Crohn's Disease :: Mercaptopurine And Tramadol For The Pain
Sep 2, 2014
Hi I have just joined the forum and would like to know if anyone feels the same as myself or am I going mad. Was diagnosed with crohns in 2010 after doing the over 50 bowel screening ( I am 55) have been on several medications and had a very nasty abcess where you dont want one and had to stay in hospital 11 days. Last november I had been in infliximab for 2 years having infusion every 8 weeks and also taking mercaptopurine and tramadol for the pain, I now have infliximab every 10 weeks still taking mercaptopurine which I have been on for 4 years, the doctor asked me to try and stop tramadol but I only take 2 per day 4 on a very bad day, I have tried several times not to take these but when I stop the next day I feel bloated, very sick and its a struggle to get out of bed and as a full time carer for my disabled husband thats no good, it happened today so I took 2 tramadol and crawled back to bed and within an hour I felt a lot better, have explained this to 2 doctors and 1 wants me off tramadol and says symptoms are due to them and the other gives me a prescription and says if I need to take them to do that I am so confused. I take them because the option not to makes me feel so crap (pardon the pun ) has anybody got any advice please I hate this crohns
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I am a 24 year old who works a 12 hour rotating shift pattern (including night shifts). For the past 6 months or maybe more o have had upper left abdominal pain (cramping/aching) and more recently lower pain (sometimes across lower, sometimes left and sometimes a specific place on the lower right). I put it down to IBS due to shift work. My partner convinced me to see the GP as I have a family history of IBD. Oh and my bowel movements vary from constipated (less than once a week) to lose (not diarrhoea and multiple times per day)
Had stool tests and blood tests. I expected them not to find anything to be honest and just did it to please my boyfriend and put his mind at rest.
Doctor phoned and said that "the stool test shows signs of inflammation indicative of inflammatory bowel disease". I couldn't really ask more questions because of where I was. Phoned in for blood results and told by reception that they were fine.
I have been referred to the gastroenterologist and have an appointment in 2 weeks.
I am tired all the time and find it really difficult to get out of bed, frequently have naps at work but put that down to shift working.
I don't want to take any laxatives because I never know when it will change between constipation and loose stools and when I'm working, I often can't get to the toilet.
I often have joint pain but I also have a knee injury and some hyper mobile joints.
I am so confused as to what is going on and hate not being in control of my body. I know I only have mild symptoms, I feel so alone (shift work doesn't lend itself to meeting people regularly).
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My husband was diagnosed with crohn’s disease some time ago. It seems that he is not allowed to drink beer. I don’t know how he will be able to do this, since he is a great fan of beer. Why isn’t he allowed to take it? Can someone tell me?
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My wife has been diagnosed with crohn’s disease. We have no children yet, but we were planning to. However, this disease is something that surprised us. She manages to coup the disease with medications. However, we don’t know if this affects her fertility. What do you think about this?
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I know something about crohn’s disease. However, there is something else that intrigues me. I was wondering if this disease can be manifested with haemorrhoids. As far as I know, those are two different entities, so I would like to know if they can be linked in any way.
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I've had hearing loss now for a few years but don't know whether it's down to Work, crohn's or chemotherapy, anyone else?
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I had my surgery in 98. I've been symptom free for over 10 years. I recently hurt my back at work and was prescribed Naproxen (Aleve) because of the new pain med laws. Well after taking it for a week, I just started vomiting large amounts of blood. I went to the ER and they were shocked to hear that this was prescribed this for my pain since they were aware I had Crohn's. Has anyone else had symptoms like this from Naproxen? Would it be a honest mistake or malpractice?
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I had a blood test today as I'm being tested for Crohn's disease and a load of allergies however my blood was really thick and gloopy and would flow even the nurse said that it was unusual. She couldn't get much blood out either as it would flow so ended up having to use bottles that they use for babies because there nearly any blood. I'm just wondering what this could mean or if anyone else has had this before?
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I've had Crohns for 20 years I have a structure but is under control with drugs but the tiredness and fatigue is terrible specialist isn't much help or understanding on this point how do others cope with it ? My bloods are checked regularly and are always fine. I sometimes wonder how I'm going to get through the day at work sometimes and don't have the strength to do anything when I get it at night and I cannot wait to get to bed even if it's to watch tv I wouldn't mind but I'm no party animal has anyone got any sensible suggestions please ?
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I had a high transsphincteric fistula (multiple abscesses). CRS placed a cutting seton with fistulotomy in July. CRS told me that the seton would be in prob 4-6 weeks. It is now 8 weeks later, new CRS (first one moved), told me that he doesn't use these much as they are not tolerated well and that he thinks he will have to go back in and tighten it as it is not advancing. He says this is/can be a long process. Now I am to go back in several weeks to finalize new plan. Problem is, after surgery, I had Augmentin. The fistula track was not draining like it was supposed to and I got another abscess... after the fistulotomy and seton placement. CRS gave me Augmentin which I'm not sure really helped. So, I got a total body rash from the augmentin. I lasted 5 weeks before I was so miserable that I finally took oral steroids from Dermatologist with CRS approval. After I did two weeks of steroids, which helped tremendously, the rash came right back. Derm subsequently gave me a new prescription for prednisone (for one month taper!) and told me that it is a rebound rash after I stopped steroids. CRS says he won't do next surgery until I am off of prednisone for several weeks. Do I take the prednisone? or try to power thru the rash and not tear off my skin? How long will this next seton take to cut thru? wonder if it will get "stuck" midway too? More tightening procedures? Oh.. what to do?
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I'm 28 and have crohn's disease. I have been on humira for 2 years which had worked well. The past few months, however, I have been suffering from a debilitating flair up. My Dr upped my dosage but it hasn't made a difference and am now back on steroids. I was wondering if anyone else had experienced this with humira? And if anyone had had success with any alternative medications?
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I have been taking Azathioprine for crohn's for some time and have been lucky not to have had any side effects. For a while I have had a sore throat but not needed any medication. When I read the possible side effects on websites they mention sore throats. Any one else experience this, if so have you spoken to GP or consultant.
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I'm really disappointed in myself i'm 26 years old and suffer sciatica really bad in my buttocks nerves going down one leg and along my back. I recently changed my doctor to one closer to home. On my first appointment my doctor made it clear I needed weaned off the 400mg of tramadol and 400 mg I take a day I was prescribed them two years ago along with Sertraline 100mg a day for my anxiety. The doctor and I never discussed me becoming addicted ever, I haven't tried to stop taking them as it was never suggested before my current doctor told me I was most defiantly addicted I have to be considering the dosage I've been on every day and the length of time I've been on them.I have not had them for a few days once as I'd ran out and it was the weekend I wasn't too fused and knew I would get them on the Monday morning I felt fidgety and anxious didn't know ok w what to with myself all of Sunday and when I slept on Sunday night I had the sickest terrifying dream I woke up sweating and scared I don't know what I was scared of by I was for hours. Can this be withdrawal symptoms.
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3 days ago I began, by accident to go through the nightmare of tramadol withdrawal.bI'd been prescribed up to 400 mg daily 4 months ago to relieve fibromyalgia pain. Luckily,I settled on a dose of 200mg taken early evening and last thing before bed,not realising at the time that I was using them more to aid sleep than for pain.I absentmindedly forgot to order my repeat prescription,hence the withdrawal.Can't believe what I am going through.The worst thing is the restless legs and complete inability to be still,especially at night times,which seem to go on forever. I am so tired through lack of sleep and the constant fidgeting is horrendous.Cannot settle to watch tv,read,or anything else that would distract me from other unpleasant sensations like the whooshing in the head,electric pulses,irritability,etc.My gp,usually very good,never mentioned any possibility of addiction,or even that tramadol are opiate based.I am now determined to get off and stay off this drug.Believe it or not the chronic pain I have is more manageable than tramadol withdrawal.Hoping someone has some positive feedback to encourage me,but also want to make people aware of the dangers of this drug,and the need to ask more questions if prescribed.
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I began tramadol in June 2014 after surgery. It subsided the pain and made me feel good. Like happy and optimistic about my recovery. I couldn't drive while recovering, so I walked everywhere, including to physical therapy appointments. That was all of last summer. I stayed on them until January to help with physical therapy discomfort. Then I suffered an elbow injury also in January, so stayed on them. My surgeon who originally prescribed them began cutting down on what he prescribed, so I found them elsewhere. This past spring, I began drinking alcoholic beverages after taking my last dose at around 5pm. Two months later was a disaster. Since, I have learned two very important things about Tramadol. One is that it's also an antidepressant and two, alcohol makes them even more addicting. This I learned through all the research I desperately sought. I am now 11 days without taking Tramadol and It's been hell. I spoke to a detox facility and they said that my insurance company would not pay for treatment for Tramadol because it is...wait for it... NOT ADDICTING. So here I am still trying to get this poison out of my system. It stinks because it is now I need something to calm my symptoms. Which is the lesser evil? I have no energy, depression, muscle weakness, no motivation and can cry at any given moment. Why me, why any of this? Doctors need to know what Tramadol truly is as do the insurance companies.
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I have been provisionally diagnosed with Crohns and have been on Prednisolone for 3 weeks, starting off with 40 mg a day and reducing weekly by 5 mg.
I am having terrible headaches and no releif from the abdominal pain.No other symptoms yet.Can I expect some improvement as time goes on in your experiences ?
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i want to know what is better to take first subo and after tramadol or first tramadol and after suboxone
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Last Friday (16/Sep/11) I had an op to repair an umbilical hernia (overnight stay). On being discharged the nurse gave me a packet of 50 mg Tramadol capsules to ease the pain, although the pain wasn't that bad. I had been walking to the toilet (in hospital) within 4 hours of recovering from the op.
Anyway, I got home on Saturday and what with the fairly long walk from the hospital to the taxi, plus getting in and out of the car, I was starting to feel some twinges, so I took 2 Tramadol. Much later that evening I started to have really weird side effects. They are so difficult to describe. A combination of panic attack, dizziness, extreme fatigue, and difficulty nodding off to sleep. I'd nod off, like one does, then I'd immediately have these images in my head - people I'd seen on TV that day, cars, animals, all jumbled up.
Then I must have fallen asleep for an hour or two only to come awake with a start after having this veritable nightmare of there being someone in the room and when I opened my eyes (in my sleep just before coming awake) there was this extremely tall guy, 9 feet tall, his head was literally brushing the ceiling. Then "he" walked across the room to another bed (my mind thought it was still in the 4-bed unit in the hospital ward) and disappeared! As if in a puff of smoke. And at that point I awoke feeling hot and sweaty.
So those were the last Tramadol *I* was ever going to take, I can tell you. And then, yesterday, Thursday I had severe itching at the surgical wound site. This had nothing to do with the Tramadol I'd taken on Saturday, which must have been out of my system by then. Anyway, apart from the itching there was still a bit of an ache, so I thought I'd take just a single Tramadol capsule.
The itching went; the dull ache went. But this morning, very early, about 04:00am, I awoke feeling anything but refreshed. I had some numb feelings in my hand and thigh, they kept coming and going. I got up at around 05:45 am, make a cup of tea, then suddenly felt very weak. Jittery, fast pulse, zonked. Since then I have just lain on my bed in between going for a short walk and am drinking glasses of water in an attempt to flush this [b:095f76e716]POISON[/b:095f76e716] out of my system and am starting to feel a little better.
Earlier in the week on doctor's recommendation I booked an appointment with the nurse for this afternoon to have the dressing changed and the incision checked (it's a long, vertical cut about 4 inches long; they found two hernias), and in order to save on taxi fares I booked one of the free pick-up buses to take me and bring me back. However, I've just cancelled them and have ordered a taxi instead as I cannot face the lengthy zig-zag route these buses often take as they have to pick up numerous other people. I'll talk to the nurse about Tramadol and see what she says. I don't need any pain killers now and if I still get one or two twinges in the next few days, I shall take only paracetamol if necessary. (Not allowed to take ibuprofen or similar NSAIDs as I have a tendency to gastritis and duodenal ulcer.)
So, I am never going to touch Tramadol ever again and this time I mean it. I would not recommend it to my worst enemy. If some people take it just to get "high" they must be stark, raving mad.
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I was prescribed tramadol 6 weeks ago, but having read in the forum how addictive they are I am considering stopping them, although they do help with my back pain. Has anyone being given an alternative to these drugs, and if so are they effective.
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My son was treated with a distractor on his hip 4 years ago now and it worked great .... unfortunately now he is starting back up with pain, in his hip - is this normal.....
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after using Tramadol for several months with limited success I have now been prescribed Amitriptyline also to aid sleep. I was constantly waking up at night in pain but this is seeming to work thankfully.
Is it a concern though that it does knock me out and I do work night shifts.....
Perhaps I need to change my shift pattern temporary?
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