Endometriosis :: Effects Of Norethisterone After 3 Years Of Use?
May 10, 2016
I have a burning question on the extended use of Norethisterone (5 mg). I have been diagnosed with endometriosis and my right ovary was surgically removed three years ago. Since the surgery, I have been put on this medication and I'm wondering whether I am the only one taking Norethisterone for 3 years and what kind of effects will it have one me?
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Well here I am back on Norethisterone again after a 4 year break. I didn't want to take them again because I put a lot of weight on but it is necessary because I can't stop bleeding. The distress of constant bleeding which in itself causes anxiety, the tiredness and not been able to go out. Sometimes you have to give in, get yourself right to start again.Unfortunately there seems to be nothing else. Apparently at 53 I am too old to have a Hysterectomy so I am anxiously awaiting menopause.
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After years of pain, heavy periods, aches and really bad PMT I was finally diagnosed with endo about five years ago after scans and internal examinations. I was operated on and was ok for a couple of years. Then the symptoms returned and only after breaking down in the GPs room did they do the same again.
Just less than two years ago I started a new job but have had time off sick as my symptoms haven't improved. I'm tired, run down, back ache, stomach ache, pick up every could/bug going etc etc. Now I don't know what to do. My boss has called me in for a meeting about my sickness next week.
The Dr hasn't prescribed me anything but I feel all these symptoms are linked to endo and to the cyst I also had removed during my first op. I struggle almost daily. I'm sick of going to the doctor and begging, telling them I feel like rubbish.
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22 yrs old unmarried and endometrial thickness is 17mm.
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I just left my post-op appointment for fibroid removal via abdominal myomectomy only to find out I have severe endometriosis. My OB/GYN says I have blocked fallopian tubes. I'm completely distraught. I'm 32, single, no children (would like all that sooner than later) and had the fibroids removed so that my uterus would have the "all clear" for babies someday. My doc says there was no way to know this prior to surgery and that the most severe cases are asymptomatic. As he spoke, I zoned out. I recall him saying he tried to remove the scarring and tried to see if the tubes would open bla bla bla. I don't know why I didn't ask for a pathology report or pictures, sizes weights.
Looking back, when he visited my hospital room the third day after surgery, I was told 4 fibroids were removed, but was initially told I had 7. I was in an anesthesia induced haze, so I didn't really hear much else. Today I asked about the 4 vs 7 fibroids and he said he removed all the fibroids that he could see. What the heck does that mean? Does that mean I still have 3 in there somewhere or did they shrink from the 5 months of hellish Lupron injections? I've noticed when I'm in shock, I forget to ask important follow up questions such as "Soooooo are there still some in there?"
At this point, I'm not sure what to do, with so many issues going on. In addition to dealing with this, I have other issues such as intense muscle spasms that can't be diagnosed, thinning hair and a balding crown. I'm not ready for children, but I'm extremely worried. I don't want to go through complicated pregnancies (if I can even get pregnant), miscarriages, IVF. It's just too much. According to the doc, I'll be reproductively old in 3 years (thanks for the added pressure)! I'd appreciate any advice anyone can give. I was only prepared to deal with the fibroids as endometriosis does not run in my family and I have no idea where it came from.
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I suffer from bipolar and sleep disorders. My dr. prescribed many different things and nothing worked until the dosage of Seroquel was up to 600mg per night. Even at this dose I'm not sleeping more than 2 hours at a time. My weight has soared from 130 to 195 over the past couple of years. I'm afraid to try something different but am also scared of long term side effects
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I'm currently taking Oxytetracycline pills for my skin, and I'm planning to start taking Norethisterone pills in the next day or so - is there any problem taking these two pills together?
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after having unprotected sex can norethisterone help?
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My 18 year old daughter has been prescribed Norethisterone for prolonged bleeding and pain (possibly endometriosis but not yet diagnosed). The instructions on the pack were to take for a maximum of 10 days at a time. She started them today whilst already bleeding; we are very confused as to what happens after 10 days. She has to stop taking it and presumably then will resume bleeding as this may well be caused by the mini-pill she is on (the name of which escapes me). How long does she have to wait before taking Norethisterone again?
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I was told 12 years ago after having my first child that I would never be able to conceive naturally again due to problems which resulted in blocked Fallopian tubes! I conceived my second daughter through ivf who is now 6! Have not used contraception for 12 years! I took norethisterone last October to delay my period whilst on holiday and came back pregnant! Could this have been because of the norethisterone?
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Going on holiday soon, prescribed Norethisterone for 10 days only. After reading comments unsure if i should take it. How long before the mood swings kick in, don't want to be the wife from hell on a much needed break - first one in 20 years and kids free.
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Does norethisterone change your ovulation day? I was using the tablets for less than a week to delay my period and came off them and had unprotected intercourse a few days after. If that had been my fertile window before taking the tablets would that still be my window while I was taking them?
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I was prescribed norethisterone yesterday after not having a period for a year.
I have polycystic ovaries (diagnosed in june), and came off my pill with the intention of starting a family, i am slightly worried because reading the posts on this site it seems that everyone else has been put on norethisterone because of heavy and painful periods.
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I've been on Norethisterone for a couple 6-8 weeks. Don't know if its coincidence or not but i've had sore feet since i've been on them, painful bones,not swollen or bloated,just sore to walk or touch. I'm on the pills for heavy duty constant periods. It's been great not bleeding all the time and i feel much happier, scared to come off them as I know I'll flood as soon as I stop and get moody and depressed but scared to stay on them in case I get blood clots or something terrible like that. Has anyone else experienced that?
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I been having all the symptoms of endo. The lower back pain, pelvic, stomach pain, bloating. I also have leg pain which im not sure is linked to endo but my pain is constant as i've had it non stop for a month now but feel worse when im on my period.
I have been to the doctors as he said it could be a possible ovarian cyst but he didn't really know so he is referring me for a ultrasound which wont be for a couple of weeks!! He did no other tests apart from a urine test (still waiting on results)
My mum has told me both my cousins have endo and im just wondering if its genetic?
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I have been on implanon for 2.5 years. During this time I had more periods than normal. Due to going on holiday I decided that I would ask doctor to help delay in.
I was prescribed 3 weeks of norethisterone and took it three times a day as directed.
I was told my period should come 2/3 days after I finished the course... Although six weeks later I still have no sign of my period and have pregnancy symptoms such as sore breasts, cramping,bloating, hot flushes, increased discharge and fatigue. Have taken a pregnancy test and it is negative.
What is going on. Has anyone else been in this situation. I am worried sick.
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I am currently taking oxytetracycline to help to reduce a persistent problem I have been having with spots and boils. I have noticed some improvement. In a couple of months I am due to go on holiday and my period is due while I am away. My periods can be really painful and leave me feeling faint for several days. I will be spending a long time travelling so having to go through my period on holiday would be a nightmare. In the past I have used Norethisterone to delay the period successfully with no problems. However I have been advised by my doctor and the pharmacist that I should not take these two drugs at the same time and I don't know what to do. I do not need to use the drug as a contraceptive merely to delay my period. I don't really want to come off the antibiotics for the sake of a holiday but will absolutely dread going if I cannot find a way to delay my period.
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I'm 25 and have 3 uterine fibroids ranging from 4-6 cm in size. Due to extremely heavy bleeding which made me anemic I was put on norethisterone to stop the bleeding until I saw my consultant. She prescribed me esmya which I shall take before I have a myectomy. I was wondering if i do have to wait until I start bleeding again before I take esmya or whether I can swap from the Norethisterone to the esmya straight away?
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I am nearly 53 and am anxiously waiting for the menopause. I have been diagnosed with fibroids. I started a period at the end of January and it carried on for 11 weeks with haemorrhages and huge clots. During this time I became anaemic and I have been unable to work since the middle of April. On 24th April I was fitted with a Mirena coil. I have had constant bleeding (though not as heavy as before) and abdominal discomfort ever since. The discomfort has kept me awake at night.
Last week the GP told me to take 3 norethisterone tablets a day to stop the bleeding. This worked at first and the bleeding stopped. I became very bloated though, and today the bleeding has started again. My whole life is dominated by this. I don't know what to do next. I can have a hysterectomy in October - but that's not something I relish!
Has anyone any words of encouragement?
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I was prescribed Norethisterone yesterday by my consultant following a failed Mirena Coil and failed TCRE. I am now on a waiting list for a Hysterectomy. I have been told to take these as an interim period, but must take 3 tablets a day from day 12 - day 29 of my cycle. Has anyone else been prescribed them in this way and what effect did it have. I was given a prescription for stopping my periods for a holiday many years ago but can't remember what they were called. All my husband and I can remember is that we both described them as 'grumpy pills' because of my moods, so I am anxious about taking these.
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Long story short, I've been suffering from excruciatingly debilitating cramps every single cycle,this started three ish years ago I spend hours in the ER I've been admitted few times as well and it's the same bloody routine every single time
I'm in immobilizing pain, cold and hot flashes, nausea, vomiting fainting poor appetite dehydration low blood sugar levels heart palpitations weakness fatigue exhaustion crankiness moody insomnia etc etc
All these symptoms I experience up to two weeks before my period then during the first 3-4 days of my period then total exhaustion few days after my period and I'm symptom free a week before my period give and take. I should also mention that I've had several x-rays, ultrasounds and all kinds of blood tests and everything comes out good healthy and no problems yet I have these symptoms that just don't seem to go away, last stop for me was a visit to an endocrinologist and he's taking care of my thyroid problem given a new doze a little over a month ago and things are looking fine on that end I had a referral from him to see a gynecologist in mid September but having been bed bound with all the symptoms and persistent pain on my right abdomen I spent the night in the hospital and everything came out good both the blood and the urine tests and the ultrasound and regardless of how many drugs were given to me via an IV I was still experiencing bad persistent tedious excruciatingly painful pain on the right side of my abdomen so the gynecologist today discussed laparoscopy with me and I felt so comfortable around her and being as fed up as I am with all this pain I said I'll go for it
It will be a Diagnostic Laparoscopy for Endometriosis she put it as urgent and she'll be the one performing the procedure I'm happy things will finally start to clear out and hopefully I'll be in my way to some kind of cure hopefully but I'm so nervous please help any words of comfort or advice will be greatly appreciated. I did half the paper work already and I'll have some more to do the day of I have a really good doctor guiding me thru this call me weak or crazy but I'm incredibly nervous.
It would be nice to hear from anyone who's done this kind of procedure please BTW I'm 23 years old, healthy no health complications non smoker or drinker
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