Chronic Fatigue Syndrome With Vitamin D Deficiency?
Feb 11, 2016
Hi everyone, I was diagnosed with CFS/ME a year ago and since having surgery last November it has got so bad that I am unable to return to my job I am only 22 and it's really making me upset.
I have had all the blood tests available and all came back negative apart from today my doctor called and said I have a vitamin D deficiency and has given me 3 months worth of medication. Has anyone else with CFS/ME got a vitamin D deficiency? Also did supplements help your CFS? Or even cure it? How long did it take for you to feel better?
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Had a letter from the rheumatologist to say that I have vitamin D deficiency which I can't understand because I get plenty of sunlight and I have a good diet.Going to GP today to discuss supplements.Rheumatologist also suggests that my GP checks my PTH which I assume is parathyroid hormone.Does anyone have any experience of this.My pain and fatigue are becoming unbearable and if vitamin D supplements could alleviate some of it this would be wonderful,but I Don't want to get my hopes up only to be let down again.
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After LFT resulted in high GGT levels, my Dr. tested my vit D levels which were 43 and slightly deficient.He told me to take supplements for 3 months and recheck levels.
I feel awful. Fatigue is main issue and feeling very low. Should I stoo taking it? I take 25/1000iu per day
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Well as it appears my vit D is a bit low. It's 18 and my Iron is 10. For a very long time now I've been feeling quite unwell to the point I can barely function at all. It's been a long struggle trying to find out what's wrong with me given that all of the tests I ever did were excellent. I'be for a while now I had an iron deficiency, but I haven't known about vit D up until yesterday. These are my symptoms has anyone had this?
- breathlessness
- extreme fatigue
- lingering anxiety
- muscle weakness
- muscle stiffness
- occasional numbness
- internal tremors
These are the most common ones and I don't always experience all of them. Also it's like I always feel a need to warm my body with warm water bottles and such. It's gotten to the point I never leave my bed even when I feel better because I'm afraid I might feel unwell. And I know this is so bad because on top of everything my body is getting deconditioned, but I can't make myself do it because I get so anxious.
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I am just wondering whether anyone has had genetic testing to rule out causes of fatigue? Myself and my brother both suffer with extreme tiredness and I'm wondering if it's worth asking for it to be investigated down the genetic route.
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Okay so I'm feeling really down at the moment due to chronic pain. I was diagnosed with fibromyalgia three years ago but can't tolerate all the medications such as gabapentin, pregabalin and amitriptyline so I'm basically just taking solpadol 30/500s and tramadol 50 mg if it gets really bad. I've now been diagnosed with severe vitamin D deficiency and all they would tell me it was below 20 so I've been started on 60000 units of cholecalciferol per week. I'm now getting sharp pains in my feet which I can only describe as a cross between a bee sting and an electric shock in my heels and feet, and a constant ache of calf muscles and bad bone pain to my shins. Everything is getting me down
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I have recently been diagnosed with Vit D deficiency...the level in my blood was under 10 (it was actually at 3) when it should have been at least over 50. I think it has been this low for at least a year. I didn't get any sunshine at all last year (severe hot flushes so avoided sunshine) without realising the consequences. My diet has not been ideal either. After several blood tests to test thyroid, and lots of other things, the locum GP came up with a severe Vitamin D deficiency.
Over the last 6 to 8 months my health has noticeably deteriorated with severe tiredness, no energy, really bad aches and pains, with severe pain in my joints, disturbed sleep, very depressed, etc. Plus I am pre menopausal and have depression, all of which are being treated separately and fairly successfully.
Anyway a locum GP put me on 20000iu of Vit D daily for two weeks which I finished this week...and now my usual GP has put me on a long term daily maintenance dose of 800iu Vit D (and didn't seem sure why I was on a daily dose of the 20000).
Anyway I had a business trip yesterday, 6 hours total travelling and 6 hours in meeting, and half hour walks to the station and back....and the result on my body has been catastrophic. Really aching all over, severe pains in my arms and legs, both much more than usual, bad back, and just generally feel awful. Is this to be expected? Is this normal with a vit D deficiency. How long will it be before I start to see any benefits. The doc mentioned it will be at least another 6 months before my blood levels are tested but I work full time, am a carer at home and really want to start feeling better soon.
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I've been ill for over 12 months, with chronic pain, numbness, paralysis, loss of mobility, fatigue, bladder, bowel problems, Total collapse falling to floor, shaking, tremors, head nodding, slurring, drooling, speech problems sleep problems
Had ct, Mri, evoked potentials, numerous blood tests, all clear , now it appears according to neurologist that this is all down to vit d deficiency? It's 12 have got 40000 iu to take once a week and been told to go to gp as he no longer needs to see me ?
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I have Primary Sjogren's Syndrome but was born Hypermobile. It was only after my present Rheumatologist diagnosed that I have scoliosis that I started to research. I found the Beighton Scale and the Brighton criteria which I match completely. I explained my research to my consultant and she agrees. However while she and another consultant both agree I do have POTS so far I don't have an appointment to see anyone to help me. I have had ECGS and a bubble ECG but they have been taken while lying down. Now the POTS I really noticed post the birth of my last son 29 years ago is getting much worse, can anyone advise me as it has taken decades to get this far, I don't feel time is on my side
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Many new articles on the net about the possible role Vitamin D deficiency may play in Dry Eye Syndrome. Some of the articles state that taking D3 may also improve dry eye symptoms. I went to the eye doc last week and she told me to take 2000 mg. That at the time was because i didn't go outside as much because I just developed DE in march and right now I'm quite light sensitive. Anyway I looked up D3 just to see if it might help the condition.
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my GP tested me for Vit D level which was found to be low, and has prescribed supplements for me. I notice a lot of people on this forum are taking them. Is this because your levels have been tested and found to be low? Or is there a link to fibromyalgia anyway?
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Has anyone diagnosed with Vitamin D3 deficiency?
I got the results now and mine is 4! Incredibly low...
This may explain some of the symptoms associated with Fibromyalgia although, certainly, not all of them. Any testimonials?
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I'm a thirteen year old girl with an unhelpful doctor who literally doesn't want anything to do with me because I'm 'hard work' to diagnose. My family believes it's chronic fatigue syndrome, fibromyalgia or both. So that's the home treatment path I'm taking. My symptoms have been going for 6 months now and they are diarrhea, nausea, joint aches, headaches, fatigue, confusion, dizziness brain fog, tenderness, weakness and muscle pain. I've been tested for crohn's, ulcerative colitis, hypothyroidism, hyperthyroidism, parasites, dysbiosis, virus, infections and celiac disease. I also have eczema, restless legs, irritable bowel, anxiety and gastroesophageal reflux disease. I'm not under any stress at the moment.
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Just wondered how other people cope with the family holiday. Being out of your normal routines and in a new place perhaps. What do you put in place to help you cope?
Being at home knackered is one thing but being in a caravan, apartment or hotel etc. is much different. Having to be mobile and do holiday stuff with the kids, can and is an overload for my system. Do you avoid going away because of things like this or is it just me?
The last 10-day holiday we took has taken me 4 months to get over! (Moreover, I was still feeling rough after 4 months…) I know I am lucky to be able to grab a family holiday, but I do wonder at times, if it’s more harm than good taking a holiday with ME/CFS.
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I am currently applying for jobs, but I am unsure answer yes or no to the do you have a disability? question. I do have CFS, which does impact my life, although I am able to work. What do you think?
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Went to see my gp yesterday and told her about my heart beat readings I've been having recently of 115 just to walk downstairs, 124 to walk upstairs, 135 to walk downstairs on a bad day. My heart rate goes up from 74 to 105 when laying down to standing. She took my heart rate as a sat there and it was 98. She's now sending me for an ECG. She thinks it might be to do with the sack or lining around the heart? She told me the official names but I was silly and didn't get her to write it down. Now I can't remember what she called. She said she has seen cases before.
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I was wondering if anyone else diagnosed with ME is constantly thirsty? I've had all the blood tests (and have been diagnosed with ME), so diabetes is omitted. It seems to be worse on an evening and I'm always topping up my fluids with water and herbal teas-so plenty hydrated! It's not my worse symptom, but just wondering if it was common?
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Just wondering whether people get any unexplained bruising or get easily bruised? I get them quite often and it's worrying me. My rheumatologist said that it can happen as our body is over sensitive.
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I am a 32 year old female. My question relates to Exercise Intolerance. I am very unfit and am wanting to get fit for the first time in my life but whenever I start even an easy exercise program, I get really wiped out. I usually feel okay after my "workout" (barely a plausible term) session, but feel extremely fatigued the next day. Which interrupts my program. This can be very irregular tho, sometimes I can do quite a bit and feel fine the next day. I had bulimia, starting at age 17 for 10 years and am wondering if this is still the effects on my body. I have no other side effects from the bulimia. Apart from that I have suffered Chronic Fatigue Syndrome, but these symptoms disappear if I don't exercise. I have had my heart and lungs checked out, blood tests etc, all come back fine. Can someone please, please shed some light as to why I get so exhausted following even a small amount of exercise. It doesnt seem to matter be it cardio or weights.
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Anyone smoke with CFS? I dislike drinking a ton so I was wondering if anyone smokes marijuana? I've seen online it's good for it and it doesn't make it worse... Anyone ?
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I had stuff to do today that I could not leave. I have since had several dizzy spells. I get these when I do the school run. Has anyone fully passed out?
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