Hepatitis C :: Unsuccessful Treatment? Feedback Reviews?
Feb 13, 2016
I am currently on Harvoni for my Hep C and I wanted to ask has anyone had the virus return or a unsuccessful treatment?
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Feb 13, 2016
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Hepatitis C :: Harvoni Feedback / Reviews? 12 Week Treatment Plan
I just received my first shipment of harvoni in the mail. My dr is starting me on a 12 week treatment plan. I was excited to hear about this new medicine that has little side effects and a high cure rate. But now that I actually have the medicine in my hands, I'm extremely nervous. If there is anyone out there that has tried harvoni can you please share your experience?
View 3 RepliesHepatitis C :: Harvoni Results Feedback - Reviews?
I havn't been on here for awhile and I wanted to know how the folks who have finished Harvoni are doing.I have 1 more week of my 6 month treatment of Harvoni and being a former relapser with sovaldi-olysio I wanted to hear from the hard to heal non responders who are 1A like myself.Are you folks staying negative?I feel like I am going to be losing my best friend next week cause another relapse is always in the back of my mind.
View 13 RepliesHip Replacement :: Experiences / Feedback / Reviews - Anyone?
I am on the waiting list for a new hip and I am a bit worried that I won't be able to do normal young person activities with my new hip. I am 37 years old and have been doing Zumba for years now and I really want to go back to it at some point. I also live in a flat so have stairs to deal with everyday.Will this be a problem?
I would really like to talk to some people of a similar age who have had the op and hear about their experiences of having a hip replacement.
Uterine Fibroids :: Myomectomy - Any Reviews / Feedback?
I have (5-6) small multi cervical fibroids and one approx 7cm pedunculated, in consultation with a very supportive medical practitioner I have decided to have, well it is my only option now because of the size of one the pedunculated one, a myomectomy. I feel ok about the decision as my periods are getting increasingly heavier and I know have constant lower back pain, which may be related to the fibroids. I need to have 4 injections every 4 weeks to try and shrink the fibroids to a more manageable size, however, this will bring on menopausal type symptoms. I have been given a prescription for Livial, which I am loathe to take. Has anyone had this procedure recently or within the past few years? I am concerned and a bit worried, to say the least, about having the procedure as most of the testimonials I have read appear to be generally dissatisfied, as the side effects were severe.
View 6 RepliesMechanical Aortic Valve Job - Reviews / Feedback?
I'm scheduled to get one of these , a mechanical one in about five weeks time , and seeing I know little about this surgery and the after effects, I'm trying to find out as much as I can through the internet.
View 2 RepliesLaminectomy And Synovial Cyst - Reviews Or Feedback?
In January 2013 I started having left leg pains and started taking ibuprofens or store brand pain killers. Over the last 3 months the pain has become chronic, numbness in my big toe and foot, tingling, and pain in my buttock. This is only happening in my left leg. To make a LONG story short. The MRI showed a cyst pressing against my spine causing the pain. Initially my chiropractor thought is was a disc issue causing my sciatic nerve issues. My neurologist suggested a laminectomy Surgery however his concern was if I need fusion. I had an x-ray done that indicated there is some slipping. The neurologist gave me his best guestimation of how long that area of my back would last without the fusion. If he could have given me a high % that the fusion is necessary I would be at peace with it. Decisions, decisions. I was told the recovery is about 4 -6 weeks and longer with the fusion Do you have any knowledge on either procedure?
View 14 RepliesHiatus Hernia Surgery Feedback / Reviews ?
I'm due to go in for surgery on Wednesday and a bit terrified as I always feel like I am choking when I eat food and the only way I can cope is by getting sick....not being able to do this after surgery has me freaked out bit time. Just hoping that the positives of having this done will take away the feeling of having food lodged in my throat and I can have a normal life. I've had this condition since I was 16 and I'm 39 now. Hopefully I will get better after this. Anyone going through this too or have gone through this and come out the other side? Could use some positive vibes right now.
View 60 RepliesUterine Fibroids Embolization - Reviews, Experiences, Feedback?
I'm a 30-year old woman with three medium-large uterine fibroids. At the time of my last ultrasound (July 2013), my uterus was at the size of about 14 weeks. I have another ultrasound coming up at the end of this month but, given how much I can now see/feel my fibroids when lying on my back, I suspect that they've grown.
I'm weighing my different treatment options, and I'm currently leaning toward uterine artery embolization. Has anyone out there undergone this treatment? What was your experience with it?
Pregnancy :: Breastfeeding Pros And Cons / Reviews / Feedback ?
Being a first time mom, I'm trying to get all of the input I can. Every post I see on here about breastfeeding is positive. With everything, there are always 2 sides. My question is, who planned on breastfeeding but didn't continue and why? Is there anyone who is unsure or doesn't plan on breastfeeding? Please don't give abrasive responses about how breastfeeding is the only way. I just want to see this aspect from all, unbiased points of view.
View 38 RepliesBowel Disorder :: Laser Hemorrhoid Surgery? Feedback, Reviews?
A few weeks ago, I saw a specialist who does laser surgery and infrared coagulation for hemorrhoids. He took a look at my backside, and recommended that I get laser surgery. So I scheduled it, and got 4 days off from work approved by my boss for the surgery and recovery.
But now that the surgery date is drawing near, (this coming Tuesday) my hemorrhoids don't feel as swollen or painful as they did when I first scheduled the appointment with the doctor. A month earlier, my hemorrhoids were KILLING me. But now my bowel movements are pretty much pain-free. I looked at my backside using a mirror, and it doesn't look as bad back there as it had a month ago.
So now I'm thinking: Should I still go through with this scheduled surgery? I'll be paying a lot out of pocket for it because I have a pretty high deductible on my insurance. Is it worth it to go ahead and get the procedure done anyway to prevent them from flaring up again? The doctor told me in our initial appointment that once you get the laser procedure done, your hemorrhoids won't come back. Anyone else who's had it done find that to be true?
Large Prostate - TURP Surgery? Feedback / Reviews - Penile Implant
I'm 48 and would like feedback on the TURP surgery...
I've had issues with my prostate over the past 2 years. Last October it was 3.9 cm x 4.9 cm. An now its measured at 5.9 cm x 5.7 cm during the past year I've noticed I was getting 5-8 times a night and during the having to rush to the restroom with no time spare, in the past 4 months I've had to force my urine out. Called doc he ordered urodynamics test, it showed that my bladder has no reaction when I'm full of urine. Doc said MY prostate is so large it's shutting off my urethra tube. So he said I need the TURP surgery. .
I'm so unsure about this because I've had penile implant surgery this past Jan. and if I have the TURP I'll lose my ejaculation...
I also would like to know how to do all with not being able to cum?
Hepatitis C: Post Treatment :: Sofosbuvir+Daclatasvir Treatment Relapse
I'm looking for advice. My 60 year old father (who has had HCV for more than 10 years; previously treated with Interferon but bad side effects) finished his 12 week Sofosbuvir+Daclatasvir (considered same as Harvoni) treatment a month ago. Already first tests after 2 weeks showed virus was Undetected, but yesterday he received his most recent results and he has a relapse of the virus. He is genotype 1, fibroscan result 4 (close to final stage). He is based in Poland and I'm not sure if our doctors are fully informed of the new generation medications and HCV itself.
Is anyone able to give us any advice? We are pretty desperate and my dad is just so depressed as he thought he finally got rid of the virus (he got infected while on an operation in a public hospital) and now it is back...
Are there any specialists that you are aware of I could possibly get in contact with?
Hepatitis C Post Treatment :: Relapse After Harvoni Treatment?
Does anyone here relapse after harvoni treatment?
View 3 RepliesEsmya Tablets Fibroid Treatment - Reviews? Advice?
I'm 44 and have recently been diagnosed with a 11cm Fibroid, my Gyno has put me on Esmya to try and shrink the fibroid, I just wondered if anyone could me advice or their review as its fairly new treatment and can't find anyone who has tried it.
View 18 RepliesHepatitis B :: Viread Treatment
I have been diagnosed with Hep B. I was admitted to hospital with exceptional readings (ALT >4,000, bilirubin 180, all pho 162, gamma get 417, AST >2,500). I've been given various drips and the numbers are coming down. ALT has now halved. In addition to the drips I was also put on Viread.
My physician was concerned how my immune system was attacking the liver and between all treatments, in three days the readings are coming down. My jaundice is going and my urine now looking paler (almost normal).
Given the symptoms indicate a severe acute response to infection, does this suggest my body will put up a good fight to rid itself of the virus. Also, is there a risk Viread could actually lead to my body not developing the antibodies? I've read the following study, which suggests Viread can be highly effective in treating severe acute Hep B and also assist (or at least not inhibit) the development of antibodies.
Hepatitis C Post Treatment :: CRP (c-reactive Protein)
My sister in law, a very good doctor who has always given me sensible advice when I have asked, suggested I get my CRP checked. CRP is apparently a marker for inflammation in the body, although lupus and rheumatoid arthritis do not always trigger it.
I know I sound like a broken record, but I really think a lot of post-interferon syndrome can be explained by body-wide inflammation - chronic fatigue arises from an inflamed brain; psoriasis is inflamed skin; arthritis is inflamed joints; fibromyalgia is inflamed muscle tissue; vasculitis is inflamed blood vessels, etc.
Our immune systems were amped up by the drugs, and they never settled down again quite right. The drugs induce autoimmune disorders that can effect every system of our body.
If I eat bagels and cream cheese (I love bagels and cream cheese) for two or three days in a row, and throw in a pizza, all my inflammatory symptoms get worse, including depression and fatigue. My ankles swell. My psoriasis gets worse. My joints start aching worse. My fingers start trembling and twitching spastically. I had nothing like this before treatment.
So anyway, if anyone cares to follow this theory, it means eating a non-inflammatory diet - no pizza, no fast food, skip the sugar, read In Defense of Food. The more you want to live, the better you will eat. If anyone cares to follow this theory and is having their blood drawn anyway, be sure and get CRP checked. My sis-in-law says it's very inexpensive test. I'd love to hear of any correlation or thoughts on this subject.
Hepatitis C :: Relapse After Daclatasvir And Sofosbuvir Treatment
I have just found out that my father who has finished his 12 weeks treatment (Sofosbuvir + Daclatasvir) about a month ago has had the virus relapse. It was undetectable in all previous tests, but the recent test showed it. I was wondering if anyone can point me to the right sources, perhaps specialists and experts we could contact as in Poland (where we live) there doesn't seem to be enough information. We are not sure what to do next... He has had this horrible virus for more than 10 years, we were so happy to have cured it! But refuse to lose hope and want to keep fighting!
View 4 RepliesHepatitis B :: Hep B DNA Flare Up During Tenofovir Treatment/viread
When I first began treatment with pegasys in january 2014, GGT was 60 (normal max is 35), ASAT 51 (normal max 35), ALAT 76 (normal 10-40), LDH/Bili/CK all within normal range. With pegasys, a few months later down the line, the values continued to go higher. At their highest, GGT 223, ASAT 116, ALAT 156, LDH 274, Bili/CK remained within normal range.
At the beginning of the treatment, Hep B ie/ml was 2400. Four months later, it became 2600. When I was shifted to tenofovir/Viread three or months after beginning treatment since pegasys wasn't solving the issue, the ASAT, ALAT, LDH came back down to normal levels quite fast. So I have been on viread ever since.
10 months after beginning treatment, Hep B ie/ml was down to 1800. In 2015, it was less than 150. Hep B Dna was undetected by May 2015. I get regular blood tests every three months since the start of the treatment.
Yesterday's blood test showed: ASAT 36 (normal max 35), ALAT 38 (normal 40, but having checked past blood tests, it seems in the last few months it has been gaining one or two points steadily so this is worrying me), LDH and Bili are normal. The bad news: Heb B DNA detected...and IE/ml was a whopping 3400!!!! More than when I started started treatment!
The first thing I was asked was whether I missed a dose of viread. Answer is no. However, I have had incidents where I did forget to take it on time, but it has never exceeded 5 hours (still, I know, it's a huge gap). Not a lot of times, but I find that I am beating myself over this now, as it may be the reason I am having a viral overload and maybe made the virus resistant to viread.
Since taking viread, I have experienced and continue to experience extreme muscle pain (I ended up in the hospital once when diclofenac failed me and I needed an extra morphine shot to get relief). I am continuously tired, some days it is a real struggle to move (feels like going through mud - heavy body, wanting to simply just crash on the floor). I have not had a pain free day in the last two years and worse, kidney stones! I am already prone to them, but I can't get over the suspicion that Viread has ensured I have a stone that needs to be taken out each year.
I've read that viread is one of the best treatment there is (hardly any side effects, probability of virus resistance low) so my latest blood test is worrying me no end. I am not due for another DNA test until 6 months later. I've also read that ASAT and ALAT values can increase and it's not necessarily liver related (I think my ongoing and increasing muscle pain is reflecting higher ASAT and ALAT values but who knows?!?).
My doctor says that as long as those values remain within normal range and not in the hundreds, it should be ok. But there is this unspoken thought that I am in deep trouble if the DNA continues to manifest and my liver enzyme values continue to increase. My liver scan in 2014 has me a point JUST before entering cirrhosis stage. I can't help but think I may have actually crossed that line already (the cassandra in me speaking) though I am assured that viread treatment tends to pull back the damage.
My question..Has anyone ever experienced a viral increase during the viread treatment, and if so, was it temporary, or was viread stopped? I am not sure how to read/interpret this ie/ml, but the fact that it has increased can't be good news at all.
Hepatitis C :: Harvoni - SVR And Side Effects During Or After Treatment?
I'm finishing up my last two weeks of treatment on Harvoni and wanted to know some feedback from people about there current health situation such as achievements of SVR,and side effects during or after treatment?
View 6 RepliesHepatitis C :: How Long Sovaldi / Riba For Complete Treatment?
Its been Since Tuesday PM since I finished my 12 weeks and I still feel like I am on it.
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