Does anyone here have an ascending aorta aneurysm, and/or aneurysms in any other location in the coronary arteries? What is your experience as far as symptoms and treatment? Thank you.
View 2 RepliesI am 62 and I have been diagnosed with a 4.2 aneurysm in the ascending aorta. It was found while in the hospital for a suspected heart attack. I do know that aneurysms run in my father's side....one brother died of a ruptured abdominal aneurysm, one died with a brain aneurysm, grandfather died of a ruptured ascending aneurysm and my dad had the same. Of course, they won't do surgery till it reaches 5, but the stress of this is hard on me and my husband. We do know that I did not have the aneurysm two years ago, because I had all the tests done because of my heart rate rate drops into the thirties at times. I do have this sensation in my chest that I had mentioned to my doctor several months ago and I am now wondering if it is related to the growth of this thing. Periodically, I get this stretching sensation in the upper part of my chest...doesn't hurt, but it makes me feel like something is pulling. It lasts a few minutes and then stops...it does this a few times a day. I was just wondering if it was possible to feel the aneurysm growing?
How much time a patient of "coarctation of aorta" & " transposition of great arteries" can live after the success operation of an arterial switch.......
View 2 RepliesI'm due to have my ascending aorta replaced, I think with a Dacron graft. The cardiologist and the surgeon seem to think I'll know everything I need to by Osmosis or something. I was wondering if anyone has or is going through this.
View 1 RepliesI'M 62 YEARS OLD AND WAS DIAGNOSED WITH AN ASCENDING AORTA ANEURYSM OF 4.4 CM. HAD A CT ANGIO SCAM OF THE CROSS -SECTIONAL DIAMETER BEING 44X42 mm Nine months ago, now with another CT ANGIO Scam its 40.9 x 39.4 mm. Cardiologist told me it shrunk sum. Can this be possible ? I lost 28 pounds and my blood pressure is 109/69 almost all the time. Can an Ascending Aneurysm Shrink ?
View 12 RepliesFor years I have been suffering with a pulsating stomach and ibs. That's what the doctor said it was, being that the scan I had done showed up nothing so the doctor put it down irritable bowel syndrome.
In May this year I went for an endoscopy and colonoscopy. A couple of biopsies were taken.
The results were normal, apart from a hiatus hernia and anaemia, the anaemia they put down to the fact that some time ago I was taking anti-inflammatory tablets for arthritis. On a course of iron tablets for the past three months.
Last Thursday I went for my blood test result, and I mentioned about the pulsating in my stomach. She told me t lie down on the bed while she felt my stomach. She told me that it was the aorta pulsating.
My stomach drives me nuts especially in the evening when I am Sat down.I don't know if the pulsating is due to the ibs or the hernia or both.
My younger sister aged 50 was diagnosed with TAA of 5.1 cm in January and operated in February due to her small frame. She is recovering well which is encouraging. I have been meaning to go and have a check myself but kept putting it off. I went to my GP 2 weeks ago and he immediately picked up a murmur. Echo followed by a CT scan confirmed I also have an aneurysm but mine is still at 4.27 and I am 55 years old. Clearly we have a genetic disposition but mine is growing more slowly (so far) . I am in shock and still cannot get my head round it. I am fit, practise yoga, follow mainly a vegetarian diet, don't smoke, hardly drink and do not have high blood pressure. I am now now in 'watchful waiting' and will have another CT scan in 6 months time. I have been advised to take Beta Blockers and was wondering how patients react to them. I have a professional job in sales and need to keep my energy up. I have off course been considering giving up work but sitting at home waiting for my aneurysm to grow will not help me. I would also like to know if aneurysms always grow and if I need to accept that mine will be bigger by the time I have my next CT?
My 21 year old brother was at the heart doctor today, they told him he had an enlarged aorta. When he was 5 he had open heart surgery for a hole in his heart. Today was supposed to be just a regular check up for his old condition but they found the enlarged aorta. I'm sorry that I don't know much information about his original condition or much of anything else but I get everything passed on from my mother and she's pretty upset with the news. Apparently the doctor is not very worried about this and says that he needs to come back in a year for a follow up. This to me does not seem right....seems they need to maybe look into this further instead of sending him on his way. Any outlook on this? He has always been an athlete and is an high jumper for Washington State University (went to Pac 12 this year) so he is in really great health. I would really like to console my mother and give her some good (better) news.
View 3 RepliesSo I am a 34yo male and I was having palpitations and asked the dr to do a work up so he did an echo and a sonogram of my aorta to check for aneurysm. The echo came back good no issues and there was no aneurysm or evidence of one my measurements were all good. However the report said that plaque was found in all the areas of my aorta ascending descending and mid and in my right and left iliac arteries. The doctor said this was unusual and abnormal for my age. I haven't got to actually talk to him it wrote it on the report that I got. I don't have a follow up for about 1 month and I'm curious what the outlook is on this. I smoked for a couple years when I was 18 and completely quit. I have always been somewhat active(not sedentary) the last 3-4 years I have been lifting weights and running I weigh 220 and I'm 6-3 somewhat built. I look and feel healthy? I'm kinda thinking that I can't live a long life anymore?
View 1 RepliesTwo day before Christmas, I was diagnosed with a 5 cm aneurysm near my heart and told, "If it's not repaired, it will burst and you will die". The NHS cardiologist had only just seen my file and met me, 5 minute before that. He also stated that if my valve is bicuspid, they need to replace it and repair the aneurysm now. So I've been waiting for either a tube down my throat, or an MRI to get a clearer picture. So far, I've only received a phone call, from that Cardiologist, on New Years eve, saying the Tube test should be end of Jan, beginning of March, but the MRI will be scheduled in the interim.
I'm originally from America, where my possible bicuspid valve was monitored yearly with echos. I've been here in the UK just over 4 years and only ONCE did a Dr. so much as listen to my heart, until they thought I had a TIA.
Is this typical of the NHS? Give you bad news, then make you wait?? Some say I need to go to my GP and see if they can refer me to another place to get the tests done...others say, play up your symptoms. I am somewhat symptomatic, but so far, I still walk a mile to the bus every morning, and work a 40 hour work week.
I have recently been diagnosed with an thoracic aortic aneurysm and a badly damaged left ventricular valve. The aneurysm is 5.9cm and on the arch at the top of my heart. It was found by accident when I had a ct scan for difficulty swallowing then further tests followed which found that the 'murmur' I was diagnosed with 7 years ago had deteriorated so badly the left ventricular valve would have to be replaced with a mechanical one. At the moment I am waiting for a final visit with the surgeon before being given a date for the op. The thing is I feel perfectly fine, I have no pain, no shortness of breath, have as much energy as always and in fact feel fit as a fiddle. I am 58 and have kept as upbeat as possible about all this, but my family are distraught with worry about the 10 - 15% chance that I won't make it through the surgery (national statistics) and the possibility of stroke or paralysis. My dad had an aortic aneurysm (unknown to him) and it ruptured, he survived the surgery but died 3 months later having never left the hospital. This was only 4 years ago and my mum is now sick with worry, literally, about me. I am worried that I will never get back to how I am now, that I will become reliant on family and friends. Its usually me who helps the family with the children and my mum. I live alone but have family close by and my ex husband (who is my best friend) has been a great support. My family, bless them, are fussing around and not letting me do anything and I know I would be the same if I were in their shoes but I feel like an invalid although I should be grateful for their concern. I am feeling so confused, I refuse to cry about this and I am holding myself so tightly together but seeing my families tears is breaking me up. I am putting my 'healthy self' up for a life threatening, painful operation. Has anyone else been in a similar position and could give a few words of encouragement?
View 13 RepliesI've started having this phobia in year 7. The teacher was talking about veins and arteries and I suddenly felt faint so I had to go out of the class then I collapsed on the floor. And all my friends thinks it's completely abnormal and they tease me about it!
And also the other day, everyone had jabs but I didn't have them and after my friends had theirs done they were all talking about it with other girls in my year in front of me. I was queuing to get food but suddenly my appetite just went and I felt light headed and I really needed to sit down! I also wanted to go outside because the hall felt really airless and warm! So one of my friends kindly took to go outside but while I was still in the hall I just collapsed in the middle of the room! So i was beginning to wonder has this phobia gone too far with me? I just cry when I hear about veins and arteries or feel light headed!
i had all the tests . My aorta has a aneurysm of 6.5 it is also split from one end to the other . . its pushing on my lung making me short of breath . I also have parkinson's . and have a deep brain stimulator to help my PD because of this Broad Green keep putting it off what can i do?
View 2 RepliesI'm a 22yo female. 3 hours ago, I accidentally noticed 2 black veins/arteries showing under the skin of my right arm and 1 on my left arm. There was also a dark area near my right wrist. Then the black veins/arteries disappeared and more dark areas appeared. Also, one very dark bluish purple bruise appeared on my left thigh. It looks like a bruise you get after a physical trauma. It hurts very little when you press it. Other than that, I feel absolutely nothing weird.
I'm anemic and have been since I was a kid. My chest is tight most of the time. I'm not taking any meds regularly. But around 18 hours ago, I took a Brufen 400mg for a nasty headache I had. It's still there, btw.
It's 4 in the morning here so I can't go to a doctor right now. If you can give me an idea what it could be or even what kind of doctor to go to in the morning, I would appreciate it.
My mom had been complaining of back pain for the past few months and was taking Robaxacet to fix the pain and it seemed to work ,she called it the miracle pill. Unfortunately and of me telling her to go get it checked out ,she did not and now has passed away and will be missed dearly and she was such a beautiful lady . She just turned 72 in Oct. Within 40 mins, she passed away and we found out today from the coroner that she passed away from a ruptured aortic aneurysm and he said that she went very fast and did not feel any pain and even if she was at hospital there was nothing that could have been done. I will miss her dearly and it is so painful because it is so unexpected and so sudden. I regret not pushing her more to go get her back checked out because they might have found the aneurysm and been able to fix it. I have just looked for the first time since I found out earlier exactly what it meant that she passed away from and the coroner said she would not have felt anything ,it would have just been like falling asleep and that has made me feel abit better because she was alone and I hate the thought that she died alone. I just wish she would have gotten her back checked out and then they would have found this and maybe saved her life and fixed it. She seemed to also ,for the past months have a hard time going shopping and being on her feet for to long , she would sort of burn out faster than normal and she was seeing her doctor because she was diagnosed with borderline diabetes and had 2 months to lose abit of weight and change her eating habits, she did everything she was suppose to and the doctor never picked up on this and this is something I do not understand because she had so many different bloodwork done for this and other things and is it possible that this was overlooked because I was also told that she had a lot of plaque and her cholesterol and was on medication for that. I don't understand why this was not found at all. With the high cholesterol why wouldn't a chest xray been done to make sure her heart was ok and also her aorta? If anyone has any kind of answer to my questions it would be much appreciated and comforting to know , anything about this and why it was not found. I loved her dearly ,she was my best friend ,my confidant and I will miss her so much, my life has changed drastically over this and I will never be the same person I was 3 days ago.
View 37 RepliesOne or both occasionally ascend ....
View 13 RepliesI had a colonoscopy last week. The dr. had to stop the procedure because of a twisted ascending colon. Now I need to prep again and have a CT scan. Has anyone had this problem? What do I need to know? Is this the cause of all the bloat I am carrying?
View 6 RepliesI was diagnosed very late with this condition. An acute GP noticed the murmur and was not convinced that all was normal. Test after test later it was confirmed. Months later i had a stent fitted which is 4cm x 2cm, I was not warned about the amount of bruising or the pain in the legs, 4 months later i am still having pain in the groin and the che chest. The cardiologist does not know why I have this pain that travels from my chest to my back and left arm. MY left leg feels heavy and numb down to the foot which is freezing cold at times again. I have started feeling tired and fed up with the whole ordeal. Yes i know i needed this procedure but through choice i would never have had it - my active happy go lucky lifestyle now revolves around this. When i get ill My poor GP has to send me into the hospital as they are not well versed with this condition. Can anyone tell me when will I feel well and strong again. Do you get back to normal? The hospital and the doctors have been wonderful but they just do not have the answers. They think it could be damage due to the surgery but not life threatening so at least that is something to be cheerful about. I would love to hear from other people that have undergone similar treatment.
View 5 RepliesHas anyone ever had coarctation of the aorta (where the heart squeezes and one feels pressure in arms)? i got this feeling last sunday and a little later felt slight pressure in my left eye. Has anyone has eye pressure due to anxiety/stress? if yes, what have the implications been? i am concerned.
View 2 RepliesMy father got his xray result just now. An examination on his Chest PA. And the impressions were: Bilateral PTB, Concurrent Pneumonia, and Atheromatous Aorta. Can someone please explain to me what is Bilateral PTB? And Concurrent Pneumonia?
View 14 RepliesI have been having abdominal and pelvic pain for months since my daughter was born in May. I went to the er at 2 different hospitals and both did a CT scan and 1 found bilateral lower lobe atelectasis and the other a narrowing of my aorta valve of the celiac. I asked my family physician about the atelectasis but he said it was air pockets but nothing to worry about. I had a collapsed lung 3 years ago so are these things I should be concerned about because he is not.
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