Hepatitis C :: Harvoni Results Feedback - Reviews?
Jun 26, 2015
I havn't been on here for awhile and I wanted to know how the folks who have finished Harvoni are doing.I have 1 more week of my 6 month treatment of Harvoni and being a former relapser with sovaldi-olysio I wanted to hear from the hard to heal non responders who are 1A like myself.Are you folks staying negative?I feel like I am going to be losing my best friend next week cause another relapse is always in the back of my mind.
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I just received my first shipment of harvoni in the mail. My dr is starting me on a 12 week treatment plan. I was excited to hear about this new medicine that has little side effects and a high cure rate. But now that I actually have the medicine in my hands, I'm extremely nervous. If there is anyone out there that has tried harvoni can you please share your experience?
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I am currently on Harvoni for my Hep C and I wanted to ask has anyone had the virus return or a unsuccessful treatment?
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Started 24 week treatment with Harvoni 1/20/15 Genotype 1-a Stage 4 Cirrhosis with Compensated liver
Ast 123 then, 45 now
Alt 165 then, 165 now
Viral load then: 2,600,000 now less than 15
Hep C still detected but I thought this was great for the 1st 4 week prognosis since I am on pill for 24 weeks.
How is everyone else doing?
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I am on the waiting list for a new hip and I am a bit worried that I won't be able to do normal young person activities with my new hip. I am 37 years old and have been doing Zumba for years now and I really want to go back to it at some point. I also live in a flat so have stairs to deal with everyday.Will this be a problem?
I would really like to talk to some people of a similar age who have had the op and hear about their experiences of having a hip replacement.
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I have (5-6) small multi cervical fibroids and one approx 7cm pedunculated, in consultation with a very supportive medical practitioner I have decided to have, well it is my only option now because of the size of one the pedunculated one, a myomectomy. I feel ok about the decision as my periods are getting increasingly heavier and I know have constant lower back pain, which may be related to the fibroids. I need to have 4 injections every 4 weeks to try and shrink the fibroids to a more manageable size, however, this will bring on menopausal type symptoms. I have been given a prescription for Livial, which I am loathe to take. Has anyone had this procedure recently or within the past few years? I am concerned and a bit worried, to say the least, about having the procedure as most of the testimonials I have read appear to be generally dissatisfied, as the side effects were severe.
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I'm scheduled to get one of these , a mechanical one in about five weeks time , and seeing I know little about this surgery and the after effects, I'm trying to find out as much as I can through the internet.
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In January 2013 I started having left leg pains and started taking ibuprofens or store brand pain killers. Over the last 3 months the pain has become chronic, numbness in my big toe and foot, tingling, and pain in my buttock. This is only happening in my left leg. To make a LONG story short. The MRI showed a cyst pressing against my spine causing the pain. Initially my chiropractor thought is was a disc issue causing my sciatic nerve issues. My neurologist suggested a laminectomy Surgery however his concern was if I need fusion. I had an x-ray done that indicated there is some slipping. The neurologist gave me his best guestimation of how long that area of my back would last without the fusion. If he could have given me a high % that the fusion is necessary I would be at peace with it. Decisions, decisions. I was told the recovery is about 4 -6 weeks and longer with the fusion Do you have any knowledge on either procedure?
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I'm due to go in for surgery on Wednesday and a bit terrified as I always feel like I am choking when I eat food and the only way I can cope is by getting sick....not being able to do this after surgery has me freaked out bit time. Just hoping that the positives of having this done will take away the feeling of having food lodged in my throat and I can have a normal life. I've had this condition since I was 16 and I'm 39 now. Hopefully I will get better after this. Anyone going through this too or have gone through this and come out the other side? Could use some positive vibes right now.
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I'm a 30-year old woman with three medium-large uterine fibroids. At the time of my last ultrasound (July 2013), my uterus was at the size of about 14 weeks. I have another ultrasound coming up at the end of this month but, given how much I can now see/feel my fibroids when lying on my back, I suspect that they've grown.
I'm weighing my different treatment options, and I'm currently leaning toward uterine artery embolization. Has anyone out there undergone this treatment? What was your experience with it?
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Being a first time mom, I'm trying to get all of the input I can. Every post I see on here about breastfeeding is positive. With everything, there are always 2 sides. My question is, who planned on breastfeeding but didn't continue and why? Is there anyone who is unsure or doesn't plan on breastfeeding? Please don't give abrasive responses about how breastfeeding is the only way. I just want to see this aspect from all, unbiased points of view.
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A few weeks ago, I saw a specialist who does laser surgery and infrared coagulation for hemorrhoids. He took a look at my backside, and recommended that I get laser surgery. So I scheduled it, and got 4 days off from work approved by my boss for the surgery and recovery.
But now that the surgery date is drawing near, (this coming Tuesday) my hemorrhoids don't feel as swollen or painful as they did when I first scheduled the appointment with the doctor. A month earlier, my hemorrhoids were KILLING me. But now my bowel movements are pretty much pain-free. I looked at my backside using a mirror, and it doesn't look as bad back there as it had a month ago.
So now I'm thinking: Should I still go through with this scheduled surgery? I'll be paying a lot out of pocket for it because I have a pretty high deductible on my insurance. Is it worth it to go ahead and get the procedure done anyway to prevent them from flaring up again? The doctor told me in our initial appointment that once you get the laser procedure done, your hemorrhoids won't come back. Anyone else who's had it done find that to be true?
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I'm 48 and would like feedback on the TURP surgery...
I've had issues with my prostate over the past 2 years. Last October it was 3.9 cm x 4.9 cm. An now its measured at 5.9 cm x 5.7 cm during the past year I've noticed I was getting 5-8 times a night and during the having to rush to the restroom with no time spare, in the past 4 months I've had to force my urine out. Called doc he ordered urodynamics test, it showed that my bladder has no reaction when I'm full of urine. Doc said MY prostate is so large it's shutting off my urethra tube. So he said I need the TURP surgery. .
I'm so unsure about this because I've had penile implant surgery this past Jan. and if I have the TURP I'll lose my ejaculation...
I also would like to know how to do all with not being able to cum?
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I'm on day 6 with Harvoni and still a long way to go, was wondering on how some of you are doing on the same treatment .
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I don't post a lot on here but wanted to share with everyone the miracles that exist now for treating Hep C. I saw my doctor on Friday and she let me know that my 12 week post treatment labs after 24 weeks of Harvoni came back with a negative viral load and that I am now cured (12 Week SVR). This was my 3rd treatment and thanks to God, it worked. There is hope for all of us. I have had Hep C for 30+ years and am a Genotype 1A, with a Fibrosis level of 3+. As a 3+, I still have an increased risk for HCC, so I will continue to get lab work done every 6 months, ultrasounds every 6 months and a CT scan every 18 months. I encourage everyone to keep on treatment - we are at a place where so many of us now have a chance for a cure!
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I was wondering what people are eating, if anything, when they are taking their Harvoni? I know that it is prescribed with or without food but I saw a comment on another forum that said that Harvoni works better in an acidic environment. However, I have not come across that information anywhere else. Just wondering as I want to make sure that I am doing all that I can so that treatment works this time after failing 3 times.
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I have chronic pancreatitis and they put me on carafate and I have hep c since 2000, cirrhosis since 2007, no prior hep c treatment was wondering about Harvoni and carafate?
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Will Medicare cover for me? I can't afford the regular super high cost. Any programs for discounts here in the SF Bay Area?
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I have been written a prescription for Harvoni or generic. I've found generic at Gandhi Medicos for $1140 US.
I am in US and I'm wondering if anyone has any dealings with this Co. also.
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Has anyone heard of a new drug in the works from Gilead, which is supposed to cure hep c in geno 1a patients with cirrhosis, having pre-treatment and null responders.
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I'd like to relate our experience with Hep C treatment. My husband got Hep C back before it even had a letter, in the 1970s, and he is now 62. He has never been much of a drinker, which is very fortunate. He has always had a ridiculous amount of energy, and an active occupation. He kept an eye on his liver (don't take that literally!), and the diagnosis never much affected him. But after a divorce about 10 years ago, he began to consume more alcohol than before, and his liver enzymes crept up, and his biopsy in 2009 said he had Stage 4 cirrhosis. Yet function was still fine, and still he did not feel affected by the disease. The doc said, the numbers say it's time for interferon.
The side effects and prognosis for cure were not encouraging, and I contacted naturopaths I know to get a recommendation for someone for him to see. They recommended a doctor at John Bastyr Naturopathic College in WA State, and we went to see her. She specializes in traditional Chinese medicine for cancer, HIV and liver diseases. She prescribed an herbal combination, and some other supplements. And ZERO alcohol. She was the first doctor who actually said NONE. Other doctors would pussyfoot around and say, don't drink a lot, but no one said, don't have any at all. Not even one beer on Friday. Not drinking was not a problem for him, as he had already mostly stopped having any once he got the Stage 4 pronouncement.
The treatment regimen she started him on made him feel worse, so he went back, and she put him on a different formula, something called Livercel, made by Nutricology. It contains a proprietary blend of Patrinia extract, Phellodendron amurense extract, Yi-Chen wormwood extract and Schisandra extract. He also was taking milk thistle and a few other things. This herbal combo reversed the numbers, brought his liver function (alt and ast) down to high normal, whereas they had been going way up.
He kept to this regimen and was going along fine, back to not feeling impacted by the virus, though of course he knew it was still there. However, at his checkup last June, his numbers were starting to go up again, and now that there was a real cure available, his naturopath said, ok, now the new drugs have been proven effective and have minimal side effects, so time to give that a try, if you can afford it. Which of course, hardly anybody can. So then we started on that journey.
Meanwhile, what my husband hadn't mentioned to me was that because he was feeling so unaffected by the disease, he had started being not so diligent about taking the Livercel. Taking it once a day instead of twice, or skipping a day, etc. Once he got the higher numbers in June, he started taking them religiously, never skipping. And you know what? HIS NUMBERS WENT DOWN AGAIN. The RNA quantitation was 15,774,971 in June, and on the 11th January, it had gone down to 6,646,637. Down about 60%. This shows to me that the Livercel was having effect. So look into that while you are waiting for the new medicines to be available at a reasonable price.
Meanwhile, although his allopathic doctor's request for Harvoni was initially denied by the health care insurance company, they approved it when she resubmitted it. And they signed him up for the Harvoni's patient co-pay subsidy. He has been on it for a week, and so far no side effects at all. I asked him if he felt anything at all yet, and he said, "I think they must have given me the placebo.
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