Hemochromatosis :: Stuck With A Low Iron Diet


Oct 26, 2015

has anyone stuck with a low iron diet.  Have you found the results to be beneficial.  I will do anything to avoid more blood draws!

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Hemochromatosis :: Anemia And Iron Overload At The Same Time

anemia and iron overload at the same time.

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Juvenile Hemochromatosis :: One Of The Genes - Iron Overload

My 11 year old daughter has recently been diagnosed with juvenile hemochromatosis. We have been waiting on her gene test for quite a few months due to the most common tests not showing anything, we have now been told she is carrying one of the genes for this disease but it wouldn't be the only reason she has iron overload. Has anyone else been in this position or know of any other reason other than hemochromatosis that could cause iron overload?. We are not due to see the doctor until October to go over her results in detail and she is referring her case to two professors in Cambridge as yet again we seem to have hit a brick wall.

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Blood Vessel :: Exjade For Iron Hemochromatosis

I have not long found out that I have hemochromatosis (iron overload) as well as hepatitis C (very stable with normal LFT). My venesection attempts were unsuccessful due to small veins, so I was put on Rx Exjade 14 days ago to chelate the excess iron. It gives me liver and kidney pains - its side effects involve liver and kidney issues and possible failure of. I have just got the results of my liver function and was very surprised had all my liver enzymes have risen significantly in such a short time. I have ceased taking Exjade as of today. Is there any other less invasive chelate?

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Hemochromatosis :: Blood Work - Hemoglobin Low But Iron Is High?

I am 53 and have 600 ferritin 71% iron saturation. I have done phlebotomy 2 weeks in a row. hemoglobin is now 132 . Therefore I could not give blood. Why is my Hemoglobin low when my iron is high. By the way my ferritin dropped to 475

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Hemochromatosis :: EDTA Chelation - Reduces My Iron, Ferritin And Transferrin Saturation

I was diagnosed with Hemochromatosis over 1 years and undertook regular blood lettings until my ferritin dropped from 700 ish to 35. 

The reason I knew something was up was because I was tired, stressed and my emotions were just not what the use to be. I also felt as if I was in a constant brain fog. 

However, even know with my reduced levels I don't feel great. I have undertaken some EDTA Chelation and feel great when this is done, having checked my bloods before and after - this reduces my iron, ferritin and Transferrin Saturation. 

Is there a way to reduce TS to normal or near normal levels.

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Diabetes :: Diet Ginger Beer And Diet Coke

Do either of these raise blood sugar, diet coke and diet ginger beer sometimes I like a rum with the diet ginger beer (no alcohol in the ginger beer)

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Throat :: Fingernail Stuck

so i usually bite my fingernails, but this time i was laying in bed and i tried to swallow it but it wouldn't go down. i took some water and i felt a little better. i went to sleep and i woke up and had breakfast. it then came back in the afternoon. i asked my parents about it and they said it would probably go away, but i've been feeling it 4 almost a week. a few days ago it was in my throat and then it went away but then i had a similar feeling in my ear. im worried that maybe its traveling thru my body but im not sur. it might be just growing pains. its now come back.ive had a little shortness of breath but i naturally get that(acid reflux). 1 time it came up a little so  i stuck my finger down my throat and i felt it a little, but it felt like it was actually stuck in my throat. like i didn't feel all of it. i tried talking 2 my parents but they told me to stop worrying, but i feel really weird about it, so i thought this is my best option.

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One Testicle Stuck Immobile In Groin

17 year old son has one testicle stuck immobile in groin on side he had inguinal hernia repair surgery at age 3...will this increase risk of testicular cancer? He's been checked & testicle is normal size & feels healthy...it's likely sat in his groin most of his life...We've been told another surgery would most likely result in loss of testicle.

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ENT :: Cotton Balls Stuck In Inner Ears

My inner-ears have felt like there is cotton balls stuck in there. When I talk it sounds as if I'm in a tunnel another's sounds like they're whispering when talking at normal tone. I feel like I'm telling when I talk but I am actually talking really low. And same situation with listening to radio, television, etc... I have the volume on blast but it sounds normal level but muffled, and others complain its too loud. Been going on about 2 weeks now. It happened once before but went away shortly and all on its own. I've tried cleaning my ears with qtips, using peroxide, and popping my ears and all have failed me.

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Vaginal Health :: Gemstones Stuck In Uterus

I put gemstones in my vagina and they slipped through my cervix. I have seven gemstones that are thin and half and inch long in my cervix and the gynecologist is not available tomorrow. What do I do? Am I going to die or get an infection?

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Dysphagia :: Tiny Pieces Of Chewed Food Getting Stuck

I'm having a very weird problem for past week. tiny bits of chewed food when i swallow gets stuck back of my throat and takes time and effort to go down. However the problem of swallowing is not there with big chunk of food :S(when i swallow food without chewing much it will be fine.)
Also there is some pain like sore throat..

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Stuck / Tingling Feeling In The Tip Of Penis - Ejaculation Relives

For the past 8  months I have been experiencing some uncomfortable symptoms which I have not been able to resolve. 8 months ago I had unprotected vaginal sex. About a week later I felt a strange stuck feeling in the tip of penis which was relieved by urinating but would come back about 15 minutes later. I also experienced some discomfort urinating as well. Like there was something obstructing my urine flow. I went to my doctor a week after symptoms started showing and was tested for gonorrhea and chlamydia.  Both tests came back negative. Additionally, a friend of mine had unprotected sex with this woman and had an STD test done when I told him of the symptoms I'm having. His tests came back negative too. I was also prescribed bactrim for a possible UTI. I was then referred to a urologist. I had my prostate examined and was prescribed cipro for prostatitis, which did not provide any relief. Afterward, I had another chlamydia and gon test done and it came back negative again. Since the cipro did not help, I was prescribed celebrex which did not provide any relief. The next visit to my urologist, he performed a cystoscopy and could not find anything abnormal. He then provided a bladder control medication to see if that helped. Nothing. By this point I am very confused about what is causing this problem and my doctor does not seem to know either. The symptoms are often better in the morning, and get progressively worse throughout the day. In addition to the stuck/tingling feeling in the tip of my penis, I sometimes experience aching testicles and pelvic pain. I also sometimes have a forked stream when I begin urination and dribbling after. Ejaculating sometimes appears to be split, with small amounts coming out of the underside or my urethra and the semen appears bubbly. Sometimes, but not always, ejaculating makes the symptoms go away, but the next time I urinate they come back after about 15 minutes. When I am experiencing symptoms (which is pretty much all the time) if I squeeze the tip of my penis the pain/discomfort gets worse.

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Viral Infections :: Sore Throat (feels Like Something Stuck In There)

I've had a sore throat today that mildly hurts, and feels like somethings stuck in my throat. Looking at it it has red and white bumps in the back of my throat, my tonsils are swollen and look raw? There bright blood red patches along with white stringy spots, it doesn't look like strep, but I have occasionally through the years have had random moments when my throat swells up, I also get sore throats a lot the last couple of months. Anyone know what it is?

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Kidney Stones :: Stuck In The Lower Part Of Urethra

recently been in hospital with renal colic but have not passed the stone yet it appears that it's stuck in the lower part of the urethra. I'm back at home now with medication. Has anyone else had this problem if so what was the outcome. I'm hoping it's going to pass on its own but no signs as yet .

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Multiple Sclerosis :: Optic Neuritis - Seeing Stars And Eyelash Stuck In Eye

My right eye has been feeling a little funny lately. Kind of like there is an eyelash stuck in it - but not quite that bad. I've switched to wearing my glasses instead of my contacts, which is helping, but not completely. Today I was seeing stars, it only lasted about 10 seconds and it was completely out of the blue. I am wondering if I should see an optometrist/ophthalmologist. If so, what would they do? It's not like it's a severe case or anything (if it even is optic neuritis). I have a number for a MS nurse, she said feel free to call if I had any questions and I will probably call her on Monday, but I don't want to seem crazy, reporting every single little thing to her.

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Multiple Sclerosis :: Nausea - Feels Like Food Is Stuck At The Back Of My Throat

I have been suffering with really bad nausea since yesterday, it feels like food is stuck at the back of my throat. I feel awful. Don't know if it's a bug or not.

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Hemochromatosis :: How Often Do You Have Venesections?

How often do you have venesections?  When you have them how much blood do they take (500 cc.'s)?

After getting to your number, how often have you had to have more venesections?

Somewhere I read that it may be better to take smaller amounts of blood more often.

I realize everyone is different but just trying to get a handle on this.

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Hemochromatosis :: Cold Feet ?

I've been diagnosed with Haemochromatosis . My ferritin level was 1421.

I've only had 4 venesections so far but my levels are down to 700.

I know ferritin levels can fluctuate but to me this is a drastic reduction considering I've only been having treatment for a month.

Is this normal.

Also my feet get extremely cold at night if I'm just sitting down Reading or watching TV. I also have to wear bed socks at night as they are so cold. Could this be due to bad circulation and is it a symptom of Haemochromatosis.

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Hemochromatosis :: Cut Out Alcohol Completely?

I'm 25 and was told I have hemochromatosis about a year ago. I drank pretty heavily in college and have on weekends since. I eat a healthy diet and exercise regularly. I noticed a slight tint of orange on one of my fingers and fearing the worst. I have slight discomfort on my right side sometimes but never pain. 

I question if I have done too much damage to myself and fearing the worse. I had questions as does this condition take years to effect or can it take a turn for the worst in the 20's?

I have been going with Green Tea and many other recommended options for a long time. Do others that have this cut out alcohol completely?

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Liver Transplant Due To Hemochromatosis

Has anyone out there known someone to have a liver transplant due to hemochromatosis? If so, what was the experience like" Did the patient continue to store iron afterward?

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