My father (now 81 yrs) was diagnosed with Parkinsonism some years ago. My understanding is that Parkinsonism is considered to be a "cousin" of full-blown Parkinson's disease. Is it as bad as Parkinson's?
View 2 RepliesMany professionals and the charity PD uk sat that you do not die of PD you die with it...BUT The world Health Organisation receive statistica from the UK about the Number of Deaths Caused By PD in the UK...PD is one of the leading causes of deaths in the UK... I haved PD and suffer from anxiety but it occurs to me on a regular basis that the lack of knowledge and information that is presented to us by a community of experts that all disagree is causing more confusion not only for the sufferers of pd , the public also find the whole thing a non starter. It is an illness for which there are no clear up to date definition and is therefore just seen an old person's shaking complaint
View 4 Repliesi've been asked to do the apomorphine challenge has anyone done this,and with what side effects.
View 1 RepliesIs dystonia related to parkinson's?
View 1 RepliesSinemet has left me unable to handle my property management business. Shaky or disoriented to often. ( get about 3 good hours in am). Locals I know are on requip and seem to do better. Dr. wants me to see a Shrink. I am sure I have some depression and anxiety, but don't want any more meds. I took lexapro for about 2 weeks after a divorce. I thought i was losing my mind. Couldn't concentrate on anything. Scared the heck out of me!
What is the difference between the 2 ( sinemet- requip) and has anyone tried the fisher wallace stimulator?
My mother took 2 sinemet tablets 5 times a day. And a patch once a day for rotigel. She went into a nursing home in March and they accessed her dysphasia as being a hazard and so her sinemet was lowered to 1 1/2 tablets 5 times a day . She now has severe off patches with panic attacks stomach pain leg spasms etc... Has anyone else had experience of these symptoms .
How long does a person live after parkinson ...
View 2 RepliesI have recently been diagnosed with Parkinson's disease and am worried and confused. Are there exercises I should do? I am not on medicine but I understand that there are some that should be considered. Which ones are best for the early stage of the disease.
View 4 RepliesStarted with a tremor in my hand last year saw a general neuro who thought its maybe related to chronic pain i suffer and to keep eye on it be re referred if it changes now it's gone to my arms and legs my balance is poor keep falling over my muscles are stiff as a board i get tremors after using my muscles say even drying my hair and also i keep stiffening up so bad my body just wants to stretch itself out from head to toe worse during the night i have also started with restless leg syndrome i'm also getting confused and forgetful has anyone else experienced parkinsons onset like this i'm wondering wether to be referred back to a movement disorder specialist?
View 7 RepliesI am 80 years
I suffer from Parkinson's disease
And recently I feel something come down from my head to my throat & i did not care
but after a while ... this thing is choking me whenever I cough because it is stuck in my shins aerobic
the doctors in my country have little experience in this cases
I have an appointment next week at Placidway to discuss whether I will continue with the stem cell transplant for Parkinson's Disease in Europe early next yr. I have many things on my mind and I plan on asking a lot of questions. I'll try my best to understand and be relaxed. Lol! Anyone can help me on what to expect?
View 1 RepliesFather suffers from parkinson's, My father has been suffering from parkinsons since 1992, he is 59 years old today and on tablet levodopa and pramipexole. Could anyone suggests other treatments to make him feel better?
View 1 RepliesI have had Parkinson's for 9 years. I have taken Pramipexole for many years . Last October my right ankle and foot became swollen. I was taken off pramipexole and introduced to Madopar. The swelling went down but not completely. Because of an increase in my arm tremor I was prescribed Ropinirole to be taken with my Madopar. My right ankle and foot have become really swollen again and am now not taking the Ropinirole. After 5 days my leg only a little less angry. What medication do I take now.
View 1 RepliesI suffered severe depression and anxiety and began to get bad tremors around 6 months ago, this was a first for me. My psychiatrist and GP thought it was because I was taking Sodium Valproate which is a mood stabiliser, however I have now come off that (still taking antidepressants, 80mg Lovan daily) but I still have the tremors.
My GP suggested Parkinson's but that I shouldn't have the brain scan now because medicare are not covering them.
Could anyone give me their thoughts on what I should look for in Parkinson's other than the tremors?
What testing should be done for ruling out Parkinsons and MS in relation to a tremor. (Head)
View 1 RepliesMy grandmother has serious difficulty walking, only being able to make small, shuffling steps with a walker and when someone is holding her. She was originally diagnosed with parkinson's, but lacked other symptoms like tremors, cognitive issues, etc and did not respond to levodopa. MRI and not responding to treatment ruled out Parkinsons, but doctors are unsure what she has. What could cause the symptoms and the trouble with walking?
Specifically, she cannot balance standing upright and most hold on to something. When walking, she can only make small shuffling steps, she sometimes fails to lift her feet off the floor. She can move her leg fine when sitting or lying down. She also feels heavy pain.
This has been leaving all of us confused as a lot of conditions (like Parkinson's) have been ruled out, but.. what could it be?
I've been Diagnosed with Parkinson's Disease for 14 years.. im currently on apomorphine subcutaneous .. over the past year i've been noticing im getting terrible episodes of shortness of breath, breathing is really difficult .
View 1 RepliesI was diagnosed having Parkinson's Disease in 2002, but symptoms began in 2000. I worked as a Senior Environmental Health Technician at the time, when I was diagnosed, I was so ashamed of myself, apart from my husband and children I did not tell anyone, I carried on working as normal but didn't tell my employers, in 2004 my condition became worse, one morning I woke up and could not walk at all. after being off sick I was referred to occupational health, who recommended early retirement. so I lost my job for sometime I was sad not depressed,, my mobility is impaired quite badly and I lose 50% of the day due to off periods, i.e. when I am unable to walk or function normally.
so I took up hobbies such as painting, embroidery, mosaics, crosswords etc to keep me occupied during my off periods.
My conditions is steadily worsening, I try to find out new treatments or complementary therapy,
I have not given up yet, I had a go at acupuncture, massage, physio and hydrotherapy, chinese massage, chiropractic, osteopathy, homeopathy, acupressure
I attended a pain management course, and recently has a thai yoga massage, the future looks grim and it worries me but I shall fight this disease till end
I was diagnosed with secondary parkinson's disease in 2012. We thought this was a temporary side effect to a medication. The height of my symptoms were tempered once the doctors saw the correlation between the medications and the symptoms, which once the medications were discontinued and I was prescribed amantadine. I have a wide range of systemic medical problems caused by autoimmune disorders. my neurologist has me on medications, and for the most part the symptoms are controllable. but i am starting to have bouts of rigidity in my arms and times when my perception is spacey again. does anyone have any knowledge of this sort of thing? my doctors keep throwing the issues into the other's court-neurologist says talk to the rheumy, rheumy to the neurologist.
View 2 RepliesI am 35 and I am experiencing a constant twitch between my left thumb and index finger. I thought maybe I had done something to pinch a nerve but it's been going on for a month now. It's driving me crazy. It's like my thumb is getting this signal to clench and it happens constantly when I am not using my thumb. It's completely involuntary.
Could this be caused by some sort of nerve damage, or is this a sign of something more serious like early onset Parkinson's disease?
My mother died in June and was in final stage parkinsons.
reflecting on her illness and treatment I feel that not enough information is given about the long term side effects and the progression of the disease.
The drugs do reverse symptoms which does give quality of life and prolong life. In early stage parkinson's the sufferer is able to think clearly and make decisions and yet no care plan is set out asking the patient what choices they wish to make re their care. I went to every appointment with my mother . And found the doctors to treat Parkinson's like they did cancer in the past. We can't say how you will progress , everyone's different and not setting out the long term side effects of the drugs.
as a carer to prepare yourself for what you will face and for a patient to decide whether they want a long drawn out illness in which you end up with parkinsons dementia caused by the drugs you have taken or a shorter intense illness . Just as you can choose chemotherapy or not. I believe most people would choose the drugs . But the family could sit and plan their care with them. Making decisions if I can't live alone anymore I will live in a granny flat etc if I get dementia find a nursing home ....
By the time my mother moved in with us she was beginning to suffer with dementia and severe weight loss due to constant dysphasia movement of arms and legs side effect of drugs . She made decisions on her drugs all the way through and wanted more and more but she wasn't in a right state of mind .... If she had made these decisions in the beginning she wouldn't I know of chosen to be over medicated ... She ended up 4 stone 7llb with severe movement of tongue arms and legs due to drugs , suffering from memory loss and personality change brain scan showed wasn't Alzheimer's but was side effect of meds.
Action is needed to spell out the end of an illness when u r at the beginning so that you can choose your path through it.
Before she died they took all her medication away except ne .palliative care . She was peaceful calm couldn't move much it's true but she responded smiling , crying and nodding and gesturing . She was unmedicated and I thought what if ?