Fibromyalgia And Intolerance To Thyroid Meds
Jun 6, 2013
I am dealing with an intolerance to Thyroid meds. Having been diagnosed with Hashimoto's Thyroiditis 5 years ago my family doc has prescribed every Thyroid med she could think of and various strengths. Side effects were thick itchy rashes, shakiness, massive headaches and tremors. I stopped taking the Thyroid Meds for 2 years and believe me it was no picnic. I had no strength, terrible digestion, heat and cold intolerance, memory loss and on and on and on. I am now on a very low dosage.025mg. My last t3 & t4 test indicates that my levels are very low but because of all the negative side effects I have experienced my doc is terrified to increase the dosage. Along with Fibro,Celiac,Diverticulosis and Hashimoto's life is a bowl of cherries . I would like to hear from someone who is also iodine intolerant and is there a different path I could take..
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I went to a new rheumy who specializes in fibro. He spent an hour with me my first visit. I really like him. He typically treats many people with synthroid for fibro because he feels we really have a hypothyroid even though our numbers are good. i do have many symptoms of thyroid, always cold, used to have constipation, dry skin and eyes, heavy periods, etc
He called in a script for synthroid name brand for me, I haven't picked it up yet I guess I am nervous to try it.
He did do my bloodwork, TSh was in guidelines, free T 4 and T3 were in range but at 50% of the range.
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how do I control hypothyroidism when I can't tolerate the meds?
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i am malaysian recently did my blood test and found out that my TSH within the normal range (1.8) but my free T4 was 26.33 (12-22). free T3 was not done. i am experiencing all the symptoms related to the hyperthyroidism such as palpitation, tremor, intolerance to heat, weight loss(from 78kg to 65kg), always hungry, muscle weakness.i went and visit my endo, he said since the TSH reading normal, so you are not having hyper and he discharged me. but i can realise that i am having all the symptoms of hyper. can anyone help me?what i should do after this?
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I had a complete thyroidectomy four years ago (removed thyroid, two parathyroids and two lymph nodes) and have been taking my meds (112mcg) regularly until I lost my insurance 6 months ago. I can't afford insurance and can't get help with insurance anywhere! I'm now back to work and my health is RAPIDLY declining. I'm retaining fluid like crazy, tired constantly, headaches, severe body cramps, lymph nodes in my neck are so enlarged other people are noticing them, constipated, blurry vision, deep and severe spine pain, ect. I can't afford to pay out of pocket to see a doctor so they can renew my thyroid meds for me! The appointment will cost me around $400 for visit and bloodwork. Are all of these symptoms from being off of my thyroid meds? This has never happened before but I've always been very strict with taking my thyroid meds until now. Btw I'm only 27 years old.
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I have an asian friend and everytime he drinks alcohol, not much, maybe 2-3 ciders, he seems normal drunk for a little while, like just running around for a little while except that he goes very bright red Then after about half an hour he suddenly collapses on the floor. We can't wake him up. Sometimes he will come round and open his eyes or talk for a little while but then he will lose consciousness again and won't be able to walk. Then he will sleep for around an hour and wake up completely normal. I know one of the symptoms of alcohol intolerance is flushing but haven't seen one of the common symptoms being losing consciousness. Do you think it is just alcohol intolerance or there is something underlying? He did drink quite a lot once and he also vomited as well as being very flushed and losing consciousness for a longer period of time
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My youngest son is 3 years and 3 months old. He is very tiny and under weight and is diagnosed as failure to thrive.
For over 2 years he has been, very cranky all the time and emotional, poor appetite refusing to eat any thing apart from bread, cereal and pasta. He has low iron and is taking iron supplements and is tired a lot.
He us under the care of two paediatricians and a dietician who so far have not been able to find a cause for his problems and why he is so small.
One of the paediatricians came to our house to see my son. She examined him and felt his tummy etc. then asked is he had been tested for celiac disease or gluten intolerance. Which he hasn't.
The paediatricians said it would be a good idea to get him tested and she would refer him to other paediatrician to arrange for tests to be done.
She also said it might be a good idea to try removing wheat and gluten from his diet.
So we removed gluten and wheat from his diet straight away. He has had no wheat or gluten in his diet for 4 weeks now and we are seeing big improvements. He is like a different boy, he is a lot more happy, less tired, he is doing normal poos fro the first time in a very long time and he is getting his appetite back. He is finally for the first time in over 2 years not refusing food and is starting to eat proper meals.
Although we are seeing big improvement I am beginning to think that the paediatricians advice to remove wheat and gluten from his diet was perhaps bad advice as I realise now that you need to be eating gluten and wheat to be tested.
My son is due to see second paediatrician in 3 weeks time. I don't know if they will do tests then or if we will have to come back another time. Should I re add wheat to his diet now so he can be tested, will 3 weeks be long enough.
Was it a bad thing to remove gluten and wheat from his diet.
Does it sound like he might have celiac disease or a gluten intolerance
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Has anyone developed lactose intolerance while pregnant? And did your baby have it after being born? My husband has always been lactose intolerant and just recently I've become the same way and wondered if it was actually the baby's way of making me avoid it..
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I was never a big drinker, but lately I can't drink vodka or tequila without immediately getting a headache and pain behind my eyes. I'm talking one, maybe two drinks and I feel miserable. Some beers have the same impact - I always loved a good stout, but now I get a headache before I even finish one. I can no longer go out and enjoy a few drinks with friends. (They love it - built in DD).
I was diagnosed in 2011 - and this intolerance to alcohol has gotten worse in the past two years. Is there a possibility that MS can cause this??? I can't imagine it would, but not sure what else could be going on.
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I have suffered for the past 2 years with bad stomach cramps , diarrhea , and bad wind . this would occur every week and mostly every day . i went through the doctors and they just saw it as "oh you have Ibs there really isn't a cure just deal with it ". i knew for a while that it really wasn't just ibs but something more , i started looking at food allergies and decided to take a food intolerance test. They found out i had a really bad yeast allergy!!??. Does anyone suffer with yeast allergies?? i have started a new diet cutting out yeast and trying to cut down on sugary foods ( this is impossible!) however i do feel a lot better and i have been taken medicine to kill of the bacteria in the gut.
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i was diagnosed with significant diverticular in jan 2013 each time I have a flare up I require augmentin antibiotics these flare ups seem to be every 2/3 months now hence I am left with horrendous ibs due to the antibiotics . Today I went to a natural fitness centre as I could not convince my gp I thought I had food intolerances now. I biofeedback scan was done on me and the results were wheat intolerance lactose intolerance and refined sugar intolerance!!!!!! My question is my ibs is not constipation or diarrhoea just the need to have BO a lot especially after meals but I have been told by drs I need a high fibre diet to prevent the pouches becoming infected how can I have this type of diet if I am intolerant to wheat ?
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My question is that is there anyone out there that is fighting or cured anxiety without meds?
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My mum had a huge haemorrhagic stroke in November 2011. It took a long time for mum to recover much of anything and was left completely disabled on her left hand side. To add to this she was left handed and had to learn doing most things the wrong way round. She has been attending physio, trying to learn to walk again and will finally be getting a splint to hold her ankle in place to make this easier for her. Is it just me or should this not have been done sooner? Anyway, to add insult to injury, she's been told she has a glucose intolerance, was given the information from this website as her leaflet to read and take action from. Yes my mum is slightly overweight but has been on a balanced low fat diet for years and not lost a thing, but neither has she gained weight. She has a glass of wine occasionally and doesn't smoke. She is on tons of medication to keep blood pressure low, pain killers as she is in pain daily and her cholesterol is 3. Apart from the exercise which is impossible to do more, what can I do? our GP hasn't bothered to make any further contact or offered any further advice. I only got an appointment for her because I screamed down the phone.. Not a good start.. I'm so frustrated with it all and the bit in the leaflet that says that if left untreated, there is a higher risk of stroke!!
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my leg is five and half years old and for as long as I can remember she has had bowel trouble. It started off as constipation which the GP prescribed movicol for. She was weaned off if this and over time her symptoms have worsened. She suffers from terrible bloating, wind and constipation. She complains of "tummy bubbles" I have asked what she means by this and says either her tummy hurts or she thinks she needs to go to the toilet. We are at a loss as to what could be causing this?
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I do not drink very often so I don't know if it's just because my body isn't used to to it but whenever I do, I only need a very small amount for these symptoms to show. Basically the corner of my eyes (either side of my nose) get really itchy and I also start sneezing one or two times a minute for maybe half an hour or so and also I get what feels like a grain of rice in my throat that feels like it's rising up and feels a bit sharp whenever I swallow.
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I have been diagnosed recently with this as an adult. I am a little confused as my pain is in my upper abdomen, right in the middle, about 2 inches above my belly button and below the ribs. Anyone else get pain here?
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In 2014 while on holiday in Spain, my ankles and feet swelled very badly, since then anytime it gets warm this happens and they become very painful. My GP has prescribed tablets for two weeks to help with this discomfort. Yesterday i went for a walk and my hands swelled especially my fingers. They felt very tight and my right fingers in particular were tingling for up to an hour when i came home.
I never suffered this before 2014, and am wondering is this a symptom of MS heat intolerance. They ache very badly and by the end if the day the swelling and pain is very uncomfortable. I feel cool surfaces help with the discomfort.
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Well, I've come across a new symptom. Not new exactly, just worsening. In the last 6 months or so, there does not seem to be a fruit that I can tolerate. No matter what I try, I end up nauseated and close to throwing up. Anyone else lose an entire food group before? And if so, did you get it back over time?
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I have a 10 year old son who is diagnosed with ADHD, Anxiety, SPD/IPD and rule out of Asperger's/PDD in 2013. Currently, we have him on Methylphenidate ER 30mg per day, but lately we have been noticing issues. Mind you, the school hasn't been very helpful this year with information on how he is doing so I can only go by the vague messages received... the first 6 months, they say he was great! Though I have documents to prove otherwise - lately though, the teacher keeps saying he lacks focus, needs to pay attention and all that jazz. (I say it so flippantly because this teacher has been a pain to work with.
I spoke with the doctor and she wants us to come in next week to discuss his meds, but we have had issues with additives in the past and it's not a route I want to go... to sit and wait. His diet is modified already, we also work with a behavioral therapist and a chiropractic neurologist and he takes Taekwondo.
With all this, I'm wondering if anyone has tried the genetic testing (IE: HarmonyX or Genesight) to see what meds would work best with his specific genetic makeup?
I read all these stories of parents having all these issues and suddenly their kids are on Vyvanse or something else and it's a miracle. I wouldn't mind that... him being able to function better at school (academically and socially) ... he gets bullied (though he can start it up too) - I just wonder, what next?
Here is his medication history:
August 2011 – Vyvanse ??mg (very small amount)
September 2011 – Vyvanse 30mg (adjusted to 30 mg)
May 2012 – Trial samples of Intuniv w/ Vyvanse for two weeks. After two weeks he was out of school and parents decided not to continue the Intuniv.
September 2013 – Intuniv 2mg w/ Vyvanse
September 2013 – Concerta 36mg (removed from Vyvanse and Intuniv because he became over-emotional and violent/aggressive)
December 2013 - Concerta 54mg (Dr. Snyder prescribed)
March 2014 – Methylphenidate 10mg (3 times a day) (March 7th thru March 14th)
Methylphenidate 15mg (3 times a day) (started March 15th)
April 2014 – Methylphenidate 20mg (3 times a day) (started April 14th)
May 2015 – Adderall (adderall) 10mg (3 times a day) (started May 14th)
June 2015 – Adderall (adderall) 15mg (3 times a day) (started June 3rd)
August 2015 – Guanfacine 1/2mg (3 times a day) (started August 21st)
September 2015 – Methylphenidate ER 30mg (once a day) (started September 6th)
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Went to see new neurosurgeon on Monday and she has prescribed Gabapentin to add to the mix of my daily cocktail of drugs. Having looked it up though, it seems to have some pretty worrying side effects. For me, as I work full time, I am concerned about being drowsy, sleepy and generally spaced out at work. Apparently it is all magnified if you are also on opiate based painkillers too. I am also concerned that I may pile on the weight!
Can I ask what adverse reactions others have had to this? Also it says on the box that stopping the meds can cause seizures, but is this only in people that have epilepsy (the main reason the drug is prescribed) or can it cause that in people that have never had a history of epilepsy?
By the way, my meds had not changed since May 2007. Nobody has had the slightest interest in monitoring me, either in terms of if they are still suitable, dosage levels, if I am now addicted, if they are working well or even if they are harming my body. Some of the boxes state that you should have regular blood tests but I have never been offered any. Considering I have had two lumbar operations since last May and numerous problems since, it seems quite odd that this has been allowed to go on for so long with not one of the numerous doctors/surgeons giving a damn. I just order the meds from my GP surgery online and then pick up the prescription. That gives a review date, usually 6 monthly intervals, but nobody actually reviews me, they just put a new review date down on the records.
Apart from back pain my main problem these days is the burning/numbness the whole length of my leg and my locked up toes. Apparently the Gabapentin will help with this. But the worse of the problem is at night, hence the fact that I can function reasonably well during the day. But now if these new tablets are going to knock me out and render me incapable during the day, then I'm tempted just not to bother.
All in all the meeting with the new neurosurgeon went quite well. I will be having another MRI shortly (my 6th in 16 months) and hopefully I'll know more then about what is going to happen going forward. The bad news is that she thinks that a lot of the problems are from the internal scarring from the two operations and nothing can be done about that. Hey, ho, I guess I'll find out in time.
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Has any one every taken detox meds? If so which ones?
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