Endometriosis :: Partial Hysterectomy - All Symptoms Are Back
Aug 29, 2014
I had a hysterectomy done in February of 2013, I had a partial, just my uterus and cervix removed so all that is left are my ovaries. Within the past month all of the same symptoms are back that I had before surgery. Severe pelvic pain, bloating, back pain, not sleeping, hurts to urinate and so on. I'm 27 years old and no kids and I felt it was my only option because I had so many laps done and there was nothing more to do other than the hysterectomy. So if there are some women out there that has had a full hysterectomy could you please tell me if its worth asking doctor to remove ovaries. Could really use some advice now or just to know there's more women out there around my age going through the same thing. Thanks for taking the time to read.
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I had a total hysterectomy due to endometriosis. i was put on climaval hrt patches after which caused headaches and pains and i was then changed to livial approx a year ago but for the last 2 to 3 months i have started to experience the abdomen pains, back pains, leg aches, exhaustion, joint pains and bloating etc that i had before my hysterectomy. its not as bad but its still bad enough to cause problems to my everyday life and routine especially with my 4 year old daughter here. please could anyone recommend any other hrt or treatment for hysterectomy after endometrial? i am now taking my co codamol and voltaren tablets for the pain that i was on before my op!
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I am 22 and the last couple weeks my breasts have been really hurting. The other night I noticed I had colostrum. I had a partial hysterectomy and only the uterus take out. I took a pregnancy test and it was negative what could be causing all of this.
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My wife was just told that her uterus is enlarged to a 12? I don't know what that means but I know it isn't good, her doctor suggested inserting an IUD to see if the size would go down, now she don't wanna that because it hurts when her uterus is touched, she's thinking partial hysterectomy and Im thinking that's not a good solution, why not try the IUD? There are a lot of things that complication wise that come with surgery, I'm guessing. What about hormones and other important things your uterus does it has to have more of a function than reproduction? What about sex, and Drive and mood and emotions it would probably cause a major chemical imbalance in a woman's life? She is looking for a second opinion on this IUD procedure like she rather not even give it a try need some advice or possible answers to share with her. Her health and well being are my biggest concern and for some reason I don't think surgery or removing major organs is good for her health or well being.
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I'm wondering what the symptoms are when endo attaches to the bowel?
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I saw my GYN today, and he thinks I may have endo.
Basically, at the same time of the month, every month (the week before my period), I experience severe nausea, and sometimes vomiting and stomach cramps. I've actually thought it was food poisoning, except that it literally occurs a week before my period starts. The first episode I remember was last April (the nausea was so bad, that my husband had to come pick me up from work), and again with really bad episodes in November and January (in January, the stomach cramps were so painful, I ended up in urgent care). With the last episode, the nausea persisted through the duration of my period.
But that being said, I don't feel like I have typical period endo symptoms. Cramps hurt, but are manageable. I tend to spot a few days before I start full flow, and I have heavy flow for 3-4 days, but then my period's gone after 7-8 days. Sex isn't painful. I feel random lower abdominal discomforts here and there (some twinges, or crampy feeling mid-cycle), but nothing that I feel is remarkable.
My GYN did an ultrasound today, and everything looked normal (no cysts or anything). He said, though, that given the timing and cyclical nature of my symptoms, endo is a possibility. My question is, has anyone else experienced purely GI symptoms? If so, what did you do to alleviate them? Did you have any other type of diagnostic test (lap, colonoscopy, endoscopy)?
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After years of pain, heavy periods, aches and really bad PMT I was finally diagnosed with endo about five years ago after scans and internal examinations. I was operated on and was ok for a couple of years. Then the symptoms returned and only after breaking down in the GPs room did they do the same again.
Just less than two years ago I started a new job but have had time off sick as my symptoms haven't improved. I'm tired, run down, back ache, stomach ache, pick up every could/bug going etc etc. Now I don't know what to do. My boss has called me in for a meeting about my sickness next week.
The Dr hasn't prescribed me anything but I feel all these symptoms are linked to endo and to the cyst I also had removed during my first op. I struggle almost daily. I'm sick of going to the doctor and begging, telling them I feel like rubbish.
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Background:
i have always had heavy painful periods. Initially they would come every 2 weeks and last 8-10 days. I was put on the pill and stayed on it for about 10 years (2011) when we decided to start our family. It largely controlled my symptoms with the exception of a handful of times when the pain was uncontrollable.
in 2010, I was diagnosed with ulcerative colitis (UC) after 12 months of on again off again diarrhea. Nothing could be seen during the colonoscopy but is showed up on the biopsies. Between 2010 and Jan 2012 when i fell pregnant i still had "flares" every 3-4 months. 1 flare while pregnant. C sect in sept 2012. My UC seemed slightly worse after the c section. Periods were irregular again and was recommenced on the pill which mostly controlled it however had some spotting and pain mid cycle. August 2013 i became pregnant again, apart from one big flare while pregnant my UC was great. i had another c section in May 2014.
Since then i have had nothing but trouble. Diarrhea every day since August last year, a good day is 6x a bad day is 20+x and disabling pain, bloating, fatigue.
i have had basically non stop bleeding, i will have red blood but only light every 2-3 months and in between i will have old blood for 2 days, stop for 1 day, go for 3 days, stop 2 days etc.
in july i was put on a special liquid diet to try get some vitamins, i was losing 1kg a day while on this diet. My bleeding and diarrhea stopped (it was partly digested so there wasn't really anything to leave my body, it was all absorbed).
as soon as i was put on normal food again my diarrhea and pain returned and my period was so heavy, worse than after both my kids put together.
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I am just diagnosed with endometriosis. I have mid cycle bleeding and heavy menses with clots during the day 2 & 3. Are these the normal symptom of endometriosis? I had HPV last year and Pap smear in April 15. All results normal. Will I be having something else?
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I am 54 years old mother of three and grandma. I am in perimenopause, symptoms bad depression where I wouldn't get out of bed. I was told years ago to have a hysterectomy because of fibroids but I haven't yet thinking I will get through this. I have a enlarged uterus due to fibroids and thickening wall of the uterus . I go in August for an sono and ultrasound to check uterine wall. This hormonal stuff is driving me crazy. I stay home, don't get out much and scared when my husband leaves to go to work.
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I'm 9 days post op, can anyone tell me, do I have to sleep on my back?
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I had a robotic hysterectomy Jan. 2010. I have had pain ever since. I have recently been diagnosed with nerve damage. Has anyone else had any kind of problems after the robotic surgery?
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Why am I in so much lower back pain, left side and my bladder hurts, I've had a vaginal hysterectomy and posterior repair. It can't be a water infection as I'm just finish the a course of antibiotic. Really fed up now. Is anyone else the same?
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I just left my post-op appointment for fibroid removal via abdominal myomectomy only to find out I have severe endometriosis. My OB/GYN says I have blocked fallopian tubes. I'm completely distraught. I'm 32, single, no children (would like all that sooner than later) and had the fibroids removed so that my uterus would have the "all clear" for babies someday. My doc says there was no way to know this prior to surgery and that the most severe cases are asymptomatic. As he spoke, I zoned out. I recall him saying he tried to remove the scarring and tried to see if the tubes would open bla bla bla. I don't know why I didn't ask for a pathology report or pictures, sizes weights.
Looking back, when he visited my hospital room the third day after surgery, I was told 4 fibroids were removed, but was initially told I had 7. I was in an anesthesia induced haze, so I didn't really hear much else. Today I asked about the 4 vs 7 fibroids and he said he removed all the fibroids that he could see. What the heck does that mean? Does that mean I still have 3 in there somewhere or did they shrink from the 5 months of hellish Lupron injections? I've noticed when I'm in shock, I forget to ask important follow up questions such as "Soooooo are there still some in there?"
At this point, I'm not sure what to do, with so many issues going on. In addition to dealing with this, I have other issues such as intense muscle spasms that can't be diagnosed, thinning hair and a balding crown. I'm not ready for children, but I'm extremely worried. I don't want to go through complicated pregnancies (if I can even get pregnant), miscarriages, IVF. It's just too much. According to the doc, I'll be reproductively old in 3 years (thanks for the added pressure)! I'd appreciate any advice anyone can give. I was only prepared to deal with the fibroids as endometriosis does not run in my family and I have no idea where it came from.
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Hi 47yr old male, who has had 2 lots of banding done over a 5yr period, last lot of banding 5 weeks ago. Now what seems is like 4 is back again, i cannot believe this? i thought i would get at least a year rest...... It's depressing me the pain. They are mostly internal but noticed i can feel them if i put my finger there. So i use Lignocaine for pain, helps mostly, yesterday was bad, not today when i need BM i put it of for fear of the pain...Is there any quick way to get rid of these or least make them less painful?, I'm taking 2 senna tablets a day, with Flaxseed at night on cereal... and using the occasional Microlax if i feel constipated. Because i am on an Opiate based medication, it's not helping. But i am beginning to get really depressed over this and making my life miserable and it's controlling my days i wont go for drives etc..as i hate sitting on hard seats.
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for about a week i have had periodic "heat flashes" in the back of my right leg from the foot to the back of the knee. Not painful, but odd sensation like hot compress being applied. happens 8-10 times a day when i am sitting or standing. Had a severe leg cramp, charlie horse, about 1 1/2 weeks ago so thought symptoms might be related. went to my MD who told me no danger of blood clot (would be very severe pain, swelling, hot to touch). said probably related to leg cramp and advised me to do more walking (i sit in an office chair all day) and to do exercises consisting of pushing left down down as far as it will go for 5 seconds, then arching up for 5 seconds, for 10 times. She likely due to spasms and that hot flash is due to when blood vessels stop dilating (???). I will try this recommendation for one week and will let you know, but I am not very confident that this will work.This discussion is related to Strange feeling of heat in my leg.
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I have been dealing with angina for a year now and it has been controlled with medication called Ranexa, but over the past three weeks my systems have came back and they are severe and more often! I have to keep nitro with me at all times now cause I am have at least four to five attacks a day. I am scared to drive due to this. There has been no change in my medication so I do not understand what's going on. I contacted my heart dr and all he said was I needed to exercise more. I mean I get that and I'm not a lot over weight but I could lose five to ten pounds. So does anyone have any suggestions? I'm afraid I'm going to die of a heart attack cause the pain is going down my arm and now sometimes up my neck and jaw!
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I had the Nissen fundoplication in 2011 for a hiatus hernia, for the past year have been getting my symptoms back and have been struggling with lifting and bending as makes my symptoms worse.
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I've heard u get the symptoms that u had in the first trimester come back in the third. Does this always happen? I've had a very easy pregnancy so far. My first trimester I had very sore breasts and was really tired and that was about it. Now I'm 29 wks and feel just fine other than my back aches. Does everyone's symptoms come back like first trimester? What symptoms did u notice?
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I been having all the symptoms of endo. The lower back pain, pelvic, stomach pain, bloating. I also have leg pain which im not sure is linked to endo but my pain is constant as i've had it non stop for a month now but feel worse when im on my period.
I have been to the doctors as he said it could be a possible ovarian cyst but he didn't really know so he is referring me for a ultrasound which wont be for a couple of weeks!! He did no other tests apart from a urine test (still waiting on results)
My mum has told me both my cousins have endo and im just wondering if its genetic?
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Long story short, I've been suffering from excruciatingly debilitating cramps every single cycle,this started three ish years ago I spend hours in the ER I've been admitted few times as well and it's the same bloody routine every single time
I'm in immobilizing pain, cold and hot flashes, nausea, vomiting fainting poor appetite dehydration low blood sugar levels heart palpitations weakness fatigue exhaustion crankiness moody insomnia etc etc
All these symptoms I experience up to two weeks before my period then during the first 3-4 days of my period then total exhaustion few days after my period and I'm symptom free a week before my period give and take. I should also mention that I've had several x-rays, ultrasounds and all kinds of blood tests and everything comes out good healthy and no problems yet I have these symptoms that just don't seem to go away, last stop for me was a visit to an endocrinologist and he's taking care of my thyroid problem given a new doze a little over a month ago and things are looking fine on that end I had a referral from him to see a gynecologist in mid September but having been bed bound with all the symptoms and persistent pain on my right abdomen I spent the night in the hospital and everything came out good both the blood and the urine tests and the ultrasound and regardless of how many drugs were given to me via an IV I was still experiencing bad persistent tedious excruciatingly painful pain on the right side of my abdomen so the gynecologist today discussed laparoscopy with me and I felt so comfortable around her and being as fed up as I am with all this pain I said I'll go for it
It will be a Diagnostic Laparoscopy for Endometriosis she put it as urgent and she'll be the one performing the procedure I'm happy things will finally start to clear out and hopefully I'll be in my way to some kind of cure hopefully but I'm so nervous please help any words of comfort or advice will be greatly appreciated. I did half the paper work already and I'll have some more to do the day of I have a really good doctor guiding me thru this call me weak or crazy but I'm incredibly nervous.
It would be nice to hear from anyone who's done this kind of procedure please BTW I'm 23 years old, healthy no health complications non smoker or drinker
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