Cardiac Arrhythmias :: Idiopathic Dilated Cardiomyopathy - Extreme Tachycardia
Jun 13, 2015
I've got idiopathic dilated cardiomyopathy. I have Afib with this and keep getting extreme tachycardia which means I have to go to hospital to get it controlled. I have asthma too. I'm in Europe and have good doctors - I was in hospital Saturday night into Sunday - I called my doctor as my heart was beating so fast and irregularly, and it was having long intervals of no beats - I have a stethoscope and could hear nothing at the apex and I've been taught how to auscultate, and I was very very breathless. She was very worried and sent me to hospital. After being stabilised, I saw a a cardiologist who did loads of tests and said my heart was very much more dilated than before. On discharge I've been given 02 to breathe if I feel breathless.
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I'll get straight to the point. I have been suffering from Vestibular Neuritis for almost a year, to summarise it, its an inner ear problem which affects your balance and can take years for the brain to compensate for it.
It has multiple side effects, the most common and most problematic one being anxiety. At the start I had too many panic attacks, I couldn't even leave my room. However, by doing things like yoga, meditation etc. I managed to recover a LOT in terms of ANXIETY. Medication didn't help and as my anxiety got under control along with my brain compensating for the lack of balance, I started to feel better, but all symptoms were still there 24/7 to a lesser degree.
One month ago, I relapsed. I assure you, I did nothing different and have no idea why everything came back. As you can imagine my anxiety sky rocketed again. It took me about 2 weeks for the dizziness to calm down as brain compensated for it again. However my anxiety seemed to be there, I tried yoga etc. again (as it was so successful last time) but it did nothing. I have also noticed for the past 2-3 weeks, my bowels have been very irritated- without going into too much detail, I will just say that the frequency of my toilet visits per day shot up. I assumed (and still assume this was anxiety related) so I continued yoga etc. with not much improvement. I changed my diet to eat only bland, simple food...still not much luck.
My latest problem, and this is the one I need MOST help with. Three days ago, as I was trying to sleep, I started getting palpitations which really scared me- I have never had them before. NOTE: I had EKG, ECHO, Holter done 6 months ago and all was normal, so my heart was fine then and is fine now as I had another holter done last week - HOWEVER this time around it was clear that I had ectopic beats but the doctor said this was normal.. This has really made me feel anxious especially because I never had this symptom last year when my anxiety was at a peak.
Yesterday, the palpitations got really bad, I had to take a 4 hour ferry and then drive 4 hours. iI had a fairly greasy burger on the ferry and about 90 minutes later I started feeling ill and had palpitations again. This was the most scared I have been, I felt the urge to go to the toilet a lot and everytime I went, I felt like I was going to faint. My 4 hour drive later was scary too, I almost stopped at a B&B because I kept getting palpitations. The palpitations I had yesterday was different to the ones I've had for the last 10 days...instead of a 'thud' at the end, I had a sense of radiation warm sensation from my chest to my stomach which was really scary and moments of a feeling where you feel like youve lost consciousness for a split second before being 'shocked' into reality.
Has anyone experienced this? Do you think its anxiety related?- If yes, why has it started to happen all of a sudden?
Or do you think this is something to do with GERD? I seem to burping more and feel more 'wind' and also seem to want to go to the toilet more.
I also feel dizzy because I'm eating less because I get scared to eat any amount as the palpitations are triggered!
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I love hearing all your personal stories and cures. Months ago someone cured his ectopics with "natural" form of Xanax as his always went away with Xanax. Please post again or if someone remembers the ingredients, let us know.
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Anyone suffer from ectopics? Mine started 3 yrs ago when i was pregnant and are getting worse. Had ecgs...48 hr ecg ( which of course only showed a couple) echo and ct angiogram which i'm waiting the results for but wanted to know how many is normal? For the last 5 days have been really bad and tonight in the space of an hour as i counted them i had 16..just so typical that when i had my 48 hr ecg a few weeks back i was having a good few days so of course the cardiologist said all looked normal. Just wondered if people suffered with these and what the outcome has been? Its really getting to me and worrying me now.
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I have some strange feelings and etc for around 6 months. I don't have any panic attacks or anxiety from long time ago, but something is wrong with me. For example in morning I stand up from bed and my heart rate goes to around 130 or when i climb up stairs ( around 20 of them) i get heart rate around 170 per min. That's not normal I know, but I have had heart ECG, heart ULTRASOUND,blood tests and etc and everything is fine. But on left side of chest I have pressure, feels like some organ is swollen or I don't know, maybe lung is pressed or something. I had also lungs x-ray but it came out fine. When heart is beating fast, i feel pain in my upper chest like in my airways, and when my heart calms down i have sore upper chest. 1 month ago i got maybe palpitations but not sure if it's palpitations, happens most when im standing. I get fast squeeze in left chest like my left lung is squeezed, but in this second my heart stops beating and then starts after 1sec beat fast and again slowly. I really dont know what to do, because im sure i dont have anxiety or panic. I was on xanax,citalopram,lexotanil for long time and nothing helped me for that. P.S My left leg is always cold,mostly when im laying down. Sometimes i get vibrating sound in my left chest and i don't know what is this. Mostly im scared if its my heart or what... Doctors said im okay, but i still feel not normal and without full access to live my life.. I had also brain scans,neck x ray and all is fine. All tests I had everything is normal. What do you think I should check? Please don't write about psychology problems, because its not this and im sure its not in my head.
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How do I check if I dilated more?
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I am taking Cataflam. I am taking large doses for several days a month. I am interesting about cardiac risk regarding this fact. I have heard that this dosage can be very risky for me. To be honest, I am not sure that these rumors are true.
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So to make this as short as possible. About two and a half years ago I had a really bad low blood sugar episode. I'm not a diabetic, I wouldn't say diabetes runs in my family considering only a few have it. I had a really bad diet years ago, few energy drinks a day, cigarettes, and junk food out the ying yang. Now the day it started I hadn't eaten much so it could of happened to anyone. Felt all the symptoms, and thankfully I work at a hospital so when they checked them it was a 47. Ate some food and felt better. That day after all those years of bad food I cold turkey quit all the bad foods and energy drinks. Didn't stop smoking though. I was very active, I mean skateboarding for about 10-12 hours a day. Very thin, about 125 pounds from the age of 15-21. Well since that night it happened I became a very panicked person. I started binge eating because I always felt the symptoms of it, although sometimes I couldn't tell the difference between anxiety and low blood sugar. So I would check my sugars, sometimes they would be fine, other times they would be below 70. When I panic they get worse. Well now I eat the same thing everyday, eggs, spinach, tomatoes, cheese, chicken, protein packs, low calorie gatorades. No sweets what so ever, and I've basically become agoraphobic because of my sugars all the time. I always feel dizzy, weak, shaky, faint. But like I said sometimes I can't tell the difference. These winter months seem to get worse, now lately I can't even tell when they're getting low. Earlier today they were 67 and I couldn't even feel it. I used to though. My anxiety has gotten a lot better but not fixed. I'm afraid it'll drop in my sleep and I won't wake up it's horrifying. No meds ever, no surgeries, nothing prior to this. Always healthy as could be.
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have had intracranial hypertension for 7 years i am coping well at the moment with the diamox tablets 25omg 3 times a day and i go into hospital every 6 months for lumbar punctures.i did go away 3 years ago but returned a year later worse but controllable.there is light at the end of the tunnel and i do get a lot of other symtoms but i just try and deal with it even though sometimes its hard i am 43 now.
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My 12 year old daughter had had headaches for some time and her endocrinologist advised her to have an eye test. I say 'endocrinologist' as she was born without a thyroid gland (extremely rare) and she's been taking thyroxine since she was 10 days old. She's also monitored for her hypothyroidism. Anyway, between her doctor's appt and her eye test, she got her first period. So we blamed her headaches on her development. The ophthalmologist said that my daughter needed to increase her lenses. So again, we put her headaches down to this. By time, her headaches moved down to her neck and 4 months later, at another routine eye test, I mentioned this and the ophthalmologist decided to look behind her eyes. He was horrified to see extreme swelling of both optic nerves and a swollen brain. She was admitted into hospital and had a CT Scan done. Luckily there were no tumours but a lumbar puncture showed that her CSF pressure was 50 (it should be 15-18). She was immediately started on diamox 250mg (acetazolamide). After a few days this dose doubled. Today she has just had her 6th lumbar puncture and as the pills don't seem to be working - her CSF pressure is on the rise again, her medication has been increased again. She's taking 2g per day (750mg-500mg-750mg) daily, which i think is too much for a child. On the 23rd July she's having her 7th lumbar puncture and also seeing a neurosurgeon, because inserting a shunt seems to be the only solution. Lets hope and pray all will be ok.
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About 3 months ago I had a sinus infection and never recovered after I had terrible like pressure building up in the left side of my head which would happen more at night or basically when I would lie down i also when my ears touch the pillow I hear my pulse and on the right ear only when I press against the pillow a clicking noise I would later develop sensitivity to bright lights sounds and smells.
I made 3 trips to a and e with the pressure building in my head on the last occasion it affected the left side of my body they just sent me away
I payed private for a neurologist did MRI on brain came back fine he diagnosed me with severe migraines and put me on propanol these have calmed the symptoms but I am worried as I am still left with a dull pulsating on the left side and have a bit of blurred vision suffer a lot with fatigue and when I try to exercise it kind makes my head
worse and I have noticed pain in my neck and shoulder on the left side had my eyes tested but said they were fine .
The thing is I am left with is like a dull pulsating on the left side with still sensitivity to light no energy I am not sure if this is chronic migraines just wondered of anyone had any ideas to what it could be I have been better since taking the medication but it worrying that it's kind of still there I also have irritable bladder and ibs and have been referred to a chronic fatigue clinic but I don't think that is the cause of my fatigue
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I underwent an EPS for cardiac arrhythmia one week ago but it has left me with severe bruising half way down my thigh. It is not swollen and not painful just a little in my groin. I did bleed a bit after the procedure and when i stood to go home and the cardiologist seemed to have difficulty inserting the catheter into my groin.
has anyone else gone through this after an EPS is this typical?
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I was in hospital in 2006 with severe illness. I had gotten up to go to the bathroom yet collapsed on the way there. I was given morphine as I was in extreme pain, however, i began feeling very sick, so cyclizine was put straight into my drip. Literally 20 seconds later, i remember feeling as if someone had put their hands round my neck - I couldn't breathe and my heart was racing - this is the last thing i remember. According to my mother and father, I went into cardiac arrest - blacked out, and then was unconscious. At this point, I was dead. I had no pulse and was not breathing. I was given emergency CPR and was thankfully, revived. I remained in hospital for the next week under strict observation. I was 15 at the time. I have a severe allergy to cyclizine, and never again will I go through this ordeal.
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For over a year I have been suffering with idiopathic intracranial hypertension which ended up with me needing a stent inserted earlier this year. I have been left with horrendous headaches which has now been diagnosed as chronic daily migraines. My consultant has now suggested the following plan; reduce caffeine to zero (only drink 3 cups of tea a day anyway), no cheese chocolate or red wine (don't eat or drink these anyway). Propranolol beta blocker as preventative. Sumatriptan, Aspirin and Domperidone as acute attacks rescue plan. He also put me on waiting list for nerve block injections.
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After doing the best I can to ferret out the risks vs benefits of cardiac catheterization. 92% of my brain says, "No." That niggling 8% is a real pain.
I am female. I am over 60. I have not had a myocardial infarction, (that they're telling me about anyway). I have some stress wall hypertrophy, but that's pretty much it. If I could get the physicians/cardiologists, to give me better evidence of need for such an invasive procedure, I might consider it...however...
I know me. Just having the procedure would be psychologically, and, therefore, physically, ruinous. I think I understand - but who can understand this really - that choosing not to have the catheterization, and whatever may happen as a result, means I might sign out quite unexpected. But is this a better way to live? I think so.
I have not felt "well" for at 7 years. (I'll spare you the ailments). However, I don't get colds, flu (no vaccinations)...I don't have hypertension. I'm told I have angina, but I am convinced that the post-meal sensations I get are due to gastric/diaphragm...more on that order of things. I don't have frank chest "pain."
I'm figuring that it will be a complete crapshoot to refuse the catheterization, but I am 100% certain, that there is a better chance of me surviving an invasive procedure if I don't die before I have it, then lending myself to what looks like a never-ending routine of invasive procedures.
What I'm currently hoping for, but have been unable to get, is a cardiologist who will agree to fully monitor me; one who truly understands the various medications available and who would find one that is best suited for this particular body, and who considers cardiac catheterization, et al, a last resort, rather than a first. (Nice fantasy).
So far, I've had the general practitioner I see, attempt to scare the hell out of me without telling me on what evidence he was doing so. (I would change to another GP if there was another one around). That kind of tactic is not only useless, but demoralizing. When it comes to "heart," demoralization can, without a doubt, lead to "heart trouble."
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I was diagnosed 3 years ago and recently spent a week in hospital due to a headache not moving my eyesight went with it this time for the first time ever and I was driving with my 7 year old in the car it really scared me yet I had a lumbar puncture pressure was only 24 but my speech has been effected my eyes keep blurring this headache has been here for 10 days now and still no budge when I was in hospital they said both my optic nerves were swollen and I seen my neurologist today and he says it's just a migraine. The first 4 attempts at lumbar puncture they did in the wrong place so was unsuccessful and have left me in agony can anyone suggest what I can do I am not overly obese but all's my specialist says is lose weight they will stop
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I was diagnosed in October 2006, after been admitted to Hospital with suspected Meningitis. They did a Lumbar Puncture, and the CSF pressure was very high, I was shipped out to a Hospital in Sheffield - Away from Uni, and even further away from family.
It was confirmed I had BIH.
Ever since, I've had to have Lumbar Punctures every 6-8 weeks, with the CSF always way too high. I was put on Diamox too, which didn't do anything at all. I'm now on Topiramate (Topamax), which also doesn't work for me.
I thought it was just people around me deliberately not understanding how painful and disabling it is, but after reading your experiences, it seems not many people understand.
Woke up this morning in pain (like most days), with dodgy vision and loss of coordination, so time for another LP!
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Does anyone suffer SVT only after alcohol?
I don't drink a lot, but I've found I only get symptoms about 5 hours after drinking alcohol. No other time!
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About a year ago I asked my doctor to diagnose the episodes I had been having most of my life.
These episodes that made me feel detached, listless, dizzy and sometimes short of breath, would last for 10 or 20 minutes or sometimes two hours. The doctors, I had previously presented to, could find nothing wrong with the lungs or heart. I was once sent to specialist who thought it might be a type of migraine.
Anyhow my doctor thought it might be atria palpitations of the heart so I asked him if the next time I was in town, and had an episode, could I come in to see him. He arranged for an alert to be put on the receptionists' computers so I would get a ECG reading/printout immediately.
And so it happened, the resultant reading showed the heart beating 140 bpm ( should be 70 bpm for me)
“Ahh SVT!” the doctor cried, - Supra Ventricular Tachycardia, the electronic pulse finds a quicker way to go but in doing so causes the heart to beat faster.(Not as serious as Atria Tachycardia.)
“Don't drink any alcohol, coffee or tea.” said the doctor.
There are techniques on how to reset the heart back to normal.
I found the best way was to just lie down on the carpet for 10 minutes or so. It was a relief to actually know what the condition was at long last. I could live with it, or so I thought.
There were times when I couldn't reset it and it would last longer and made me feel completely debilitated.
Not wanting to go through the ablation surgery or have a pacemaker fitted, (not having any faith in these procedures), being a Christian I decided I should pray about it and leave it at that.
With a busy life and everything happening, now that the family had arrived from England and living with us, I had forgotten about that prayer time. Then one day, about three or so weeks later I said to my wife “ you know I haven't had an SVT episode in over three weeks?”
So in my next prayer session I thanked God in faith for the healing.
That was six months ago, and, praise God, I haven't had another episode. I drink the occasional glass of wine with my meal and drink coffee and tea every day.
I sometimes get the flutter in my 'solar plexus' area, that previously would indicate to me that an SVT episode was about to start, but now it just stops.
The only cures I have seen offered are ablation, dietry, drinking lots of water and taking a supplement of potassium. I didn't try any of these.
I haven't read of any 'spontaneous healing's for SVT, such as mine, have you?
So I do believe that God can heal you. It just takes honest fervent prayer.
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I'm Feeling generally weak, if I push through and do things regardless, eg walking up stairs, I end up shaking and get palpitations. Depending on how much I've done that can last for days and I end up in bed. I've cut out doing so many things that basically all my heart has to do is keep me alive, I worry about if it deteriorates further, what's going to happen?
If I get a day where I feel stronger I will take full advantage and do as much as possible.
does SVT affect anyone else like this? I haven't had an actual episode for years but can feel one trying to override the meds sometimes.
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I was diagnosed with SVT years back and have had 2 ablation ops with no success. Too near my AV node. Exercise is the main catalyst for an episode with myself(rapid heart,sweating,have to stop, feel faint) but have the odd flutter and increased heart rate at any time. However i have stopped drinking Caffeine and what a difference. I have not had any episodes whilst out running for about 3 months now( used to be every other run) and have confidence in entering 10k runs and completing them without having to stop. I am going to start playing squash again and really test out my hypothesis.Also, i am not noticing my heart jumping or bouncing during the day now. Just wanted to share this with others as stopping caffeine as really benefited me. I check all labels on soft drinks and obviously no coffee or tea.
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