I'm trying to be diagnosed, my doctor is that loss, extreme muscle fatigue for 2 1/2 months and now I started twitching. Of course I am freaking out I could be ALS, I feel always exhausted as if a truck as one over me, I soon as I come home from work I have to take a nap, but Dr. mention CFS but he's very worried about the twitching , Any of you have CFS with twitching of the muscles?
View 18 RepliesI have been having a slew of health problems recently but am still awaiting further testing. In the meantime, I am very stressed and having a hard time managing. I keep getting worried that my symptoms could be onset of ALS despite knowing how illogical it sounds. I am a 25 year old male.
First, I was diagnosed by my doctor with a sinus infection, although it was probably very slight. She prescribed me Augmentin and I took it for 5 days and immediately started feeling bad on it. After I quit taking it, I noticed some tingling in my hands and feet at work on Thursday the 11th. The next evening, Friday, my legs started to feel unsteady and heavy when I walked and my hands and arms remained tingly and had perceived weakness. On Monday morning, the 15th, I went to the ER and they believed I had Lyme Disease and prescribed me doxycycline. I took this for 7 days, but did not feel any better. I remained having perceived weakness primarily in my legs accompanied by muscle tightness, muscle soreness, and very slight, sporadic twitching all over. On the 19th, I saw a neurologist who dismissed my symptoms as not serious as my reflexes were ok (knees were slightly weak, but I was very tense during the test) and I was able to walk normal, it just felt strenuous. My lyme test came back negative and a second western blot also came back negative.
Currently, I continue to have all of my symptoms, including perceived weakness, muscle fatigue, soreness, tightness, and twitching. Symptoms are present all over my body, but concentrated in my legs. When I lay down at night, my whole body will feel as if I had a sunburn and I am having difficulty sleeping because of my worrying. If I go out and walk, my legs gets very sore and tired much quicker than they ever did before. Additionally, I have been having a very dry mouth and tight feeling throat. My PCP believes it to be either post-viral syndrome, mild MBS, or the least likely, MS. Others have suggested b12 or vitamin d deficiency. I have an MRI scheduled next week and an appointment with a different neurologist.
Other info:
-Was prescribed zoloft and am less than one week in to taking it. I believe it may be increasing the shakiness of my hands and my stress, as it takes some time to adjust to it.
-Was prescribed ambien to sleep. I'll sleep for about four hours straight, but then have a hard time continuing to sleep once I wake up. I believe I might be twitching or jerking in my sleep which wakes me.
-I tried to go to the gym on the 24th and run and lift weights. The next day, it felt like it really set me back, as I was much more sore and my legs seemed more unsteady.
-Began taking b12, b complex, magnesium, D vitamins.
-Had multiple blood tests. The only abnormal result was a positive ANA for speckled at 1:80. I read this can be a pretty common result.
-Less than 2 years ago, I had shingles.
Any thoughts on what could be wrong with me?
This adventure started about 9 months ago. Instead of my normal routine of get up, eat, hygiene, off to work (I was a remodeling contractor), I started falling back to sleep after breakfast. I must pretext this by saying that I take 40 mg of Adderall in the am and the afternoon. First it was 1/2 hour and eventually 3 hours. Then it was an afternoon nap also, Then an evening nap. This was not every day but most days. About eight or so weeks ago, I developed a blood clot behind my left knee and several in my lungs (as a result of being on my knees for long periods of time installing floor trim we figure). After I got out of the hospital, I started a slow but sure incline in my energy level. Then on October 23 (my 40th birthday) I got short of breath, disoriented, incapable of making clear decisions. eventually I called 911 and when the EMTs got here I had a blood O2 level of 89%. They took me to the ER in a bus and I have never been the same since. I have experienced no increase in my energy level, I have a sore throat most of the time, flu like symptoms, muscle weakness, Most days my mind is still strong but not all, I am functioning at about 25% of what I used to be capable of, I have problems pulling the proper word out of my brain (sometimes 8 or more times per day), I feel run down especially the day after I over do it, at least 4 people have recently tried to talk to me about conversations that I have no memory of, my allergies are not only out of control they are the opposite of what I usually experience (instead of a dry nose I now have a constantly runny nose and I sneeze 50 times per day. I did test positive for Epstein-Barr exposure at some point in my life. I have 6 of the eight symptoms for diagnosis and like 25 of the 35 or so that people with CFS report. We have not yet ruled out MS, Lupus, and all of the kinds of cancer that are required for a CFS diagnosis, but I am almost positive it is CFS. Thoughts?
View 2 RepliesI am 27 years of age. I have always been physically active through gym workouts and soccer. About a couple of weeks ago I came back from a trip to Texas and started feeling lightheaded and minor headaches (possibly from drinking for a couple of days). A week later the ALS bucket challenge started spreading around social media, ******** more than anything. So I decided to donate for the cause. After donating, I went ahead and decided to educate myself on the disease and the symptoms.
That was probably the worst idea ever. A couple of days later I felt muscle soreness/weakness in my legs, arms and back. Then the twitching started in both of my legs (quads, calfs and bottom of my feet), arms (triceps areas and behind my shoulders). My initial reaction was ALS/MS, and I started freaking out. I went through a 3 day period in which I lost my appetite and felt fatigue,drained and had no desire to do anything at all. It has been a week now and the twitching has not gone away. I decided to go to the doctor and got some lab work done. The doctor stated that everything looked great. He even conducted a physical neurological exam and I passed. He stated it could be stress or dehydration. However, I have always tried to drink plenty of water during the day (at least 4 glasses a day). He recommended over the counter calcium 500mg and vitamin D 1,000 units.
My lab work came back normal (hemogram, BMP fasting, ALT, AST, TSH) but my body is still twitching and it feels sore at times. Yesterday, I got home and felt weakness on the top back of my right calf. I very concern and not able to concentrate on my daily activities (work and personal related activities).
About 6 weeks ago I began to experience some ear problems. It started with muffled hearing, tinnitus, and mild pain. I went to primary care provider and she prescribed amoxicillin three times a day for the middle ear infection. A couple of days later my symptoms got a lot worse. I lost most of the hearing in my right ear and I had severe jolting pain that radiated to my whole head and eyes. I went to the ER and was given a shot of penicillin and was also diagnosed with strep throat. I was referred to ENT because my eardrum had actually burst. The ENT doc prescribed ear drops and a higher dose of amoxicillin with clavu k. Another week passed and the symptoms continued to get worse. I followed up with ENT last week and he said my right ear looked really bad inside and I am probably going to need surgery to fix it. He also said to stop taking my antibiotics and ear drops.
Okay, this is why I think I may have Lyme. Throughout all of this I was experiencing flu and other symptoms that I didn't pay much attention to because I was focused on the ear infection. In the beginning I felt unusual muscle twitching in my limbs with achy pain. I just dismissed it as normal body functions. Fast forward to this week, the muscle twitching is now more severe and present all over my body (almost every voluntary muscle). There is some accompanying pain/soreness from the constant twitching. I am also having heart palpitations, anxiety, depression (a first for me), joint pain, dizziness, painful headache, and brain fog/"out of it" feeling. I am also unusually sensitive to cold and some of my muscles feel "electric." I went to the ER yesterday and they did some bloodwork, an EKG, and a chest x-ray but everything was normal. The EKG showed a left axis deviation in my heart but the doc said it was nothing because I am a little stocky.
I don't know what to do. I am getting worse everyday, especially after stopping the antibiotics. My doctors appear to think that my symptoms are psychosomatic even though my anxiety has been under control for weeks. The only thing they're sure I have is an ear infection, but even that isn't responding to antibiotics.
I have pets and they play in a backyard that is filled with squirrels, rats, opossums, and birds. I sleep with one of my dogs and I have found a few ticks in my bed before. I didn't think they bit humans but about 2 months ago I did develop a weird rash on my upper buttox that became a huge cyst (I sleep belly-down). It lasted a few weeks but it completely disappeared a couple of weeks ago. I just thought it was a big zit and didn't think much of it. Maybe this could have been a bite?
Sorry, about the long read. I am a recently discharged disabled veteran and I receive healthcare through the VA. Appointments are always weeks away due to huge backlogs, which makes it even more frustrating. The appointments are also always rushed and my doctors are quick to make the "anxiety" diagnosis if they don't find anything obvious.
I am not looking for a diagnosis. I am mainly seeking advice on what I should do and if my symptoms may sound like Lyme. I would also like to ask how I can approach my doctor with the possibility of Lyme Disease without being dismissed right away. I am really starting to get scared because I have been getting progressively worse over a period of almost 2 months.
I'm feeling alone and not sure who to turn to ask and feeling like no one quite understands. My main concern is that sometimes when I get muscle weakness and feel tired, I start craving to eat and I can't stop myself even if I have already eaten well. Yesterday evening was the perfect example, Having eaten a full meal with vegetables, rice, noodles and chicken, I then followed it with a bowl of fruit with yoghurt. Very healthy, should have been enough. I then had a bowl of cereal with milk, handful after handful of cereal from the cupboard and other food I could lay my hands on. I managed to stop myself when the feeling of wanting to eat spoonfuls of sugar and golden syrup and sweets and chocolate out of the cupboard. I think felt overwhelming tiredness and ended up lying down unable to move all evening eventually falling asleep.
Today I am so shattered, I feel weak, tearful and tired and I have just been eating and eating all morning. I can't cope.
About 10 days ago, I began to feel little prickly feelings, like a light needle poke, in random places on my body. I was a little concerned but figured it would go away. After a day or 2, I began experiencing a little muscle cramp in my left and right legs but my cholesterol and blood had just been checked so I called my doctor's office to find out if it might be a blood clot. They told me there were no blockages (they had just done a routine cholesterol test on me about a week before). Another day went by then my muscles began to get sore and my joints were popping sometimes. My muscles in my legs, arms (mildly), around my ribs (sometimes) and my under arms (sometimes) felt sore. I used a heated massaging pillow to make them feel better but was perplexed as to why I was having these aches. Sometimes I felt an arthritic ache also like the pain might have been in my bones. I was also having mild dull headaches. Then came a day when I felt extremely fatigued and so after a couple of days I went to the doctor. She said she was thinking I might have anemia so she had me go to the hospital and get a CBC test, a CPK test and to have my thyroid tested (I have hypothyroidism which I take medication for). The day I had my blood work done (yesterday) I felt very fatigued and was asleep by 9:00 pm, which is very unusual for me. I didn't feel muscle pain just weakness sort of. Today I feel a little muscle pain but not much, but I do feel a little weak. Also I had been having panic attacks a few times during all of this. I called the doctor's office today and the nursing staff told me the results of the blood tests from yesterday morning were all normal. I had thought it could be anemia which at least then I would have a diagnosis and could be treated but now I am even more scared because I don't know. What could this be?
View 4 RepliesI have a friend who has been taking oxycodone 5/325 3 a day for about 2 years without issues for severe back pain.
Recently he has had a big problem with muscle strength/weakness exercise intolerance and fatigue. He has been to physical therapy with no improvement.
Could this be from using the medication for so long, has anyone experienced such a thing.
He has been tested for MS,ALS and is now seeing a Neuromuscular specialists.
Any thoughts would be appreciated
I'm a 20 year old male, overweight and currently/recently fighting a tooth infection due to an abscessed tooth that had a bad root canal. I recently got the tooth removed and I am now on an antibiotic. 7 day cycle amoxicillin 500 MG.
So for the past three weeks I've been feeling pretty terrible. I'll be very fatigued to the point where I don't want to talk or move my arms, I've been short of breath while seemingly doing nothing, I've had heart palpitations with little to no anxiety. My blood sugar feels like it has been low and my mouth is very very dry. Along with the dry mouth I've had difficulty swallowing and a thick white coating with somewhat large red bumps in the back of my tongue. The front of my tongue also seems to have a white coating but it is much thinner. My muscles have been twitching all over but not non-stop. Some days I'll go almost without it. My muscles are achy and when I workout or play sports they get incredibly tired quickly, and are sore for days. I've also been coughing up small tonsil stones. Any help would be appreciated. I'm on an antibiotic but I do want to stress that I've been feeling this way just before I started the antibiotic.
I am just wondering whether anyone has had genetic testing to rule out causes of fatigue? Myself and my brother both suffer with extreme tiredness and I'm wondering if it's worth asking for it to be investigated down the genetic route.
View 9 RepliesI have Primary Sjogren's Syndrome but was born Hypermobile. It was only after my present Rheumatologist diagnosed that I have scoliosis that I started to research. I found the Beighton Scale and the Brighton criteria which I match completely. I explained my research to my consultant and she agrees. However while she and another consultant both agree I do have POTS so far I don't have an appointment to see anyone to help me. I have had ECGS and a bubble ECG but they have been taken while lying down. Now the POTS I really noticed post the birth of my last son 29 years ago is getting much worse, can anyone advise me as it has taken decades to get this far, I don't feel time is on my side
View 4 RepliesI got diagnosed with ibs earlier this year, at the beginning it was dreadful. Their was no clear signs for me because one day the food that was giving me pains wouldn't the day after so it was all confusing. I tried healthy eating but that just made me worse so now I eat like I normally would but just lesser portions and I feel alright most of the time. Still haven't got used to my bowel movements yet, sometimes I'm really uncomfortable but this happens about twice a week now which I can handle if I take my buscopan regularly. Since I got diagnosed, my muscles and joints have been really weird and I read some information about ibs and the different symptoms and it did say about weakness of joints and muscles. I tore the ligaments in my big toe in both feet 3 times without even doing anything to them. Then I lost my balance in the shower because of my ankle pain and I sprained my wrist and that just feels weak all the time. Then Saturday last week, I was out with mates and my leg just gave way from under me, I was only standing there and it felt like it was cramp in my knee. Got rushed to the hospital and they sent me to the fracture clinic on Thursday, thank god it was just torn ligaments in my knee but the pain was so bad. I was just wondering has anyone else had an increase in muscle/joint/bone weakness since being diagnosed with ibs? I really need to find someone else to relate to with this because I'm only 20 years of age and I don't think my bones and stuff should be this weak.
View 5 RepliesI'm a thirteen year old girl with an unhelpful doctor who literally doesn't want anything to do with me because I'm 'hard work' to diagnose. My family believes it's chronic fatigue syndrome, fibromyalgia or both. So that's the home treatment path I'm taking. My symptoms have been going for 6 months now and they are diarrhea, nausea, joint aches, headaches, fatigue, confusion, dizziness brain fog, tenderness, weakness and muscle pain. I've been tested for crohn's, ulcerative colitis, hypothyroidism, hyperthyroidism, parasites, dysbiosis, virus, infections and celiac disease. I also have eczema, restless legs, irritable bowel, anxiety and gastroesophageal reflux disease. I'm not under any stress at the moment.
View 3 RepliesJust wondered how other people cope with the family holiday. Being out of your normal routines and in a new place perhaps. What do you put in place to help you cope?
Being at home knackered is one thing but being in a caravan, apartment or hotel etc. is much different. Having to be mobile and do holiday stuff with the kids, can and is an overload for my system. Do you avoid going away because of things like this or is it just me?
The last 10-day holiday we took has taken me 4 months to get over! (Moreover, I was still feeling rough after 4 months…) I know I am lucky to be able to grab a family holiday, but I do wonder at times, if it’s more harm than good taking a holiday with ME/CFS.
I am currently applying for jobs, but I am unsure answer yes or no to the do you have a disability? question. I do have CFS, which does impact my life, although I am able to work. What do you think?
Went to see my gp yesterday and told her about my heart beat readings I've been having recently of 115 just to walk downstairs, 124 to walk upstairs, 135 to walk downstairs on a bad day. My heart rate goes up from 74 to 105 when laying down to standing. She took my heart rate as a sat there and it was 98. She's now sending me for an ECG. She thinks it might be to do with the sack or lining around the heart? She told me the official names but I was silly and didn't get her to write it down. Now I can't remember what she called. She said she has seen cases before.
View 3 RepliesI was wondering if anyone else diagnosed with ME is constantly thirsty? I've had all the blood tests (and have been diagnosed with ME), so diabetes is omitted. It seems to be worse on an evening and I'm always topping up my fluids with water and herbal teas-so plenty hydrated! It's not my worse symptom, but just wondering if it was common?
View 28 RepliesJust wondering whether people get any unexplained bruising or get easily bruised? I get them quite often and it's worrying me. My rheumatologist said that it can happen as our body is over sensitive.
View 12 RepliesI am a 32 year old female. My question relates to Exercise Intolerance. I am very unfit and am wanting to get fit for the first time in my life but whenever I start even an easy exercise program, I get really wiped out. I usually feel okay after my "workout" (barely a plausible term) session, but feel extremely fatigued the next day. Which interrupts my program. This can be very irregular tho, sometimes I can do quite a bit and feel fine the next day. I had bulimia, starting at age 17 for 10 years and am wondering if this is still the effects on my body. I have no other side effects from the bulimia. Apart from that I have suffered Chronic Fatigue Syndrome, but these symptoms disappear if I don't exercise. I have had my heart and lungs checked out, blood tests etc, all come back fine. Can someone please, please shed some light as to why I get so exhausted following even a small amount of exercise. It doesnt seem to matter be it cardio or weights.
View 1 RepliesAnyone smoke with CFS? I dislike drinking a ton so I was wondering if anyone smokes marijuana? I've seen online it's good for it and it doesn't make it worse... Anyone ?
View 13 RepliesHi everyone, I was diagnosed with CFS/ME a year ago and since having surgery last November it has got so bad that I am unable to return to my job I am only 22 and it's really making me upset.
I have had all the blood tests available and all came back negative apart from today my doctor called and said I have a vitamin D deficiency and has given me 3 months worth of medication. Has anyone else with CFS/ME got a vitamin D deficiency? Also did supplements help your CFS? Or even cure it? How long did it take for you to feel better?