Hyperparathyroidism - Nephrologist Or Endocrinologist

My husband as i look back on some of his Calcium levels the last 18-24 mo they are slightly above normal. He also had a kidney stone a few weeks ago. His Vitamin D level is low, and his PTH is low normal. He has been feeling really exhausted and wants to just sleep. His 24hr urine calcium is elevated.

Also his BUN and Creatinine levels have gone up rather rapidly and a little too much for comfort as far as i am concerned.

His creatinine in his blood has doubled from 1.1mg/dl to 2.4mg/dl

His BUN has gone from 25mg/dl in june to 41mg/dl when the test was taken the day he had the 2.4 creatinine .

He passed the stone and it showed on CT not to have been really large, but after about 2 weeks, his urine dipstick test for blood still says he has a large amount. I found site where there are doctors in Tampa, Fla that only do hyperparathyroid cases and surgeries.

The problem is that our family doctor knows little about this disease and the Tampa Docs say a lot of Endocrinologist don't really know a lot about it. So now an endocrinologist that has not seen my husband yet is telling us to see a nephrologist.

I think that he needs at least 3 PTH results to at least see where he is falling in the range. Naturally nobody moves very fast on this kind of thing, Doctors just don't want to talk to you, as if you can't understand the tests...well i can and can carry on a conversation about it, but i think because of their lack of really knowing a lot about this disease, its easier to avoid me and to send to this doctor and that. I don't want a bunch of different viewpoints i want the doctors to come together and at least discuss what the other has to say about his case. I am trying to save him as much "wild goose chase" as possible. Any advice on what I should do, ask or insist on from the doctors, while my husband is probably getting worse.