Headaches / Migraines :: Pressure In My Temples


Jun 28, 2014

What is wrong with my head?

For the last month how I feel has just become worse (today being the worst I have ever felt) everyday I feel like I am going to pass out, vision goes blurry and feels like the room goes dark and closes in. I feel weak and constantly fatigued. I have pressure in my head and nearly everyday have woken up with a very bad headache, I am now getting stabbing like pains in my head (it feels as if a knife is being dragged at the top of my head) pressure in my temples. My head feels as though there is fizzing in it.

My muscles feel weak and achy my legs feel like I have been doing a workout down the gym, my eyes are very heavy and sore.

I have tingling sensations through mainly my left arm (like pins and needles) I have vomited a few times.

A few times I have had pains in my chest (like pressure and shooting pains) and have had to take deep breathes to try get it to stop.
When I bend down my head feels like it is going to explode and my vision is very disturbed, I have had to hold on tight to stop myself from falling at times.

I have no energy and just cannot carry on like this.

Just now I have had a fizzing feeling at the front of my head (left side of forehead, feels a little like something is crawling inside my head).

Any insight would be appreciated.

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I am a teacher and I obviously have to be at my best everyday. The pain makes it impossible, which is why I usually give in and take meds even though I KNOW I should not be taking it everyday. If I am just at home and have nothing to do, I try to massage the area and relax until it dies down.

Does this sound like it could be Occipital Neuralgia? Does anyone have any other idea of what it COULD be? I haven't had much help from doctors, so I sort of want to be armed with information the next time I go see one. I am sick of being told it's nothing when I am spending every day in pain.

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Heres the many doctors I have seen:
blood work - all normal according my GP; blood pressure, b12, thyroid is normal

eyes (i wear contacts) - optometrist, ophthalmologist, neuro-opthamologist - all normal; no elevated optic nerve pressure; prescription is the same

ears - saw two ENTS, had vestibular testing done - nothing wrong

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**NO HYDROCEPHALUS, hemorrhage, midline shift, extra axial collection, or acute intracranial mass effect

i have seen about 3 neurosurgeons all with different opinions

- first was an adult surgeon at the cleveland clinic - said my cyst is very rare; suggest a shunt (but would not want this due to the risky foreign object nature of the device, i would rather an endoscopic procedure)

- second saw a pediatric neurosurgeon; put me on diamox 250 mg twice a day it has been making my head feel better so the doctor is inclined to think its the cyst

- third pediatric neurosurgeon at University of miami; was not convinced the cyst is causing my problems said it was probably incidental and wants me to wait 3-6 months to get another MRI


is anyone going through this.. i'm trying to stay as optimistic as possible. i just hope i do not have to feel like this forever i had to take the semester off of my senior year of college because i wanted to get to the bottom of these problems that have affected my whole life. just want to be normal again.

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This condition is starting to limit my lifestyle and with two years of no answers I am putting it out there for someone to recognize or provide advice about what could potentially be going on! 

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Three days went by with no migraine... then a small migraine then another 4 day whopper probably more severe than before which knocked me out cold for the whole weekend and beyond. I've been on the pizotifen for 2 weeks now and low and behold today - another migraine.

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