After numerous medical consultations and exams I finally was referred to Addenbrooke's Hospital in Cambridge to a specialist in the audiologist department.
It appears that I have an issue with the Stapedial reflex muscles. This causes me pain resulting from normal level sounds.
They have prescribed relaxation and sound therapy rather than surgical treatment at this stage.
l went to a hospital appointment and my Consultant checked my reflexes, my knee jerk reflex was normal. Can anyone help me out?
View 6 RepliesYes, I successfully cured/healed RSD! It is possible!
I effectively "cured" RSD with holistic treatments. I encourage anyone who suffers with RSD consider the holistic regime I created for myself. You can do it too.
Brief explanation of my RSD journey:
Once, I, too, suffered severe Type II Reflex Sympathetic Dystrophy to my right foot and entire right leg up to my hip which presented itself after auto accident injuries stemming from both fractures and a ruptured plantar fascia in my right foot.
I was fortunate I had an early diagnosis (from my Chinese Doctor, who called it "nerve damage" and was first to diagnose RSD. Only because I was "pro-active" and pursued another opinion regarding my symptoms outside the closed box of conventional/allopathic medicine, which was the only treatment medical insurance will pay for.
After my initial nerve damage diagnosis, I brought this vital diagnosis to my allopathic doctors (who actually missed diagnosing it despite my detailed description of the pain and symptoms) who then concurred with my Chinese doctor's diagnosis and for the first time in my life I heard the words Reflex Sympathetic Dystrophy or RSD.
I refused allopathic treatment of RSD (4-6 "nerve block" treatments were recommended to begin by several MDs, including anesthesiologists, sports medicine doctors and Podiatrists). Why? Intuitively speaking, I considered the nerve block procedures to be far too invasive and risky, and which required general anesthesia (additional risks), the use of a fluoroscope (unhealthy exposure of radiation), injections of cortisone and a long acting local anesthetic marcaine, and worse, the end results were NOT at all promising.
Instead, I committed myself to a more holistic approach toward healing because I trusted the wisdom of the body's ability to heal.
Immediately upon my nerve damage diagnosis, about 6 weeks after the auto accident, I began my daily regime of holistic treatments, which included acupuncture, naprapathy, osteopathy, physical therapy, physical exercise physiotherapy which I did for the next 6 months. (As a precaution, in case I did not gain immediate results from my holistic regime, I did arrange advanced appointments with an anesthesiologist to perform nerve blocks. However, I later canceled these appointments because I began to gain positive results relatively soon after I began my holistic regime to heal RSD.
After the first six months of intense daily regime of holistic treatments, my acute and horrible symptoms slowly began to disappear. Gradually, the dark reddish-brown discoloration of my foot and leg began to fade, the inflammation/swelling slowly began to reduce, and the distorted and abnormal shape of my right leg and foot improved (which my husband likened to a "slab of red meat" that "looked like something hanging in a butcher shop"). The over the top excruciating nerve pain (which was off the charts, not in the 1 to 10 range, when asked I rated it "100+++!") to the slightest touch or even a sheet touching my foot was far too painful to bear, slowly began to dissipate into the 1 to 10 range. The complete loss of normal ambulatory function with my right leg and foot (I required a wheelchair or crutches to hobble around on my left leg) began to slowly improve after much treatment and with my determination to be pain free, to walk, run and dance again, I "pushed through the pain" with the physiotherapy machines and "re-learn" how to walk again. I literally reprogrammed my brain to walk again.
About six months into my holistic regime, I was again able to walk on my right leg and foot without the aid of a cane or crutches. However, each time I flexed my right foot to walk, it was painful, far too painful to walk long distances. I rated it an 8 on the 1 to 10 scale when asked by an anesthesiologist which I deemed completely unacceptable live with the rest of my life.
This anesthesiologist, with whom I had a 6 months post-RSD diagnosis exam (for medical insurance purposes) was the director of the pain clinic at Kaiser Hospital in Sacramento, CA. This anesthesiologist, who would have otherwise performed nerve block treatments on me had I surrendered to them, wrote in my medical records, "patient sought alternative treatments with acupuncture, osteopathy, naprpathy for treatment for RSD and achieved remarkable results..." My Kaiser podiatrist wrote, "patient had miraculous recovery from RSD with holistic treatments..." My Kaiser internist, my private St. Francis Sports Medicine, a medical doctor, my Kaiser physical therapist all wrote similar comments in my medical records which not only validated my intuition to take the risk to explore holistic treatments but provided substantiation that they were effective and beneficial which forced my Farmer's Auto insurance company to eventually pay for my holistic treatments which were all rejected. Two years later I was reimbursed for all my holistic treatment costs.
I want to offer another perspective into the closed, blocked mindset dogma of allopathic medicine and doctors. During my final exam with the anesthesiologist(as previously mentioned), although this doctor was quite expressive about her amazement of my then-recovery with RSD, she still remained stuck in her dogma when we discussed my pain level. She actually told me that I had reached the limitations of any more recovery because I had passed the 6 months window of time for nerve damage. She said, "I am sorry but I am afraid you will have to learn to live with the pain."
This director of Kaiser's Pain Clinic which treats RSD patients continued to reinforce her assessment that I would not improve, that I reached the limits of any possible recovery. She told me how lucky I was, how much better off I am than most of RSD patients who never get better and only worsen, etc., and I assumed she meant that I would waste my time and money if I continued with holistic treatment.
She shook her head when I told her I wanted to continue with acupuncture treatments until I was completely pain free. She may have meant well and didn't want me to have high hopes of recovery and then experience failure, or whatever. This anesthesiologist, who performs nerve block treatments, gave me all the information of what she knew based upon her 20+ years of experiences with RSD patients.
Fortunately, I did NOT accept her prognosis. Instead, I passionately said, "Doctor, I trust the wisdom of the body to heal and I shall continue with acupuncture treatments until I am completely 100% pain-free. I'll be damned if I willing to live with this pain and can't go for long walks, run or dance the rest of my life because a jerk ran a stop sign and plowed into me!"
Her expression spoke volumes. She was a bit astounded by what I said but not one word of encouragement was spoken. There was a long uncomfortable pause between us. Finally, I said, "One day I will return and prove to you that I am pain free and then you can bring in an acupuncturist, a naprapath, and an osteopath into your pain clinic to help RSD patients.
It took another six months of treatment before I was completely pain free and before my right leg matched the color and size of my left leg. My internist/primary doctor was thrilled by my recovery and accredited it primarily to my "positive attitude and determination." Kaiser wasn't interested in accepting my recovery was due to holistic treatments. Instead, it was just considered "miraculous" remission of RSD which, of course, does NOT give any credit to all the beneficial holistic treatments I had.
I am still pain free after 11 years and walk miles daily and go dancing twice every week. I am grateful for all of my holistic doctors, I hope my allopathic doctor learned from my experiences and success with curing RSD.
I am a 42 year old mom of 2 boys. I have been healthy most of my life. In 2011, I noticed some numbness in my left hand and it seemed to be "clumsy". My mom has MS so it scared me. Considering my family history, my family doc sent me to neuro and to have an MRI. The MRI and my exam turned out to be normal. The neuro said it could be my ulnar nerve. 2012, another episode and this time with worst headache ever and blurred vision. Once again I checked out fine. Then in July 2014 while on vacation, I became dizzy and started to stagger. I went to an urgent care and they told me I had vertigo. After that the vertigo/clumsy remained, and I started having myoclonic jerking of my muscles and headache. I was checked by neuro when I got back from vacation. The vertigo went away but muscle jerking remained. Normal exam and bloodwork. August 21, it came back the vertigo/clumsy feeling, headache, my legs being sensitive to touch, and I occasionally repeat things when speaking like my brain can't remember. I went to a recommended neurosurgeon. His exam revealed Babinski reflex, Hoffmann reflex and brisk reflexes. It was symmetrical on both sides He ordered an MRI. I couldn't get in for almost 2 weeks. The waiting is making me crazy.
View 3 RepliesIn pain after botched bunion surgeries by podiatrist, underwent reconstructive surgeries with OS. Still in pain, now was diagnosed by OS with RSD. 3 phase bone scan showed "increased blood flow and soft tissue uptake in the right ankle and foot. There is intense increased uptake in the right first metatarsophalangeal joint likely represent reactive postoperative change and consistent with postsurgical changes and reflex sympathetic dystrophy in the right lower extremely". Pain management said that as I DO NOT have swelling, change in color and temperature, it is not RSD and sent me back to OS, who already told me that there is nothing else he can do surgically. So I have terrible burning and stabbing pain and muscle spasms. I just want to understand if RSD is a nerve pain or is the result of some abnormal process in bones as was indicated in my test?
View 5 RepliesI am 62 with Multiple Sclerosis. and it was boggling my mind that the legs were aching and pain just like i had just run 17 - 100 metre dashes.Thought it was MS but it just did not make sense(after 35 years i know my MS)...and then I had two days of Heartburn like a Volcano and found this Forum and read about Heartburn problems and Muscles Aching.
My question --- does anybody know absolutely for sure that there travelling aches and pains in their muscles are from Menopause-- I had to stop exercising as my legs were so sore....I do recognize after 8 years of exercise it is the key for a low maintenance menopause
I've had RSD now for 2 years and now my doctors say I have unfortunately developed chronic pain syndrome and its to my understanding it's creating more pain that is feeding on the pain that is a viscous cycle and very hard to break my question is does anyone have CPS on top of RSD for just when I thought this is enough there's more .
View 14 RepliesMy symptoms are severe pain in joints and sometimes muscles that always come with high fever, sore throat and weird cough (small but forced cough) a salmon colored rash and weakness in my joints. The pain is so bad that I scream. I am unable to care for myself. I am so stiff for hours. The pain has progressed throughout the year. I am at a loss. I live in Idaho and my rheumatologist is sending me to Salt Lake City Utah because they have a university hospital with more specialist. I swear to her that I have Stills Disease but she sais I have the symptoms but not necessarily all of the blood results to match.
My cbc always shows an infection, I am always slightly anemic but ferritin is good, not low nor high.
Here is my recent lab work. This is how desperate I am
C-REACTIVE PROTEIN 60
UNITS = ML/MIN/1.73m2
If patient is African-American, multiply result by 1.21.
ALBUMIN 3.5 - 5.0 GM/DL 3.5
AST(SGOT) 15 - 46 U/L 37 45
TOTAL BILIRUBIN 0.2 - 1.3 MG/DL 0.3
CALCIUM 8.4 - 10.6 MG/DL 8.8
PROTEIN TOTAL 6.3 - 8.2 GM/DL 6.1
ALK PHOS 38 - 126 U/L 37 78
ALT(SGPT) 9 - 52 U/L 37 50
ANION GAP 7 - 15 MMOL/L 8
CK 30 - 135 U/L 37 24
I do not like being on the prednisone because of the side effects but I can not handle the non stop pain when I don't have it. Such a little 5 mg dose saves my life. The pain is so bad that all I can do is pray to pass out. I can not take pain pills because they cause severe depression.
I am at the end of my rope!!!!!! I have crps following botched surgery almost 5 years ago. I was on percocet for the first 2.5 years until a new pm doc told me it was bad for my liver and changed me to opana - 5 mg, 3 times a day with oxymorphone 5 mg times a day for breakthrough pain. About a yr and a half ago I developed horrible anxiety which has stayed with me since. The doc said maybe the new formulation didn't agree with me but made no changes. I wake up from sleep in the morning screaming and crying, so agitated. The pain docs don't care as long as your pain is under control. the doc added methadone at my last appt to curb the anxiety in the mornings but I'm to scared to take it. I've read it's more addictive than all of them. I don't function anymore, don't leave the house, cry several times a day. Has anyone experienced this? I feel insane and these docs don't seem to care. Last year I went to a psychiatrist and spent the entire year trying every anti-depressant int the book but none worked. They just raised my anxiety. I really think it's these pills.
View 6 RepliesI am interested in anyone who has been diagnosed with RSD if you wouldn't mind sharing your story. How soon after injury you were diagnosed, who diagnosed you and what changes you saw and when. Do you have all symptoms like skin and nail changes and when did this happen ? My dr recons I have it but I'm still not convinced though I do have signs of it and no other explanation as to why I still can't walk five months post ankle break.
View 35 RepliesPain in buttock muscles, knee (with additional feeling of bubbling on back of thigh) and groin, is this sciatica?
View 4 RepliesConstant pooping, acid reflux, chest pain, and headache, and 9 months insomnia.
How to cure without sleeping pills?
For years now, I have been getting a thumping sound in my head. Usually when I am busy at work or on the computer, it doesn't happen at all, but when I am not busy doing anything it happens regularly and usually 3 to 5 thumps at a time and multiple times in a row. What could be the problem?
View 1 RepliesI woke up with a bad cough. I am also sneezing a lot. Sometimes I cough for a minute or 2.
View 2 RepliesI'm a teen. Odd I know but I had Schizophrenia for a couple months, I try to tell my "Guardians" but they just say "Oh You're just dreaming".
"You just we're Tired." I see bad things when I wake up...a Spider in front of my face...my worst nightmare a tall pitch black figure,they become flashes when I wake up. Or when I walk in the House at night. I feel I am always watched and I go into Isolation more often than usual. I hear sounds as well. Since I deeply fear that I may wake up and end up fainting because I saw a Figure that wasn't actually there. My Best Friend Thinks i'm just Crazy. It feels when I escape a Nightmare I then live one. It seems as if no one believes me but I have most of the Symptoms, Isolated, sounds, delusions ,illusions,and a false sense of security. I just woke up and decided I need to find a way. The Only Ones who believe me are my Step Dad and Mother,but they have no control of me.
I started these pressure headache on top of the head and my one ear felt like was close also i feel weird sounds in my ear ( not always). The head pressure was soo much that i feel dizzy and felt that i would fall off.
I did CT sinus , MRI cervical , MRI head and all these test came clear so the neurologist told me that it's basically your anxiety as you have panic attack in which i feel pain in my chest , shortness of breath and constant muscle pain.
The most important factor here is that i have IBS for the past 2 years now which is high enough for me.
The doctor has given me Seroxat 12.5 mg ( paroxetine hydrochloride) which i have been take for the past 6 days but this medicine is not helping and in fact when i take it i feel that headache has grown more with shortness of breath and stomach upset and tremor in my hand or shall i say fingers but ve but the doctor is saying that it's not the reaction , its normal thing and you would adjust it in 2 weeks.
How it affects me..is subtle...I don't' always realize it always.
For example: I am in a relationship.
If that b/f says something similar to my past...I freak out on him...He is NOT the person that hurt me...but he suffers my wrath.
When I hear a police car...I shake and think something has happened to one of my boys.
I really think it is MY HOUSE that I live in that causes me all the anxiety...If I could move...I think I could move further away from all the memories..all the walls I was hit into...the shower I had to think about who would bother me in.
The cellar...my boys lived in and destroyed.
Etc....I don't have alot of nightmares...but I have alot of familiar sounds, and situations that set me to the past and cause much anxiety.
my asthma only acts up when I get a cold. 3 weeks ago, got the flu. I coughed up thick green mucus, heavy night sweats,a fever 101-102. Saw doc on day 3.My heart rate was elevated so had an EKG. Was normal. I was very weak and had a very tight chest short of breath and wheezing. By the third day I was coughing dry. Felt couldn't get enough air in to cough. Prescribed Cefprozil, Tussionex and Albuterol. A wk later I felt more energy but doc said I was still wheezing and crackling. Talking makes me cough. I was given Azithromycin, Decadron, prednisone.3rd appt still wheezing and tight and now dizzy.Lost 8 lbs. no appetite.Had chest x-ray and blood test.no results yet. I now take Doxycycline,Clarithromycin Prednisone and Albuterol. Yesterday I was so dizzy I considered the ER.I don't cough at night anymore. Today less dizziness, + energy but pain in upper back & sides.Voice is different, still crackling sounds & tight chest and coughing. Is the asthma causing all this or just a bad bug?
View 1 RepliesI have suffered from GERD for 12 years now and am at present taking x1 30mg tablet of Lansoprazole (switched from Omeprazole) because my symptoms just lately have been getting worse. I am due to have an endoscopy once my appointment comes through. What i would like to know is whether others experience similar symptoms to me, i've listed them below:-
1) As soon as i wake up in the mornings and sit up in bed, i start burping and belching (even on an empty stomach).
2) i have a wedge pillow to keep me elevated when i sleep but also upon waking, i can feel a regurgitation sound coming up in my throat (like a crackling, popping candy type sound but no bad taste in my mouth, just this noise going up and down until i start sitting up
3) As soon as i eat or drink anything, i start to burp and belch (seems like even before the food and drink hits my stomach
Wondering if this is all GORD related? it really is starting to annoy me now.
I was researching about Hallucinating, and I saw that it was linked to Schizophrenia, and Isaw the symptoms and it seems that i had the same symptoms. For example, hallucinating, I would hear creepy sounds, someone slamming the door, someone screaming across the street, humming sound, and also sounds telling me im worthless, stupid etc, and when i was younger i would talk to my imaginary friends, and imagine scary things in my room that aren't actually there. And also I experience delusion, I'm afraid all the time and I'm always worried, wherever I go, I would think that someone behind me if following me and trying to kidnap me, and sometimes I think my parents adopted me while I'm actually not. And I used to have that I have super powers like moving objects via my mind or controlling waves. And I used to think that people see my appearance as if Someone else. Also I believe that one day I will meet the people that I've seen in my dreams, and other weird stuff. Whenever I hear creepy thing or imagine scary things, I would just start shaking and my heart start beating so fast. And I have that feeling when I'm sleeping that someone behind me is going to stab me. I've always had depression because uhm let's say I just have a sh*tty life, and I experience a lot of mood swings (a lot) I would be nice and in a moment I would just start screaming and hitting myself and pulling my hair.
Do I have schizophrenia?
Im 23 weeks pregnant with another girl in i'm having a lot of butt pain is that normal
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