Cerebral Palsy :: Dealing The Fatigue With Aging
Jan 20, 2014
I just want to know how the rest of you are dealing with the fatigue of a work day and fighting the fatigue. I'm 38 but most days I feel 108!
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Jan 20, 2014
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Cerebral Palsy :: Exhausted / Fatigue And Gets Pins And Needles
My daughter was born at 32 1/2 weeks and has very mild cerebral palsy, she is now 17 and experiencing days when she can't get out of bed. She is just exhausted and gets pins and needles. The doctor suggested it could be ME but I wondered if its a result of her Cerebral Palsy. Every time she does something that requires more mental or physical input than normal she is then wiped out for 2 days. Her CP has never really affected her, she wore Piedro boots as a child but recent years has had a "normal" life. Would really appreciate some input, she is due to have an MRI next week.
View 1 RepliesCerebral Palsy :: Baclofen Pump? Do You Have One?
My 12 (almost 13) year old daughter is about to get a baclofen pump. She is a foot user as her arms are severely spastic and have a mind of their own. The doctors all say that it will help with her hip pain (she has a dysplastic hip, it is on the leg that she uses) as well as the spasticity and tightness and pain that she has. they also say that it may help with her speech (she speaks very slowly and sometime cannot speak so well as her tightness makes her mouth all wonky).
She has botox about a year ago and it worked wonderfully... for about a week. so the doc does not want to do it anymore. I am totally ok with the pump and she really wants it, but i wanted to speak with others who have CP and have experience with the pump to know what your experience is.
Bells' Palsy - Non Cerebral :: Day By Day Experience
Day 1
I woke up after having a cold/bad throat for about a week and noticed it was a little difficult to speak. I had a look in the mirror and thought it was because of the cold. By lunch time I could not grip a straw with my lips and one side of my mouth and my cheek would not move properly. I tried to wink or blink and could only do it with one eye and when I tried to screw my face up it only did it on one side. I did think that had a stroke and booked an appointment at the Doctors. She gave me a course of steroids and gave me a leaflet that explains about BP.
Day 2
My eye is a little worse today, I had a little control over my blinking yesterday and today it is almost impossible. It just continually streams that is quite a nuisance. I went and bought some surgical tape to tape it closed with tonight. It is far harder to get food in my mouth today as well as it does not seem to open as well as it did yesterday. On the plus side I do think I still have my taste on the left side. I get pins and needles and twitching around the area of my jaw and my forehead ATM.
Training Of Cerebral Palsy - Books And Equipment?
When the heel of both feet cannot reach at the ground in cerebral palsy, what kind of training is considered?
In what kind of training is standing training of cerebral palsy carried out with this institution?
Please let me know the books which can be recommended by home training of cerebral palsy?
Although purchase is considered for the training equipment for functional exercise of cerebral palsy at home, what kind of training equipment is proposed
Cerebral Palsy :: Memory Loss With - Sense Of Direction Is Bad
I have a few problems I would like to ask about as I'm unsure if it's just me or not? The first one being my short term memory isn't very good at all, for example if I get asked to do something if I don't write it down I forget very quickly,another problem I have is my sense of direction it's bad. I can go somewhere (through to town) but I can't seem to memorise my way around. I'm now 29 and used to go with my friend every other weekend, no matter how many times we went I couldn't and still can't remember my way around. I hope what I've written makes sense and like I said I'd like to find out if it's a related problem to cerebral palsy or not.
View 4 RepliesPalsy - Non Cerebral :: 2 Days Ago I Woke Up And Hopped Onto My Computer
2 days ago I woke up and hopped onto my computer like I do every morning (I'm 16/male and on summer vacation). I noticed that it felt awkward when I tried to blink my left eye. I didn't think anything of it and just continued on with my day.
The next day I woke up to the sound of my phone. I picked it up and it was one of my friends. He told me something that had happened the day before and made me laugh. I noticed that when I laughed only the right side of my face would move. I thought this was very strange and I got a bit scared.
I got off the phone and went to the bathroom and this is where I really freaked out. I couldn't move the left side of my face properly. Everything on the left side seemed a lot weaker than my right.
I tried looking it up for a few hours to see if anyone else has ever had this. I couldn't find anything except for a few forums with people saying it happened to them, but I still couldn't find out if it had a name. I was really scared and was having suicidal thoughts if this turned out to be permanent.
Anyways, I'm very very happy I found this site and that it heals itself. I told my mom and she's going to take me to the doctor so maybe he can give me steroids or something.
Summer vacation ends in about 3 1/2 weeks. I hope I recover by then because I'm not going to school like this, I don't care what my parents say.
I'll keep everyone updated. This is my second day so far with this dumb BP crap.
Palsy - Non Cerebral :: Left Eye Would Not Close While Working On Computer
Yesterday, while working on my computer, I noticed my left eye would not close. Within an hour my lip was drooping and eating was difficult. This morning, my Dr. diagnosed Bell's Palsy and has prescribed a course of steroids. My eye is taped shut to prevent dryness and I feel like I am falling apart,--a a thought that occurs frequently as the my 65th birthday approaches. I have chronic kidney disease and want to know if there is any alternative remedy for this hell known as Bell's Palsy.
View 1 RepliesLengthening The Achilles Muscle To Ease Tightness - Cerebral Palsy
I have heard a lot about lengthening the Achilles muscle to ease tightness in order to help kids who have cerebral palsy. My grand daughter finds her physiotherapy sessions so stressful and painful that she's not getting the benefit she needs and I am wondering if anyone has tried this surgery and can tell me has it helped? Any information will be greatly appreciated as it is heartbreaking to see a little one in so much pain and not able to do things a normal child can.
View 1 RepliesBell's Palsy - Non Cerebral :: Botox To Correct The Nerve Damage
In 2003 I had really painful headaches so bad I could hardly put my head on a pillow, pretty scary as I do not suffer from headaches. Then as I was eating bowl of cereal I kept missing my mouth and realised I couldn't feel my lips or tongue as though I had been given dentist injection. My sister took me to hospital thinking I was having a stroke, this was the first time I had heard of Bell's palsy and I was given steroids, i was very tired and it was an effort to do anything like eat, speech, it did take three months to go.
february 2014 I got a rash on my stomach which spread to my neck, to my back, to my feet, then to my scalp and then my ears, I was in agony, it was urticaria. Whilst trying to cope with this I then got Bell's palsy again, possibly due to an immune system at a low. However it has taken a lot longer to recover this time. Eighteen months later and I still have a twitchy eye and lopsided smile. I am now considering Botox, has anyone here used Botox to correct any of the nerve damage left after palsy and if so what are your thoughts?
Loss Of Kidney Function Due To Aging?
I'm confused about my blood test results. My GFR is 89. My BUN is in the normal range and my creatinine is also in the normal range. Do I have kidney disease or is my loss of kidney function due to aging? I'm 64 years old. My doctor's office sent my results to my home address and said everything is o.k. I think the GFR should be higher.
View 7 RepliesBell's Palsy :: Musician's Palsy - Play The French Horn
I play the French horn and got the Bell's palsy after an exceptionally day playing 3 weeks ago. It seems to be fading already. I was sent to the stroke unit and found to be A1 in all other respects. My treatment was 7 days x 60mg steroids. If I return to playing, will it happen again?
View 2 RepliesNeurological Disorders :: Pseudobular Palsy? (Or A Bulabar Palsy?)
A person i know has suffered a stroke 8 years ago. He says he woke up at night wanting to go to the bathroom, but found unable to get up. He had his mouth drawn to the right side. His wife has taken him to the hospital. He was diagnosed to have suffered a stroke and had hypertension and hyperlipidemia.
The patient suffers dysarthria without improvement ever-since. Has drooling, fasciculations in the tongue. A small dent in the tongue which (i'm not sure) may be attributed to wasting. Jaw jerk is normal (I think so). No weakness in arms and legs.
What is this condition. IS it Pseudobulbar palsy? (Or a bulbar palsy?)
P.S: There is not pseudobulbar affect in this patient. Can a patient have pseudobulbar palsy without having emotional instability?
Successfully Dealing With Diabetes 2?
How many people have input on successfully dealing with diabetes 2?
View 3 RepliesDealing With Thrombosed Hemorrhoids?
I have a thrombosed hemorrhoid since last week and it hasn't gone down at all. It was so painful the first few days but yesterday and today it doesn't feel pain any longer, just some discomfort.
The gastroenterologist I went to told me to avoid surgery because he said it will hurt a lot more if I have surgery. He advised me to just let it heal naturally. It has been over a week now, but that thing doesn't seem to shrink a bit.
I have been eating a lot of fiber and drinking a lot of water to avoid constipation. I am also doing sit bath, cream, suppository, etc.. but all that don't seem to help getting rid of this thing.
Anyone with experience on this issue? How long does it take for it to go away and anything else I should do to help speed thing up?
Dealing Candida While Breastfeeding
Any of you deal with this while breastfeeding? If so, do you have any dietary pointers to help prevent fussy baby (caused by carbs), Yet continue to maintain supply?
View 2 RepliesMenopause :: Dealing With Nausea?
I have been dealing with nausea in and off for a few days, but I'm a little hungry if that makes sense.
Has anyone else dealt with nausea?
Dealing With Dust Mite Allergy?
Does anyone have any tips with dealing with dust mite allergies? I have done some research, I was wondering about which products to use. Does anyone use any of them and what are your thoughts? Has this helped with your allergy or simply made no difference? I would also love to buy an air cleaner.
View 7 RepliesAlcoholism :: Dealing With An Alcoholic Boyfriend
My boyfriend and I have been dating for a few months now, and we are both 18. When we first started dating i knew he had a drinking problem before because he went to rehab. When we first started dating everything was great he didn't drink for the first two months of our relationship. When he did start drinking we drank casually, i thought everything is okay because he would only drink with me. But then he started drinking with old friends that he would drink heavily with. I thought everything would be okay but then he started freaking out on his parents and his anger was out of control. I told him that i don't think i could deal with any of this right now and he said he would stop drinking. which only lasted about a week. he was never mean to me, but he did threaten me saying if i was to break up with him he would kill himself. he just recently went to rehab and said he isn't coming back but he still wants to be together. i love him and care about him alot but not being able to see him kills me and i don't know how to deal with it. when i told him one night that i cant do it, the whole not seeing him thing he got very emotional. This is my first real serious relationship and i just need some advice on what to do. I don't have anyone to talk to because no one understands how i feel.
View 3 RepliesFluoxetine :: Dealing With Negative Thoughts
I'm on my 3rd week of flu and needing some suggestions on how to deal with all the negative thoughts.
View 18 RepliesChronic Fatigue? Short Of Breath, Fatigue, Muscle Weakness And Low Energy
This adventure started about 9 months ago. Instead of my normal routine of get up, eat, hygiene, off to work (I was a remodeling contractor), I started falling back to sleep after breakfast. I must pretext this by saying that I take 40 mg of Adderall in the am and the afternoon. First it was 1/2 hour and eventually 3 hours. Then it was an afternoon nap also, Then an evening nap. This was not every day but most days. About eight or so weeks ago, I developed a blood clot behind my left knee and several in my lungs (as a result of being on my knees for long periods of time installing floor trim we figure). After I got out of the hospital, I started a slow but sure incline in my energy level. Then on October 23 (my 40th birthday) I got short of breath, disoriented, incapable of making clear decisions. eventually I called 911 and when the EMTs got here I had a blood O2 level of 89%. They took me to the ER in a bus and I have never been the same since. I have experienced no increase in my energy level, I have a sore throat most of the time, flu like symptoms, muscle weakness, Most days my mind is still strong but not all, I am functioning at about 25% of what I used to be capable of, I have problems pulling the proper word out of my brain (sometimes 8 or more times per day), I feel run down especially the day after I over do it, at least 4 people have recently tried to talk to me about conversations that I have no memory of, my allergies are not only out of control they are the opposite of what I usually experience (instead of a dry nose I now have a constantly runny nose and I sneeze 50 times per day. I did test positive for Epstein-Barr exposure at some point in my life. I have 6 of the eight symptoms for diagnosis and like 25 of the 35 or so that people with CFS report. We have not yet ruled out MS, Lupus, and all of the kinds of cancer that are required for a CFS diagnosis, but I am almost positive it is CFS. Thoughts?
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