Endometriosis :: Symptoms Returned After 2 Years
Apr 28, 2016
After years of pain, heavy periods, aches and really bad PMT I was finally diagnosed with endo about five years ago after scans and internal examinations. I was operated on and was ok for a couple of years. Then the symptoms returned and only after breaking down in the GPs room did they do the same again.
Just less than two years ago I started a new job but have had time off sick as my symptoms haven't improved. I'm tired, run down, back ache, stomach ache, pick up every could/bug going etc etc. Now I don't know what to do. My boss has called me in for a meeting about my sickness next week.
The Dr hasn't prescribed me anything but I feel all these symptoms are linked to endo and to the cyst I also had removed during my first op. I struggle almost daily. I'm sick of going to the doctor and begging, telling them I feel like rubbish.
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Had TURP many years ago but old problems have returned.
Urologist has said I need TURP doing again and has placed me on waiting list. I have great difficulty peeing, doesn't completely void and dribbles when I put it away. Surgeon has offered to put a Foley Catheter in while I am awaiting surgery but as far as I can remember the Foley was only used following surgery. Should I agree to having this catheter inserted to relieve symptoms while I'm waiting?
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I'm wondering what the symptoms are when endo attaches to the bowel?
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I saw my GYN today, and he thinks I may have endo.
Basically, at the same time of the month, every month (the week before my period), I experience severe nausea, and sometimes vomiting and stomach cramps. I've actually thought it was food poisoning, except that it literally occurs a week before my period starts. The first episode I remember was last April (the nausea was so bad, that my husband had to come pick me up from work), and again with really bad episodes in November and January (in January, the stomach cramps were so painful, I ended up in urgent care). With the last episode, the nausea persisted through the duration of my period.
But that being said, I don't feel like I have typical period endo symptoms. Cramps hurt, but are manageable. I tend to spot a few days before I start full flow, and I have heavy flow for 3-4 days, but then my period's gone after 7-8 days. Sex isn't painful. I feel random lower abdominal discomforts here and there (some twinges, or crampy feeling mid-cycle), but nothing that I feel is remarkable.
My GYN did an ultrasound today, and everything looked normal (no cysts or anything). He said, though, that given the timing and cyclical nature of my symptoms, endo is a possibility. My question is, has anyone else experienced purely GI symptoms? If so, what did you do to alleviate them? Did you have any other type of diagnostic test (lap, colonoscopy, endoscopy)?
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Background:
i have always had heavy painful periods. Initially they would come every 2 weeks and last 8-10 days. I was put on the pill and stayed on it for about 10 years (2011) when we decided to start our family. It largely controlled my symptoms with the exception of a handful of times when the pain was uncontrollable.
in 2010, I was diagnosed with ulcerative colitis (UC) after 12 months of on again off again diarrhea. Nothing could be seen during the colonoscopy but is showed up on the biopsies. Between 2010 and Jan 2012 when i fell pregnant i still had "flares" every 3-4 months. 1 flare while pregnant. C sect in sept 2012. My UC seemed slightly worse after the c section. Periods were irregular again and was recommenced on the pill which mostly controlled it however had some spotting and pain mid cycle. August 2013 i became pregnant again, apart from one big flare while pregnant my UC was great. i had another c section in May 2014.
Since then i have had nothing but trouble. Diarrhea every day since August last year, a good day is 6x a bad day is 20+x and disabling pain, bloating, fatigue.
i have had basically non stop bleeding, i will have red blood but only light every 2-3 months and in between i will have old blood for 2 days, stop for 1 day, go for 3 days, stop 2 days etc.
in july i was put on a special liquid diet to try get some vitamins, i was losing 1kg a day while on this diet. My bleeding and diarrhea stopped (it was partly digested so there wasn't really anything to leave my body, it was all absorbed).
as soon as i was put on normal food again my diarrhea and pain returned and my period was so heavy, worse than after both my kids put together.
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I had a hysterectomy done in February of 2013, I had a partial, just my uterus and cervix removed so all that is left are my ovaries. Within the past month all of the same symptoms are back that I had before surgery. Severe pelvic pain, bloating, back pain, not sleeping, hurts to urinate and so on. I'm 27 years old and no kids and I felt it was my only option because I had so many laps done and there was nothing more to do other than the hysterectomy. So if there are some women out there that has had a full hysterectomy could you please tell me if its worth asking doctor to remove ovaries. Could really use some advice now or just to know there's more women out there around my age going through the same thing. Thanks for taking the time to read.
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I am just diagnosed with endometriosis. I have mid cycle bleeding and heavy menses with clots during the day 2 & 3. Are these the normal symptom of endometriosis? I had HPV last year and Pap smear in April 15. All results normal. Will I be having something else?
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I have a burning question on the extended use of Norethisterone (5 mg). I have been diagnosed with endometriosis and my right ovary was surgically removed three years ago. Since the surgery, I have been put on this medication and I'm wondering whether I am the only one taking Norethisterone for 3 years and what kind of effects will it have one me?
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22 yrs old unmarried and endometrial thickness is 17mm.
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I just left my post-op appointment for fibroid removal via abdominal myomectomy only to find out I have severe endometriosis. My OB/GYN says I have blocked fallopian tubes. I'm completely distraught. I'm 32, single, no children (would like all that sooner than later) and had the fibroids removed so that my uterus would have the "all clear" for babies someday. My doc says there was no way to know this prior to surgery and that the most severe cases are asymptomatic. As he spoke, I zoned out. I recall him saying he tried to remove the scarring and tried to see if the tubes would open bla bla bla. I don't know why I didn't ask for a pathology report or pictures, sizes weights.
Looking back, when he visited my hospital room the third day after surgery, I was told 4 fibroids were removed, but was initially told I had 7. I was in an anesthesia induced haze, so I didn't really hear much else. Today I asked about the 4 vs 7 fibroids and he said he removed all the fibroids that he could see. What the heck does that mean? Does that mean I still have 3 in there somewhere or did they shrink from the 5 months of hellish Lupron injections? I've noticed when I'm in shock, I forget to ask important follow up questions such as "Soooooo are there still some in there?"
At this point, I'm not sure what to do, with so many issues going on. In addition to dealing with this, I have other issues such as intense muscle spasms that can't be diagnosed, thinning hair and a balding crown. I'm not ready for children, but I'm extremely worried. I don't want to go through complicated pregnancies (if I can even get pregnant), miscarriages, IVF. It's just too much. According to the doc, I'll be reproductively old in 3 years (thanks for the added pressure)! I'd appreciate any advice anyone can give. I was only prepared to deal with the fibroids as endometriosis does not run in my family and I have no idea where it came from.
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Has this happened to anyone else. I had my op 18 months ago and they have returned with a vengeance !!
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I had the Nissen fundoplication in 2011 for a hiatus hernia, for the past year have been getting my symptoms back and have been struggling with lifting and bending as makes my symptoms worse.
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I have this bacteria called IMPETIGO. To be honest it's the worst thing I had in my life. I'm 18 years old and having this kind of bacteria is simply awful. It all started when I returned from the sea side, I was there on holiday with my best friend. During the trip I had nothing, everything was fine, but the last day a juicy wound appeared on my knee. It was itching a bit. The next day when I arrived home another one appeared on my FACE! I was traumatized! I stood like this for 2-3 days, after I told my mom she took me to a specialist. The doctor gave me antibiotics and Fucidin cream. I started the treatment about 3 days ago, the wounds are looking better now. The major problem is that in 6 days from now I'm leaving to London to visit some relatives and they have a daughter, she's 10. I'm so scared that I could give this bacteria to her, I feel so embarrassed. Please help me, could someone tell me if there is any possibility that I can avoid this ?
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I've recently come off the microgynon i'm a bit worried as my period hasn't returned (it's only been a month) but because of my age and my parents views obviously i want to know sooner rather than later if this is normal?
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I am nearly 6 weeks post op decompression of L4-5 and have severe nerve pain returned in both legs. Up to now all I have been told is it is early days, but as time goes on, it is getting worse. Has anyone else any experience with this problem. I can't get an appointment with the surgeon for another 6 weeks and am getting very frustrated.
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I been having all the symptoms of endo. The lower back pain, pelvic, stomach pain, bloating. I also have leg pain which im not sure is linked to endo but my pain is constant as i've had it non stop for a month now but feel worse when im on my period.
I have been to the doctors as he said it could be a possible ovarian cyst but he didn't really know so he is referring me for a ultrasound which wont be for a couple of weeks!! He did no other tests apart from a urine test (still waiting on results)
My mum has told me both my cousins have endo and im just wondering if its genetic?
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Long story short, I've been suffering from excruciatingly debilitating cramps every single cycle,this started three ish years ago I spend hours in the ER I've been admitted few times as well and it's the same bloody routine every single time
I'm in immobilizing pain, cold and hot flashes, nausea, vomiting fainting poor appetite dehydration low blood sugar levels heart palpitations weakness fatigue exhaustion crankiness moody insomnia etc etc
All these symptoms I experience up to two weeks before my period then during the first 3-4 days of my period then total exhaustion few days after my period and I'm symptom free a week before my period give and take. I should also mention that I've had several x-rays, ultrasounds and all kinds of blood tests and everything comes out good healthy and no problems yet I have these symptoms that just don't seem to go away, last stop for me was a visit to an endocrinologist and he's taking care of my thyroid problem given a new doze a little over a month ago and things are looking fine on that end I had a referral from him to see a gynecologist in mid September but having been bed bound with all the symptoms and persistent pain on my right abdomen I spent the night in the hospital and everything came out good both the blood and the urine tests and the ultrasound and regardless of how many drugs were given to me via an IV I was still experiencing bad persistent tedious excruciatingly painful pain on the right side of my abdomen so the gynecologist today discussed laparoscopy with me and I felt so comfortable around her and being as fed up as I am with all this pain I said I'll go for it
It will be a Diagnostic Laparoscopy for Endometriosis she put it as urgent and she'll be the one performing the procedure I'm happy things will finally start to clear out and hopefully I'll be in my way to some kind of cure hopefully but I'm so nervous please help any words of comfort or advice will be greatly appreciated. I did half the paper work already and I'll have some more to do the day of I have a really good doctor guiding me thru this call me weak or crazy but I'm incredibly nervous.
It would be nice to hear from anyone who's done this kind of procedure please BTW I'm 23 years old, healthy no health complications non smoker or drinker
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If I use Cataflam for severe endometriosis, should this drug prevent new outcome of my disease. I understood that Cataflam is NSAIDs and that it is usually is used to treat pain. However, Cataflam should have some anti-inflammatory potential, so I hope that it would help. How am I supposed to deal with this disease?
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I am 18 years girl with height of 5.2' and 115 lbs. my ultrasound report says my endometrial thickness is 10.2mm and the doctor said its bulky. Does my uterus is really bulky? if so what should i have to do? what are the possible risks and treatments?
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I have been diagnosed with Endometriosis in the lung. I was wondering if any one else out their had this condition? It's such a rare condition doctors don't know what to do...
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I am a 17 y/o girl. I am looking for some insight regarding possible endometriosis. I am sexually active, but last time anything happened was in September, and we used protection. I have since had 2 relatively normal menstrual periods. But, I have since had some weird symptoms, including irregular spotting in September between periods, (about a week after the last time we had sex), painful, noticeable veins (in chest, right side of abdomen, etc) some that radiate down from my pelvic area to my right leg (same side cyst is typically on), cramping, slight constipation/gas, and nipples slightly bigger than usual. About 5 years ago, I began having pretty localized right sided pelvic pain. Thinking this pain was possible appendicitis, I went to the ER. They did both a CT and ultrasound, and determined I had an ovarian cyst on my right ovary. Over the past few years, I've had relatively heavy, painful periods, sometimes irregular depending on the month. In Between periods I am generally in some type of pain, typically menstrual type cramps on my right side, radiating to the left. I had regularly experienced nausea alongside these cramps, pressure in pelvic area, and back pain. Every single time I have gone to the ER & gyn in the past 5 years, I have had a cyst on my right ovary. This last time I had an ultrasound done in August, a cyst was found again, but slightly bigger this time. My gyno also informed me that she was slightly confused by the cyst, since it was located slightly to the left of the cyst, and did not appear to be directly attached to it. I am curious if I possible have endometriosis, or a pregnancy is possible? I know I've had two periods on time since having sex, and we were protected. But, I am curious if endometriosis seems possible regarding the recurring cysts and symptoms, or if I am possibly pregnant, since I have never really experienced the radiating pain from the right side down my leg before.
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