Fibromyalgia Syndrome :: Seizure And Pain Getting Worse
Feb 11, 2015
I have just got worse throughout the day I had a seizure early this afternoon and the pain has just got worse. I have to stay strong for my husband and kids but inside I am crying right now . I am completely fecked off with it. I confess I am due on and the pain all over seems to be stronger. I am 42 and I am sitting in a chair propped up by cushions a blanket and a hot water bottle for my arms watching emmerdale , tried knitting a bloody scarf but my hands/ arms hurt.
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I have been diagnosed for about 3 years now , but in truth i think iv had this for much much longer , i have had every arthritis test done about 3 times and been in hospital for a long period , which come up with fibromyalgia , i have 5 girls , my youngest are twins of 11, i lost my lovely dad 18 months ago through cancer , he was a hard working lovely man who everyone loved and he was only with us 6 week after being diagnosed with stomach cancer , i felt like my whole world was going to crumble , i was left looking after my mum who is disabled, my husband and 3 of my dependant girls , things have gotten really bad since dad died , it just seems to have divided the whole family , i have been trying my best to keep thing afloat and now my 2 eldest daughters have fell out with me (over care of my mother) (they are down as her carer and driver of her car) yet they were not doing the jobs was left on her own by them and my mother fell badly and i found her on the floor of her sheltered flat and she had been there from day before she is now in hospital (6 week)i am left to all the visits cleaning her clothes and she is very demanding gets quite aggressive at times , but i just don't think i can do much anymore ,my pain is excruciating,and i just want to stay in bed all the time , thing is , is she is about to get out of hospital soon , and i find myself worrying more and more about having to try and look after her when she's home , i just know i can't do it no more , i don't think i have ever felt pain like this in my life it is all over my leg muscles like cow bites ,my neck has got so painful and stiff , now my arms and elbows are starting to go the same , i just want to block the whole world out and stay in bed , my husband and children are understanding and do what they can ,but i know i cannot continue with looking after my mother the 2 eldest daughters have just stopped going in to see her or doing anything for her , i am at my wits end don't want it to come across like i don't care for my mum , but i just can't do it no more , it seems to bring out the worse in my condition, i dont cook much no more i have to try and run my own home my mother's and my business has nearly come to its end because i have nothing left in me , any advice would be grately appreciated thank you for listening x
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I was diagnosed with fibromyalgia about 18 months ago and I'm having a really bad flare up at the moment and still trying to work full time! I'm a beauty therapist so I Found I don't go in I let people down! I'm struggling to walk and my back and wrist is really swollen, I'm taking nurofen and paracetamol but they're not touching it.
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to understand fibro pain more
look up complex regional pain syndrome on the NHS choices page its a fairly new article only placed there today .your find it very interesting and might be a step forward to you understanding your pain better.
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After reading some of the posts lately, I started thinking about what diversion tactics I use to block out the pain. It got me wondering what tactics you all use.
Apart from getting on with life as best I can, I do a few things to take my mind off it all. Doing simple crosswords, I don't have the
or patience for cryptic. Watching TV programs like Antique
Roadshow and watching movies. Reading novels, and going online to read articles.
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I had a very successful pain clinic appointment yesterday, by successful I mean i saw a Dr who wasn't a complete arrogant idiot, he was very nice and tried to think out of the box a little. I asked him for lidocaine patches and although he said he did not think they would work because of the pain being deep he was willing for me to try them, he couldn't prescribe them so he's written to my GP, he also suggested capsaicin cream and finally he thinks i should try cymbalta/duloxetine. I explained that id tried various anticonvulsants and hated them due to side effects and that i was not depressed (i probably should be) but i'm not, i get angry more than sad for the chronic situation but i don't feel hopeless and apart from super hellish days i cope fairly well.
The thing is my little boy is my world, i'm so concerned taking an antidepressant when i don't feel depressed will kick off depression, especially if they don't work and i come off. I used to suffer with depression when i was younger and i know how horrible it is and when your i was in that cycle nothing or no one mattered anymore so i'm concerned as i'd rather continue to live in daily pain knowing my son is getting the "real" me than be on any meds that might change how i feel or how i am towards him.
Does anyone have experience with these specific meds? Especially taking them for just pain and not depression?
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I've been on LDN - Low Dose Naltrexone for a few months now. It's been a bumpy road and the journey has had both positive and negative points.
I've been adjusting the dose but in so far the 3 main benefits I can claim from it are:
- some sleep improvement;
- less pain intensity;
- apparent normalising effects on some blood markers such as LDH (lactate dehydrogenase).
However I feel exhausted to an unbearable point and continue prone to inflammation. I've decided to continue treatment with LDN because I've read extensively about it and many authors say it may take up to a yer to come to fruition.
Meanwhile I've resorted to naturopathic medicine and I'm under treatment as well.
We're all different in the way we react to medications and because I've been reading so much suffering here with so little hope of remission that I thought of encouraging you of not giving up and trying new things.
I would like to share with you a recent study on LDN whose Abstract is:
"The use of low-dose naltrexone (LDN) as a novel anti-inflammatory treatment for chronic painJarred Younger, [corresponding author] Luke Parkitny, and David McLain
Abstract
Low-dose naltrexone (LDN) has been demonstrated to reduce symptom severity in conditions such as fibromyalgia, Crohn’s disease, multiple sclerosis, and complex regional pain syndrome. We review the evidence that LDN may operate as a novel anti-inflammatory agent in the central nervous system, via action on microglial cells. These effects may be unique to low dosages of naltrexone and appear to be entirely independent from naltrexone is better-known activity on opioid receptors. As a daily oral therapy, LDN is inexpensive and well-tolerated. Despite initial promise of efficacy, the use of LDN for chronic disorders is still highly experimental. Published trials have low sample sizes, and few replications have been performed. We cover the typical usage of LDN in clinical trials, caveats to using the medication, and recommendations for future research and clinical work. LDN may represent one of the first glial cell modulators to be used for the management of chronic pain disorders.
Keywords: Anti-inflammatory, Chronic pain, Fibromyalgia, Glial cell modulators, Low-dose naltrexone, Microglia"
Younger, Jarred, Luke Parkitny, and David McLain. “The Use of Low-Dose Naltrexone (LDN) as a Novel Anti-Inflammatory Treatment for Chronic Pain.”Clinical Rheumatology 33.4 (2014): 451–459. PMC. Web. 13 July 2015.
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I just wondered if any other female sufferers of Fibro had pain in their vaginal areas? I am newly diagnosed and just coming to terms with the symptoms and pain that this illness brought along with it but this new pain has begun recently and seems to accompany my hip and lower back pain ..
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Does anyone find eating gluten makes their Fibromyalgia worse?
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I have a taste which at first was metallic it's now sometimes salty.
The roof of my mouth and tongue feels like i had scalded it like with a hot drink though I haven't.
My mouth gets dry and it's worse then.
I take venlafaxine antidepressant, and I'm thinking is it this.
Do you suffer for this? And if so what's it symptoms or have you got rid off it.
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I start from the beginning of my back pain history,In 2009 after a training in a gym i started to feel a sharp pain in my back, following months they pain was growing that much that I could not work out anymore. After several months I had the pain in back but also numbness in my mine buttocks after some checks that the doctors made and pain killers which didn't help,finally they have sent me to CT, which showed that I had a slightly bulged disc l1-s5,the doctors though didn't pay much attention to that result,saying that almost 60 % percent of population would have the same result if they would have checked,after months of Physical Therapy my pain was relieved ,though I didn't go back to Gym.
A year and the half after that I was in pain again and then Sciatica sensation pain started to appear like the needles and pins in my buttock,I was feeling that my legs are weak, slightly tingling on my testicles. I've panicked and went immediately to at least 3 different orthopedics who didn't help much,and neurologist who sent me to MRI and EMG both of them showed that my spine contrary to CT is fine. So he prescribed me Pregabalin which is helped and reduced my pain I aslo started visiting Yoga instructor and half a year later a gym. A year later I've started to go to gym again trying to make mine core stronger which always been very very weak it helped I guess because they were no signs of which doctors call Sciatica. In 2013 I've got into squats and deadlifts and though the pain in back and very rarely sciatica sensations above were appearing i've continued to train, the problem was also what sometimes I was blaming my self for the pain. I had and still have since 2013 a very tight schedule (studying and working) so in average i have 4 hours to sleep. in 2014 there were some increasing in my pain again, I visited some other orthopedist who told me that I'm fine and I visited Neurologist again which has sent me to MRI and EMG again,and AGAIN they both were perfectly fine! So i've continued to train.
My last half a year was very stressful so I didn't work out in gym as much as in the past two years, but when I got back my back started to hurt again also I was feeling numbness in my toes sometimes and tingling in my groin and testicles.
Last month, there were 3 days with pain which started from my back and went through my legs which I have never felt before, It was very strong pain in hips and back. A week after that pain I've started to feel needles and pins sensation in my legs, tingling when I walk on the street with jeans in my right leg (only when I walk outside), some days after that i've started feeling tingling in the area of my testicles and groin which get worse when I sit and stand,never I have before such a strange and annoying feeling in that region.
Though the pain in my back almost disappeared the strange sensation in my testicles is only getting worse. For last three weeks Im feeling strange tingling in the right side of my stomach (or the feeling like something moving there inside). Also when i'm with woman I feel like I've start to ejaculate early . It's not a complete ejaculation though , only when I get arose a little bit sexually I feel like something coming out of my penis and when i was checking it,that It were a drops of sperm (although I don't have yet any other sexual problems or loss of feelings). Also they were couple of times when during the end of urinating, suddenly i was ejaculating (the sperm was coming out right after i've finished urinating), in addition I feel a weird "penis movements" sensations (sorry but that is the only way I can explain what I feel), In addition to all of that I feel sometimes weakness in my left leg or kind numbness for a couple of seconds (though i don't have any pain running or lifting my leg up or whatever).
In addition,to all of this i'm feeling like my right leg is getting heavy (or numb) and there is even one time when muscle twitches appeared in the left leg.
I really wanted to go to the Doctor, but the problem that until january im studying abroad and any visiting the doctor with that kind of problems would cost me a lot of many because my insurance doesn't cover pre condition situations and it seems like one.(though I didn't have any of these feelings before and MRI have NEVER DIAGNOSED ANYTHING) .
So I really puzzled and I don't know what to do,I have no idea why I have all these strange sensations (though almost not having any pain in a back, why MRI never showed anything and I didn't find anywhere on the web if there is any connection between strange partly ejucaltion and bulged or herinated disc).
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So yesterday I went to see the RA and it appeared as if he cared. He explained that I was severe with FIBRO and that there isn't too much that he could do. He upped my LYRICA to 200 mg (not sure why as it gives me more issues than taking pain away) . He also suggested that I go to a Fibro Clinic in UF , some where in the panhandle of Florida, I can not do it (Finances, Insurance, I don't drive because of LYRICA) . He also gave me a referral for SUBOXONE This is a medicine that they usually give for people who have had problems with pain pills.The RA explained how he just read an article in how this could help me. Has any one else experienced this? Did it work?
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Selenium deficiency is considered by some naturopathic doctors the key to Fibromyalgia and CFS.
Some even relate it with animal “Nutritional muscular dystrophy” AKA “White muscle disease”.
Should we go to the vet?
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Fibro is a like a box of dark chocolate, each centered chocolate has a different symptom filling. And leaves a nasty taste in your mouth.
FIBRO FOG MISTY CENTRE
PAIN HOT CHILLI CENTRE
MIGRAINE
LEG PAIN
BACK PAIN
SHOULDER PAIN
NECK PAIN
HIP PAIN
TINNITUS
EARACHE
JAW ACHE
NUMBNESS
PINS NEEDLES
CHEST PAIN
BURNING
SORE THROAT
AND MANY MORE NEW SYMPTOM CENTRES TO COME
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I am stuck in a rut at the moment and can't seem to get myself out of it.
I am full of good intentions to go out and about, but when the day comes it's as if I am too scared to go through the door
Any ideas on how to get motivated?
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I've had problems all of my life and at the moment my condition has worsened, but unfortunately it's something that we don't talk about. I've got fibromyalgia, arthritis and herniated discs in my spine consequently I'm in a lot of pain all of the time so it's a catch 22 situation my tablets cause the constipation but I need my tablets! What's the answer?
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While the quantity of sleep can be important, what's much more important is the quality. Our bodies go through two distinct stages of sleep starting with non-REM (Rapid Eye Movement) and then into REM and cycling between the two throughout the night.
When we first fall asleep we drop into the non-REM cycle and this can be further broken down into three stages which move closer towards a deeper sleep. It's during the last stage where our bodies repair and heal and rebuild themselves. Non-REM sleep typically lasts up to 60-90 minutes with the majority of that time devoted to a deep sleep.
After this our bodies cycle into REM sleep. The main characteristic of this cycle is the eye movements that take place and before there were EEGs and ways of measuring muscle activity it was thought that our brains simply shut-off during sleep, this was far from the truth. During REM sleep our brains are quite active and this is the time when dreams occur, if you wake up and vividly remember a dream you were probably in the middle of REM sleep. It is also thought that REM sleep enhances our memory and contributes to our mental and emotional health. It's possible that during these two cycles of sleep we go through periods of maintaining our bodies and our minds.
Adults typically need between 7.5 to 9 hours of sleep a night and during this time our bodies will move through one cycle to the next and back several times. There are also a lucky few of us who seem to be able to function on less sleep...
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I'm a thirteen year old girl with an unhelpful doctor who literally doesn't want anything to do with me because I'm 'hard work' to diagnose. My family believes it's chronic fatigue syndrome, fibromyalgia or both. So that's the home treatment path I'm taking. My symptoms have been going for 6 months now and they are diarrhea, nausea, joint aches, headaches, fatigue, confusion, dizziness brain fog, tenderness, weakness and muscle pain. I've been tested for crohn's, ulcerative colitis, hypothyroidism, hyperthyroidism, parasites, dysbiosis, virus, infections and celiac disease. I also have eczema, restless legs, irritable bowel, anxiety and gastroesophageal reflux disease. I'm not under any stress at the moment.
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i am really struggling with my fibro. The doc has told me to persevere with this tablet. He has also gave me an anti sickness tablet. I would like to know people's experiences with this please.
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I'v just been given gabapentin from my doctor. Does anyone else take this and how do you get on with it?
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I went out for a meal with work on Saturday night and have been feeling under the weather ever since. I initially said I wouldn't go but it was a special evening and I really felt that I should make an effort and go. I only had one small beer and lemonade but the food wasn't what I would normally eat and I did feel stressed as I had to sit at the top table which made it difficult to hear and join in conversations. I went to bed about 11.30 and slept for 12 hours. I spent Sunday afternoon in my pjs and slept another 12 hours last night. My muscles have been really twitchy and jerky and my appetite has been down. Do any of you suffer in either a similar way or differently after going out?
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