Cauda Equina Syndrome :: Legs Are Cold Numb And Tingly
Apr 13, 2016
I am 34 year old NZ mum and I had CES about 3 years ago, after 3 operations and lots of physio and exercise I returned back to work, bit by bit, slowly working my way up to full time over the period of 8 months. I actually feel pretty fortunate and feel that Iv made a pretty amazing recovery, I got the mobility of my right leg back (it was dragging) although this is still very numb and weak, it appears normal to those around me, and I no longer walk funny, and my bladder only seems to play badly up certain times of the month (by play up I mean weakness and high frequency) the pain is pretty good too....compared to what it use to be like. The night before my first urgent operation I had hot cold sensations filling my legs,it felt like they were being dipped in warm or cold water, it was one of the strangest things I have ever felt, I hadn't realised that going to the bathroom every few min was a warning sign (I actually thought I must of been pregnant). Anyway recently I'm getting cold patches (large patches) and weird almost pleasant cold tingling around the butt and the back of the legs and wondered if anyone else gets similar sensations?, I hate rushing back to the docs and don't want to live in fear that the CES will raise its ugly head again, I also want to avoid too many more MRIs as I have already been exposed to far to much radiation from these. Was really just hoping that another CES patient could tell me their ongoing symptoms and issues that they have just managed to live with.
View 2 Replies
Advertisement
I start from the beginning of my back pain history,In 2009 after a training in a gym i started to feel a sharp pain in my back, following months they pain was growing that much that I could not work out anymore. After several months I had the pain in back but also numbness in my mine buttocks after some checks that the doctors made and pain killers which didn't help,finally they have sent me to CT, which showed that I had a slightly bulged disc l1-s5,the doctors though didn't pay much attention to that result,saying that almost 60 % percent of population would have the same result if they would have checked,after months of Physical Therapy my pain was relieved ,though I didn't go back to Gym.
A year and the half after that I was in pain again and then Sciatica sensation pain started to appear like the needles and pins in my buttock,I was feeling that my legs are weak, slightly tingling on my testicles. I've panicked and went immediately to at least 3 different orthopedics who didn't help much,and neurologist who sent me to MRI and EMG both of them showed that my spine contrary to CT is fine. So he prescribed me Pregabalin which is helped and reduced my pain I aslo started visiting Yoga instructor and half a year later a gym. A year later I've started to go to gym again trying to make mine core stronger which always been very very weak it helped I guess because they were no signs of which doctors call Sciatica. In 2013 I've got into squats and deadlifts and though the pain in back and very rarely sciatica sensations above were appearing i've continued to train, the problem was also what sometimes I was blaming my self for the pain. I had and still have since 2013 a very tight schedule (studying and working) so in average i have 4 hours to sleep. in 2014 there were some increasing in my pain again, I visited some other orthopedist who told me that I'm fine and I visited Neurologist again which has sent me to MRI and EMG again,and AGAIN they both were perfectly fine! So i've continued to train.
My last half a year was very stressful so I didn't work out in gym as much as in the past two years, but when I got back my back started to hurt again also I was feeling numbness in my toes sometimes and tingling in my groin and testicles.
Last month, there were 3 days with pain which started from my back and went through my legs which I have never felt before, It was very strong pain in hips and back. A week after that pain I've started to feel needles and pins sensation in my legs, tingling when I walk on the street with jeans in my right leg (only when I walk outside), some days after that i've started feeling tingling in the area of my testicles and groin which get worse when I sit and stand,never I have before such a strange and annoying feeling in that region.
Though the pain in my back almost disappeared the strange sensation in my testicles is only getting worse. For last three weeks Im feeling strange tingling in the right side of my stomach (or the feeling like something moving there inside). Also when i'm with woman I feel like I've start to ejaculate early . It's not a complete ejaculation though , only when I get arose a little bit sexually I feel like something coming out of my penis and when i was checking it,that It were a drops of sperm (although I don't have yet any other sexual problems or loss of feelings). Also they were couple of times when during the end of urinating, suddenly i was ejaculating (the sperm was coming out right after i've finished urinating), in addition I feel a weird "penis movements" sensations (sorry but that is the only way I can explain what I feel), In addition to all of that I feel sometimes weakness in my left leg or kind numbness for a couple of seconds (though i don't have any pain running or lifting my leg up or whatever).
In addition,to all of this i'm feeling like my right leg is getting heavy (or numb) and there is even one time when muscle twitches appeared in the left leg.
I really wanted to go to the Doctor, but the problem that until january im studying abroad and any visiting the doctor with that kind of problems would cost me a lot of many because my insurance doesn't cover pre condition situations and it seems like one.(though I didn't have any of these feelings before and MRI have NEVER DIAGNOSED ANYTHING) .
So I really puzzled and I don't know what to do,I have no idea why I have all these strange sensations (though almost not having any pain in a back, why MRI never showed anything and I didn't find anywhere on the web if there is any connection between strange partly ejucaltion and bulged or herinated disc).
View 1 Replies
I am wondering can i do driving job(light van)which having 40 min drive 10 mnts walk for 8-9 hours? no heavy lifting. If i can after how many weeks after microdiscectomy?
View 3 Replies
3 weeks ago I had a muscle spasm in my lower back that shifted the muscles around quite alarmingly - thought my hip had popped out. I went to A&E and they told me I'd had the spasm as a result of my body protecting the horse tail nerves that are around my spine. The only pain I have at the moment runs from my glutes to my calf, in certain stretched positions. It's definitely improving but very slowly, and I know I need to be patient as it can take weeks.
The main issue I have is strength in my right leg. Since this happened I now can't raise myself using my right foot - going to tiptoe. Left leg, fine. Right leg, it's like there's no signal, no strength. And it's freaking me out. Before all this, I was running, going to the gym, cycling - 4-5 days a week.
My question is this - is there anything I can do? Do I need to stretch it (kind of feels taught all the time anyway)? Perhaps I need to massage the areas?
View 10 Replies
I am after some reassurance (aren't we all!) For the last 24hrs I have been suffering with numbness in my left arm/hand and leg, aching, tingly and cold hand. I also get a weird sensation of like bubbles popping in my leg (best way I can describe it) -anyone else had this? I suffer with anxiety but it seems to of gone up another level recently, more to do with my health. I went to the doctors about it today and he checked me over, said he was not worried about it being anything serious and that 'some people get it'. I said what about anxiety and he said that could be a possibility- and that was it! I came away feeling no more the wiser and frustrated that my anxiety does not seem to be being picked up on as I have mentioned it a couple of times previously. It seems to be one thing after another at the mo and i am really struggling with the way my anxiety is taking over me - I hate it and I do not want to be like this. Does anyone have any recommendations of books, Youtube, on anxiety?
View 11 Replies
Also have a dull pain on right side of abdomen. And, get tired easy. I would say this is a bit of low iron symptom would you?
View 2 Replies
I frequently wake up with an arm asleep because I tend to fall asleep on my arms with my elbows bent. This always goes away quickly.
This afternoon, about 3 hours ago, my right hand started feeling like it is asleep. It's mostly the last 2 fingers and the palm/back of the hand below them so the ulnar nerve but the index finger also has the same pins and needles feeling. I was not asleep at the time; I think I was petting the dog.
It has full ROM and the strength seems fine. I have no stroke symptoms (aside from this of course but I'm pretty certain it's not a stroke). Both of my hands are equally cold. I haven't done anything that would cause an overuse injury. I have no other symptoms of anything I don't normally have.
I'm not diabetic and have no conditions that would explain this.
I do have a large port wine stain birthmark on this hand although it is mostly on the thumb, index and middle fingers which are the less affected area. This shouldn't cause nerve issues anyway.
Nothing seems to be helping it. It is annoying rather than a big deal. If it continues I'll go to the dr Monday. But I just wondered if anyone has any ideas? I had something a little similar 15 years ago when I was typing my master's thesis but I'm not on the computer anything like that now.
View 2 Replies
History:
A month earlier I fell off my motor-bike. For almost three days my leg was fine.
Symptoms:
- I started having that cold/semi-numb feeling in my left thigh as if the veins are blocked
- When I lift heavy object or jog for 15 minutes the left leg can't hold my weight
- I feel a little better while standing
- I also sometimes feel a sharp pinch in thigh muscle and hip
I'm pretty sure I don't have broken bones.
What could have gone wrong?
View 1 Replies
Last month i had a very bad bout with the flu. My whole body was paining. It started with my upper legs. Almost like someone gave me charlie horse in my muscles. Then my feet and bottom of my feet started paining. I could not even walk. I wore memory foam slippers on my feet the few times out of bed. My hands had the same painful sensitive sensations as my feet. a few days later my lungs started to hurt and I had something pneumonia. When i started recovering, the pain and numb sensations stayed on the bottom of my feet, my hands legs and arms. Not to mention the weakness that still exist in my limbs. Also, which is confusing and worrying me most now is the numbness on my face and in my mouth, it feels like dental freezing leaving my mouth. It's been at least a month since i recovered from the flu. I have seen my Dr. and have been scheduled for a CT scan. Has anyone had these symptoms before?
View 4 Replies
Just wanted to know if anybody has this strange sensation as I have. A very cold tingling going down my legs arms and face more so on right side. Keep getting fobbed off at drs and hospital.
View 1 Replies
I have had lower back pain for months now which goes hand in hand with numb lower legs, pain and discomfort really bad in the morning when waking, so much so I get up and have to stretch on my exercise mat to get relief. The veins in the lower legs in the morning really stand out. I saw the doctor who said it was lower back pain causing the numbness in the legs but the circulation seemed ok. I wanted a scan to see what the problem is as the pain can be bad, but he said they don't do back scans no point? The pain is often bad and I sit with a hot water bottle. I am 60 years old.
View 16 Replies
Does magnesium help? I need to be careful not to take anything with iron in due to my haemochromatosis.
View 4 Replies
My doctor would like to try me on Methadone and I have mixed feelings. I'm on a large dose of Ropinirole and it isn't helping me anymore. It's the only thing I haven't tried yet. RLS is ruining my life. It's now in my arms and legs.
View 67 Replies
I’ve suffered RLS for 30-40 years now. I take Pramipexole. I offered to care for my daughter’s dog whilst she went on holiday. It’s a Pug about 2 feet tall. In the space of about 3-4 days, I must have walked that dog 10-15 miles. I was devastated when she wanted him back. Apparently he slept for 2 day’s. The following day I developed left sided hip Bursitis. The pain was excruciating. After 4 days of this pain, at 3 in the morning, I dialled 111. A doctor told me to take paracetamol. Around 10am later that day, I dialled 111 again and was referred to a primary care doctor who prescribed 30-500 co-codamol. Two day afterwards, the pain began to subside to a dull ache and 2 weeks later, no pain at all. Where’s all this going. Between the Bursitis pain starting and now, I have suffered hardly any RLS. Occasionally a little in the afternoons but that’s all. Apparently exercise helps to relieve RLS and I believe that is the case. However, I’m wondering if prolonged intense exercise gives more prolonged relief. Be aware of other conditions though. Particularly cardiac related. Discuss with your GP. I have reduced my Pramipexole from 4 tablets at 17.30 to 2. Still no RLS. The moral of the story. Buy yourself a dog and walk the hell out of it.
View 1 Replies
I have had to give up any glass of wine ever! I tried again to have one glass of Chardonnay at dinner the other night and I was up writhing through the night - and no meds helped. Anyone else have this experience?
View 4 Replies
Any updates on success with gabapentin? I think ropinirole is augmenting.
View 6 Replies
I have been dealing with the first few months of CRPS which started as burning hot and has changed to a freezing foot that turns blue or purple. Lately I have noticed the bottom of my foot will be ice cold but the top of my foot is normal temp, my toes are like ice. Is anyone else experiencing this? I am battling the workers comp nightmare right now and I hate to tell them about this as it may complicate an already horrible experience dealing with them.
View 2 Replies
So went back to GP and mentioned I have private medical and I wanted to be referred for help. My GP shockingly said well we can help. So I have been given gabapentin! 5 days in taking one every evening. No let up with rls yet, but I am hoping it kicks in real soon
View 1 Replies
So been on gabapentin for 3 weeks now and have only had 2 nights of rls. 2 nights were very mild and the rls was very little and a walk around and back in bed helped. Fingers crossed I will get it less and less now
View 4 Replies
I've suffered from CFS for a good few years now, I've just started with numbness in the arms and sometimes my legs. Has anybody had the same experience?
View 4 Replies
I'm wondering if anybody else out there is affected by RLS in the same way I am. It's very specific. Only when I'm falling asleep, my foot will jerk, sometimes rapidly, followed by the whole leg making a violent jerk. There is no sleeping thru that. Once it starts, I know I'm in for a long night because it does not stop. Even if it does, then the other leg will start doing it. (There is that creepy-crawly sensation a microsecond before the jerks, but I can't stop it from happening.) This started in the early '80's with mild episodes 2 or 3 times a week but has increased strongly over the years.
I have incredible empathy for anyone suffering from this affliction / curse and pray daily that the true cause will soon be identified.
View 10 Replies
