Dry Mouth, Lack Of Sleep And Appetite - Sjogren's Syndrome?
Apr 26, 2016
I'm a 45 yr old woman.Had flu like symptom middle of March 2016. Since then was not able to keep food down for a month. In the last -4 weeks, I've got dry eyes, dry mouth, don't sleep fro more than 2-3 hours per night as I am woken by palpation and exhaustion.This morning I woke up with very tight feeling in my thigh muscles.I had to massage them to loosen them. In the morning, I have to eat as soon as I get up .even then I'm left with continuously feeling tired .Can't sleep it off . Slightest activity gives me palpitation and and exhausting feeling.Since Middle of March I've had various investigations (Ct head ,neck ,abdomen and pelvis,ultrasound scan of liver ,gastroscopy ,24 hour heart monitor ,heart echocardiogram -all normal)My bloods were normal too except for liver function (ALT and AST) which are improving too.I'm at my wits end .awaiting to see a rheumatologist who will hopefully shed some light.The worst part is not being able to sleep for more than 2-3 hours per night,the inability to move about without getting extreme exhaustion and the lack of appetite together with very dry mouth when eating.
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I have sjogrens ad have for many years now. The other night I was eating and I alway drink before I take a bite of food. I started to eat and began choking on my food which got into my esophagus. It was stuck.i tried to get it to go down and tried to get it out. No luck. I was scared to death and in a panic. I called 911. Heard the sirens and said tis that for me? Yes the paramedics were there they took me to the ER at the hospital. They tried o give me two shots and a nito under my tongue. This was to relax the esophagus. That didn't work so ER doc called in an anesthesiologist to put me out and a gastrointestinal doctor to do an endoscopy. It was now 5 1/2 hours I was sure I was going to die. I was so so scared. It was sourdough bread. It was so good. But I will never eat it again . I have tried vovox and salavert but had side effects so had to stop taking. I don't know what to do unless I eat only soft foods. Does anyone have this problem or suggestion for what I can do. I don't want to become paranoid of food because it was so bad.
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I have got an unprotected oral sex with a sex worker exactly 2 weeks ago on monday, i received it/but i didn't perform on her. it was around 3 mins, then after i had protected sex with her.
I had no symptoms in the past 2 weeks,and penis look ok not any herpes or syphilis (syphilis) symptoms yet.
Im really worried now i got infected with HIV.Today i have got pain all over in my body,feel tired and week,sleepy as well,dont have appetite at all.
Is this possible i have got HIV ? Symptoms are start after 2--4 weeks .
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It's been about 6 months of feeling ill with these symptoms. I'm a 20 year old male and I have been checked with blood tests and stool samples. Also I had an endoscopy and colonoscopy and a ct scan of small intestine and one of the general abdomen. All these tests came back negative, and so I have been just dieting well with lots of water and benefiber, but I still feel the same. I also just had a kidney stone for first time about 2 weeks ago, and that made me thought it was linked to a kidney stone. So I had more blood tests and still came back negative. I am lactose intolerant but I have stayed away from any lactose when dieting. I really have no clue what's going on with my stomach; it has never felt like this before. I am curious could it possibly be a gallbladder problem even though the ct scans didn't pick anything up. It said that the gall bladder was remarkable from the ct scan report. I don't have a lot of pain like in most gallbladder cases, but I have heard of others with gallbladder problems that did not necessarily have a lot of pain.
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The story started when I noticed a tremor in my hand fingers (both hinds) as it starts from my wrist bone. I went to a nervous specialist and then he offered me the seroxat knowing that I didn't had any kind of anxiety at that time, where I had before this visit by half year. This visit began 6 months ago. I have started, as per his instructions, to get table and a half per day for the first 6 days then 1 tablet till 3 months. Suddenly, I stooped to use it and I know that was my bad. I returned to the dr, he said that we will start over. then, I started to feel that this medicine is not resulting well anymore. I started to stop it as per his instruction by taking half a tab for 5 days then half a tab every day after day. The last dose was on last Thursday. Now, we have passed 2 full days (Friday and Saturday). Today, I am feeling very and very bad. I had all of its side effects, I had a nausea, lack of appetite and DIZZINESS.. What do you suggest?
He said that I have to return to half a tab day after day and visit him on Wednesday. I am not planning to go to that dr any more thus I am here. I have read some forums of dropping it in the right way. Do you suggest taking a quarter tab day after day again? or to deal with the above side effects and finish up the day, tomorrow or what?
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I am new to this forum but was wondering if anyone could advise or help me. I don't know why but every night when i go to bed i manage to fall asleep but after a couple of hours in wide awake again hence me typing this now. I will manage to get back to sleep but then i am up with my alarm at 6.30am for work. It's driving me mad that i can never have a full night's sleep without waking up.
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I have Primary Sjogren's Syndrome but was born Hypermobile. It was only after my present Rheumatologist diagnosed that I have scoliosis that I started to research. I found the Beighton Scale and the Brighton criteria which I match completely. I explained my research to my consultant and she agrees. However while she and another consultant both agree I do have POTS so far I don't have an appointment to see anyone to help me. I have had ECGS and a bubble ECG but they have been taken while lying down. Now the POTS I really noticed post the birth of my last son 29 years ago is getting much worse, can anyone advise me as it has taken decades to get this far, I don't feel time is on my side
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i'm 18 years old and i have been smoking weed a little over 2 years but i have been smoking HEAVY a little over 1. i stopped smoking weed cold turkey ill say about a week ago.. and i have been experiencing no sleep and no appetite. i know that those are due to not smoking marijuana but i have been getting short of breath lately and having chest pains and my heart is always pounding. it feels like i'm gonna run out of breath and die. i went to the doctor and had an xray done and they said my lungs are fine. the doctor said its most likely just the marijuana leaving my system so they treated it as asma and gave me an inhaler. this has been going on about 4,5 days ill say.. sometimes my breathing is fine but most of the time i feel short of breath IS THIS MARIJUANA WITHDRAWAL?
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I'm 16 and consider myself to be quite healthy. About two weeks ago I started to get headaches that have been constant every day (I still have them now). The pain is quite dull, the pain is not so bad that I can't continue with my daily activities but it's still there. They also come and go. I don't wake up in the middle of the night because of them but I get them constantly throughout the day.
After a week of having these headaches I went to my doctor who suggested it was stress and lack of sleep (I have just started college) but I'm not so sure. He also suggested it could be eye strain and advised me to go get my eyes tested which I am going to soon. I am worried it could be a brain tumor or another serious illness. What do you think?
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Having been officially diagnosed with Sjogren's syndrome about a year ago, I think back on ALL the diagnoses I have had related to it: "nutcracker esophagus and severe GERD", "esophageal spasms", polyarthritis, fibrotic lymph nodes, fibromyalgia, Prinzmetal angina, benign parotid tumor excision (trabecular adenoma), dry skin, dry mucous membranes, etc. and now know they are all part of the same syndrome, which has been steadily worsening and becoming more malignant (and I am only sixty). There are many other more serious difficulties, but now I'm wondering if I, too, will get non-Hodgkin's lymphoma, since that is what some people progress into. It is NOT that this frightens me at all--but now there is something of which to be aware (and I'm not certain my M.D. knows of this). I also have glaucoma and cataracts--so I really have to protect my eyes (and I have had a vitreous bleed into one of them).
My ophthalmologist (a retinologist) placed upper and lower tear duct plugs in my eyes--which has helped, but I still have to use lubrication. Since I am a writer and use the computer extensively, I find it quite hard on the dry eyes. I am extremely careful to drink lots of water and often mix pure fruit juice with my water to avoid calories (sugar) and to make the water more interesting. This does, however, exacerbate my stress incontinence gained after fracturing my back--for which I stay close to a toilet (but my writing is done at home.)
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I have been on these steroids for 1 week following pneumonia.
They have cleared chest but have left me exhausted through lack of sleep and feeling constantly anxious. Has anyone else suffered the same side effects. Finished last dose today.
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I have suffered with anx and depression for many years, but lately bipolar has been mentioned by my therapist. Could I run through my main symptoms and you kind people can give an opinion? I have bad anxiety most of the time, I don't have a classic high, my high is more about lack of need for sleep, don't seem to need much food, loads of creative work going on and I get really out of sorts if I'm interrupted. My downs happen generally after a high time of a few weeks, then I just crash out - don't want to do anything or talk to anyone
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Is this normal? Tired, cranky, irritable, can't think clearly, can't sleep, hot and cold, irregular periods, loss of appetite, anxiety, depression...I woke up one day and all the sudden I became some totally different person...is this normal? Just venting...want to feel normal again
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I have been menopausal for 12 months or maybe longer so the doc thinks. I turned 50 last August and thought I could deal with all the symptoms but its driving me crazy now! Hot flushes, night sweats, mood swings, anxiety......but the worse for me is the lack of sleep! This is awful! Its making me like a zombie and my eyes are black!! Such a vicious circle. Today I have had a long talk with my husband and we have talked about HRT! It makes me so scared about taking it but I am feeling so awful that I'm now considering it. Any ideas of a good low dose HRT that I can talk over with the doc. How has it been for you taking HRT?
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Recently I've been sleeping in a very small room. Due to this I try to leave the door slightly open to allow more oxygen in as I'm concerned that the room is too small to sleep safely in overnight. However sometimes I can’t leave the door open - for example if we have guests staying over. I’ve found that when the door is closed all night I tend to dream more vividly. I'm wondering if I'm dreaming more due to a lack of oxygen?
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My dentist told me today that I need upper dentures due to Sjogren's Syndrome. Has anyone else had to get dentures and how did you deal with it?
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Anybody tried it? I've just started. I'd been reading up on it on-line for some time. It's supposed to be the bee's knees for the whole sicca syndrome, and dry eyes in particular. As I was due to spend a few days in London last week, I debated getting some, but decided it was too expensive.
Then fate took a hand. As I haven't had dry eyes for months now, I didn't take my eye drops with me. That's the trouble with remissions - you forget you've got the wretched condition and get cocky! First night in the place where I stay it was a bit stuffy, so I turned on the air-conditioning for half an hour. One of those individual ones that blows air out fiercely however low you set it. I sat up in bed, facing it, watching the TV for just half an hour before going to sleep, but that was enough. I managed to get replacement eye drops the next morning, but now I'm in big trouble. Decided to invest in the sea buckthorn oil anyway, and have now been taking it for a week.
They say you're supposed to take four capsules a day for the first two weeks then cut down to two, but I'm being careful. Took one a day the first week, will start on two tomorrow and build up to four by the end of the month. I once had a terrifying experience on a low starter dose of Siberian ginseng. Just because something is "natural" doesn't mean it won't harm you!
Sea buckthorn is also said to be good for RA. The main ingredient is Omega 7, btw, but it also has Omega 3, 6 and 9 - though a different type of Omega 3 than fish oil. I'll be interested to see how that works out. I'm actually having an RA flare-up at the moment, but it seems to have peaked since I started my usual homeopathic treatment a few weeks ago. As I'm taking the oil alongside the homeopathic remedies, that will muddy the waters, of course. But I'll stay on the homeopathy for six months because it always works.
I hear you have to wait three months for Omega 7 to kick in, so I may be in for the long haul with the dry eyes. My right eye is already starting to bleed from a crack at the outer corner. We're having high winds here at the moment, which isn't helping things, particularly as my hips and knees have now improved enough to stand a 45-minute walk most days. I finally caved in today, and put on my wrap-around industrial goggles (provided by an optician in the UK). But I feel a right berk wearing them when walking around city streets - especially as it's not considered rude to stare in this country!
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My mother has been diagnosed with Sjogren's syndrome. Her main symptom is dry mouth and someone recommended us product called Biotene. Is Biotene really enough to contain this syndrome?
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I get bladder infections quite often. For the last year I've had 6. I get very sick with them. I run a high fever and am in alot of pain. They last for a couple of weeks. I have to take antibiotics for them and worry about having to take so many. Does anyone else experience this problem or have any suggestions?
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I have had dry eyes for about 2 year now (I also had lasik in 2005). Within the last 4 months my have have gotten really dry. I have all 4 tear ducts plugged and I am on Restasis. I also use sclera lenses (more for vision but also helps the dry eye). My eye dr said he thinks I may have Sjogren's even though I have never has a Schirmer's test (I am not sure how accurate that would be since i have had lasik anyway). tested positive for ANA 1:80 titer with homogeneous pattern but negative for RF and SSa and SSb. Should I pursue this further? Dry eyes are the only symptom I have.
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I was wondering whether depression is actually a symptom of this illness. I understand that it is natural to feel depressed when receiving a diagnosis of chronic illness, but my current mental state feels like something much more insidious and severe. I have never felt depressed in this way before, even when I got a diagnosis of another painful AI condition 8 years ago. I also know that mental stress can negatively impact symptoms so it is vital to 'feel better' quickly in order not aggravate the condition. I am not sure how to start to do this and wonder whether systemically something is going on that is affecting my brain chemistry to feel this bad.
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