Chronic Pain :: Myofascial Pain Syndrome?
May 6, 2014
I just started reading about this and it really sounds like I may have this but I'm not sure. I have headaches sometimes that are awful and seem to start from my neck and back of my head. I see a chiropractor once a month and my x rays showed problems in c5 and c6 in my neck. I also have notalgia paresthetica which itches me too death sometimes in my right back shoulder. We figure it's caused from the c5 and c6 in my neck. I never sleep all through the night, always tossing and turning. And I feel fatigued ALL the time no matter how much rest I get. I had a blood test and my vitamin D is low. I can find "knots" on my back, usually I can find about 5 or 6 of them, even on my sides. I work a very physical and mentally stressful job and this causes me a lot of pain. When I am working usually mid day I will get a horrible sharp pain somewhere in my back and it just stops me. It's like someone taking a hot knife and stabbing me with it. It's hard for me to straighten myself up. My pain is in my mid and upper back, rarely ever in my lower back. I do get dizzy sometimes also and feel off balanced.
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Have had TMJ Dysfunction for many years which was controlled. Then 12 months ago symptoms returned and did not respond to usual methods of treatment. At the same time had some kinesio taping for back problem. 3 days later my whole body went into spasm . I have muscle spasm pain , tenderness and trigger points. Attended acupuncture , osteopathy and had exercises and foam roller. Work was getting worse and was struggling in with great difficulty in pain . Last October virtually collapsed and had to retire. Went to local Hospital Dental clinic who said I had MPS as well as TMJ. Gave me exercises for jaw. January 14 also in pain from damaged nerve from operation 30 yrs ago wisdom tooth extraction. Have pain and Tinnitus taking pain killers muscle relaxants also having massage. Feeling lost. You have to have this MPS to know what it is like. Can anyone advise on coping strategies?
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Has anyone else been diagnosed with this condition? I shall explain! for 10yrs i've been told i had arthritis in my right hip and right hand giving me chronic pain, only to be seen by 5 different doctors due to a recent change in location and investigations i've now been told i have , mild osteoarthritis in my right hip and the joint between my thumb and index finger.
Not only that but all differnet 5 doctors have said it was different things. seeing my own doctor today, she said (or applied) that the pain might be in my head, then to turn round and say that she was certain that i had A chronic medical condition and what it was she was unsure of.
Is this Chronic pain syndrome another name for they havent a clue whats going on?
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I have had various health issues in the latter part of my adult life but one thing that has always remained constant throughout is my groin pain. It does come and go but, in recent years, has become a real, persistent pain. I think I have learned to live with it until I was recently Assessed as having ME/CFS.
My support suggests I self medicate as all pain uses energy!
One specialist I saw suggested it was ACNES and gave me a cortisone injection which worked for a short while.
I have asked my doctor to do a scan for me just to see if it is related to my ovary removal 3 years ago.
That brought up nothing.
recently had blood tests done and no concerns there.
has anyone experienced this pain, just in one groin, not both; the right side ??
I would love to hear from anyone who has any thoughts on this or experience of it themselves.
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I've been on LDN - Low Dose Naltrexone for a few months now. It's been a bumpy road and the journey has had both positive and negative points.
I've been adjusting the dose but in so far the 3 main benefits I can claim from it are:
- some sleep improvement;
- less pain intensity;
- apparent normalising effects on some blood markers such as LDH (lactate dehydrogenase).
However I feel exhausted to an unbearable point and continue prone to inflammation. I've decided to continue treatment with LDN because I've read extensively about it and many authors say it may take up to a yer to come to fruition.
Meanwhile I've resorted to naturopathic medicine and I'm under treatment as well.
We're all different in the way we react to medications and because I've been reading so much suffering here with so little hope of remission that I thought of encouraging you of not giving up and trying new things.
I would like to share with you a recent study on LDN whose Abstract is:
"The use of low-dose naltrexone (LDN) as a novel anti-inflammatory treatment for chronic painJarred Younger, [corresponding author] Luke Parkitny, and David McLain
Abstract
Low-dose naltrexone (LDN) has been demonstrated to reduce symptom severity in conditions such as fibromyalgia, Crohn’s disease, multiple sclerosis, and complex regional pain syndrome. We review the evidence that LDN may operate as a novel anti-inflammatory agent in the central nervous system, via action on microglial cells. These effects may be unique to low dosages of naltrexone and appear to be entirely independent from naltrexone is better-known activity on opioid receptors. As a daily oral therapy, LDN is inexpensive and well-tolerated. Despite initial promise of efficacy, the use of LDN for chronic disorders is still highly experimental. Published trials have low sample sizes, and few replications have been performed. We cover the typical usage of LDN in clinical trials, caveats to using the medication, and recommendations for future research and clinical work. LDN may represent one of the first glial cell modulators to be used for the management of chronic pain disorders.
Keywords: Anti-inflammatory, Chronic pain, Fibromyalgia, Glial cell modulators, Low-dose naltrexone, Microglia"
Younger, Jarred, Luke Parkitny, and David McLain. “The Use of Low-Dose Naltrexone (LDN) as a Novel Anti-Inflammatory Treatment for Chronic Pain.”Clinical Rheumatology 33.4 (2014): 451–459. PMC. Web. 13 July 2015.
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I know painful glands are common with Cfs under chin and in neck etc but lately im having sharp pains in the glands under my tongue- salivary glands im guessing. Nothing major- I just notice it a few times a day- anyone else have this?
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I've had RSD now for 2 years and now my doctors say I have unfortunately developed chronic pain syndrome and its to my understanding it's creating more pain that is feeding on the pain that is a viscous cycle and very hard to break my question is does anyone have CPS on top of RSD for just when I thought this is enough there's more .
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I am French. I’m 28, it’s being 2 years and a half that I have blood in the urine with horrible pain.
I had 3 ureteroscopies who have given nothing and now the professor who follows me told me I have the loin pain hematuria syndrome, and there was nothing to do. The only thing I can do is to wait till it’s going better. He refuses to make a biopsy and told me to take aspirin.
I wanted to know if you know doctors who offer other drugs. I've heard of self transplantation and kidney innervation;
I've been in different hospitals and doctors tell me that the pain is bearable and advised me to consult a shrink. I do not think my pain is psychic. I wanted to know if U.S. medical research is more advanced than the French one.
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I came across this syndrome when searching the Internet about extreme pain I have when I take the first bite EVERY time I eat and sometimes drink. That this could be a symptom of this syndrome but I don't know. I do have some of the other symptoms, i.e. neuropathy, blurry vision, muscle pain, fatigue but these can also be associated with Type 1 Diabetes which I have. Also, came across parotid/salivary glands are affected which also can cause the jaw to ear pain I'm having. Has anyone heard that the Coxsackie virus can have anything to do with it? How do you know for sure if it is Sjogren's and what type of doctor do you see about it - a primary?
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I have Primary Sjogren's Syndrome but was born Hypermobile. It was only after my present Rheumatologist diagnosed that I have scoliosis that I started to research. I found the Beighton Scale and the Brighton criteria which I match completely. I explained my research to my consultant and she agrees. However while she and another consultant both agree I do have POTS so far I don't have an appointment to see anyone to help me. I have had ECGS and a bubble ECG but they have been taken while lying down. Now the POTS I really noticed post the birth of my last son 29 years ago is getting much worse, can anyone advise me as it has taken decades to get this far, I don't feel time is on my side
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I had both hips replaced in Feb and Sept 2011. Prior to this I had many years of pain and a great deal of difficulty with medical fields trying to determine what was causing my pain. Anyway once it was decided to replace both hips I was happy they had at last found a cause and what I thought was a solution. My first his replaced was my right and this seemed to go okay, it was a total different story with my left. I have been in excruciating back and leg pain since, I cannot walk any distance or stand for any more than five minutes. I need to use a wheelchair if I go out and crutches also, I am stuck at home all day while my family go out to work - I am frustrated and feel useless.
My pain is across my lower back and generates down my legs, my last three toes on my right foot go numb constantly. The pain is tingling, numbness, sharp, deep pulsating pain and electric shock type pain. The more I try to do the worse the pain gets. I spend most of my time with my legs raised as this helps, the pain never goes away but does ease when resting. I have painkillers and muscle relaxants but they do not really help. My hip surgeon like most of the forums I have read told me my hips are fine according to the MRI scan. He then referred me to the Spinal consultant, after nearly a year of seeing the spinal people they have now turned round and said the pain is not coming from my back and there is nothing they can do to help. I asked them what I was supposed to do and they said they had no answers!! I have attended all the physio appointments and even did a three week intensive course along with hydrotherapy - nothing has made a difference.
I lost my job due to all this pain and I am now registered disabled. I had more mobility (although painful) prior to my surgery than I do now. It was nice to read that other people are going through what I am experiencing (although I would not wish this on anyone) it somehow makes me feel better.
I have had numerous cortisone injections in the hips, nerve block of the L4/5 nothing has worked for me post surgery. I had cortisone injection prior to my surgery and guess what it helped - work that one out. I am now being referred to the Pain Clinic (again) and Rheumatology as it was noticed on one visit to the hospital that I had a butterfly like redness on my face and they queried Lupus (still waiting for those appointments - surprise, surprise).
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For the past years, I've been taking 5 tabs of Methocarbamol 750 mg. along with 600 mg.(6 caps) of Gabapentin during supper and right before going to the bed, because I have not only leg cramp and spasm but also nerve pain on my legs. Those two meds. have been alleviating my pains that mostly occur during sleep, ... specifically during early morning hours before getting up from the bed.
Prior to those two meds. I had an excruciating and unspeakable pains that waking me up in the middle of the nights lasted about 10 minutes or so. Furthermore, the pains made all over my body sweat like taking hot bath, because of excruciating and unspeakable pain. Those nights, I self-exercised stomping, and often back and forth legs on hard floor in trying to subside the pains.
However, despite maximum doses of two pain meds., I still have been experiencing 'stiffness' along with 'pain' on my legs, some mornings before getting up from the bed.
Is there any good meds. for me more to manage and first of all control muscle spasms and cramps on my both legs?
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I live in the U.S. so the drug names may be different. I have been taking hydrocodone (norco) 2 x 7.5 a day for over 2 years. I had neck surgery in 2012 and within 6 mos the pain in my neck and left arm returned, along with the nerve pain in my arm. After ruining my digestive system with ibuprofen ( I was taking at least 8 to 12, 200 mg each, a day) I gave up and went to pain management for help. I had successful injections for low back pain a year or so before that, so I thought that is what they would want to do for this. But the doctor said that it would not help, probably because of my surgery, I'm not sure now because its a distant foggy memory. Anyway, the result was pills. At first it was only 5 mg 2x a day. Then he upped it within 2 mos to 7.5 mg. 2x a day. Since then I have read a lot about opiates and know that it is very addictive. I take it as prescribed but that means that I am just addicted to the prescribed dose. I had surgery in September for my digestive problem that all started with the ibuprofen. After the surgery they gave me Oxycodone. Within 3 doses I started sweating and having a headache soon before my next dose was due. I recognised this right away as a symptom of withdrawal. I immediately stopped taking that and just suffered through the surgery pain with my "usual' med, hydrocodone. Within a month, I started to realize that I have the same symptoms to a lesser degree with this med. This can only mean that I am addicted to it. When I went to my doctor for my usual appointment and med refill, I asked if there were any alternatives to Opiates. I said I was uncomfortable taking this and wanted to find something else. He said "Tylenol?, that's your only choice." I was floored. Well, I know tylenol can ruin your liver, so that wasn't even an option. He then said, "the holidays are coming up, why don't WE wait until after that and rethink this". Wow. I was truly speechless. So I took my scripts and left. I did NOT make another appointment. All that to ask this question. Does anyone know if there is ANY option to opiates for chronic pain and permanent nerve pain? If I do not take the med, my pain comes back, but the Nerve pain is the one that drives me back to take the pills. Now it's in both arms and when the med starts to wear off they start to ache, then burning and tingling. I have tried reducing the dose by taking half a pill, but all that does is make me count the hours to the next half pill. ugh. I want off this stuff and I know it can be done! I have read several success stories right here. Other symptoms I have are anxiety, depression, anger, constant waking up at night with the sweats. I need support, answers, and a way to do this without losing my job,all my friends and my mind!!
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I have had CP for almost 3 years. I can't remember life without it or being able to sit down in real comfort. I have had all the hospital tests and regularly have a well-man check every autumn. I still try to keep fit and go walking and having recently retired so I am determined not to let it spoil my life. You always continue to worry that it will not turn into something else. I probably don't take as many pain-killers anti anti-inflammatory drugs as I should because you feel that can't be good for you as well. I dream of the day it will go but I fear it will be around for a long time yet, if not for ever.
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This is embarrassing but I've been experiencing haemorrhoids on and off for at least 2 years now. I think they are external. They are big and blue. When they flare up I have chronic pain and some itchiness. They don't often bleed though. I am a 20 year old female. Two Drs have told me to increase the fibre my diet. One said to drink 3L of water per day. Clearly I haven't been very successful.
My question is what do you do to relieve the pain when you have bad haemorrhoids? I have bought Retinol cream but one of the Drs told me not to use it, I'm not entirely sure why. Also, at what point do you know if you need surgery for haemorrhoids?
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Okay so I'm feeling really down at the moment due to chronic pain. I was diagnosed with fibromyalgia three years ago but can't tolerate all the medications such as gabapentin, pregabalin and amitriptyline so I'm basically just taking solpadol 30/500s and tramadol 50 mg if it gets really bad. I've now been diagnosed with severe vitamin D deficiency and all they would tell me it was below 20 so I've been started on 60000 units of cholecalciferol per week. I'm now getting sharp pains in my feet which I can only describe as a cross between a bee sting and an electric shock in my heels and feet, and a constant ache of calf muscles and bad bone pain to my shins. Everything is getting me down
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I am on methadone 5 mg X 3/day and increased one dose to 10 but the edema I had got worse. My PM wants to switch me back to MS-Contin 15mgX3 but I am afraid of edema too. and constipation.
Which would be better?
I have lots of problems:
1. small fiber peripheral polyneuropathy
2. failed back syndrome.
3. r-hip derangement
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Haven't posted in a long time- years....I have a family member that is an adult pain patient. In 2004 he began his journey when a surgeon damaged nerves during surgery and now he suffers severe pelvic floor pain that radiates into his legs and toes.
Medication regimen is MSir and methadone; pain levels are 5-10 without remittance. Pain specialist has tried every available block, implantable device and nothing has worked due to where the nerve injury is.
We've talked about a motor cortex stimulator but the chance of something going wrong (seizures, stroke, hemorrhage) keeps us at bay.
I recently read that stem cell therapy has been attempted with success on pain patients and was wondering if anyone has any experience or knowledge of this potential therapy. Some centers use autologous stem cells and others are using banked, pooled cells. UCSF (I've heard good things about their pain service)
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Been sick since late September 2015. Have had on and off chronic diarrhoea pain in abdomen,back ribs area and occasionally feeling like a heart attack. That would disappear in a few hours.
I have had a colonoscopy, endoscopy, blood tests, fecal tests, ct scan and pancreas.
Specialist isn't booked till next month. I also basically eat only salad and meat these days.
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Any experience with gabapentin causing chronic pain problems when taking or withdrawing? During my taper I developed major issues with sciatica and my hip. I'm also taking forever to heal from a frozen shoulder injury (14 months). I had preexisting issues. My guess is it's from all the couch time necessary to heal. But it feels like it shouldn't be this bad. I'm only 29
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Hi im new to the site..heres my story. 05 was in a car accident head on collision by a drunk. Injuries..fractured acetebulum and broken left pelvis plus 3 fractured ribs and puctured lung. Now 11yrs later im 34yr old mother of of 1, 6yr old son a wife... On ssi since 09... I have been on 10mg methadone bid for about 2months and much higher doses in the past.now my pm is switching me to opana er 7.5 bid. At my request. Just needed a change...methadone was making me feel exhausted and not helping my pain as it usrd to. So i tried the butrans patch a few months ago and it went horrible...after 7days without methadone and 3days with butrans patch on i had major withdraw symptom and i started to have major difficulties breathing. So to no prevail i went back to the beast (methadone)up till now... Now im on my second day of opana er7,5 bid with vicoden 5mg tid for break thru. Im not sure what to expect...im very confident in my decision in swithing meds but...i just started feeling slight withdraw effects n having insomnia...how long will this last...has anyone been on methadone for 10+yrs and swithed to a pain med that significantly helped...thank you for reading. I appreciate all of your posts and i hope to be of help to someone with my many years of experience of living in pain with a smile. Thank you...
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