Constipation Due To Genetic Illness
Mar 18, 2015
Because of a genetic illness, I'm chronic constipated. (for 3 years)
Probably because of a coordination issue in my bowels and reduced muscle strength.
I take Molaxole every day but it's not enough, I often have to take 8 Molaxole-doses in 6 hours to empty my bowels.
Is there something else that can help me have a good bowel movement?
Is there something that improves the movement of the muscle tissue in my bowel wall?
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Beginning to feel like "seamstress I am still finding my feet in coping with new diagnosis but my husband isn't really understanding the seriousness of my problems!
I am in a complete dilemma (ongoing for at least past couple of yrs) about my work/career. I know it contributes hugely to my stress which makes my symptoms so much worse and it is more than likely that work was a big trigger to developing my CFS/me.
All I ever wanted to do was become a nurse and I did so. Now been in nursing for almost 29yrs, more recently (past 10+ yrs) as a nurse in a GP surgery. Now my role is excessively demanding (nursing not alone in this, I totally agree!) and I find myself struggling to deal with "patients" as well as the politics and educational update requirements of the job day to day.
I know in my heart that I need to leave for my own health, not least being aware of my professional code that I have a responsibility to my patients care if I am not fully healthy myself!
I am struggling to find an alternative occupation and in itself, this causes me additional stress because I love being a nurse and can't imagine doing anything else! Anything else will require some form of adapting to, which I worry will still cause me stress. I also feel incredibly guilty and as if I am abandoning my nursing profession, plus all the patients; especially those with illnesses such as CFS/me and mental health disorders because there are little enough health professionals championing these conditions anyway!
My gut feeling is that I need a career break but then this creates anxiety within my family relationships, especially with my husband as he has several concerns:-
a) I will become depressed again if not working regularly and my "work ethic" will reduce!
b) It will affect our family income and, with our daughter due to start a four yr degree at uni from September, this has impact on our financial plans!
c) His own plans around him retiring in 2-3yrs (he has worked already 42yrs in same company and will be 60 in 2yrs)!
I am having an Occupational Health Assessment this week and am worried a little about this. My manager is fairly supportive and it is very helpful having advice and information from my local specialist CFS/me service. I am awaiting start of CBT but just don't know whether I should extend sick leave until therapy is in progress!
I am on the verge of going onto half-pay due to my sickness absence in the last year and this again, causes me increased stress!
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I been having all the symptoms of endo. The lower back pain, pelvic, stomach pain, bloating. I also have leg pain which im not sure is linked to endo but my pain is constant as i've had it non stop for a month now but feel worse when im on my period.
I have been to the doctors as he said it could be a possible ovarian cyst but he didn't really know so he is referring me for a ultrasound which wont be for a couple of weeks!! He did no other tests apart from a urine test (still waiting on results)
My mum has told me both my cousins have endo and im just wondering if its genetic?
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Seems like I have eye bags "running" in my family. My mom has them and she's been using numerous creams and potions and what-else to get rid of them but nothing seem to work properly. Is there something i can do to prevent them or I just have to get used to idea that i will be having eye bags?
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I turned it down but I wanted to know if anyone else got it done...
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My wife's past WBC count was always about 5. She just recently had a test and it is 3.7 and has been flagged as low on her health records (nurse didn't mention it but she has only seen her online records since speaking to the nurse).
Now she is worried because her father died of leukemia. Is this white blood cell count dangerously low or unlikely to be anything serious?
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Can you tell me something about cystic fibrosis carriers for I am planning on getting pregnant but I am afraid that my baby could be born with cystic fibrosis for my mum has the illness and I know it is inherited and I know I am cystic fibrosis carrier. So do you think I should get pregnant with this cystic fibrosis carriers history and how could this possibly affect my baby health condition?
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has anyone gotten a false genetic testing . They have told me my baby neck is 6mm away and it has to be 3mm . Has anyone gotten the same problem and later everything was fine ?
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How accurate are blood test
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I just wanted to know if Bipolar is genetic. My was recently told that my grandad is bipolar and wondered if I was to as I believe I have some sort of mental problem. I don't really know much about bipolar and be good to learn about it also, not just from reading books and websites but from people who actually experience it themselves or with other people.
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Are brain tumors hereditary? My Dad my Brother and just now, my nephew died from one.
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I have been taking antidepressant for almost an year. I changed few brands, nothing was helpful for me.
Recently I learned that there is a genetic test for antidepressant. I wonder if I can order it by Internet. I live outside of US and here there is no chance to find one.
Do you know if it's possible to order genetic test kid by Internet?
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I have a 10 year old son who is diagnosed with ADHD, Anxiety, SPD/IPD and rule out of Asperger's/PDD in 2013. Currently, we have him on Methylphenidate ER 30mg per day, but lately we have been noticing issues. Mind you, the school hasn't been very helpful this year with information on how he is doing so I can only go by the vague messages received... the first 6 months, they say he was great! Though I have documents to prove otherwise - lately though, the teacher keeps saying he lacks focus, needs to pay attention and all that jazz. (I say it so flippantly because this teacher has been a pain to work with.
I spoke with the doctor and she wants us to come in next week to discuss his meds, but we have had issues with additives in the past and it's not a route I want to go... to sit and wait. His diet is modified already, we also work with a behavioral therapist and a chiropractic neurologist and he takes Taekwondo.
With all this, I'm wondering if anyone has tried the genetic testing (IE: HarmonyX or Genesight) to see what meds would work best with his specific genetic makeup?
I read all these stories of parents having all these issues and suddenly their kids are on Vyvanse or something else and it's a miracle. I wouldn't mind that... him being able to function better at school (academically and socially) ... he gets bullied (though he can start it up too) - I just wonder, what next?
Here is his medication history:
August 2011 – Vyvanse ??mg (very small amount)
September 2011 – Vyvanse 30mg (adjusted to 30 mg)
May 2012 – Trial samples of Intuniv w/ Vyvanse for two weeks. After two weeks he was out of school and parents decided not to continue the Intuniv.
September 2013 – Intuniv 2mg w/ Vyvanse
September 2013 – Concerta 36mg (removed from Vyvanse and Intuniv because he became over-emotional and violent/aggressive)
December 2013 - Concerta 54mg (Dr. Snyder prescribed)
March 2014 – Methylphenidate 10mg (3 times a day) (March 7th thru March 14th)
Methylphenidate 15mg (3 times a day) (started March 15th)
April 2014 – Methylphenidate 20mg (3 times a day) (started April 14th)
May 2015 – Adderall (adderall) 10mg (3 times a day) (started May 14th)
June 2015 – Adderall (adderall) 15mg (3 times a day) (started June 3rd)
August 2015 – Guanfacine 1/2mg (3 times a day) (started August 21st)
September 2015 – Methylphenidate ER 30mg (once a day) (started September 6th)
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I am told by a cousin that it is "in our genes" My dad had it and now my aunt has it both on father's side.
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I was diagnosed w/ Metabolic mitochondrial myopathy over 10 years ago. Right now I am struggling with the worst illness I have ever had. Started about 5 weeks when I woke up I noticed every time I breath in it stinks. Since then I have gotten weaker and very sick. I have bouts of vomiting, diarrhea, constipation, my head feels full, burning pressure in my ears and sinuses. My shoulders hurt so it feels like my arms will fall off. I also am having problems with this weird pain in my back & stomach, it feels swelled and I feel raw all the way down to my bladder. At times it feels like burning raw sensation all over. My face feels numb and my left foot. I know this makes me sound crazy, it is making me crazy but I just can't seem to will myself to get better. Every day I wake up with some hope and it's the same thing every day. All I have had was a z pack of antibiotics witch seemed to help a tiny bit,(I am able to sit up a little longer)but I can't stop feeling horribly sick & weak.
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I`m pregnant and the problem occurred when I found out that I got cystic fibrosis. I know it`s a genetic disease. I fear for my baby. Is there anybody with experience who could tell me something about that? How is CF inherited?
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I am asking on behalf of my friend's child. Her child cannot walk for long distances, and needs a foot brace. I think there is discomfort at his talus(?). I'm not very sure about the details.
Her in-laws have had this genetic disease passed down to every male in the family, I believe. It is really saddening, as my friend's two sons both have this disease. What kind of disease is this? I do not have details, so I'm up for suggestions. Thanks!
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I'm aware that, genetically, we inherit traits that include the ability to process alcohol differently depending on heritage. My question is this; Do these variations of tolerance make any difference to the physiological/psychological damage? My gut feeling is that they don't, it's just that I rarely see or hear much about this aspect.
I'm 65, drink 150-200 units weekly and, unsurprisingly, have alcohol-related peripheral neuropathy.
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My only sister has just being diagnosed with BIH which tells me surely its genetic.
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I am married. I am 25 years old. And my husband 29 years old. Now I am pregnant. But my husband had tinnitus in left ear before 10 years.Then he had done surgery to recover tinnitus. After the surgery, he has hearing loss as the side effect of operation for the left ear. I have a doubt that “ is this type of tinnitus is inherited to our baby and if yes how many percentages will get tinnitus for my baby?” we are very tensed really. Is there any hearing loss problem is inherited to my baby? If yes, how much percent probability get a hearing loss?
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I've already wrote a post below but just wondering if anyone knows how long the genetic test takes. I had mine two weeks ago but have now been told it could be 4 - 6 weeks. My bloods came back showing that I am anemic so my doctor doubts I have HH anyway. I have all the symptons and now waiting to be referred to gastro for my third lot of investigation. I am thinking the doctors really are not clued up about this at the moment.
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