Cirrhosis Of The Liver And Hepatitis C Cured By Harvoni
Jan 7, 2016
I haven't been in here for awhile, My husband took harvoni and is free of hep c, He has been on the transplant list for 4 years, He had the tips procedure done in 2011 because of a bleed out that almost killed him, He has had liver cancer, They probed the cancer and it is gone, He is on lactulose because of H E , Also he vomits every third day and no one knows why, So we had a meeting with the transplant doctor yesterday, and because his hep c is gone and his meld score is only 16, They took him off the list, I asked what would happen if he got worse or whatever, And they said we would have to start over again, So now we have decided, no matter what we have been sitting too long , it's time to enjoy life and start traveling, Whatever happens ,, happens,,, Had to vent Thanks
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I don't post a lot on here but wanted to share with everyone the miracles that exist now for treating Hep C. I saw my doctor on Friday and she let me know that my 12 week post treatment labs after 24 weeks of Harvoni came back with a negative viral load and that I am now cured (12 Week SVR). This was my 3rd treatment and thanks to God, it worked. There is hope for all of us. I have had Hep C for 30+ years and am a Genotype 1A, with a Fibrosis level of 3+. As a 3+, I still have an increased risk for HCC, so I will continue to get lab work done every 6 months, ultrasounds every 6 months and a CT scan every 18 months. I encourage everyone to keep on treatment - we are at a place where so many of us now have a chance for a cure!
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Received my 6 month end of Harvoni treatment.
Achieved SVR/Cured
So happy!!! Harvoni is such a wonderful drug. I thank God for it. It was amazing, I never felt so good while I was on it. It made me feel great. I did 12 weeks of treatment and my viral load was 5.8 mi. Type 1A
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I have been diagnosed chronic hepB for 8 years now my spleen is inflamed.
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my dad is in hospital at the moment. he has liver cirrhosis and he's in a bad way. i'm trying to find out whether he has a chance of getting back to his old self. he has jaundice his arms have gone really thin. he has had GI tract bleed. a stomach ulcer, swollen stomach and his toxics from his waste are going to his brain. when i've seen him he is just confused or sleeping with his eyes rolled back in his head. any ideas on whether his body could recover for a while or whether this is game over.
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I am a 34 year old male who was diagnosed with hemochromatosis only after a liver biopsy because i only have one of the genetic markers. When diagnosed my ferritin was over 5000. Shortly after i was diagnosed with stage 4 cirrhosis of the liver. Is anyone out there in the same boat as me.
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What is the sensitivity of liver nuclear scan in detecting cirrhosis?
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Has anyone experienced low BUN and creatinine blood test? How is it common in people who have cirrhosis?
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I just need to ask that my father was on sovaldi treatment for 4 days when his (serum) creatinine level shot up to 2.53 which later came down to 1.96 and now at 1.43. He has no renal impairment and his kidney ultrasound and detailed urine report is perfectly normal. He is cirrhotic (Hep-c) at stage 2 according to doc (hep-c) which stopped the sovaldi + ribavirin treatment to save his kidneys. However during the period he was also on diuretics (furosemide) occasionally. His nephrologist says that it is safe to continue sovaldi treatment but the other doc gave a red flag (I have yet to have a discussion with the nephrologist). So I am asking that is it possible that creatinine levels change because of sovaldi or do i need to the change my doc? Also he has edema occasionally. He also has acid reflux.
Age: 58 Sex: M Height: 5'10" Duration: a year (stopped sovaldi: a month) Location: Pakistan Medical Issues: Hep-C, 2nd Stage cirrhosis, acid reflux, depression, anemia Medications: Furosemide (Depending on edema) Rabeprazole (Twice daily half and hour before food) Folic Acid Vitamin-D and Calcium
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I'm on day 6 with Harvoni and still a long way to go, was wondering on how some of you are doing on the same treatment .
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I was wondering what people are eating, if anything, when they are taking their Harvoni? I know that it is prescribed with or without food but I saw a comment on another forum that said that Harvoni works better in an acidic environment. However, I have not come across that information anywhere else. Just wondering as I want to make sure that I am doing all that I can so that treatment works this time after failing 3 times.
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My new girlfriend, who I like very much, was very open with me about the fact that she had a blood transfusion as a baby for several surgeries she had to have, which left her HCV positive. She and I were about to move into the sexual part of our relationship, so we both got tested for STDs to show each other we had a clean bill of health. Well as it turns out, her bloodwork showed she was HCV positive again...this is after achieving SVR (not sure for how long she had achieved this yet). She told me and was very upset, so I obviously just gave her a hug and held her. No other way to respond she was so upset. I'm curious, does anyone on here have any experience with this? Possibility for false positives or possibility for her to need to seek additional treatment? I hope you can forgive any questions that may seem ignorant. I am mostly focused on her health, but naturally I'm also concerned about the implications for our future relationship (I understand it is very low risk to pass it to me through sex, but still, I'm human, and I'm just carefully looking at this situation). If anyone can shed some light on her situation, I'd love to hear it. She's a great woman and I'd like to get any info for her that could help.
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I have chronic pancreatitis and they put me on carafate and I have hep c since 2000, cirrhosis since 2007, no prior hep c treatment was wondering about Harvoni and carafate?
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Will Medicare cover for me? I can't afford the regular super high cost. Any programs for discounts here in the SF Bay Area?
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I have been written a prescription for Harvoni or generic. I've found generic at Gandhi Medicos for $1140 US.
I am in US and I'm wondering if anyone has any dealings with this Co. also.
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Has anyone heard of a new drug in the works from Gilead, which is supposed to cure hep c in geno 1a patients with cirrhosis, having pre-treatment and null responders.
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I'd like to relate our experience with Hep C treatment. My husband got Hep C back before it even had a letter, in the 1970s, and he is now 62. He has never been much of a drinker, which is very fortunate. He has always had a ridiculous amount of energy, and an active occupation. He kept an eye on his liver (don't take that literally!), and the diagnosis never much affected him. But after a divorce about 10 years ago, he began to consume more alcohol than before, and his liver enzymes crept up, and his biopsy in 2009 said he had Stage 4 cirrhosis. Yet function was still fine, and still he did not feel affected by the disease. The doc said, the numbers say it's time for interferon.
The side effects and prognosis for cure were not encouraging, and I contacted naturopaths I know to get a recommendation for someone for him to see. They recommended a doctor at John Bastyr Naturopathic College in WA State, and we went to see her. She specializes in traditional Chinese medicine for cancer, HIV and liver diseases. She prescribed an herbal combination, and some other supplements. And ZERO alcohol. She was the first doctor who actually said NONE. Other doctors would pussyfoot around and say, don't drink a lot, but no one said, don't have any at all. Not even one beer on Friday. Not drinking was not a problem for him, as he had already mostly stopped having any once he got the Stage 4 pronouncement.
The treatment regimen she started him on made him feel worse, so he went back, and she put him on a different formula, something called Livercel, made by Nutricology. It contains a proprietary blend of Patrinia extract, Phellodendron amurense extract, Yi-Chen wormwood extract and Schisandra extract. He also was taking milk thistle and a few other things. This herbal combo reversed the numbers, brought his liver function (alt and ast) down to high normal, whereas they had been going way up.
He kept to this regimen and was going along fine, back to not feeling impacted by the virus, though of course he knew it was still there. However, at his checkup last June, his numbers were starting to go up again, and now that there was a real cure available, his naturopath said, ok, now the new drugs have been proven effective and have minimal side effects, so time to give that a try, if you can afford it. Which of course, hardly anybody can. So then we started on that journey.
Meanwhile, what my husband hadn't mentioned to me was that because he was feeling so unaffected by the disease, he had started being not so diligent about taking the Livercel. Taking it once a day instead of twice, or skipping a day, etc. Once he got the higher numbers in June, he started taking them religiously, never skipping. And you know what? HIS NUMBERS WENT DOWN AGAIN. The RNA quantitation was 15,774,971 in June, and on the 11th January, it had gone down to 6,646,637. Down about 60%. This shows to me that the Livercel was having effect. So look into that while you are waiting for the new medicines to be available at a reasonable price.
Meanwhile, although his allopathic doctor's request for Harvoni was initially denied by the health care insurance company, they approved it when she resubmitted it. And they signed him up for the Harvoni's patient co-pay subsidy. He has been on it for a week, and so far no side effects at all. I asked him if he felt anything at all yet, and he said, "I think they must have given me the placebo.
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Well first week went by and doing great. haven't had any side effects to speak of, 11 more weeks and hopefully i'll be cured
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Started 24 week treatment with Harvoni 1/20/15 Genotype 1-a Stage 4 Cirrhosis with Compensated liver
Ast 123 then, 45 now
Alt 165 then, 165 now
Viral load then: 2,600,000 now less than 15
Hep C still detected but I thought this was great for the 1st 4 week prognosis since I am on pill for 24 weeks.
How is everyone else doing?
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That's what I am experiencing along with shortness of breath, fatigue and aching. These are mild problems compared to the interferon based tx so I figured I'd just go with the flow. What has me more concerned is my low pulse which is consistently under 60 at rest and barely over 60 with exercise and I am breathing heavily most of the time. I had not heard of any relationship between Harvoni and high bp until I found this: ...
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EOT 17 after 8 weeks of treatment on Harvoni. SVR test scheduled for June 17th. I just had a blood test done at another doctor and am awaiting results. If it shows virus has come back and is growing, how long before I can effectively take a second round of Harvoni treatment?
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