Burning Mouth Syndrome Or Something Else?
Mar 11, 2014
One day last November I awoke with a 'bitter' taste in my mouth.
Several visits to my GP later and I'm still not much further forward.
I'm a 43 year old female. In October 2013 I was diagnosed hypothyroid and began treatment of 50mg levothyroxine per day. Because the bitter taste started relatively soon after beginning the medication, I put 2 and 2 together and thought it was causing the taste. But, no, I took myself off the medication for 3/4 weeks over Christmas and still had the bitter taste.
I've drastically altered my diet as I thought certain foods made it worse but can't pinpoint one particular allergy or sensitivity.......
I've changed toothpaste, tried mouthwash, cut out tea, milk, all dairy, and mainly eat very healthily - fruit, veggies and chicken.
My GP suggested LPR (silent acid reflux) but it doesn't taste like 'acid' - it's just bitter/sour.
I've been on Gaviscon after every meal for over a month and Ranitidine for almost 2 weeks. The symptoms persist still
My mouth can get quite dry, and the bitter taste seems to be on my tongue and/or the roof of my mouth or around a wisdom tooth on one side.
I can't cope with this for much longer. It only eases up when either sleeping or eating.
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Does anyone have this should it be affecting my teeth and jaw they are agony on top of the burning.
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So frustrated search for posts containing burning mouth click on them and it doesn't take you to them. Does anyone know of any links between BMS and venlafaxine.
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Does anyone else out there have this. I'm going through daily hell need some relief ideas please
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I have a taste which at first was metallic it's now sometimes salty.
The roof of my mouth and tongue feels like i had scalded it like with a hot drink though I haven't.
My mouth gets dry and it's worse then.
I take venlafaxine antidepressant, and I'm thinking is it this.
Do you suffer for this? And if so what's it symptoms or have you got rid off it.
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I have been taking Effexor for many years and have recently been diagnosed with Burning Mouth Syndrome. Anyone have this condition and taking Effexor?
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I have had what feels like my mouth has been scalded, aching roots of my teeth, blisters in my mouth, swollen gums, swollen tongue, taste buds swollen. Gums split. Some days teeth shift from the swelling on my gums. Have swollen salivary glands under chin each side of throat. Talking worsens it considerably. I have had no diagnosis yet! I have had this for 9 months. It is so painful it consumes me. Sleeping causes this to go away. Upon waking I feel normal. I put off talking, eating or drinking until as late as 2:00 pm. Then the cycle begins all over again. I've tried, so many home remedies. Seen an Oral Surgeon who believes this is Systemic. Just waiting for blood results to come back on being tested for Lupus and Rheumatoid Arthritis as my elbow and knee joints have almost crippled me. My knees are swollen.
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I have had BMS for several years. It has worsened to the point of being almost unbearable. I have taken an anti viral drug, tried vitamins and Alpha Lipoic Acid. I am now taking a medication for nerve pain. If anyone has BMS and have had successful treatment, please post this info.
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Has anyone else been diagnosed with this syndrome and takes venlafaxine? It's driving me insane
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Amongst other things I have a terrible burning mouth,nose and tongue. It tastes metallic and sometimes it is hard to swallow. I also have a buzzing face and headaches with it.
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Is anybody familiar with this uncomfortable mess in the mouth?
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has anyone had or have burning mouth syndrome before having the Oral lichen planus?
i had the BMS about 6-7 years before getting OLP.
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It's been about 2 weeks that my mouth, tongue and lips are burning. No fever and nor runny nose. No coughing, headaches, and any other symptoms.
Today I saw my pharynx and found some red small scratches. I also feel some phlegm coming down from the nose to the throat.
I took a tablespoon of honey and I felt relief.
I'm experiencing a anxiety crisis and I'm wondering whether it could be due to that.
Can you guys give me some orientation?
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Does anyone else suffer from constant tooth ache and burning mouth with anxiety?
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My doctor doesn't seem to have a clue what is wrong and has given me antibiotic cream, steroid cream and now antifungal tablets nothing seems to improve. This has been going on for over 3 months and there has been no change.
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How do i make this go away? so its really read and irritated burns to touch and air hurts it a lot. its not here constantly but is pretty close comes and goes. my doc said contact dermatitis but everything he's given me seems to make it worse. Only helpful thing to rid of the terrible pain is cold. like ice and such. how does it leave me alone and can you tell me what it is?
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Until a few weeks ago I thought I was a success story here but I fear I'm a complete failure and I don't understand why or what is best to do.
A few weeks ago my lpr symptoms started sneaking back despite my taking 40mg nexium and 40mg domperidone per day and also Gaviscon Advance.
My symptoms are lump in throat, horrendous burning mouth and horrendous chest pain.
I'm waiting on a ph test but that's in 6 weeks and I won't see the GI consultant for another couple of weeks after that. Each day seems to be a bit worse and now it's hurting to swallow,and food is getting stuck. I'll be honest, I'm terrified I've got something awful. The pain is constant, both in my mouth and throat and in my chest. I've been in floods of tears.
My gastroscopy at the end of April was clear apart from Barrett's, the one I had before that when I had these symptoms ( before ppis) showed grade 2 oesophagitis and Barrett's.
I have a gp appointment tomorrow and don't know what to do? Do I insist she sends me back to the GI as my symptoms have radically worsened? Is there any way of lessening the symptoms ( I have already made all the lifestyle mods and drink alkaline water)
I'm at a loss, just don't understand why this is happening to me. So scared my oesophagus is getting damaged again. I just don't know what to do. This condition is ruining my life.
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I have sjogrens ad have for many years now. The other night I was eating and I alway drink before I take a bite of food. I started to eat and began choking on my food which got into my esophagus. It was stuck.i tried to get it to go down and tried to get it out. No luck. I was scared to death and in a panic. I called 911. Heard the sirens and said tis that for me? Yes the paramedics were there they took me to the ER at the hospital. They tried o give me two shots and a nito under my tongue. This was to relax the esophagus. That didn't work so ER doc called in an anesthesiologist to put me out and a gastrointestinal doctor to do an endoscopy. It was now 5 1/2 hours I was sure I was going to die. I was so so scared. It was sourdough bread. It was so good. But I will never eat it again . I have tried vovox and salavert but had side effects so had to stop taking. I don't know what to do unless I eat only soft foods. Does anyone have this problem or suggestion for what I can do. I don't want to become paranoid of food because it was so bad.
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I'm a 45 yr old woman.Had flu like symptom middle of March 2016. Since then was not able to keep food down for a month. In the last -4 weeks, I've got dry eyes, dry mouth, don't sleep fro more than 2-3 hours per night as I am woken by palpation and exhaustion.This morning I woke up with very tight feeling in my thigh muscles.I had to massage them to loosen them. In the morning, I have to eat as soon as I get up .even then I'm left with continuously feeling tired .Can't sleep it off . Slightest activity gives me palpitation and and exhausting feeling.Since Middle of March I've had various investigations (Ct head ,neck ,abdomen and pelvis,ultrasound scan of liver ,gastroscopy ,24 hour heart monitor ,heart echocardiogram -all normal)My bloods were normal too except for liver function (ALT and AST) which are improving too.I'm at my wits end .awaiting to see a rheumatologist who will hopefully shed some light.The worst part is not being able to sleep for more than 2-3 hours per night,the inability to move about without getting extreme exhaustion and the lack of appetite together with very dry mouth when eating.
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I was told i have Sjogren's syndrome and now about a week ago i got this burning on top of my head and to be honest it is unbearable i need to know what can i do please help me it reach to the stage am always crying the burning is too much it feels like it is going inside my head and also i have alot of face pain.
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A month ago I was fine, no pain, no aches, nothing.
Then a small burning ache started in a precise spot on my right thigh.....then my breasts started to hurt.....then my elbow on my right arm..... Both sides of my ribs under my armpits.....my shin on my left leg and my inner thigh......then my whole left arm from wrist to armpit.
I feel like I've just been punched all over!
Blood Tests - normal
Urine test - normal
Stool sample - normal
ECG - normal
The pain isn't all the time, but in short sharp or short burning aches, it's stopping me from sleeping properly and its sometimes really scary when I get a sharp pain in my chest and left arm. It takes my breath away sometimes
I also get these strange "rushing" feelings in my chest/head when I lay down to sleep at night. Its almost like the rush you get when something makes you jump, but it lasts only a few seconds then it's gone. But I can have 3 or 4 of them in a row. But of course it's quite scary when you've no idea what they are.
Been in and out of doctors for weeks now and spent nearly £100 on prescriptions that haven't helped.
Been put on Amitriptyline 10mg for the pains but no change yet after a week, will keep taking for now though.
Im not convinced it's Fibromyalgia, but my doctor isn't the easiest to talk to.....
If anyone has any insight and can help me understand this all or maybe has any ideas please comment.
I'm 28, only other issue is PCOS but that doesn't give me much hassle.
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