Fibromyalgia Syndrome :: Is There A Cure / Treatment ?
Jul 18, 2015
Many people have told me there is a cure but professionals like doctors and my rheumatologist have said there is not the trouble is they say they don't actually know what the cause is as everyone is different so how can you cure what you don't know i have been researching into other professionals theories and run them but my rhuematologist and psychologist and they have said that they don't believe there is a cure yet and i have spoken to a specialist who has been researching fibro for over 40 years now and he said there is not a cure yet i have heard so many comments on this and was wondering what others thought on this subject and how many people think it's true or false
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I have had Fibromyalgia for 4 years now. I have a superb doctor who has been there for me for a number of years.
Fibromyalgia is a debilitating disease and unfortunately is lifelong with no cure.
Pregabalin tablets are good for the nerve pain that is experienced with Fibromyalgia, along with Duloxetine, MST.
I find that they help with the pain.
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Ok, so I recently turned 30 and just had my very first hemorrhoid trouble ever. First it was just internal bathroom bleeding, then I got this weird "skin tag" near by butthole, then the external pillow of doom appeared and all the horrible itching began. That was about 2 weeks ago. I don't have insurance so couldn't see a doctor, just researched online a lot and got some prep h suppositories. I used those butt bullets for a couple days but on day 2, I started to feel super nauseous after insertion. Don't know if it was the prep h or something else, I was sick that week so might have been unrelated but either way, had to use the bathroom right after insertion and lost it anyway.
Rather than trying to put another one in there, I decided to just clean myself with baby wipes as I'd gotten used to doing and instead grabbed some castor oil (that I'd been using to hopefully clear up some old acne scars on my face - it's the organic health food store oil, not the constipation drugstore oil). I added a squirt of sesame oil (that I'd bought to try that oil pulling thing before switching to coconut oil, recently started getting pretty holistic with the healthy stuff). Anyway, so I smeared that stuff all over my inner bum, figured it'd at least keep things from chafing and maybe cool down the discomfort. I reapplied once more before bed and the next day the hemorrhoid was about half as big as the day before. I was completely shocked! So I continued to apply after cleaning the area, did it maybe 3 times that next day and by that night it was even smaller. This is my 4th day using castor and sesame oil and the pillow is still there but just barely - it's not hanging out of my butt anymore, just sort of lining the hole-rim.. so now when I apply, I dip my finger inside just a tiny bit to make sure I'm still smothering the thing all over (I know, I'm graphic AND long winded, but if this helps anyone else it'll be worth it). I have zero discomfort, can't even tell it's there when I'm not applying the oil. There's a chance it could just be a coincidence and it would have gone down on it's own by now anyway, but I know I'll be reaching right for the oil again if it ever flares back up. If this really is what's curing it, I gotta spread the word and I hope you do too!
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As far as I know, there is not ETD cure, yet. I am interested in finding one. I am a Caucasian 34 year old man living in Santa Clara, CA. I have a BA in Psychology and work in a Neuroscience Lab. I was diagnosed with ETD a year ago. I have been suffering from it for 17 years. 13 years ago I had a bought of Bulimia that lasted for about a year. I had Anorexia Nervosa as an adolescent. I was given the maximum dose of testosterone to boost me through puberty since Anorexia was preventing it. Soon after I abused alcohol, marijuana, tobacco, and various other drugs until 2005. I believe all these factors have contributed to my ETD. I was diagnosed with OCD and Generalized Anxiety Disorder two years ago and have been taking Effexor (Venlafaxine) to cope. An Ear, Nose, Throat doctor (currently called Head and Neck surgeon in US) prescribed me Flunisolide (corticosteroid) to reduce ETD inflammation. It seems to help a little, but it is certainly not a cure, even when used for a significant period of time (i.e. 3 weeks).
My ETD has been recently aggravated by my attempts to remove pimples and skin tags, which may be a symptom of OCD. Has anyone else experienced this situation? Numerous doctors say there is no connection between the skin abrasions and ETD, but they obviously don't have ETD.
Primarily, I am asking for information regarding ETD. I need to know the statistics of ETD so that I can develop a valid research proposal. Health organizations neglect to respond to my questions. It seems that most biological research is involved in diseases such as cancer and heart disease, which is great. But, as I am sure that anyone reading this knows, Eustachian Tube Dysfunction is a debilitating disease that hinders one's ability to live to their fullest potential. As I have recently graduated with a Bachelors degree. I am researching what my next step will be. I am strongly leaning towards statistics and data mining, since that is a much needed position in all research fields.
I am looking for information on the number of people with ETD worldwide and specific to certain regions. A timeline of ETD cases in these regions. Research groups, Academic and Professional, that are researching ETD. Research groups that are investigating ETD from the Neuroscience and/or Ear, Nose, Throat (Head and Neck surgery) perspective. Any other information is helpful as well, especially your own personal accounts of ETD. Please share your history, as much as you care to disclose, so that I can begin to develop an etiology of ETD.
I have read many of the other discussions on ETD and recognize that many of you are suffering and I certainly empathize with you all. I am still trying to decide if my anxiety disorders are the result of ETD, my ETD the result of my anxiety disorders, if they are mutually intertwined, and/or if something else is going on. I very much hope to hear from you so that we may begin to develop a cure for ETD so that we may not be hindered by this ruthless malfunction.
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a) What has caused my condition?
b) How can I cure it rather than just keep it at bay?
The experts don't seem to have much idea.
It all started about 3 years ago with pain in my descending colon and then in my groin area. At the same sort of time I became sensitive to coffee, alcohol spicy foods, fats, vinegar and lemon juice.
My GP has given me peppermint oil and Pregabalin. Pregabalin is good for general neuropathic pain associated with diabetes but much less effective on ibs pain.
ibs does get worse if you are stressed about something.
I have had a Colonoscopy, several X rays and a CT scan and you see absolutely nothing.
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So yesterday I went to see the RA and it appeared as if he cared. He explained that I was severe with FIBRO and that there isn't too much that he could do. He upped my LYRICA to 200 mg (not sure why as it gives me more issues than taking pain away) . He also suggested that I go to a Fibro Clinic in UF , some where in the panhandle of Florida, I can not do it (Finances, Insurance, I don't drive because of LYRICA) . He also gave me a referral for SUBOXONE This is a medicine that they usually give for people who have had problems with pain pills.The RA explained how he just read an article in how this could help me. Has any one else experienced this? Did it work?
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Selenium deficiency is considered by some naturopathic doctors the key to Fibromyalgia and CFS.
Some even relate it with animal “Nutritional muscular dystrophy” AKA “White muscle disease”.
Should we go to the vet?
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Fibro is a like a box of dark chocolate, each centered chocolate has a different symptom filling. And leaves a nasty taste in your mouth.
FIBRO FOG MISTY CENTRE
PAIN HOT CHILLI CENTRE
MIGRAINE
LEG PAIN
BACK PAIN
SHOULDER PAIN
NECK PAIN
HIP PAIN
TINNITUS
EARACHE
JAW ACHE
NUMBNESS
PINS NEEDLES
CHEST PAIN
BURNING
SORE THROAT
AND MANY MORE NEW SYMPTOM CENTRES TO COME
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I am stuck in a rut at the moment and can't seem to get myself out of it.
I am full of good intentions to go out and about, but when the day comes it's as if I am too scared to go through the door
Any ideas on how to get motivated?
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I've had problems all of my life and at the moment my condition has worsened, but unfortunately it's something that we don't talk about. I've got fibromyalgia, arthritis and herniated discs in my spine consequently I'm in a lot of pain all of the time so it's a catch 22 situation my tablets cause the constipation but I need my tablets! What's the answer?
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While the quantity of sleep can be important, what's much more important is the quality. Our bodies go through two distinct stages of sleep starting with non-REM (Rapid Eye Movement) and then into REM and cycling between the two throughout the night.
When we first fall asleep we drop into the non-REM cycle and this can be further broken down into three stages which move closer towards a deeper sleep. It's during the last stage where our bodies repair and heal and rebuild themselves. Non-REM sleep typically lasts up to 60-90 minutes with the majority of that time devoted to a deep sleep.
After this our bodies cycle into REM sleep. The main characteristic of this cycle is the eye movements that take place and before there were EEGs and ways of measuring muscle activity it was thought that our brains simply shut-off during sleep, this was far from the truth. During REM sleep our brains are quite active and this is the time when dreams occur, if you wake up and vividly remember a dream you were probably in the middle of REM sleep. It is also thought that REM sleep enhances our memory and contributes to our mental and emotional health. It's possible that during these two cycles of sleep we go through periods of maintaining our bodies and our minds.
Adults typically need between 7.5 to 9 hours of sleep a night and during this time our bodies will move through one cycle to the next and back several times. There are also a lucky few of us who seem to be able to function on less sleep...
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I'm a thirteen year old girl with an unhelpful doctor who literally doesn't want anything to do with me because I'm 'hard work' to diagnose. My family believes it's chronic fatigue syndrome, fibromyalgia or both. So that's the home treatment path I'm taking. My symptoms have been going for 6 months now and they are diarrhea, nausea, joint aches, headaches, fatigue, confusion, dizziness brain fog, tenderness, weakness and muscle pain. I've been tested for crohn's, ulcerative colitis, hypothyroidism, hyperthyroidism, parasites, dysbiosis, virus, infections and celiac disease. I also have eczema, restless legs, irritable bowel, anxiety and gastroesophageal reflux disease. I'm not under any stress at the moment.
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i am really struggling with my fibro. The doc has told me to persevere with this tablet. He has also gave me an anti sickness tablet. I would like to know people's experiences with this please.
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I'v just been given gabapentin from my doctor. Does anyone else take this and how do you get on with it?
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I was diagnosed with fibromyalgia about 18 months ago and I'm having a really bad flare up at the moment and still trying to work full time! I'm a beauty therapist so I Found I don't go in I let people down! I'm struggling to walk and my back and wrist is really swollen, I'm taking nurofen and paracetamol but they're not touching it.
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I went out for a meal with work on Saturday night and have been feeling under the weather ever since. I initially said I wouldn't go but it was a special evening and I really felt that I should make an effort and go. I only had one small beer and lemonade but the food wasn't what I would normally eat and I did feel stressed as I had to sit at the top table which made it difficult to hear and join in conversations. I went to bed about 11.30 and slept for 12 hours. I spent Sunday afternoon in my pjs and slept another 12 hours last night. My muscles have been really twitchy and jerky and my appetite has been down. Do any of you suffer in either a similar way or differently after going out?
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There are over 100 symptoms of fibromyalgia what symptoms have you experienced so far with fibro.
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i have had sjogrens since I was 41 years old, I'm now 74 . I've been told there's nothing can be done for it, it's just as I've got older I ache more and get extremely tired,I do go out walking with my dog to get some exercise, have a sit down , then do a few jobs , then sit down and so forth , sjogrens is not life threatening, but it changes your life completely .but it's nice to keep in touch with people who has this horrible condition.
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I got to see my RA again this Friday , he decided that I am in pain because tramadol is not enough during the day. So he wants me to take Lyrica during the day. I have been and it might be helping 10 percent but makes me want sleep and makes it hard to think. I have even stuttered a few times. My husband is sick of it , I am suppose to be ready to intern this Wednesday ,everyday til December 12th . I barely can walk for a few minutes, before I do the 90 year old walk. My husband is taking me to a pain management clinic, to help me out of pain. I would love to be out of pain and normal, but lets face it I am not too excited on treating the pain and not the problem. I don't take medicine, until now and everything I try I have the low percent chance of the side effects. I DON'T want a pain clinic, but I want to be done with this misery.
Update from yesterday , I woke up and my rear felt as if I had fallen . It felt bruised , it's not. Then I noticed my underarms are sore too. My hubby says that I didn't fall. However, I have been found to up in the middle of the night cleaning, my husband putting me back to sleep. I don't recall any of it in the morning. What can I DO ?
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Do anybody suffering with itchy skin, i have had it for weeks but just on my stomach and back, i take lots of medication but the same for a while, taking gabapentin, tramadol and co-codamol for the pain, but stopped the tramadol has read this can cause itching, but not got any better, is it linked with fibro do anybody know.
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I am wondering if anyone has tried taking gluten out of their diet. Has this made any improvement to them?
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