My Daughter who is 9 has just been told she has hsp, although at the moment she seems ok apart from very bad rashes all over her body and just started a cold.
Is this likely to get worse ? or is there a very mild type of hsp she may have ?
After reading other peoples experience's we are very concerned for the future.
I had two bouts of HSP when I was a child. The first lasted a couple of weeks when I was about five. The next bout lasted for 4 years - from the age of 6-10 years old.
I've never felt truly 'well' and have now been diagnosed with Chronic Fatigue Syndrome/ME and hypersomnia (it means I want to sleep at the time) I was wondering if this could be an aftermath of the HSP?
The rash has gone and so has the swollen and tender joints. Urine samples come back as normal now (not +4 protein and blood in it like when I had HSP.) unless I have a UTI.
But I still have the same abdominal pain and tender joints (without the swelling) and muscles. I feel constantly fatigued and can't seem to put weight on. My immune system is weak and I seem to catch every bug going around.
Five days ago we rushed our four year old son to A&E where we were told he had HSP. the hospital were wonderful made our son comfortable on the ward and we got settled for the night at his bedside. we now have a nurse coming once a week to check on him and i have to check his wee in a morning ( which has been clear so far).
I was under the impression he was getting better so i let him go to school and since he came home his ankles have swollen up like balloons though he says there not painful.
i don't know now if i should allow him to return to school or maybe if he could go half day. he loves school and i know he wouldn't get any rest at home as he has a two year old sister. I am really unsure of how to treat this disease as you never seem to know what the next hour is going to bring let alone the next day.
we are praying that this does not spread to his kidneys and stomach as it hasn't done yet.
My fourteen year old son was diagnosed with HSP about eight month ago about the same time he started wearing braces for his teeth, recommended by our dentist. Initially he had stomach pain, swollen ankles, etc. In and out hospital emergency rooms five or six times. Eight month later, rashes are still here. Doctors could not help, no cure. As parents we suspect it is something to do with his braces. We will visit our orthodontist tomorrow to seek his point of view. Does anyone have same experience with braces?
View 2 RepliesMy 15 year old daughter about 4 weeks ago came out in an alarming blood rash under her skin on her legs and arms. She had a little blood in her urine but otherwise blood tests were fine. Doc thinks it HSP following a sore throat although this was only mild. On reading the symptoms of HSP most don't apply to her. She's had no sore/swollen joints. The rash seems to clear a little then come back worse again. My question is does anyone know about or experienced a rash like this whilst wearing tooth braces. She's had them for almost a year now. I am allergic to nickel and I've read that nickel is used in Orthodontics often coated so this can wear off over time, which could explain while the condition has only surfaced now. She is close to having them removed so am hoping it may resolve itself as she is very distressed with it.
View 1 RepliesI'm a 37 year old man who was diagnosed with HSP in 2007. My symptom was the rash which appeared all over my legs and buttocks. The rash went away but left me with stage 3/4 kidney disease. I feel very scared this will lead to total kidney failure. My recent results doesn't look good with my creatine being 216. This has ruled my life and I'm so upset this could happen to me. The doctors don't know anything. All they have done is put me on 10mg of Ramipril and basically hope for the best. I'm getting married in July to my beautiful fiancé who I love so much but I seem to focus more on this disease and what might happen to me in the near future than her. I'm going to try an alternative way to help my condition. Systematic ideology (excuse the spelling) This focuses on strict diet control, with taking 100 percentage herbal ingredients. The therapy focuses on targeting muscle groups and emotional part of the body. Has anyone else tried this? Would love to hear from anyone in the same boat as me and is there anyone out there that has been in the same situation and continued in stage 3 for a very long time.
View 3 RepliesMy 6 year old has HSP, she seem's well considering, but the rash and swelling is unreal and looks terrible, I wanna help somehow but other than pain killer's for swelling I have no idea what else I can do
View 3 RepliesHas anyone ever used medical cannabis to help treat HSP in children? My 13 year old nephew was diagnosed with a severe case of HSP and was recently released from a week stay at two different Hospitals in Arizona. They have him on two different blood pressure medications (the Hsp caused him to have very high blood pressure) and told him he could take tylenol for the pain along with weekly urine tests and monitoring his blood pressure daily. However, since he's been home from the hospital (3 days now) he can't eat, the pain in his joints, muscles, and stomach has yet to diminish, and his rash has flared up again (ankles, thighs, back). He has zero appetite and a lot of pain and discomfort. I'm curious to seek out treatment that involves using medical marijuana with less THC and more CBD, which i've been told is safe to give children (less of a high but helps relieve pain and nausea) and help get his appetite back. I know medical marijuana is super controversial, especially with children, but it seems steroids and pain medication from doctors has a long list of side effects and other problems.
If anyone has ever tried medical marijuana to treat HSP, please let me know. No doctor will ever talk about or advise us when it comes to outside remedies.......but i'm thinking outside the box, we need to get his appetite back and help lessen his pain.
This might be Anxiety, but I am wondering if nude body to body massage with the masseuse vagina rubbing on my penis outside (no penetration/intercourse) but defo fluid exchange, no condom and she put her finger in my anus, would that be a risk of HIV?
I have been to the same masseuses and I have done test and they all negative after but the last time I went for the massage is after my last negative test so I am just being very worry?
I am 31 years old and had a vaginal sex with a girl of unknown HIV status using two condoms at a time. It was my first sexual encounter. I ejaculated twice and both times I used double condoms as I changed after first ejaculation. Both times the condoms seemed to be intact and I could see my semen inside the condom. It's almost over 28 days now and since the past couple of days I have developed almost all symptoms like pain in the back (I have a history of L3 compression and pelvic hairline fracture in 2007), cough with something in throat, body ache, night sweats, hot flashes throughout the body, had stiffness and pain in the back of neck, not visible swollen lymph nodes , had two time kind of diarrhea today.
Since the day after this exposure I was panic stricken with stress and anxiety and cannot sleep at all with insomnia like features and wake up at 2 or 3 or 4 am in the morning due to all sorts of weird thoughts.
I know this question may have been asked before but I'm really stressed out and i need some reassurance. Yesterday I had an erotic massage that involved body to body. She applied some oil to her body and mine and sat in my lap with sine grinding for a minute or so. Her vagina touched my lower shaft and scrotum and it only lasted about a minute or so but there was no penetration. She was 35 and seemed healthy without any visible herpes symptoms. I know there is a risk of contracting herpes in this fashion but how high is this risk? I am terrified and not sure what to do.
View 3 RepliesI have noticed that my son has rash on his palms and foots. It has happen in two days. First, the red spots have appeared. At first they were flat and then some of them became raised and others have developed into blisters. I must admit that I have never heard of a rash that is appearing on the palms. How is it possible?
View 2 RepliesLike many others here, I am in rather deep despair. Although I have a girlfriend, I went to a body-to-body massage parlour. The masseuse rubbed her body over my body, using also her vagina (along my legs, etc.). I fingered her, mostly on the outside, but also briefly on the inside. Although our genitals did not touch (except perhaps incidentally very very briefly), I am very concerned about STDs. What are the risks? How long should I wait before having sex with my girlfriend? There was no oral, no visible sores, often a few seconds of digital penetration, but she certainly touched my penis after having been in contact with my finger that was inside of her (not immediately).
I would be very grateful for any advice/words from experience with this sort of thing. Has anyone here received an STD in this way?
I never had any rashes or blisters, but I have had stinging, very tiny feelings that feel like an itch under my skin lately across my back in the middle and waistline. I had the brush burn feeling on my shoulder and under my left arm with jabbing pain in my left breast. But that is pretty much gone. I had taken Acyclovir for 10 days early on, so are the Shingles moving around under my skin in other places?
View 2 RepliesMy younger sister, aged 13, is suffering from what possibly looks like Chicken Pox. She has had rashes and blisters for about 3-4 days now. The rashes are prominently on the face, some of them are on the arms, torso, and waist area. She also has fever, bodyache, and physical weakness. I have not consulted a doctor yet due to certain religious beliefs of my family, related to this disease. Is it Chicken Pox or something else?
View 1 Repliesits a rash that's just really annoying. and sometimes it gets so much and when i scratch one area, all other areas begin to itch... and it gets really painful.. im definitely sure its not std bcos i've never had sex.
View 1 Replieswhen i masturbate... after few hours....my skin top .....white rashes or some white spot
View 1 RepliesI noticed this few days ago and started applying Lamisil, assuming its a a fungal infection, it has been 3 days but no change in the infected area. It's not painful and occasionally itchy but not too bad. I shower regularly and never had this issue before. I am married and have only 1 sex partner, my wife had fungal infection as well after our last intercourse. Does Lamisil work for this kind of fungal infection or do i need to go to the doctor or wait few more days to see impact of Lamisil?
View 1 RepliesI had Gout on an ankle in the summer of 2008, and was given Naproxen, and antibiotics. The Gout cleared up, I think, but both ankles and lower legs, have itchy rashes, and skin discoloration. It seems to be spreading up the legs. I have seen my Doctor, but have to wait three months for a specialist appointment. Has anyone else, encountered these circumstances?
View 1 RepliesHow i can clear hair on body forever without laser and such kind things.
View 5 RepliesI've had these small pimples affect me for several months now. I suspect something std related, but currently my doctor has ordered a blood sugar test so I'm awaiting those results.
They are small pimples, they appear in one area and disappear after a day or 2 and appear in another area sometime. I get few other spots that a bit tougher and bigger, but not often. They can be itchy and also itchy even when there are no pimples, mostly in the thighs. I have had the pimples mostly on the thighs, but also legs, lips, and recently I've discovered some on my face, arm, testicles and the foreskin of the penis.
Like I said I suspect std, most likely herpes. Herpes I know is a common and untreatable condition,but these pimple(at least on the legs) are continuous and does not herpes happen a couple of times a year?
I've been to a sexual health clinic several times and when they look at them shrug like it's not something they deal with or not recognise and therefore they do nothing. This clinic doesn't test for herpes as procedure, but I did manage a swab test on a pimple on my lip which was negative(however it was a burst pimple i.e. not a good sample). People that look also seem to not think it looks like herpes.
Basically what I'm doing is exhausting all possibilities because I don't want continuous pimples on my body. I can deal with it if I'm going to have outbreaks just not one big one.