Endometriosis :: Could Be Genetic?
Jan 2, 2016
I been having all the symptoms of endo. The lower back pain, pelvic, stomach pain, bloating. I also have leg pain which im not sure is linked to endo but my pain is constant as i've had it non stop for a month now but feel worse when im on my period.
I have been to the doctors as he said it could be a possible ovarian cyst but he didn't really know so he is referring me for a ultrasound which wont be for a couple of weeks!! He did no other tests apart from a urine test (still waiting on results)
My mum has told me both my cousins have endo and im just wondering if its genetic?
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I just left my post-op appointment for fibroid removal via abdominal myomectomy only to find out I have severe endometriosis. My OB/GYN says I have blocked fallopian tubes. I'm completely distraught. I'm 32, single, no children (would like all that sooner than later) and had the fibroids removed so that my uterus would have the "all clear" for babies someday. My doc says there was no way to know this prior to surgery and that the most severe cases are asymptomatic. As he spoke, I zoned out. I recall him saying he tried to remove the scarring and tried to see if the tubes would open bla bla bla. I don't know why I didn't ask for a pathology report or pictures, sizes weights.
Looking back, when he visited my hospital room the third day after surgery, I was told 4 fibroids were removed, but was initially told I had 7. I was in an anesthesia induced haze, so I didn't really hear much else. Today I asked about the 4 vs 7 fibroids and he said he removed all the fibroids that he could see. What the heck does that mean? Does that mean I still have 3 in there somewhere or did they shrink from the 5 months of hellish Lupron injections? I've noticed when I'm in shock, I forget to ask important follow up questions such as "Soooooo are there still some in there?"
At this point, I'm not sure what to do, with so many issues going on. In addition to dealing with this, I have other issues such as intense muscle spasms that can't be diagnosed, thinning hair and a balding crown. I'm not ready for children, but I'm extremely worried. I don't want to go through complicated pregnancies (if I can even get pregnant), miscarriages, IVF. It's just too much. According to the doc, I'll be reproductively old in 3 years (thanks for the added pressure)! I'd appreciate any advice anyone can give. I was only prepared to deal with the fibroids as endometriosis does not run in my family and I have no idea where it came from.
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Because of a genetic illness, I'm chronic constipated. (for 3 years)
Probably because of a coordination issue in my bowels and reduced muscle strength.
I take Molaxole every day but it's not enough, I often have to take 8 Molaxole-doses in 6 hours to empty my bowels.
Is there something else that can help me have a good bowel movement?
Is there something that improves the movement of the muscle tissue in my bowel wall?
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Seems like I have eye bags "running" in my family. My mom has them and she's been using numerous creams and potions and what-else to get rid of them but nothing seem to work properly. Is there something i can do to prevent them or I just have to get used to idea that i will be having eye bags?
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I turned it down but I wanted to know if anyone else got it done...
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My wife's past WBC count was always about 5. She just recently had a test and it is 3.7 and has been flagged as low on her health records (nurse didn't mention it but she has only seen her online records since speaking to the nurse).
Now she is worried because her father died of leukemia. Is this white blood cell count dangerously low or unlikely to be anything serious?
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Can you tell me something about cystic fibrosis carriers for I am planning on getting pregnant but I am afraid that my baby could be born with cystic fibrosis for my mum has the illness and I know it is inherited and I know I am cystic fibrosis carrier. So do you think I should get pregnant with this cystic fibrosis carriers history and how could this possibly affect my baby health condition?
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has anyone gotten a false genetic testing . They have told me my baby neck is 6mm away and it has to be 3mm . Has anyone gotten the same problem and later everything was fine ?
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How accurate are blood test
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I just wanted to know if Bipolar is genetic. My was recently told that my grandad is bipolar and wondered if I was to as I believe I have some sort of mental problem. I don't really know much about bipolar and be good to learn about it also, not just from reading books and websites but from people who actually experience it themselves or with other people.
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Are brain tumors hereditary? My Dad my Brother and just now, my nephew died from one.
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I have been taking antidepressant for almost an year. I changed few brands, nothing was helpful for me.
Recently I learned that there is a genetic test for antidepressant. I wonder if I can order it by Internet. I live outside of US and here there is no chance to find one.
Do you know if it's possible to order genetic test kid by Internet?
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I have a 10 year old son who is diagnosed with ADHD, Anxiety, SPD/IPD and rule out of Asperger's/PDD in 2013. Currently, we have him on Methylphenidate ER 30mg per day, but lately we have been noticing issues. Mind you, the school hasn't been very helpful this year with information on how he is doing so I can only go by the vague messages received... the first 6 months, they say he was great! Though I have documents to prove otherwise - lately though, the teacher keeps saying he lacks focus, needs to pay attention and all that jazz. (I say it so flippantly because this teacher has been a pain to work with.
I spoke with the doctor and she wants us to come in next week to discuss his meds, but we have had issues with additives in the past and it's not a route I want to go... to sit and wait. His diet is modified already, we also work with a behavioral therapist and a chiropractic neurologist and he takes Taekwondo.
With all this, I'm wondering if anyone has tried the genetic testing (IE: HarmonyX or Genesight) to see what meds would work best with his specific genetic makeup?
I read all these stories of parents having all these issues and suddenly their kids are on Vyvanse or something else and it's a miracle. I wouldn't mind that... him being able to function better at school (academically and socially) ... he gets bullied (though he can start it up too) - I just wonder, what next?
Here is his medication history:
August 2011 – Vyvanse ??mg (very small amount)
September 2011 – Vyvanse 30mg (adjusted to 30 mg)
May 2012 – Trial samples of Intuniv w/ Vyvanse for two weeks. After two weeks he was out of school and parents decided not to continue the Intuniv.
September 2013 – Intuniv 2mg w/ Vyvanse
September 2013 – Concerta 36mg (removed from Vyvanse and Intuniv because he became over-emotional and violent/aggressive)
December 2013 - Concerta 54mg (Dr. Snyder prescribed)
March 2014 – Methylphenidate 10mg (3 times a day) (March 7th thru March 14th)
Methylphenidate 15mg (3 times a day) (started March 15th)
April 2014 – Methylphenidate 20mg (3 times a day) (started April 14th)
May 2015 – Adderall (adderall) 10mg (3 times a day) (started May 14th)
June 2015 – Adderall (adderall) 15mg (3 times a day) (started June 3rd)
August 2015 – Guanfacine 1/2mg (3 times a day) (started August 21st)
September 2015 – Methylphenidate ER 30mg (once a day) (started September 6th)
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I am told by a cousin that it is "in our genes" My dad had it and now my aunt has it both on father's side.
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Long story short, I've been suffering from excruciatingly debilitating cramps every single cycle,this started three ish years ago I spend hours in the ER I've been admitted few times as well and it's the same bloody routine every single time
I'm in immobilizing pain, cold and hot flashes, nausea, vomiting fainting poor appetite dehydration low blood sugar levels heart palpitations weakness fatigue exhaustion crankiness moody insomnia etc etc
All these symptoms I experience up to two weeks before my period then during the first 3-4 days of my period then total exhaustion few days after my period and I'm symptom free a week before my period give and take. I should also mention that I've had several x-rays, ultrasounds and all kinds of blood tests and everything comes out good healthy and no problems yet I have these symptoms that just don't seem to go away, last stop for me was a visit to an endocrinologist and he's taking care of my thyroid problem given a new doze a little over a month ago and things are looking fine on that end I had a referral from him to see a gynecologist in mid September but having been bed bound with all the symptoms and persistent pain on my right abdomen I spent the night in the hospital and everything came out good both the blood and the urine tests and the ultrasound and regardless of how many drugs were given to me via an IV I was still experiencing bad persistent tedious excruciatingly painful pain on the right side of my abdomen so the gynecologist today discussed laparoscopy with me and I felt so comfortable around her and being as fed up as I am with all this pain I said I'll go for it
It will be a Diagnostic Laparoscopy for Endometriosis she put it as urgent and she'll be the one performing the procedure I'm happy things will finally start to clear out and hopefully I'll be in my way to some kind of cure hopefully but I'm so nervous please help any words of comfort or advice will be greatly appreciated. I did half the paper work already and I'll have some more to do the day of I have a really good doctor guiding me thru this call me weak or crazy but I'm incredibly nervous.
It would be nice to hear from anyone who's done this kind of procedure please BTW I'm 23 years old, healthy no health complications non smoker or drinker
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I'm wondering what the symptoms are when endo attaches to the bowel?
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If I use Cataflam for severe endometriosis, should this drug prevent new outcome of my disease. I understood that Cataflam is NSAIDs and that it is usually is used to treat pain. However, Cataflam should have some anti-inflammatory potential, so I hope that it would help. How am I supposed to deal with this disease?
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I am 18 years girl with height of 5.2' and 115 lbs. my ultrasound report says my endometrial thickness is 10.2mm and the doctor said its bulky. Does my uterus is really bulky? if so what should i have to do? what are the possible risks and treatments?
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I have been diagnosed with Endometriosis in the lung. I was wondering if any one else out their had this condition? It's such a rare condition doctors don't know what to do...
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I was diagnosed w/ Metabolic mitochondrial myopathy over 10 years ago. Right now I am struggling with the worst illness I have ever had. Started about 5 weeks when I woke up I noticed every time I breath in it stinks. Since then I have gotten weaker and very sick. I have bouts of vomiting, diarrhea, constipation, my head feels full, burning pressure in my ears and sinuses. My shoulders hurt so it feels like my arms will fall off. I also am having problems with this weird pain in my back & stomach, it feels swelled and I feel raw all the way down to my bladder. At times it feels like burning raw sensation all over. My face feels numb and my left foot. I know this makes me sound crazy, it is making me crazy but I just can't seem to will myself to get better. Every day I wake up with some hope and it's the same thing every day. All I have had was a z pack of antibiotics witch seemed to help a tiny bit,(I am able to sit up a little longer)but I can't stop feeling horribly sick & weak.
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I`m pregnant and the problem occurred when I found out that I got cystic fibrosis. I know it`s a genetic disease. I fear for my baby. Is there anybody with experience who could tell me something about that? How is CF inherited?
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