopause and it came back I had under active thyroid, I had no symptoms of uat at all! I would love to go back to how I originally felt, but I'm desperate to know if anyone has stopped taking this, I was on 150mg.
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I think I have come to the conclusion that my pills levothyroxine is causing me to break out everywhere like my shoulders and face here is why I think it was them I was sick for three weeks stopped taking my pills and guess what everywhere I cleared up
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I have been on levothyroxine for 19 years and have suffered with many of these side effects mentioned, high Bp, high cholesterol, palpitations, but never connected them with this drug until reading this website. Just in the last three months I have been suffering from terrible hot flashes night and day. My GP prescribed anxiety pills which are making me feel quite sick but have improved the flashes slightly. Has this happened to anyone else out there who are on this, or can anyone shed me some light?
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