Fibromyalgia? Neuralgia? Spinal Spasm And Aches
Mar 20, 2016
I have never been so lost with my health. Someone smashed into me in recent years. From that moment, the list of what I've suffered is absolutely endless. So much so that I've lost confidence and most days don't know where I am with myself. Been to see two orthopaedics, yet they can find little wrong with me. Been referred to a rheumatologist under the question that I may have fibromyalgia. I was tested on "point" scale. Not only was I tender on all of the fibromyalgia points, but everywhere else, too. Then I get forwarded to a Consultant Neurologist. I get a diagnosis of Functional Neurological Symptoms.
Here's a list of some of the things I'm dealing with each day and night:
Spasms - Can be everywhere, but mainly through the spine and left side.
Shoulder and shoulder blade ache
Itching (very uncomfortable) but almost permanent and throughout the body and left side.
Collapsing. Mainly the left side, lower back, left hip and leg. No warnings, just gives way. Permanent pain in these areas, too.
Reduction in grip strength, plus some pain when trying to grip. Also, some pain when not trying to grip.
General muscle and joint aches and pains and nagging.
Neuralgia and nagging from neck upwards. Horrendous when trying to eat hot or cold food - so it usually has to be room temperature now. Yet can still get neuralgia.
Balance problems. Won't walk anywhere without my partner. I often drift, or body gives, or spasms, etc, so I have to hold on to him.
Crawling sensations throughout the skin (really uncomfortable) and awful restlessness. Often takes me ages to drift to sleep, even then I wake up tossing and turning. Which is unusual, because when I'm up and "trying" to do things, I feel permanently tired. I've felt lack of energy for very long now.
My mind goes blank, often in the middle of the sentence. Not only do I get words back to front, but I also say one word when I mean another, and they'll have no connection whatsoever.
I'm permanently forgetting things, which can be dangerous, because I'll put something in the oven and completely forget, which is why I will insist on waiting until my partner comes round to my flat.
The pain and discomforts I suffer can include the following and, often, all at once; muscle tightness, burning, itching, tingling, stabbing, shooting and I get cramps every day.
I suffer other symptoms, too. I also struggle to digest now.
When I do slightly collapse, ie, body gives (which is most days) the pain can be horrendous, even if just a threat, yet when I fully collapse, it is excruciating and I cannot get up off the floor for ages and then without help.
I don't know whether I have fibromyalgia or the diagnosis from the Neurologist, or both.
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I was looking for some help a couple of weeks ago i felt really ill like i was gonna get the flu aching all over only lasted about a day and a half but last weekend the same thing happened again was in tears with the pains and it lasted about 2 and a half days this time but now when i have the chance to get to docs i feel fine but am worrying its gonna happen again.
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I had this unit put in in Dem. 2013 but because of the lead trying to push through the back of my neck it had to be revised in August 2014. Was doing great until January 19, 2016 when the lead again pushed entirely through the skin on back of my neck. Now my insurance company will not approve for me to have another unit put back in. I was free 90% of the time with my unit in and now I am back to having so much pain in this area. It makes it very hard to have any quality of life except to wait around for another horrible burning pain that takes 3 mores days to overcome each time. Has anyone else had their insurance refuse this especially when it worked great?
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A month ago I was fine, no pain, no aches, nothing.
Then a small burning ache started in a precise spot on my right thigh.....then my breasts started to hurt.....then my elbow on my right arm..... Both sides of my ribs under my armpits.....my shin on my left leg and my inner thigh......then my whole left arm from wrist to armpit.
I feel like I've just been punched all over!
Blood Tests - normal
Urine test - normal
Stool sample - normal
ECG - normal
The pain isn't all the time, but in short sharp or short burning aches, it's stopping me from sleeping properly and its sometimes really scary when I get a sharp pain in my chest and left arm. It takes my breath away sometimes
I also get these strange "rushing" feelings in my chest/head when I lay down to sleep at night. Its almost like the rush you get when something makes you jump, but it lasts only a few seconds then it's gone. But I can have 3 or 4 of them in a row. But of course it's quite scary when you've no idea what they are.
Been in and out of doctors for weeks now and spent nearly £100 on prescriptions that haven't helped.
Been put on Amitriptyline 10mg for the pains but no change yet after a week, will keep taking for now though.
Im not convinced it's Fibromyalgia, but my doctor isn't the easiest to talk to.....
If anyone has any insight and can help me understand this all or maybe has any ideas please comment.
I'm 28, only other issue is PCOS but that doesn't give me much hassle.
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I had back surgery in March 2013 that left me with mechanical instability, acquired spondylolisthesis and lots of pain.
I have 2 ortho spine surgeons telling me that I need a bi-level spinal fusion surgery to repair the damage, but after the botched first surgery, the thought of another surgery scares me to death. Plus, since surgery is what spine surgeons do, the recommendation seems obvious.
I also started seeing a new pain management doctor (we moved to a new state) and he is suggesting that I consider a spinal cord stimulator trial, with surgical implantation if we find that it helps the pain.
So...I'm left confused. I see the positives and negatives of each, but I'm just not sure if one makes more sense over the other. I think that my spondylolisthesis will worsen over time and could pose a threat of nerve damage, while the spinal cord stimulator is designed to mask pain and does nothing to address the instability.
I'd love to know if anyone else has faced a similar decision...or has thoughts, ideas, comments, suggestions for considering one over the other.
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For GCA, I just dropped from 40 to 30 msg of prednisone. Suddenly I thought I was having a heart attack. The righting pain on chest and back would not let up. We were told to go to the ER where after a second hour and medical help while hooked up to who knows, the pain began to ease. I am now on antacids and tums. Eileen, I think I dropped too many mgs. I love the super go slowly taper, no more than 10% drop. Now I have to convince my rheumy. Has anyone else had severe spasms? I did not know what was happening .
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I was diagnosed with gallstones last 2014 but I only had my gallbladder removed through open cholecystectomy recently last November 29, 2015. The surgeons placed a t-tube drain and discharged me with it. They scheduled me for cholangiogram December 17, 2015 but the result showed that there's still a faint filling in the common bile duct so they scheduled for follow-up cholangiogram on January 4, 2016. During the second cholangiogram, this time there was a distinct pain during the procedure so they had to stop it. Two hours after, I know something was wrong because I felt cold then my temperature shoot up to 38.9 degree Centigrade. I felt slight pressure at the lower abdomen like I feel an urge to defecate and a few minutes I vomited. I was hospitalized, given antibiotics and hydrated. My doctor told me that it was an expected outcome after a cholangiogram. He said he would refer me to a hepatobiliary surgeon. I was checked by the specialist and told me that basing on the results there's still fragments left that's why a SPASM occurred during the cholangiogram. He's gonna perform a t tube choledochotomy. As of the moment, I noticed that I lost weight (8 lbs) after my hospitalization, continuously experienced itchiness and bitter after taste during meals. I also felt an on and off tingling sensation just below my operative site. Do I need to ask for second opinion?
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i am suffering HFS from five years. my one eye twitch very little from which i have suffered to see movement the things from eye. i suffered little twiching problem. in MRI scan report some error found. dr says for MVD operation.
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I am sitting at work, like always, when all of a sudden.... inside my head (in the top, middle, and behind my forehead) I began to feel what seemed to be a muscle spasm. What? Rationalizing, I think... Our brains are muscles. Right? So it could be a muscle spasm. Whoa... I feel dizzy and lightheaded for a little bit. Now, I feel like my head is full (stuffed full) of cotton or something. It isn't in my ears. It wasn't my eyes. It was "in my head". WOW.
I experienced this sensation of by brain shaking that was followed by dizziness. The "brain shake" felt like a jolt and then vibration/spasm that lasted about 5 seconds. I feel like the room is spinning and tilting and I was about to fall over (even though I was sitting down). The dizziness lasted about 2 minutes or so. The weird feeling of fullness in my head is still there.
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Does anyone experience body spasms kind of like your whole body wants to stretch and you can't stop it this only happens to me during the night .
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I have had this condition for almost ten years and although not painful it has altered my life by reducing my confidence.
i recently enquirer when at one of my Botox appointments if there were any new treatments and was told that surgery was now more successful.I have been offered an operation on the N.H.S. And am going through the decision .As I am quite a fit 66 year old I really don't want to be having Botox for possibly another 20 years!
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I have horrible muscle spasms in my back, sometimes they seem like cramps though. I turned 18 about a month ago, will a doctor prescribe me a muscle relaxer for this? Is there a different class of medication to look into that might be more effective? My dad recommended baclofen. I have read about some health complications using this though. Not asking how to get a RX. WILL they write me one or blow me off as an 18 year old drug seeker, and WILL it help (possibly). I've done trigger point injections, deep tissue PT for years and nothing helps. The problem comes back like a week after stopping and my insurance only covers x appointments. My therapist noticed my ribs keep elevating up and need popped back in place. This may be due to muscle spasms? I'm just tired. Tired of pain, doctors not doing anything, and nothing changing.
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Ok. 6 yrs ago I was diagnosed with erosive gastritis/mild esophagitis. I had a recent endoscopy which showed almost normal . Anyhow, a few months ago I was sleeping one night and i was awaken violently with the sensation something was choking my throat like a spasm I swallowed hard and the spasm went away . Any thoughts as to what that episode was??
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My symptoms are very sharp chest and back pain often also going around the ribs and they do feel like a heart attack. The only thing that relieves them is if I can make myself burp over and over to release the contraction. It seems what brings mine on is positional in nature - bending forward, even slightly or waking in the middle of the night with an attack, probably from bending forward in the fetal position without awareness. I was given nitroglycerin, which helps some but I wonder if anyone has found other things that work that do not involve drugs. I read somewhere that peppermint oil in a little water works but when I'm in the middle of one of these severe attacks I do not have the wherewithal to go get peppermint water. They feel that dire in nature, like it has to be relieved immediately! Again, only the burping regime has helped but not so great to have to do when out in public.
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For the last 3 days I've had muscle spasm on my right side-it doesn't hurt. It's more like twitching. I have been burping-maybe gas. I have worked out a lot but haven't since this started. I was just wondering if anyone gets these. I did soak in Epsom salts tonight but the twitches still happening. I have read people do get these-it just makes you nervous as you feel a loss of control over your body.
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I have just been diagnosed with Hemifacial Spasms at the age of 46 - since suffering from daily fluttering in my left eye. Thankfully at this stage it is still only affecting the left eye (I have had this since May last year) and hasn't spread anywhere else. I am beside myself with panic that I am going to end up abnormally deformed and disfigured very soon as it does start to include the rest of the face. Can anyone give a complete novice regarding HFS some advice. I only got the letter yesterday and don't see my Consultant until April and I am out of my mind at the outlook prognosis and what to expect. Is it really going to leave me looking disfigured permanently?
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I have had a "spasm" in my stomach for nine days. It it located about an inch to the left of my belly button and up a little higher. It feels like a mild labor contraction, though I'm a 48 year old female and not pregnant. It can also be described as a strong "butterfly" feeling. I have tried an anti-spasmodic medication, a muscle relaxer, and anti-inflammatories, though NOTHING relieves it. It spasms about every 10 seconds and lasts for about 1-2 seconds. My doctor couldn't feel a spasm. I've tried massage, heat, castor oil---nothing is helping. Any suggestions as to what it could be or how I can stop it from spasming?
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I have suspected bilateral diaphragm paralysis and increasing difficulties breathing and swallow king. Weak and short breath on inspiration and expiration and barely sleeping. Are there any exercises can be done at this late stage as now have impending feeling of doom. Have been told intervention is pointless.
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God this is really getting me down, to point I have been wondering if I am ever going to eat again and I am frightening myself with the thoughts I am having.
I just cannot swallow solid foods, it started 4 weeks ago. i was happily eating some chicken and all of a sudden my throat 'closed' and I choked. I managed to cough it back up and carried on eating after.
Next day, for love nor money could I swallow, each time I tried i choked.
4 weeks later and I still keep trying the odd bit of food here and there and it just won't go down.
I have had an endoscope - that was a highly unpleasant experience but it found nothing. I was told to go home and eat and to stop being so stressed.
I have been to seen a sports therapist and she has found that I have very very tight neck and jaw muscles. But it still feels like food won't go down, although I did feel better once I had seen her.
Trying to get another appointment with the doctor is like golddust.
I am normally a fit and healthy 37yr old woman, mum of three. I love my food and I want to eat. Thing is, this has gone on so long now I have gone past being hungry. I think this is probably a bit phycological now as well but the tightening really does happen.
The back of my neck, round to the front and up under the jaw is so tight.
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I am 8 weeks pregnant tomorrow, yay! I had 2 miscarriages last year and this would be my first baby so every little thing is making me panic slightly! I had an internal scan at 7 weeks and we saw a little jellybean with a heart beating it was amazing! Sonographer was very happy with how everything looked so that took a weight off my shoulders.
However for the past 2 days I have been getting these slight cramps/muscle spams in my right Lower back.. I'm not sure if it's where I sit at a computer all day or where I've been driving or maybe even slept funny but it's starting to worry me. It feels as though my muscle just along my waistline on my back is being pulled and stretched. It doesn't happen all the time just every now and then.
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It's been a week since the lower left side of my back has a spasm. Doctor said I have to walk it out. I'm 36 weeks and ready to have this baby already! Cold compresses work for only a little, the pain is excruciating. Anyone else gone through this?
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