Chronic Fatigue Syndrome :: Anxiety Is Out Of Control And Ruining My Life
Oct 4, 2014
Just wanted to ask people who suffer with cfs like me if they have the same problems as me. When I was 16 I had glandular fever I was off school for 3 months and since then I'm now 24 I've never been fully the same as before. I got diagnosed with cfs last year after all this time! I usually have 5 months out of the year where I'm bed bound, the other 7 months I have to "pace" myself which I find really hard when I've missed out on so much whilst been in bed I want to see my friends, family etc. I've been bed bound again for 5 weeks up to now and for the first time really my anxiety is out of control, I find sitting in doctors for my appointments unbearable, I feel like I'm going to faint. I can't bear my friends to come and see me because my anxiety is that bad.
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Since I can remember, I have been depressed, I suffered from depression and anxiety from a very very young age, I can remember wanting to die as young as 7 years old, I'm now 28, I have had 2 jobs in my life both lasted weeks. Its ruined relationships, ruined friendships, ruined my life completely. I lost the love of my life, I have no work experience, odd qualification here and there, nothing serious and all unrelated. I had a stormy and mentally abusive childhood, I have been in and out of CBT nothing seemed to work and considering they're here to help after a couple of sessions, I was ignored, apparently I was entitled to 10 sessions. Anyway, I could be here all day going on and on about my past. When I was 24, I started working on it myself, (the doctors all refused to up my medication of 40 mg fluoxetine) even though I wanted to die. I've never had support off anyone, friends, family, noone so I had to do something, I started the gym, did my own research on mental health and CBT and started to feel better, I have always worked out and been on contraception since 16 to even my hormones, it didn't make much difference. changing my mind set and thinking "f*ck you all" helped me. Then I met a man and fell deeply in love, its comfortable and a calm loving relationship I was so happy in the beginning, we then had a baby, my pregnancy completely lifted my mood, I felt amazing! I had extreme morning sickness and horrendously bad anemia with constantly iron transfusions but my depression was nowhere to be seen, I was so blessed and couldn't believe how well I was doing, but my anxiety never left, my agoraphobia was clearly here to stay. My partner earns enough and I didn't really need to go anywhere so it wasn't a problem (my anxiety and agoraphobia is where I cannot go anywhere alone, cannot get public transport, cannot speak to people I don't know or haven't known closely for years, I cannot do normal things like go the shop for bread, make a doctor's appointment) the list goes on, I started making bits of progress like going for walks etc, my doctors would never treat my anxiety and agoraphobia saying when my depression is gone, that will be gone. But now I dont feel depressed why can't I do it? Anyway I was fine until my partner lost his well paid job, and got a low paying job and it hot me thinking about work, something that in my 28 years I've basically never done before, I know I'll be fine working but getting through these stages to have a job is beyond difficult for me. If I go online looking for work, just scrolling through, my heart starts to pound, my skin is cold, my chest is tight, I cant breathe and my eyes start to well up. Even now typing it I'm struggling to keep it together, a few weeks ago i decided to get a train alone to try and "just get on with it" like idiots tell me to do, the train was delayed and I had to get ones i didn't know, so right there on the platform I crouched down into a ball and was hysterical, crying my eyes out and having a full blown anxiety attack, people were asking if I wanted an ambulance, in the end security had to escort me home on the train, I was so embarrassed. I need help, doctors wont listen and say I'm depressed and if i fix that my anxiety will go but I know I'm not depressed right now, but I won't lie, if this carries on, it'll probably come back, I want to work more than anything, I cant make a cv without getting hysterical, I cant look for jobs, I definitely couldn't interview, I was once asked to leave an interview because of the state I was in.
I am yet to find anyone with the same level of anxiety as me, this is ruined my life and preventing me from working, something I can't avoid!
Can anyone point me in the direction of help? Is there even treatment for anxiety?
My daily routine is, I wake up with my daughter, we have breakfast then get washed and dressed and go for a walk down the back lane where no one will see me for about an hour, then home, she'll nap whilst I workout, mostly yoga, then dinner (we both eat extremely healthy that's very important to me) then we either get a visit off someone or I'll get a lift to a friends house then home for tea with daddy, movies, bath&bed. I love my life, absolutely love it. But I want/need to work for money and my own sanity, I am a role model now and I need to get this sorted before my daughter is aware.
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I'm 19 years old and since having a baby I have suffered with anxiety. Standing in queues makes me feel like I'm going to pass out and even going out on my own worries me. After seeing a psychic a few months ago she told me to go for a smear. Well that set me off worrying even more! Even though everything she told me was wrong that really plays on my mind and it's stopping me from sleeping as even though I have no symptoms in convinced I have cancer! I don't know what to do and I am too embarrassed to talk to partner I case he thinks I'm being silly!
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I had colon cancer in Jan. 2009 and a liver met in early 2012. Surgery for both and last blood work and CT was fine. Since the liver resection in 2012, I suffer from disease of the day! Everything is major in my mind. Doctor has me on Klonopin .5mg. We'd tried Ativan but it lasted for a few hours and the panic was back.
Is there a type of therapy or treatment for someone who is a hypochondriac? My gastro said he believes it PTSD and that it's common after major surgeries and cancers but I hate being like this.
The fears are really stupid. Most people wouldn't even notice the things I go to the walk in clinic for. I sometimes get so bad I go 3 times a week and I can't afford it!
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I'm a 17 year old female and over the past few years I've suffered awful social and general anxiety. I've always had hypochondriac tendencies but over the past 6 months, it's really kicked in, to the point where I'm getting incredibly down and possibly depressed. In the beginning of December 2015, I developed stomach pains and cramps and immediately alarm bells started ringing. I became OBSESSED. I spent most of my day googling, posting in forums, going to the doctors. I got so much blood taken and everything was perfect, by CBC was like 2/100 or something which meant I was incredibly healthy and everything else was totally okay. I had urine tests, once it showed a tiny bit of blood and protein but I had a later one and it was totally fine. I then demanded an abdominal ultrasound and spent a ridiculous amount of money on it privately so I didn't have to wait and it came back totally fine too, so there's obviously nothing major going on. I still get the stomach and back pain but it is better and I only really get it bad if I'm walking a long distance. From what I've heard, anxiety can really give you physical symptoms. Anyway, after realising that my grandfather passed away from colon cancer, I've basically self diagnosed myself with this. I feel awful about it because I know there's people out there who are seriously suffering. I'm obsessed with checking and tracking my bowel movements, and it got to the point where I was straining to go even when I didn't need to and this led to bleeding, hence, me going even more crazy with fear. The bleeding only happened once on my stool and once from my actual ... You know, and I'm still terrified. I have no fatigue and I'm generally eating well. Another thing which doesn't help is that I think I've lost a little bit of weight, but it's most likely due to the fact that over the last few weeks I've had an exceptionally good diet and I've drunk so much water, which would obviously make you lose weight, but because I'm already quite slim, I've been worried.
Anyway, as you can tell, I'm constantly worrying about something. A headache=meningitis, stomach pain in the right means I automatically have appendicitis and the other week, I thought I had a brain tumor because I saw spots. It's getting me down and I'm convinced I'm going to die randomly one day from the cancer or whatever inside killing me. Does anyone feel the same or have any way to help me at all? Thank you so much.
I'd also like to add that I'm starting CBT and therapy but it's not often so a lot of the time I'm at home for a few weeks just dwelling on my health.
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I have a very bad case of hypochondria and cyberchondria !
I'm 26 years old and my anxiety is worse than ever. I've always been nervous even as a kid went through stages where I wouldn't leave the house because I was going to get eaten by a dog, struck by lightning etc. All very normal things of course! Haha.
So about 6 months ago I started working in a doctors surgery as a receptionist. And out of nowhere I began to have these symptoms and feelings that were all very new to me. And over the last few months I've diagnosed myself with more diseases than I've had hot dinners! I'd go to bed at night and my heart would be pounding and racing as if I'd just ran a marathon where in fact all I was doing was lying still. I ten began to experience pains in my left arm. Which worried me due to the connection between these 2 symptoms. Then eventually I started having the dreaded chest pains. That's it. I had heart disease and I was going to lose my life to a heart attack. This is when my life really went downhill. So I had reassurance from my dr that it was anxiety. Had a few weeks of cbt. Started to feel better. Then my therapist told me she was happy with the way I'd progressed and referred me back to my gp's care. Since stopping my cbt my symptoms have returned with a vengeance and I keep telling myself 'it can't be a coincidence of course they're back because your no longer have reassurance from a therapist' but it isn't helping. I've recently started having globus symptoms which are driving me crazy in thinking my throat is going to physically close up and that I won't be able to breath. Visited my gp who put it down to my GERD which is linked with my anxiety. I guess all I'm trying to ask is if I'm not the only one in this wicked situation. And is it affecting everyone else lives likes it's affecting and ruining mine. Am I the only one who keeps getting reassurance from therapists and GPs and still believe there's something seriously wrong with me?? Just don't want to do anything anymore. Feel like utter s**t all the time (which really isn't like me at all). Some advice also on whether you think me working in a GP's surgery is somehow affecting my health anxiety would be brilliant.
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I am just wondering whether anyone has had genetic testing to rule out causes of fatigue? Myself and my brother both suffer with extreme tiredness and I'm wondering if it's worth asking for it to be investigated down the genetic route.
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My step daughter is getting married I am completely excluded and my husband feels I'm being selfish. How do I change my feelings of constant sadness like break down in tears sadness?
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I have Primary Sjogren's Syndrome but was born Hypermobile. It was only after my present Rheumatologist diagnosed that I have scoliosis that I started to research. I found the Beighton Scale and the Brighton criteria which I match completely. I explained my research to my consultant and she agrees. However while she and another consultant both agree I do have POTS so far I don't have an appointment to see anyone to help me. I have had ECGS and a bubble ECG but they have been taken while lying down. Now the POTS I really noticed post the birth of my last son 29 years ago is getting much worse, can anyone advise me as it has taken decades to get this far, I don't feel time is on my side
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I'm a thirteen year old girl with an unhelpful doctor who literally doesn't want anything to do with me because I'm 'hard work' to diagnose. My family believes it's chronic fatigue syndrome, fibromyalgia or both. So that's the home treatment path I'm taking. My symptoms have been going for 6 months now and they are diarrhea, nausea, joint aches, headaches, fatigue, confusion, dizziness brain fog, tenderness, weakness and muscle pain. I've been tested for crohn's, ulcerative colitis, hypothyroidism, hyperthyroidism, parasites, dysbiosis, virus, infections and celiac disease. I also have eczema, restless legs, irritable bowel, anxiety and gastroesophageal reflux disease. I'm not under any stress at the moment.
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Just wondered how other people cope with the family holiday. Being out of your normal routines and in a new place perhaps. What do you put in place to help you cope?
Being at home knackered is one thing but being in a caravan, apartment or hotel etc. is much different. Having to be mobile and do holiday stuff with the kids, can and is an overload for my system. Do you avoid going away because of things like this or is it just me?
The last 10-day holiday we took has taken me 4 months to get over! (Moreover, I was still feeling rough after 4 months…) I know I am lucky to be able to grab a family holiday, but I do wonder at times, if it’s more harm than good taking a holiday with ME/CFS.
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I am currently applying for jobs, but I am unsure answer yes or no to the do you have a disability? question. I do have CFS, which does impact my life, although I am able to work. What do you think?
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Went to see my gp yesterday and told her about my heart beat readings I've been having recently of 115 just to walk downstairs, 124 to walk upstairs, 135 to walk downstairs on a bad day. My heart rate goes up from 74 to 105 when laying down to standing. She took my heart rate as a sat there and it was 98. She's now sending me for an ECG. She thinks it might be to do with the sack or lining around the heart? She told me the official names but I was silly and didn't get her to write it down. Now I can't remember what she called. She said she has seen cases before.
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I was wondering if anyone else diagnosed with ME is constantly thirsty? I've had all the blood tests (and have been diagnosed with ME), so diabetes is omitted. It seems to be worse on an evening and I'm always topping up my fluids with water and herbal teas-so plenty hydrated! It's not my worse symptom, but just wondering if it was common?
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Just wondering whether people get any unexplained bruising or get easily bruised? I get them quite often and it's worrying me. My rheumatologist said that it can happen as our body is over sensitive.
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I am a 32 year old female. My question relates to Exercise Intolerance. I am very unfit and am wanting to get fit for the first time in my life but whenever I start even an easy exercise program, I get really wiped out. I usually feel okay after my "workout" (barely a plausible term) session, but feel extremely fatigued the next day. Which interrupts my program. This can be very irregular tho, sometimes I can do quite a bit and feel fine the next day. I had bulimia, starting at age 17 for 10 years and am wondering if this is still the effects on my body. I have no other side effects from the bulimia. Apart from that I have suffered Chronic Fatigue Syndrome, but these symptoms disappear if I don't exercise. I have had my heart and lungs checked out, blood tests etc, all come back fine. Can someone please, please shed some light as to why I get so exhausted following even a small amount of exercise. It doesnt seem to matter be it cardio or weights.
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Anyone smoke with CFS? I dislike drinking a ton so I was wondering if anyone smokes marijuana? I've seen online it's good for it and it doesn't make it worse... Anyone ?
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Hi everyone, I was diagnosed with CFS/ME a year ago and since having surgery last November it has got so bad that I am unable to return to my job I am only 22 and it's really making me upset.
I have had all the blood tests available and all came back negative apart from today my doctor called and said I have a vitamin D deficiency and has given me 3 months worth of medication. Has anyone else with CFS/ME got a vitamin D deficiency? Also did supplements help your CFS? Or even cure it? How long did it take for you to feel better?
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I had stuff to do today that I could not leave. I have since had several dizzy spells. I get these when I do the school run. Has anyone fully passed out?
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As we were chatting about teeth earlier on the spectacles thread I thought I would start one specifically about ME and teeth.
I think I have mentioned this before, but when I saw my dentist a while ago and told him that I had been diagnosed with ME he informed me that if ever I needed to have a local anaesthetic injection he would give me one which doesn't contain adrenaline ....... because anything with adrenaline is a complete no no for ME sufferers.
One of the theories about the cause of ME as some of us know, is that for some reason we are unable to 'switch' off adrenaline as a 'normal' person would and as a result we just drain all our energy, and the only way to regain it is by resting. I am convinced that there has to be an awful lot of truth in this theory.
Several months before I was diagnosed with ME I had extensive reconstructive work done on my upper teeth (my generation didn't have fluoride toothpaste and many of us subsequently have soft teeth), and I often wonder if the dozen or so adrenaline injections triggered something. Also, I had a lot of amalgam fillings removed, and I wonder if the lead from these was released into my system during the drilling.
Who knows - but hopefully one day we will find out what causes this wretched illness :?
So folks ..... no injections which contain adrenaline.
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I am currently waiting to see CFS specialist hopefully in the next two weeks. I am b12 deficiency and also have underactive thyroid. Since the end of February I have gained around 1 stone. I have an extremely fussy diet as I don't eat Red Meat, Fish or Pasta. My diet is mainly Vegetables, Chicken and Potatoes but have gained weight like nothing on earth. Before all this CFS i was doing exercise classes twice a week but now can't get out of bed most of the time. Anybody else have similar experiences? I still go for a country walk at the weekends when I feel up to it but apart from that I'm at a loss at how to shift the weight. My GP has been monitoring it but he said there is nothing we can do at the moment.
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