Hemochromatosis :: Anemia And Iron Overload At The Same Time
Feb 3, 2016
anemia and iron overload at the same time.
View 7 Replies
Feb 3, 2016
Advertisement
Juvenile Hemochromatosis :: One Of The Genes - Iron Overload
My 11 year old daughter has recently been diagnosed with juvenile hemochromatosis. We have been waiting on her gene test for quite a few months due to the most common tests not showing anything, we have now been told she is carrying one of the genes for this disease but it wouldn't be the only reason she has iron overload. Has anyone else been in this position or know of any other reason other than hemochromatosis that could cause iron overload?. We are not due to see the doctor until October to go over her results in detail and she is referring her case to two professors in Cambridge as yet again we seem to have hit a brick wall.
View 6 RepliesHemochromatosis :: Stuck With A Low Iron Diet
has anyone stuck with a low iron diet. Have you found the results to be beneficial. I will do anything to avoid more blood draws!
View 2 RepliesBlood Vessel :: Exjade For Iron Hemochromatosis
I have not long found out that I have hemochromatosis (iron overload) as well as hepatitis C (very stable with normal LFT). My venesection attempts were unsuccessful due to small veins, so I was put on Rx Exjade 14 days ago to chelate the excess iron. It gives me liver and kidney pains - its side effects involve liver and kidney issues and possible failure of. I have just got the results of my liver function and was very surprised had all my liver enzymes have risen significantly in such a short time. I have ceased taking Exjade as of today. Is there any other less invasive chelate?
View 3 RepliesAnemia :: 3 Iron Infusions
l have iron deficiency anemia had 3 infusions. The first 2 l had in hospital and l felt normal after a week, it lasted 2 weeks now l have all the symptoms back so the doctor gave me another infusion a week ago which hasn't worked yet. l have a burning feeling in my toes and find it hard to walk as l feel week is that from not having enough iron. lm so sick of feeling this way
View 1 RepliesWhat's The Cause Of My Iron Deficiency Anemia?
After noticing a recent decrease in my athletic performance, I sent a message to my doctor early last week. My primary care physician ordered blood work and sent me to a hematologist in oncology. The hematologist said it was "very unlikely" cancer and ordered more blood work. Further blood work confirmed I have iron deficiency anemia.
All my blood work was normal apart from the indices related to iron deficiency. Ferritin was low, indicating iron deficiency and not anemia of chronic disease. Bone marrow is producing a normal amount of red blood cells. I have not recently donated or lost substantial quantities of blood. I have not had any tarry stools or seen blood in my stool. A rectal exam was negative for the presence of blood. (This test involved a doctor inserting a gloved finger into my rectum and then testing the glove for blood.) I have no bruising and my blood clots normally. I have not seen any blood in my urine. I have no other ongoing health conditions.
For the last 5 years, I have run 52 miles a week. I eat very little red meat, no more than a few times a year. I do regularly eat poultry, fish, and eggs. I have had semi-frequent nose bleeds, averaging one a month, since childhood.
The hematologist put me on a high potency iron supplement -- 130mg of iron and 250mg of vitamin c per day.
All my doctors have discounted the possibility the anemia could have been caused by my running, despite there being ample evidence in medical journals that excessive exercise can lead to iron deficiency.
If it's not cancer and i'm not losing blood through my gastrointestinal tract, what is causing it? I do feel improved since starting the iron supplement on Monday, but my athletic performance is not where I'd like it to be. I don't have any further doctor visits scheduled at this time. I am to have blood work in 1-2 months to test my iron levels again.
My blood work is below:
IRON 24
TOTAL IRON BINDING CAPACITY 380
IRON/TOTAL IRON BINDING CAPACITY 6%
FERRITIN 5.6
VIT B12 549
FOLATE 17.62
RETICULOCYTE COUNT, ABSOLUTE 2.5
WBC'S AUTO3.4
RBC, AUTO4.52
HGB 10.6
HEMATOCRIT34.2
MCV 75.6
MCH 23.5
MCHC 31.0
RDW, BLOOD18.0
PLATELETS, AUTOMATED COUNT 206
MPV 8.7
CHOLESTEROL 127
HDL 43
CHOLESTEROL, NON-HDL 84
TRIGLYCERIDE 48
LDL 74
HGBA1C 5.4
GLUCOSE POST FAST 87
BUN 21
CREATININE1.2
TOTAL PROTEIN6.6
ALBUMIN 4.8
GLOBULIN1.8
ALBUMIN/GLOBULIN RATIO, SERUM/PLASMA 2.7
CALCIUM 9.4
AST 21
ALKALINE PHOSPHATASE 51
BILIRUBIN, TOTAL 0.8
LDH 157
PHOSPHATE, BLD, QN 4.2
URIC ACID5.3
TSH,BLD,QN1.680
Hemochromatosis :: Blood Work - Hemoglobin Low But Iron Is High?
I am 53 and have 600 ferritin 71% iron saturation. I have done phlebotomy 2 weeks in a row. hemoglobin is now 132 . Therefore I could not give blood. Why is my Hemoglobin low when my iron is high. By the way my ferritin dropped to 475
View 2 RepliesHemochromatosis :: EDTA Chelation - Reduces My Iron, Ferritin And Transferrin Saturation
I was diagnosed with Hemochromatosis over 1 years and undertook regular blood lettings until my ferritin dropped from 700 ish to 35.
The reason I knew something was up was because I was tired, stressed and my emotions were just not what the use to be. I also felt as if I was in a constant brain fog.
However, even know with my reduced levels I don't feel great. I have undertaken some EDTA Chelation and feel great when this is done, having checked my bloods before and after - this reduces my iron, ferritin and Transferrin Saturation.
Is there a way to reduce TS to normal or near normal levels.
Anemia :: Heavy Periods And On Iron Supplements
Okay, so I was diagnosed with anemia about 2 years ago. I'm pretty sure that I've had this since I started high school, which was almost 8 years ago. 2 years ago my doc said my hemoglobin was 10.1 and told me to take iron supplements to improve it. I had to stop due to the side effects, but I recently started taking liquid iron supps. My anemia is more than likely caused by my periods, which have been extremely heavy for years, and I have to schedule an appt with the OBGYN soon. Lately, I've noticed that my periods have been getting heavier and shorter. Also, the month or 2 I've been feeling like my symptoms are getting worse. I have SOB, and I feel like I can't breathe in enough air(feels like a pressure in my chest). I also have had lightheadedness, weakness, extreme exhaustion (to the point where I sometimes have to miss school because I am too tired to get out of bed), PICA, trouble focusing, and I have been extremely pale for a few years. I thought I was just being stupid so I tried to get through this on my own for a while, but now my SOB and chest pressure won't go away and I am so exhausted that I don't know how much longer I can do this. I have a really busy schedule but I feel like my body is going to give out if I keep going on like this. I don't know what to do anymore. I didn't go back to the doc for so long because I figured my iron is probably not even going to be really low and I'm one of those people that doesn't like to go to the er unless I'm dying or in severe pain. Does anyone have any advice on what I can do to improve my sx? I'm definitely going to try to go see the doc about this. It's frustrating because I feel like no one understands what I'm going through, but it seems like people on here know a lot about anemia so I thought I'd come here to ask for help.
View 1 RepliesAnemia - Blood Work :: How Bad Is My Iron Deficiency?
I initially found out I had mild iron deficiency about 6 months ago and the GP didn't tell me to take anything. I've been taking floradix on/off (finished a bottle) and redid my blood work with a new GP. The results seem to have gotten slightly worse, but this new GP also just recommended to take a multivitamin. Neither doctor seemed concerned. Anyway, here are the latest results (this new doctor didn't test ferritin; my old result 6 months ago was a 3)
Hemoglobin - 11 (low)
MCV - 78 (low)
MCH - 25.2 (low)
RDW - 15.6% (high)
TIBC - 538 (high)
UIBC - 480 (high)
Iron Saturation - 11% (low)
Iron Serum - 58 (normal)
Vitamin B12 - 348 (normal)
Anyone know exactly how bad my case is? I am located in NYC; if anyone has a good doctor that takes iron deficiency more seriously, can they recommend the doctor?
Blood Work :: Is This Iron Deficiency Anemia?
These were done during a regular physical exam and my regular dr. said I was definitely anemic, but she never did do an iron panel. After thinking back on my symptoms, I had several..headaches, tinnitus, fatigue, rapid heart rate with exertion, and shortness of breath with exertion. Three weeks ago I was started on iron supplements. Here are my abnormals or near low normals from 3 weeks ago:
RBC 5.45 (4.00-5.36)
Hgb 12.5 (12-16)
MCV 74 (81-98)
MCHC 30.9 (31.2-35.2)
RDW 24.2 (11.0-14.5)
anisocytosis present
hypochromasia present
ovalocytes present
She determined that my anemia was due to menorrhagia and I then made an appt. with a GYN.
The GYN looked at these labs and said this is NOT anemia. She then ordered an iron panel, which she said was normal:
Iron 142
TIBC 356
Ferritin 14
She called today and again said this is not anemia, but some other blood issue must be going on. She mentioned thalassemia and suggested that my regular dr. refer me to a hematologist. I am so frustrated and confused. I can't see my regular dr. until Mon. but I'm thinking it's still anemia?
Iron Deficiency Anemia? Here Is My Blood Work
Here are my lab results:
WBC 6.6 (4-10.8)
Ly 25.8 (20.5-51.1)
Mo 9.7 (1.7-9.3)
Gr 64.5 (42.2-75.2)
Rbc 3.74 (4.2-6.1)
Hgb 10 (12-18)
Hct 30.3 (37-52)
Mcv 80.9 (81-99.9)
Much 26.8 (27-31)
Mchc 33.1 (33-37)
Rdw 14.5 (12-15)
Plt 218 (130-400)
Mpv 8.2 (5-10)
My iron and ferritin were normal (don't have a copy of the results, just was told they are normal). Also, b12 and d are normal.
What kind of anemia does this look like? I DO have a history of iron deficient anemia, but my ferritin was like a 3.
Below are my symptoms. Saw the doc about a week ago, and symptoms are much worse than then. I am on an iron supplement.
Extreme exhaustion
Weakness
Shortness of breath
Chest pains
Extreme lightheadedness/dizzy spells/near syncope
Basically I am hardly functional. I have gone home early and missed a couple days of work, because I literally couldn't do it. I have had to spend almost whole days in bed. Very small things wear me out. I was placing items in a box (that was on my lap) at work today and got weak and short of breath.
Does this not seem crazy for a hgb of 10?? I have been in the 8 range, and while I felt really, really bad, I was not this dysfunctional.
Also, I have been having the dizzy spells/lightheadedness/near syncope and some actual syncope for over a year. The drs are still trying to figure this out. They are a good deal worse right now.
Any thoughts or advice?
Severe Iron Deficiency Anemia - Two IV Injections A Day
I have a friend who has had iron deficiency anemia since she was like 18 years old from what i heard. She's now having severe iron deficiency anemia and is having two IV injections of iron a day and the doctors do not know the cause still. She's on gluten free diet and oral iron therapy doesn't work on her. Now her situation is getting bad by the day. Does anyone know anything that could suggest a reason for this ?
View 2 RepliesIron Deficiency Anemia And Vitamin D Deficient
I have been iron deficient all my life, but it's at a critical point right now. I see a hematologist on September 14th. It takes everything out of me to get up each morning and go to work. I come home and just want to sleep. I am freezing cold all the time and eat ice constantly. I'm extremely moody and my husband doesn't understand my condition, so I am turning to the internet for support and help. I'll be getting an iron transfusion and blood transfusion as well. I don't absorb iron like everyone else as I had a gastric bypass in 2008. I am also not absorbing my Vit D 50,000 IU pills once a week either. I'm just at my wits end here.
View 1 RepliesIron Deficiency Anemia - Lost The Ability To Store?
Does anyone know what the Drs. do if they can't get your hemoglobin back up to within normal limits? They say I have lost the ability to store iron. I have had 4 infusions and have very little results.
I'm scheduled for 8 more. I am a little alarmed because the Dr is disappointed that I haven't recovered better. How much trouble am I in here?s.
Iron Deficiency Anemia Night Nose Bleeds
I think I may have iron deficiency anemia my mom had it when she was younger and I have really bad nose bleeds in the middle of the night I have also fainted and I don't want to go to the doctor. Just wondering how dangerous could it be?
View 2 RepliesIron Deficiency Anemia? Small Streak Of Blood In Stools
My husband (41) has some routine bloodwork which showed iron deficiency anemia which is uncommon in men. His hgb was 12.5, hct was 40, iron was 41. He has been referred to a GI who want to work him up with colonoscopy and egd. He has not had any bowel changes and digital exam showed no blood. However in January he said he noted a very small streak of blood on the toilet paper after passing a very hard stool. This happened a few more times after. Until the sore area healed. We are terrified of colon cancer since iron deficiency anemia is so uncommon in males. If he hadn't had the bloodwork, we would not have even known there was a problem. Does anyone have any insight on the iron deficiency and potential cancer?
View 3 RepliesIron Deficiency Anemia - Supplement With Minimum Side Effects?
husband has been diagnosed with iron deficiency anemia. Was referred by doc for colonoscopy and endoscopy but we have decided against this as he had a stent fitted in January and is on Ticagrelor to stop blood clots forming around stent. If they cause even the slightest damage when doing those procedures he could have a heavy bleed and as he doesn't have a common blood type we don't want to risk this as a blood transfusion may be delayed while they get suitable blood. His hemoglobin level is 81, ferritin is 5 and folate is 5.2. What I would like to know is what iron tablet people recommend that does not cause too many side effects as we have to discuss this with the doc on Friday.
View 12 RepliesUterine Fibroid Embolization - Iron Deficiency / Anemia With Heavy Bleeding
I am now 12 weeks post op. I am due my period on Friday but I started with light bleeding yesterday and today I am waiting to see if the bleeding gets heavier. At least it's nearly 4 weeks since the last period. I got some Mefenamic Acid to take if I get pain which I have done since the op on both sides of my bikini line when I have period . Pre op I used get bad pain in my stomach. My tummy was shrinking but now I'm at period it's blown up again. Doctor won't give me iron tablets now cos my blood test states that I don't need them. I don't understand this cos I was falling asleep in the afternoon without them so can't be bothered arguing with them so just buy them myself now ( I have been taking over the counter ones since I was refused them last week on prescription. How can my iron level be normal when I still have the heavy bleeding that causes the Anemia?
View 1 RepliesHereditary Hemochromatosis :: Exhausted All The Time
A genetic test has just come back that I have this. Can someone help me understand this and is this why I'm exhausted all the time.
View 6 RepliesHair Loss :: Anemia (low Iron Level) Losing A Ton Of Hair Each Day
I began seeing bald patches on my head: one rather large one and 2 smaller ones. I also am losing a ton of hair each day. I have been diagnosed with a ferritin level of 8 and an iron level of 28. I am taking 325 mg of iron 3 times a day along with other vitamins. Approximately how long before I see an improvement in hair fallout and regrowth. I am also seeing a dermatologist for corticosteriod injections to help with regrowth in the completely bald spots. I am strongly considering shaving my whole head?
View 4 Replies