I've just been diagnosed with Graves disease. I am taking Carbimazole 40mg daily now, for 8 days. I have the dreaded 24hr sweats - aching leg muscles - sleeplessness - no energy and lie on bed for most of each day!
View 1 RepliesI have just been diagnosed with graves disease (and overactive thyroid as a result) and prescribed 3 5mg carbimazole pills a day whilst i wait to see a specialist and have an ECG so i can also be prescribed beta blockers.
My doctor said to take all 3 pills at once but i have read that the effects don't last 24 hours and its better to spread them through the day. Does anyone else take 15mg and do you take them all at once or spread out? In your experience when is the best time(s) of day to take them?
I've been taking carbimazole 20 for 2 months now as i have graves i had a uptake scan which shows its my whole thyroid gland is playing up .up and down so my specialist had gave me carbimazole to block my thyroid hormones and replacing them back with thyroxine 50 i feel so terrible sickley cant eat well also headace i believe the carbimazole is causing all the trouble.with side effects.
View 6 Repliesl am in terrible pain right now, had fever, sore throat, aching leg muscles, l have now got terrifying pimples all over my head,face,mouth,chest and back. l don't remember having chickenpox before.l have had vaccination to protect me,so what has happened?l have looked up on the internet there is very little or none mentioned on adult chickenpox. Is there anything unusual about me?
View 3 RepliesMy face is puffy, tired, dry; Head feels heavy; Cognition is not working properly; Muscles are sluggish; Energy levels are low; Constant sleepiness... Tons of visits do docs - everything OK. Tons of supplements and drugs - no effect. Free of thyroid, sleep, vitamin, blood, organ, allergy, lyme, hiv, virus issues etc. You name it. Started along with stressful period 2 years ago. Could it all really be some mental issue creating havoc throughout the body, i.e. psychosomatic? 21 years old male.
View 1 RepliesI'm wondering if anyone has any advice regarding diagnosing graves and thyroid eye disease in pregnancy. Having never had any problems until being pregnant I'm very confused as to why I've suddenly got it? At around 12 weeks into my pregnancy I noticed a change in my eyes (one was protruding), after seeing an eye dr, he advised I'd be tested for hyperthyroidism and following his advice the bloods came back as a positive for hyperthyroidism. I was put on PTU by an endocrinologist for the rest of my pregnancy and at week 39 I noticed a yellowing in the White of my eyes and admitted myself to the maternity unit for blood tests following speaking with a midwife. It turned out I had developed severe jaundice (Which I now have learnt through research to be a severe side effect to PTU) and that my liver was failing; I had to have an emergency c section that night. I am pleased to say I have a had a healthy baby boy but I'm so anxious as to whether these conditions will worsen post pregnancy.
View 1 RepliesSay you have been treated for Graves Disease with RAI and that deals with the hyperthyroidism (not so much with the eyes though!), what happens to the antibodies that were attacking you thyroid with such vigour and verve? Do they just go home because there's nothing left to attack? Are they always in your system waiting to attack public enemy number 2? And why do these things decide to attack the very thing they are meant to be protecting? Is it genetics? Childhood illness (whooping cough, measles and mumps in my case.) Environmental factors? Stress? Diet?
I am sure there are many schools of thought and theories to all of these questions but I am curious still about where these wee anti-bodies go after the illness (or symptom of your illness) has been irradiated in my case.
I Am wondering if someone can help me out with what my blood results mean . ok so i went to a walk in clinic because i was having a laundry list of stuff going on with my health . asked doc to do some blood work and see if he could find what might be wrong .
blood work came back showing some thyroid issues . my TSH was .16 my T4 free was 18 free T3 was 6.1 and my TPO was 102
the doc said i have Hashimoto's thyroiditis and referred me to endocrinologist which im waiting for appointment .
so my question is after doing some googling im wondering if the doc might have meant to say graves disease rather than hashimoto's . it was very busy in the office and maybe he just mixed the two up ? the reason im thinking this is because when i look at what my blood work results are they point to hyperthyroid rather than hypo . can anybody tell from my numbers i really would like to know and its a bit of a wait till my appointment with the specialist.
I am very new to this site and extremely grateful that I found it. I was diagnosed with inappropriate sinus tachycardia almost three years ago. I am taking 350 milligrams of metoprolol. My primary doctor ordered new labs since my cardiologist has not requested any in the last 2.5 years. My results are as follows:
TSH - 0.01
Vitamin D - 26
Carbon Dioxide - 18
Free T4 - 1.3
Thyroglobulin Antibodies <1
Thyroid Peroxidase Ab 421
Primary doc originally thought I graves or Hashimoto's, but now wants me to follow up with an endocrinologist. Of course that appointment is 2 months away.
I do not have many symptoms. I do have the feeling of warmth in my shins, but that comes and goes. I have a little muscle weakness. I have been having trouble sleeping through the night, but 2 glasses of wine have been helping.
If I do have either Graves or Hashimoto's is waiting 2 months for a doctor appointment ok? I would think that I need some type of medicine.
I have posted to this Board before about what has made a difference to my recovery from Graves. In addition to the medication Methimazole, I started on Regular L-Carnitine and then later Acetyl-L-Carnitine and vitamin D supplementation. Others on the Board have posted about the addition of selenium as well as other natural herbs such as Melissa and Bugleweed. I saw this posting on another Hyperthyroid Board and the author has given me permission to copy it to this Board as follows:
I am shocked that our doctor's don't know more about the thyroid, autoimmune disease and its connection to the gut. I went to a naturopath when I was first diagnosed in 2012 because my husband and I didn't like what the endo suggested. After seeing the naturopath we made a connection between my occasional IBS type symptoms, bloating and my thyroid. We started a probiotic and immune support vitamin called Moducare. Then she ran food sensitivity testing through All Tests labs (some MDs are skeptical about this but it worked for my stomach). I had all four antibodies for graves and Hashimoto's and I had symptoms from both and almost undetectable TSH levels. She removed gluten and dairy from my diet and pulled out foods I tested sensitive to like yeast. Then added Lycopus Virginicus and lemon balm tincture to my routine along with vitamin D, B complex and CoQ10. I finally figured out though that the real cure for me was going gluten free and dairy free. No more bloating, no stomach cramps, gas or the big D. Then I found out there is a link between Celiac disease, gluten sensitivity, leaky gut and Thyroid disease. There is a natural graves treatment FB page I am on and a lot of us have cured ourselves of Graves using dietary modifications. I went into remission within 3 months of this diet. I have been normal for over a year now. You really need to be tested for celiac before you start the diet. If you don't have it (it can lead to thyroid disease and then other autoimmune disease when left untreated) then you are sensitive to something you are eating and are most likely dealing with leaky gut. Someday the MDs will catch up with what is really going on here. Our pediatrician is so progressive and knows all this stuff but warned us that a lot of her colleagues are not there yet when it comes to medicine."
I have been on Carbimazole for only about a month and have started to gain weight. I was diagnosed with hyperthyroidism at Easter and am seeing the endocrinologist tomorrow. I am coming off the stuff as I'd rather be dead than fat and will tell him that. I'm 51 and work in the media. Weight gain could cause me to lose my job and it's just out of the question to be overweight. People in my industry are being made redundant everyday and my job is really at risk.
View 2 RepliesMy wife ( in her 60's) went to the NHS GP with cystitis and after a urine test, was prescribed Trimethoprim. Less than twenty four hours later she started to experience abdominal and back pain. She persisted with the Trimethoprim but the pain intensified.She said she had never felt so ill in her life and her skin was fiercely hot.We called NHS Direct and they questioned whether my wife had been to the gym, advised to drink plenty of water and to drink a particular fruit juice. She drank the juice and was almost immediately sick. Then, to help matters,the battery failed on my newly purchased thermometer.Later on Sunday night she felt really bad, couldn't sleep, couldn't drink , her body felt it was on fire and felt sick all the time. We then read the Trimethoprim leaflet that said these tablets should not be taken if there is a kidney complaint.I was on the verge of taking her diet to A&E at three o'clock in the morning.
First thing on Monday morning I got her to the surgery again and in spite of telling he receptionist how urgent the situation had become, we had to wait one and a half hours before having a consultation with ( another) doctor. By now the full urine analysis indicated a kidney disease against which Trimethoprim was ineffective and was given an alternative antibiotic - which (five days later) has now cleared the signs of the kidney problem. She has been ill for about two weeks, lost half a stone and can only eat small quantities of food - but at least she is eating again in small quantities.
After all this, I suggest the kidney infection developed very rapidly shortly after the first consultation and :cry: Trimethoprim failed to tackle that problem. Now the side effects of the Trimethoprim have only just subsided we realise that the constant nausea, burning skin, sleeplessness,
body aches were due to the Trimethoprim. Coupled with the kidney pain, it explains why she has never felt so ill in her life. We would never entertain taking Trimethoprim ever again.
Should you suffer the symptoms of cystitis, I would recommend the full nature and extent of the problem is diagnosed without a four day delay,
the correct antibiotic is taken, don't take the advice of NHS direct without a second opinion and avoid Trimethoprim.
Is there anyone out there that eats gluten free and any evidence to say that it will help with Graves or Hyperthyroidism?
Just exploring my diet as I'm on 30mg of Carbimazole daily and have put on weight. I normally have low fat, high protein, low carb, veggies, fruit and lots of water, but still putting on weight.
Weight gain is this because I'm going back to being hypothyroid or the Carbimazole? Back at the doctors next week for a blood test.
Just wondered whether to try gluten free, although at the most I only eat 2 slices of bread a week and my diet is quite healthy apart from the occasional glass of wine.
total thyroidectomy 2 months ago due to Graves disease, 3x since, I have experienced, edema of both eyelids, itching and redness, I am on Synthroid 0.1mg po/daily. The symptoms dissipate after about 2 days.Anyone post Thyroid removal ever have this happen?
View 2 Repliesfor the last week i have had tension in the back of my neck and behind my eyes are aching , does anyone else get this and is there a way to get it to ease up... im taking it as a side effect. currently taking 20 mg of site for 5 weeks and prior to that 5 weeks on 10 mg so approximately 3 months on this stuff, do these go away?
I finished my period yesterday and was on for a full week !!! I'm only normally on 3 days 4at the most my body body feels lethargic achy heavy just heavy feeling...feel quite sick and quite bad acid reflux which I keep monitored as I'm on medication for this....I don't feel well at all NOT myself I'm on medication Sertraline which has eased my mood swings ok some days are rubbish but I cope?!!.
but the aching body and when I eat I then feel sick,why?
soo since this last period all through this and even know I Don't feel right?
my body literally and constant ally aches I have no idea what is wrong with me ..I couldn't wait for my period to end thinking well at least tomorrow I'll be ok But i'm not so I if I don't know what is wrong how will I know what is good for me to take?
has anyone got any /some advice to help me out here?
infact I have know for ages that I was entering peri but they kept fobbing me off with oh you're too young mmm really I'm 46? And I'm still having normal periods ..you not in peri you have to be 50/51 to be in peri!
So I'm on 4x75mg twice a day, still sleeping but the day does is a nightmare. I'm exhausted all the time, limbs aching and a banging headache. I honestly think the pain now is worse now then without the pills but I get to sleep 8hrs a night and need that. What to do? I'm seeing the neurologist at the start of June and I'm going to let him know the side effects and worried he will change my prescription because anything new might not let me sleep. I know there's no answer to it, just thought I would share and maybe someone has had the same experience
View 4 RepliesI was wondering if anyone else's calf muscle tends to get a bit painful and tight after exercising, also think i over did things yesterday as my knee feels really swollen today
View 14 RepliesFor a couple of years now I've been having weird behaviour, episodes, happening with my heart. I've had a heart murmur since I was a teenager, caused by hyperthyroidism that went undiagnosed for too long, so heart issues for me aren't new, but this is different. They seem to happen primarily at night, I wake up feeling short of breath, my heart feels like it's vibrating more than beating, my chest and limbs ache, especially my arms, but it's not a stabbing pain, just feels like really tense muscles. It leaves me feeling the next day like I have a cat sitting on my chest and very tired, and often within a couple of days I notice splinter haemorrhages on my nails, up to 6. I've had numerous tests, ecgs, an echo, week long ecg, stress test, thyroid test, iron test, MRI. Nothing has come back conclusive, I've been told it's just a heart murmur, that it's probably just anxiety (then why is it hitting me when I'm sleeping? and since when does stress cause splinter haemorrhages?), that splinter haemorrhages are nothing are not proof of anything. A bit of background, I'm almost 40, it's been happening for 2 years, 6 months after I got a copper coil, 3.5 years after I gave birth, I've had hypothyroidism for 5 years, but had hyperthyroidism up to 3 years before that, I have a strong family history of heart disease on father's side, (but I don't have the high blood pressure they did, I do have high cholesterol though, but not severely) and low iron on my mother's (I've been taking supplements since a test many years ago found me low on this). This seems to happen when I have my period, but not with every period, and does pass, but eating a poor diet and little exercise also seem to effect it. Anyone have any ideas? Mine have been: low iron, thyroid storms, Prinzmetals angina, cholesterol floating around my body, a blood clot condition causing small clots to float around my blood periodically affecting my heart, lupus, or, my body reacting badly to the copper coil
View 1 RepliesI had a vasectomy about a year ago and have never previously had problems in this area.
the operation was ok and suffered tolerable discomfort for a few weeks.
About 3 months after the operation I had an infection in my testicles, cleared up by antibiotics. The doctor said it was not connected to the vasectomy which I found difficult to believe given I had never had a problem previously.
Six months later and I have been getting swelling in the area below the pubic hair, intermittently soreness, stinging, aching, lancing pain usually when I move about. It is alleviated quite quickly by lying down, hot water bottle on the area. The doc said unconnected to the vasectomy again but when pressed is conceding could be scar tissue?
I have been taking 10 mgs of amlodipine for approx 6 months I have recently stopped due to the following side effects muscular weakness and aching limbs and weight gain I have switched to Hawthorn berry capsules to lower my blood pressure which are available at the herbalist with no known side effects I will record my progress in a couple of months but I am convinced that the doctors of today all too readily prescribe potentially harmful drugs and quite frankly they are more interested in there big cars and enormous salaries than in the health of their patients
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