Diabetes :: Nerve Pain? Severe Pain/tingling In Feet/ankles


Dec 17, 2015

My 50 year old husband has been a Type 1 diabetic since he was 21. It was a late presenting of juvenile diabetes or so they said then. He has always done well managing his diabetes, wearing a pump for the past 15 or so years. In the past week or so, he has begun to have severe pain/tingling in his feet/ankles - mainly at night when he is trying to go to sleep. He usually has to get up and walk several times before he can finally sleep - he is only getting about four hours of sleep per night. He has an appointment with his dr - but not until the week after New Years.

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I have had diabetes for several years now. I have nerve pain in my feet that is usually not too bad and comes and goes. Lately, my left ankle feels like there is a hair being dragged across causing a tickling feeling. Tonight, my right ankle has this sharp stabbing pain in it that has almost caused me to fall while walking. I have medicine for the nerve pain but don't like the side effects so I quit taking it. Could the stuff going on with my ankles be due to diabetes?

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I watched him try to stand the other day and it looked complete agony. He can't understand why no-one can tell him what is wrong, doctors are saying "it's your diabetics, you have to expect it"...

His doctor won't give him extra pain management because he says it will impact his other medication, but I just don't see how he can continue with all this pain. How we get the best treatment as I don't think he is getting it at the moment.

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Two days later, the swelling became so severe, both my feet looked bruised and turned a funny red colour. The pain became that powerful, I couldn't walk whatsoever.

Im in UK so I rang 111 NHS helpline who sent out an ambulance. The paramedics arrived and were shocked as they had never seen edema so severe before. This was a Saturday and my GP closed so they arranged an appointment with an out of hours GP at my local hospital  in the next hour. 

He had no idea what the cause was and was that worried, he sent me to another hospital 30 miles away to see a specialist. I arrived and was admitted in straight away for tests and observation.

They took blood and urine tests, a chest x ray, a heart reading straight away. But they couldn't link a diagnosis with the edema. They flooded me with antibiotics assuming that it was an infection.

I was discharged the day after as the redness and pain levels seemed to have gone down a little after the antibiotics and i will be returning soon for an ECG and other scans. I left with walking sticks so that I could walk around easier .

Now today its been almost a week. I still need the walking sticks to walk, the swellings is still huge, the pitting is still evident but i do think the antibiotics is helping some.

But I really wish I could know what this is as its very worrying. The docs couldn't see a problem with my heart, liver or kidneys. I have also been tested for DVT and gout. My blood sugar is fine. The only possible resolution is that it cold have some link with the hot weather, but that wasn't confirmed.

Has anyone else had severe painful edema in both legs and the doctors  couldn't find a diagnosis?

My current medications  I take regularly are: Mirtazapine 45 mg and Hydroxyzine 25mg. 

Can anyone advice or share  their experiences? Is there anything I can do to help minimise the risk of this happening again? If this is heat related, I'm going to have a hell time every time it gets hot. But surely 'hot weather' cant just be the only explanation there is why I have major swelling in both my legs and feet.

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OS says too early to say it did or didn't work, but I think it didn't and he won't do MRI until 6 months. He'll give me pain meds, but I don't like them and don't react well to them. The foot pain is bad! Could it be nerve pain?

I knew this was a long recovery, but I wasn't prepared for this! I ran for 30 years, which could have contributed to this problem, but now I'm wondering if I will ever walk pain-free again?!

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I realise I have really bad health anxiety, but it makes it worse that I haven't even had proper tests or anything done to rule out the worst things!

I'm finding it so hard to deal with this, I feel like this anxiety is taking over my life Thanks to anyone who reads this essay of a post, I feel I just needed it off my chest.

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Ok. So i have broken my fifth metatarsal and have been put into a non weight bearing air cast for two weeks. 

Due to the break, the doctor has given me a blood thinner Innohep 4500 UI to take everyday to prevent a blood clot. 

My problem is: For the past 3 days my calf (same leg as broken foot) has felt like it's been cramping. Elevating it relieves the pain a little but i am required to attend my courses at University - meaning i'm on crutches all day. Sitting/standing makes the pain increase. The pain has gone from mild to severe; i can almost cry from the pain coming from my calf.

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So this is an embarrassing topic to touch on. But due to my amount of pain and the lack of clinics open due to tomorrow being new years day. I will turn here for support.

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I just recently had my first look at it and I do have a tender lump on the outside. The pain spreads to the inside but most of the pain seems to be coming from that one tender lump. I cannot stand the pain. My only relief is a hot bath, which sucks to get back out of and Vicodin or tramadol which I have had left over since my kidney stone attacks but that's another topic.

The lump is not discolored or anything, it just severely hurts to touch and I have tried everything I have seen on the internet to provide no relief.

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