GERD / Gastritis Affecting Tummy, Throat, Mouth And Bowels?


May 7, 2016

I'm not entirely sure whats going on with my body any more..

(Diagnosed with gerd, gastritis and hiatal hernia after endoscopy a year and a half ago)

I've changed my diet completely. Sleep raised in bed. Do light exercise 5 days a week.. basically before someone suggests these sorts of things I have tried everything that I know of.

I've been on pantoprazole for a year and was on omeprazole for 5 months prior. Completely changed my diet. Haven't touched alcohol nor a cigarette in 18 months. I don't eat anything deep fried.. No onions no tomato absolutely nothing spicy. Actually pretty much all I can eat is bread, potato and some veg and some fruit. I can barely eat meat any more either. Anything I eat burns my stomach when it goes down, my stomach burns for hours after.. then I get that infamous 'gnawing pain' which wont go away until I eat.

Anyway, about 6 months ago 2 of my teeth crumbled away, I've only had the fillings in for about 5 months and they are both brown and stink.. Im sure its due to reflux.. My gums bleed every time I brush my teeth, no matter how soft the toothbrush is. They even bleed when I eat food.

A couple of nights ago my throat became inflamed, it burns even when drinking water. It feels like there is pressure in my throat near the top of it. It hurts to swallow.. my tongue is coated with yellow stuff. My mouth is dry. My breath absolutely stinks and has done for months, even before the teeth incident.

I'm always nauseous. Some weeks I'm only getting about 10 hours sleep over the entire 7 days because all these symptoms keep me up. My gp is at a loss.. they don't really listen to me anyway. My consultant at the hospital makes me wait a whole year for my next appointment, thats after the last one had to be brought forward by my gp calling him and telling him it was urgent.. He saw me for 5 minutes, said I had reflux.. gave me some anti sickness then asked me to leave. I'd already been diagnosed with reflux and given anti sickness by my gp?

Guys, I'm only 20 years old.. I'm 20! I was never ill before this and now my entire life has been turned upside down by something my doctors seem to think is 'simple'. 

It's past the point of affecting my 'quality of life'.. it has literally taken my life away. I can't do anything anymore. I'm always in pain, feel sick or am being sick.

If you got this far down and managed to put up with all my moaning then thank you,

If anyone has any idea what is going on with me then please feel free to comment..

Also, if there is mistakes in here or it doesn't make sense in parts, I've had 1 hour sleep in 48 hours so I'm not at my grammatical best right now!

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Two weeks ago after a heavy meal and a few days after damaging my jaw I woke up in the night with a weird throat spasm and feeling like I had something stuck in my throat. Then over the weeks I started to get the lump feeling through the day with difficulty swallowing. I lost half a stone due to being unable to eat.

Now I have developed a tight chest, dry throat and lungs, feeling like my lungs are blocked, constant throat clearing with little mucous production, breathing difficulty and I'm still having these nightly throat spasms and lump feeling. I had some of my sons ventolin inhaler as I had asthma as a child and thought the reflux could be causing this but it did nothing.

I have been to A and E lots of times with it and also to my GP who has referred me for an endoscopy but its only in february.

I am going out of my mind. The breathing issue happened after a load of acid came up my throat a few nights ago and it felt like my throat and lungs were dried out by it.

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So I'm stumped, and so are my docs. I really like and trust my current ENT, and he is genuinely trying to help. After a few more weeks of increasing the nortriptyline he is going to refer me for the acid testing where they put the probes in your throat.

So, does anyone have any brilliant thoughts on what might be going on? The pain is significant (some days are worse than others), and it feels particularly bad after giving presentations, which I do frequently. I can't stand the thought of this lasting a whole lot longer, and at this point worry that it could be something more serious.

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I also wake up every morning feeling unrefreshed, groggy and depressed.

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My symptoms are lump in throat, horrendous burning mouth and horrendous chest pain.

I'm waiting on a ph test but that's in 6 weeks and I won't see the GI consultant for another couple of weeks after that. Each day seems to be a bit worse and now it's hurting to swallow,and food is getting stuck. I'll be honest, I'm terrified I've got something awful. The pain is constant, both in my mouth and throat and in my chest. I've been in floods of tears.

My gastroscopy at the end of April was clear apart from Barrett's, the one I had before that when I had these symptoms ( before ppis) showed grade 2 oesophagitis and Barrett's.

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